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Medical Forum / Diseases and Disorders / Alzheimer's / June 2005

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Boydette - 01 Jun 2005 00:58 GMT
I have opened a discussion group for bipolar disorder and related mental
health issues...hope yall dont mind me posting this in here  but i feel
it is important as there are NO bipolar support groups for webtvers on
this subject...BTW I am fine hope yall are too...LOVE B

Maxine says:

Ever notice that the very people that tell you to calm down are the ones
that got you mad in the first place?
Gwen Love - 01 Jun 2005 01:17 GMT
Good luck with it.
Gwen

> I have opened a discussion group for bipolar disorder and related mental
> health issues...hope yall dont mind me posting this in here  but i feel
[quoted text clipped - 5 lines]
> Ever notice that the very people that tell you to calm down are the ones
> that got you mad in the first place?
Evelyn Ruut - 01 Jun 2005 01:33 GMT
>I have opened a discussion group for bipolar disorder and related mental
> health issues...hope yall dont mind me posting this in here  but i feel
[quoted text clipped - 5 lines]
> Ever notice that the very people that tell you to calm down are the ones
> that got you mad in the first place?

Hi Boydette,

I hope you are doing well and that all is peaceful with your family.
Don't be a stranger around here.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Boydette - 01 Jun 2005 03:27 GMT
Hi guys sorry I didnt mean to just hit and miss....I stopped venting in
here cause I felt I was more of an irritant....things are about the
same....you know how it goes each day is a new adventure....me and sis
are finally on an equal wave length and right now its just pretty much
letting the chips fall where they may....mom is still living alone and
we had an ordeal a few weeks ago when landlord had her car towed and she
reported ME to the local police and I had NOTHING to do with it...anyway
we got over that issue and now she doesnt even remember she had a car
but it was so stressful and scary as I thought I was gonna go to
jail....basically sis and I have decided to just let her free fall to
the point of no return....I know they may sound harsh but since we cant
seem to get any help till she completely "loses it" it is all we know to
do...we are keeping tabs on a daily basis but eventually I can see it
aint long now before she snaps.....sorry if this offends anyone...hence
is the health care system and the way seniors are treated in the great
USA...sigh....hugs and love to all who are dealing with this horrendous
disorder...LOVE B

Maxine says:

Ever notice that the very people that tell you to calm down are the ones
that got you mad in the first place?
Gwen Love - 01 Jun 2005 04:57 GMT
Boydette, I think that's about all you and your sister can do.  Good luck.
Gwen

> Hi guys sorry I didnt mean to just hit and miss....I stopped venting in
> here cause I felt I was more of an irritant....things are about the
[quoted text clipped - 18 lines]
> Ever notice that the very people that tell you to calm down are the ones
> that got you mad in the first place?
Evelyn Ruut - 01 Jun 2005 11:54 GMT
Boydette, that is sometimes all you can do in that situation.

Ida lost 30 lbs, was living on next to no food, and was so confused she
didn't leave her house for months, was filthy from not taking a shower for
god knows how long, but she insisted on staying alone in her house till she
got to that point.   Her neighbors actually protected her in that situation.

Finally there was no more choice anymore and she absolutely had to have more
care.  But it was shameful that it got to that point first.   In our
protection of individual rights, we sometimes go too far, especially after
someone has already been diagnosed with this awful disease.

Your venting here was no problem, I assure you.    Please keep us up to date
when you can.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

> Hi guys sorry I didnt mean to just hit and miss....I stopped venting in
> here cause I felt I was more of an irritant....things are about the
[quoted text clipped - 18 lines]
> Ever notice that the very people that tell you to calm down are the ones
> that got you mad in the first place?
Queenie - 01 Jun 2005 15:49 GMT
> Hi guys sorry I didnt mean to just hit and miss....I stopped venting in
> here cause I felt I was more of an irritant....things are about the
[quoted text clipped - 13 lines]
> USA...sigh....hugs and love to all who are dealing with this horrendous
> disorder...LOVE B

