Medical Forum / Diseases and Disorders / Alzheimer's / July 2005
What experience re nutrients.
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Brian Fletcher - 30 Jun 2005 01:24 GMT I've been catching up on Dr Harmon's postings.
Has anybody here noticed any effects by introducing various supplements, or in fact identifyed the lack of particular nutrients in the history of sufferers?
Thanks in advance
Brian
Tumbleweed - 30 Jun 2005 06:13 GMT > I've been catching up on Dr Harmon's postings. Well, there's your mistake.
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Dennis P. Harris - 30 Jun 2005 10:07 GMT > I've been catching up on Dr Harmon's postings. there's nothing to catch up on --- he's a crank and a troll.
most of us have him killfiled for good reason.
Brian Fletcher - 30 Jun 2005 12:17 GMT Thanks guys. I didnt know, being new here. He looks convincing with all the cross referencing etc..
Regardless, has anyone had such experiences/observations with nutritional variations?
>> I've been catching up on Dr Harmon's postings. >> > there's nothing to catch up on --- he's a crank and a troll. > > most of us have him killfiled for good reason. pitirish - 30 Jun 2005 12:38 GMT > Thanks guys. I didnt know, being new here. He looks convincing with all > the cross referencing etc.. All he knows, he learned from Christopher Lloyd. (Think "Back to the Future.")
pitirish
Evelyn Ruut - 30 Jun 2005 13:42 GMT > Thanks guys. I didnt know, being new here. He looks convincing with all > the cross referencing etc.. [quoted text clipped - 7 lines] >> >> most of us have him killfiled for good reason. Hi Brian,
(nice to see you again)
Harmon is a total troll. Just block him like the rest of us have. He just clutters up the newsgroup with endless parrotted text. He has no interest in discussion.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Brian Fletcher - 30 Jun 2005 14:29 GMT Hi Evelyn
So we "will" go on meeting like this :-).
Can you recommend any links re nutrition or "wholistic" approaches?
Has there been much posted here on this subject? I'm sure there must have been.
Its always better to hear "from the horses mouth"....
Thanks
Brian
>> Thanks guys. I didnt know, being new here. He looks convincing with all >> the cross referencing etc.. [quoted text clipped - 15 lines] > just clutters up the newsgroup with endless parrotted text. He has no > interest in discussion. Evelyn Ruut - 30 Jun 2005 15:13 GMT > Hi Evelyn > [quoted text clipped - 10 lines] > > Brian LOL! and so we do continue meeting :-)
Hi Brian,
We found that a daily multivitamin was helpful, but a lot of any additional customizing of a vitamin regimen should depend on the particular individual and their particular needs.
In my mother in law's case, she needed a calcium/magnesium supplement due to thinning bones. I do know that one fellow here had his wife on a customized regimen of certain vitamins, including extra vitamin E and C, and especially the E has been reported as helpful. I would give a fish oil tablet daily too, simply because it good for cholesterol health, and certainly can't hurt. You may also take note that fish oil may help with alzheimers as well due to its effect on the plaques that appear in the brain being made up of a cholesterol like substance, from what I have read.
So you may need to work with your loved one's particular needs that way, and customize supplementation.
Some help has been found with anti-inflammatory over the counter stuff, but one must be careful with that. A baby aspirin daily would help prevent cardiovascular stuff and has a mild anti inflammatory effect as well as some small degree of help for alzheimers. Gingko Biloba has been shown to help memory, but one absolutely must be careful with it, since it has a blood thinning effect, and many elderly people are on blood thinners or aspirin therapy, and it shouldn't be combined. So be careful if you are going to use it, don't combine the two. Decide which one you want to use, but not both, and certainly ask your doctor or pharmacist, with regards to combining with prescription meds.
We gave my mother in law a Tylenol PM every night which helped her fall asleep and there has been some research that said it was helpful otherwise also for alzheimers disease.
I would strongly advise that you take advantage of the wonderful prescription medications that are available today for alzheimers. Reminyl, Namenda, Aricept, Excelon..... all help with memory because they actually work with the faulty brain chemistry. There was a VAST and noticeable difference for the worse, when we stopped Ida's Aricept and tried her on Excelon instead. Namenda is the newest, and I understand it works best combined with Aricept. Reminyl, is also known as Galantamine, is available without a prescription in health food stores. Some can be taken together, some cannot. But they do work and they are in some instances VERY effective, and depending on the type of dementia some have said they didn't work at all. YMMV, as always.
