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Medical Forum / Diseases and Disorders / Alzheimer's / May 2005

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Dear August Repetitive

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Barb Boland - 18 May 2005 00:48 GMT
Hi August Repetitive & Others,

You are just scaring me now - of what is to come! Your parent or grandparent
must be in one of the last phases of this horrible disease. Please, God,
there has to be a soft place for our parents to land. This disease is
insidious - and I pray that there will be a cure soon. Not only to save our
parents (grandparents) ourselves. Let us not forget that this horrible
disease is heriditary.

Barb
Tumbleweed - 18 May 2005 00:52 GMT
> Hi August Repetitive & Others,
>
[quoted text clipped - 8 lines]
>
> Barb

No, that type of behaviour is later middle stage, not the last stages.
And apart from a few specific and rare types (usually the early onset type),
Az *is not* inherited.

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Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

augustwestern - 18 May 2005 19:28 GMT
> > Hi August Repetitive & Others,
> >
> > You are just scaring me now - of what is to come! Your parent or
> > grandparent
> > must be in one of the last phases of this horrible disease.

> No, that type of behaviour is later middle stage, not the last stages.
> And apart from a few specific and rare types (usually the early onset type),
> Az *is not* inherited.
>
> --
> Tumbleweed

Tumbleweed is correct. My MIL is in later middle stage. She knows my name
and her children's names consistently but often doesn't recognize her
grandkids. She really doesn't remember anyone else. She has zero memory of
her Drs or various health problems. She can't take care of her own meds and
won't even ask for medicine when she hurts. It's pretty much up to us to
figure out what's going on with her. She can't use the phone or microwave or
prepare any food. She can load the dishwasher and unload the washing
machine. She can't do the opposite of either task. She can make a bed better
than any army drill sergeant would require but would never change the sheets
unless helped. She has no sense of time and her days and nights are always
mixed up. She won't drink water unless you sit there and watch her. At least
her bowel function is good, she doesn't wander and she is currently past the
suspicious and accusatory stage. Thanks for reading my spiel.    AW
lee - 18 May 2005 01:13 GMT
I'm not worrying about the hereditary aspects of it - got my fingers crossed
that they'll have better treatments/a cure before then - and if not, oh
well.... I've got WAY more than enough to deal with at the present time
without expending energy worrying about things I can't control/change. My
partner is somewhat more concerned about it - but he's more than a decade
older than I, so I suppose that's why.

The one thing to remember about even the most unpleasant of behaviours, I
find, is that this too shall pass.... that is the ONLY thing that I find the
least bit positive about all of this - that when confronted with a new
behaviour, I can be quite sure that it will not last ....  of course,
realistically, quite often the ~next thing~ is generally not an improvement
either ....  but I prefer not to focus on that either! And sometimes,
truthfully, the new 'developments' (not the right word, since they all come
from LOSSES, I suppose) .... are sometimes easier to deal with.

> Hi August Repetitive & Others,
>
[quoted text clipped - 8 lines]
>
> Barb
Evelyn Ruut - 18 May 2005 01:16 GMT
> Hi August Repetitive & Others,
>
[quoted text clipped - 8 lines]
>
> Barb

Dear Barb,

It isn't a definite inherited thing.   There is an inherited factor, but it
isn't always the way.

There are probably many worse ways to die than alzheimers, but tell me
please, is there some "good" way to die?

Yet we are all going to die at some point.

It is not worthwhile to dwell on it if it destroys the enjoyment of the life
we have now.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Steve...has tiger firmly by tail - 18 May 2005 02:58 GMT
"There are probably many worse ways to die than alzheimers"

 I'm sure there are but Alzheimers robs a person of all dignity. and
"living with AZ is near impossible without a support system.

"but tell me
please, is there some "good" way to die?"

at 94, shot by your 30 yr old girlfreind's jealous spouse?

This journey scares the bejees out of me,but the information gleemed
here from all of you is a powerful help... it's said that misery loves
company, but I wish that none of us were in this club
Evelyn Ruut - 18 May 2005 10:48 GMT
> "There are probably many worse ways to die than alzheimers"
>
[quoted text clipped - 9 lines]
> here from all of you is a powerful help... it's said that misery loves
> company, but I wish that none of us were in this club

Too true.

My father is 93, he feels like s--t most every day.   There isn't anything
wrong with his mind (at the moment).   If he had a 30 year old girlfriend he
probably forgot what he was supposed to do with her.    When I talk to him
he cries and wishes he could go.

On the other hand, my mother in law who was 84, was somewhat unaware due to
her illness.   Others did the worrying for her.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Tumbleweed - 18 May 2005 08:01 GMT
> There are probably many worse ways to die than alzheimers, but tell me
> please, is there some "good" way to die?

I can think of some but I'm not going to post them here :-)

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Songbird - 18 May 2005 13:12 GMT
Yes, quietly, in one's sleep, after a long, happy and productive life,
secure in the knowledge that you have loved and been loved. My
great-grandfather simply went to bed one night and did not wake up in the
morning. It was a massive coronary, and the doctor said if he was aware of
any pain at all, it was just a minute or two.

Give me that over cancer, ALS, MS, or AD any day.

Songbird

>> There are probably many worse ways to die than alzheimers, but tell me
>> please, is there some "good" way to die?
>
> I can think of some but I'm not going to post them here :-)
Mary_Gordon@tvo.org - 18 May 2005 15:10 GMT
I agree! My grandfather died at 93, having outlived two wives (my
grandmother who he was married to for 57 years, and then a lovely
neighbour lady he married in his 80's), three children, twelve
grandchildren, twenty two great grandchildren. Still living
independently in his own house, still had his marbles, still fairly
active (he only gave up the car at 91). Got pneumonia and it carried
him off quickly and gently.

Doesn't get much better than that. If that were my fate and I knew it,
I'd do cartwheels!  I think everyone's nightmares include any slowly
degenerative illness that makes one dependent.

Mary G.
Dennis P. Harris - 19 May 2005 09:44 GMT
> Yes, quietly, in one's sleep, after a long, happy and productive life,
> secure in the knowledge that you have loved and been loved. My
[quoted text clipped - 3 lines]
>
> Give me that over cancer, ALS, MS, or AD any day.

my grandfather, at age 99, had just had his drivers' license
renewed, was actively building a rock garden (lifting 60-70 lb
rocks) and seemed in excellent health.  after working in the
garden most of the morning, he ate lunch, wrote in his journal,
told his wife he was going to take his usual hour after-lunch
nap, and didn't wake up, just drifted off into a comatose state
which lasted about 3 days as his body shut down.  he died at
exactly 99 days and 6 months.

of course he died 3 days before the mother's day reunion at my
aunt's house, and i had flown in a week ahead of time to help her
cook and get ready, on the afternoon he went into the coma.

the one plus is that i finally got to meet my mystery uncle, my
father's half brother that i had never met.
 
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