Dear Boydette..........Some people here will recognize me because I am an
"old-time" poster. My husband died of AD almost 4 years ago. This group was
so wonderful and supportive and I don't know how I could have gotten thru
without the wonderful posters here.   Of course, many of them are different
now, but eventually, we all get the drill!  I still check out this group
from time to time, and would love to participate at times, BUT............it
is exactly the stage of AD that you write of above that still sends chills
thru me! I went thru many of the situations that you, and others here, are
going thru. Every person afflicted with AD goes thru the stages differently.
My husband went wild! He was a very intelligent man (a schoolteacher) and in
the beginning, he still had the ability to figure out that something
terrible was happening to him. Of course, he was fast becoming paranoid and
delusional and I felt as tho I were living with 2 or perhaps 3 different
men!  Please Boydette, you do not "sound harsh" at all. Up to a certain
point, my son (bless him) and I come to the realization that save for a few
things we could do, we were powerless over my husband/his Dad. As for the
health care system, such as it is, they were of no help because "we cannot
take away a person's rights". I was told by the courts that never mind that
he behaves strangely, or talks about weird things, etc,, he is not breaking
any laws and has the right to behave this way!!! So I did a great deal of
praying, asking God to keep him safe until I could legally get him into a
hospital of some facility where he would be safe. Of course, I was his worse
enemy because I was the person who was taking away his car keys, then his
bicycle, double-bolting the doors, and whatever I could think of to keep him
safe...................Boydette, please do not be hard on yourself. You are
doing the best you can in a horrid situation, and, as you point out, there
is no one out there with solutions or help until the person is practically
comatose and/or heavily sedated. My husband became ill with this horrid
affliction some 14 years ago, and the situation is still the same so far as
outside help is concerned. Stick with the support groups because that is
where you will find your strength to do whatever needs to be done, let go of
all guilt (we did not give our LO's this disease), and recognize that you
are a wonderful, strong, loving person to even be attempting to help. My
prayers to you and all those still living with AD.
Boydette - 05 Jun 2005 05:57 GMT
Evelyn and Queenie....I am crying so hard right now I cant really type I
just wanted to say thanks for puttin into words the horror I and my
sister are going thru...some days I cry so hard for the mom I used to
know....we always fought but we always loved each other...there have
been times when I hate her but this is worse than death at least when
someone dies its over....to watch someone change before your very eyes
is just so horrible...she keeps telling me she so lonely part of me
feels sorry for her part of me thinks she deserves whats shes getting
since she never treated anyone with kindness....but I dont have it in me
to be mean to her just because she was mean to me....tears
flowing....thanks for understanding and helping me...B

Maxine says:

Ever notice that the very people that tell you to calm down are the ones
that got you mad in the first place?
Evelyn Ruut - 05 Jun 2005 12:42 GMT
> Evelyn and Queenie....I am crying so hard right now I cant really type I
> just wanted to say thanks for puttin into words the horror I and my
[quoted text clipped - 7 lines]
> to be mean to her just because she was mean to me....tears
> flowing....thanks for understanding and helping me...B

Boydette,

Yes, I do understand what you are going through.  This is the absolute WORST
time in this journey.........when the person is not yet in a situation that
is under control, trying to live alone, obviously in great danger to
themselves, but not quite bad enough that others have taken over.

The only way I can compare it, is when you were little and not able to make
decisons for yourself, and not quite the person you were going to be as an
adult yet, she had to look after you and make decisions for you too, but at
least she had the law and society on her side, since everyone realizes that
a child must be looked after, made decisions for, etc.

Alzheimers is so much the reverse of the natural progression, and we are
used to seeing the person as an ADULT who has been looking after themselves
for so long.   It is just so against the natural order of things to see them
becoming unable to look after themselves anymore, seeing them going
"backwards".  But that is the tragedy and the reality of alzheimers.

Boydette she is going to show occasional little glimpses of the mother you
always knew, but first she will probably continue to worsen enough, that she
is no longer able to live alone anymore, and it will be obvious to everyone
enough that something gets done about it.   Once that is all straightened
out, you will be able to visit her in peace without fear of her rages and
confusion.
Signature


Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Queenie - 06 Jun 2005 15:10 GMT
> Evelyn and Queenie....I am crying so hard right now I cant really type I
> just wanted to say thanks for puttin into words the horror I and my
[quoted text clipped - 7 lines]
> to be mean to her just because she was mean to me....tears
> flowing....thanks for understanding and helping me...B

Boydette...........Glad I could be of some help to you.
Ronny TX - 05 Jun 2005 22:13 GMT
> Web tvers an invitation  
>  
[quoted text clipped - 10 lines]
> too...LOVE B
> ---
Ronny:
I'm glad to hear you opened up this group.:-) I still remember the other
one, someone else started and how good it could be at times. :-) Found
that one the time I was searching for a good WebTV group on depression.

Never will forget my not thinking/knowing that there was such a thing as
mild, moderate and severe bipolar. Then someone posted an online webpage
with a test on it where you could see if you were bipolar. And I was
shocked to find out that I was at least mildly so! :-) LoL

Good luck with your new group Boydette!:-)
 
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