Also it is important to know that there is additional pharmaceutical help available for delusions and agitation. My mother in law was really and truly suffering from her delusions and we couldn't calm her down. The doctor prescribed Risperdol, which seemingly made her almost "normal" in her every day life. The trick is to be a very keen observer and know your patient very well.
My mother in law needed two pills a day but later when her abilities began to wane even more, we cut her to one a day (of the Risperdol). Ultimately as her illness progressed even more, it was removed altogether. It had a time when it was really needed, but that time passed and it was no longer helpful, but actually became a detriment, since it had some effect on continence issues.
Never forget, all these various meds have side effects. Some adjust over time, and some get worse. In my mother in law's case, she started out with upset stomach from the Aricept, but later was able to tolerate it very well, and even to increase the dose when needed without any problem.
The Risperdol has one side effect of increasing ones blood sugar, if not to actually bring on diabetes. We felt it was worth the side effects, but it is always an individual thing, and if you cannot adjust the persons diet to limit the amount of carbohydrates and sugar while on this medication, it might not be.
There are no miracles in the vitamin and herb areas, and believe me I researched. The prescription meds were most helpful. Maintaining good healthy practices, routines, food, and such, was the best way.
Oh, and lest I forget.... TIME is very important. I always gave her medications after dinner. It minimized the gastric symptoms that way.
One more thing; and that is that recognizing that this is an organic brain disease that is ultimately terminal, is very important. Unnecessary testing, invasive procedures and such may create more problems than they are worth, with your loved one, especially anything involving anesthesia. A great many have reported their loved ones never regained the level of function they were at, after being anesthetized for anything.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Anthony Shipley - 01 Jul 2005 02:47 GMT <I's a'bin snippin' soemwhat>
>Reminyl, is also known as Galantamine, is available >without a prescription in health food stores. Some can be taken together, >some cannot. But they do work and they are in some instances VERY >effective, and depending on the type of dementia some have said they didn't >work at all. YMMV, as always. What does Reminyl cost over there (say 28 tabs of 8mg)?
>Oh, and lest I forget.... TIME is very important. I always gave her >medications after dinner. It minimized the gastric symptoms that way. Yes, yes!
Have I mentioned that taking my Reminyl after dinner, i.e. prior to sleeping, has pretty much got rid of the nausea.
>One more thing; and that is that recognizing that this is an organic brain >disease that is ultimately terminal, is very important. Unnecessary >testing, invasive procedures and such may create more problems than they are >worth, with your loved one, especially anything involving anesthesia. A >great many have reported their loved ones never regained the level of >function they were at, after being anesthetized for anything. Even for the low doses of dental work? Can you cite any study relating anesthesia and dementia?
- Mind control is being able to make all the voices in your head take turns.
Mod as a hooter!
Anthony Shipley - 01 Jul 2005 02:51 GMT >Even for the low doses of dental work? Can you cite any study relating >anesthesia and dementia? Oops! Sorry about that. I'd forgotten about the recent discussion of anesthesia--bad boy!!
- Mind control is being able to make all the voices in your head take turns.
Mod as a hooter!
M. John Matlaw - 03 Jul 2005 10:48 GMT Can you tell me, if you know, which medications might be better taken after eating. My mother talks less and less and would probably not recognize the connection if there was one, but she seems to not feel well from time to time (that's as much detail as she's able to give) and I'm wondering if there may be some connection. She's taking Namenda twice a day and Aricept once a day. (And Quinapril for high blood pressure once a day.) I'm up rather late so I generally make us something to eat after I wake up around noon. I start her off with a bowl of cereal while I prepare the other stuff after which I give her the three pills. The second Namenda pill comes late at night without food - though she might have some of the supper that she hasn't finished from earlier in the evening.
About a year ago when she'd occasionally say she felt sick, though it seemed to go away by itself after an hour or two. After this happened a couple of times I took her to the hospital. Best they could tell she had non-bleeding diverticulitis and after that I changed her diet and the not feeling well got less frequent. At some point, what with continued digestive problems (really loose stool) she got an upper GI and they said she had gastric folds. She's also down to about 3 teeth so it's pretty much ground meat and soft foods. Still, there are occasional problems, these days it's intermittant really hard stood. The doctor recommended colace so I give her one of those occasonally. Not sure, but I think it might function as a mild laxitive. I also have a feeling I'm not supposed to give her it on a regular basis. At any rate, it's not a constant problem.
I know one can only expect incontinance to increase - it's become a lot more frequent in the past couple of months - but figuring out what to feed her is a bit of puzzle. Prune juice or milk of magnesia causes near instant results so I figure that's too much and have stopped using them. The gastro guy says bms 2 or 3 times a week is ok, nothing to worry about. I'm giving a high fiber cereal and fresh squeezed oj and a half a grapefruit so I figure she should be getting enough fiber.
I guess one of the bad things about this disease is that they can't help you to help them.
John
> Oh, and lest I forget.... TIME is very important. I always gave her > medications after dinner. It minimized the gastric symptoms that way. Tumbleweed - 03 Jul 2005 12:04 GMT > Can you tell me, if you know, which medications might be better taken > after eating. My mother talks less and less and would probably not > recognize the connection if there was one, but she seems to not feel well > from time to time (that's as much detail as she's able to give) and I'm > wondering if there may be some connection. She's taking Namenda twice a > day and Aricept once a day. <snip> a known (and oft reported here) side effect of aricept is nausea. Anthony S who is a sufferer takes it at night (IIRC) so hes asleep and doesnt notice it, you could search for his messages here, also ISTR my father taking it before food but again search here for what others do. Finally, quite a few have reported nausea at 10Mg but none at 5mg (thats the usual starting dose), so cutting the usual 10mg tablet in half and spreading the dose over the day might help.
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Anthony Shipley - 04 Jul 2005 05:51 GMT >a known (and oft reported here) side effect of aricept is nausea. Anthony S >who is a sufferer takes it at night (IIRC) so hes asleep and doesnt notice [quoted text clipped - 3 lines] >dose), so cutting the usual 10mg tablet in half and spreading the dose over >the day might help. Reading this now, at 1pm, it doesn't give me much satisfaction telling you that I am--right now--feeling nauseous. Also, I've not been on Aricept for about 2 months and am taking 60mg Reminyl.
Halving the tablet, might well be worth it. Any experience of that, anybody?
- Mind control is being able to make all the voices in your head take turns.
Mod as a hooter!
livefree@ordie.com - 04 Jul 2005 13:28 GMT >Reading this now, at 1pm, it doesn't give me much satisfaction telling you that >I am--right now--feeling nauseous. Also, I've not been on Aricept for about 2 [quoted text clipped - 6 lines] > >Mod as a hooter! My Mom takes 8mg twice a day with meals. Ihope you meant 16 mg instead of 60. Adequate fluid seems important.
"REMINYL® (galantamine HBr) is available in 4-mg, 8-mg and 12-mg tablets and oral solution (4 mg/mL). REMINYL should be taken twice a day, preferably with the morning and evening meal. Patients and caregivers should be advised to ensure adequate fluid intake during treatment. It is recommended that treatment start with 4 mg (white tablets) twice a day for at least 4 weeks and then continue with 8 mg (pink tablets) twice a day for at least 4 weeks.
After 4 weeks of treatment with 8 mg twice a day, your doctor will evaluate the effects of REMINYL and decide if treatment should continue with 8 mg twice a day or be increased to 12 mg (orange-brown tablets) twice a day. "
http://www.us.reminyl.com/html/rem/consumer/pd_galantamine.xml;jsessionid=N14GOE DNDPSXGCQPCCFTC0YKB2IIQNSC?article=index_galantamine.jspf
or http://www.us.reminyl.com/
The last one says Reminyl is now Razadyne, and the extended release form of it can be taken once a day. I don't know if they changed anything to make it less nauseating to some. http://www.drugstore.com/pharmacy/drugindex/rxsearch.asp?search=razadyne&expand= Razadyne+ER&trx=1Z5007
Bill
bill - 04 Jul 2005 13:31 GMT I forgot I had that email listed, this may be more appropriate, although on July 4th, live free or die seems good.
"Live free or die" is on license plates in Rhode Island I believe, manufactured by prisoners :)
Bill
Adelle - 03 Jul 2005 18:45 GMT John,
Others have spoken about Aricept and meals, so I'll leave that one to them.
Please check with the pharmacist or someone at doc's office about mixing grapefruit and medication. Grapefruit has been known to increase the amount of medication getting into the bloodstream. I know this is true for some cardiac meds; not sure about blood pressure ones.
Adelle
> Can you tell me, if you know, which medications might be better taken > after eating. My mother talks less and less and would probably not [quoted text clipped - 38 lines] >> Oh, and lest I forget.... TIME is very important. I always gave her >> medications after dinner. It minimized the gastric symptoms that way. Karen - 03 Jul 2005 19:33 GMT It's true on blood pressure medication, some anti-depressants, IIRC some cholesterol lowering drugs. Definitely something to watch for.
------------------- Grapefruit Interactions Are Confusing: http://www.healthcentral.com/peoplespharmacy/408/60825.html ------------------
Karen
> John, > [quoted text clipped - 49 lines] > >> Oh, and lest I forget.... TIME is very important. I always gave her > >> medications after dinner. It minimized the gastric symptoms that way. Songbird - 03 Jul 2005 21:44 GMT > John, > [quoted text clipped - 7 lines] > > Adelle Some BP meds as well -- my hubby is definitely off grapefruit. And I don't eat it because it tears up my stomach.
Songbird
Anthony Shipley - 04 Jul 2005 06:03 GMT >Please check with the pharmacist or someone at doc's office about mixing >grapefruit and medication. Grapefruit has been known to increase the amount >of medication getting into the bloodstream. I know this is true for some >cardiac meds; not sure about blood pressure ones. May I hazard the general suggestion that such "advice" be qualified by a url or a reputable source?
- Mind control is being able to make all the voices in your head take turns.
Mod as a hooter!
Adelle - 04 Jul 2005 06:17 GMT >>Please check with the pharmacist or someone at doc's office about mixing >>grapefruit and medication. Grapefruit has been known to increase the [quoted text clipped - 5 lines] > url or > a reputable source? No you may not.
It was covered in the general media at least two years - TV news, medical section of papers, etc. Have more things to do with my time than start looking for a url when it doesn't change the advice - John needs to check with a pharmacist and/or doctor about interactions.
Unless you are trying to tell us you no longer have the ability to frame a search, do the search yourself if you really want a url. Each person does what they can and what they choose. Don't expect someone else to do the work for you. Especially while you can still do it for yourself. One day it will be beyond your abilities. Enjoy the benefits of being capable while you still can.
Adelle
Tumbleweed - 04 Jul 2005 07:42 GMT >>Please check with the pharmacist or someone at doc's office about mixing >>grapefruit and medication. Grapefruit has been known to increase the [quoted text clipped - 5 lines] > url or > a reputable source? I think that would be "the pharmacist or someone at doc's office " :-)
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Gwen Love - 04 Jul 2005 23:23 GMT That's what she said! Gwen
> >>Please check with the pharmacist or someone at doc's office about mixing > >>grapefruit and medication. Grapefruit has been known to increase the [quoted text clipped - 7 lines] > > I think that would be "the pharmacist or someone at doc's office " :-) Songbird - 05 Jul 2005 19:58 GMT > John, > [quoted text clipped - 7 lines] > > Adelle Some BP meds as well -- my hubby is definitely off grapefruit. And I don't eat it because it tears up my stomach.
Songbird
Dennis P. Harris - 01 Jul 2005 05:38 GMT > Can you recommend any links re nutrition or "wholistic" approaches? > > Has there been much posted here on this subject? I'm sure there must have > been. groups.google.com to search the archives.
Brian Fletcher - 02 Jul 2005 01:52 GMT Thanks. Dennis.....
>> Can you recommend any links re nutrition or "wholistic" approaches? >> >> Has there been much posted here on this subject? I'm sure there must have >> been. > > groups.google.com to search the archives.
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