Medical Forum / Diseases and Disorders / Alzheimer's / July 2005
Newbie question
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Wolf's Ladyhawke - 12 May 2005 05:30 GMT Hi all,
I'm a newbie here and pretty new to all this. I just have a couple of questions. My mother was diagnosed with dementia ( leading into Alzheimers). What I need to know is do people with this condition have a tendacy to repeat the same phrase, ask the same questions over and over and over again? Usually within seconds of asking or saying something? Can they really forget that soon what they were just talking about?
Is there anyway to divert someone off of a subject and onto something else? I really appreciate any help you all can give.
More questions to come.
Thanks, Ladyhawke
Tumbleweed - 12 May 2005 09:30 GMT > Hi all, > [quoted text clipped - 5 lines] > again? Usually within seconds of asking or saying something? Can they > really forget that soon what they were just talking about? yes yes yes and YES!
> Is there anyway to divert someone off of a subject and onto something > else? Usually. Depends on the circumstances etc. As an example, you'll see many instances quoted here where for example someone might want to know where their baby or child is and is distressed about their absence.***The baby or child does not exist or was a baby 70 years ago***. Usually the best course of action would be to say something like 'they are being looked after by <insert name of relative> for an hour' rather than 'you dont have any <young children/a baby' since that will just distress them to no effect. In their reality, they DO have young children, and you simply are not going to be able to convince them of that fact. And heres the irony ...even if you could convince them, they would forget and ask again a minute later so you really would be wasting your time. If they want to go 'home', then its 'yes we are going in an hour', if they want to drive, then 'the car is being mended will be fixed tomorrow' etc etc etc, rather than 'you are home' or 'you arent allowed to drive its too dangerous'.
Move into their reality as much as you can in these circumstances. Arguing uses up your energy, may cause them distress, and accomplishes nothing. (easier to type that than sometimes do it in practice I admit, took me a long time to learn that :-)
> I really appreciate any help you all can give. > > More questions to come. > > Thanks, Ladyhawke
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Glenfiddich - 12 May 2005 09:49 GMT >Hi all, > > I'm a newbie here and pretty new to all this. Welcome to this place where no one chose to come.
>I just have a couple of questions. > My mother was diagnosed with dementia ( leading into Alzheimers). What >I need to know is do people with this condition have a tendacy to >repeat the same phrase, ask the same questions over and over and over >again? Usually within seconds of asking or saying something? Can they >really forget that soon what they were just talking about? I'm afraid so.
> Is there anyway to divert someone off of a subject and onto something >else? Yes, sometimes - if you can think of something more important to her than what she's asking. Offering a drink or cookie or asking her to help you with something might work. Otherwise, you'll just have to be as patient as you can.
Yes, it's extremely annoying, but do keep reminding yourself, it's the disease talking - she *really* can't help it. I say that because in the early stages she'll seem so normal that it's easy to forget. Sadly, with time you'll get used to it...
>I really appreciate any help you all can give. >More questions to come. The gang is always here for you - though don't *always expect an answer in the middle of the night!
Wolf's Ladyhawke - 13 May 2005 15:32 GMT Sorry, I work second shift, trying to juggle mom and work. Too young to retire and I'm sure not rich. Ladyhawke
Songbird - 16 May 2005 00:12 GMT Oh I don't think anyone was fussing -- just saying be patient, we're all around the world, and people are on at all kinds of odd times.
Songbird
> Sorry, > I work second shift, trying to juggle mom and work. Too young to > retire and I'm sure not rich. > Ladyhawke Evelyn Ruut - 16 May 2005 01:55 GMT Hi Songbird,
How did the 'pow-wow' with your dad go?
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Songbird - 16 May 2005 21:33 GMT Thanks for asking, Evelyn. It took me til today to get it arranged. I sat down with him at the church office (go to him, make him feel less threatened <G>). He is now backtracking on his comment that she is slipping fast. He says he sees *some* losses but nothing he can't handle. "I'm not willing to put her into AL yet," he said. "Neither am I and they wouldn't take her," I said. (Which I suppose is not true -- if she had no one to take care of her, she would have to go to AL or something similar.) He says it has gotten to him on occasion, but he is learning to look at things with humor. Every time she empties the dishwasher is a scavenger hunt, he says. Everything ends up in the kitchen, just in wacky places, and the pizza cutter went totally AWOL. But he wants her to keep "helping" as much as she can, and she would want to, so he has just learned to hunt, and fortunately it is a small kitchen.
He waits for her to ask for help, and I told him we needed to be more pro-active about that. I gave him specific examples of how *I* was doing that without saying "and you're not." I reminded him that when he goes out, she can't remember where he's gone or when he will return, so he needs to leave her a note. (The time will come when that doesn't work either, but for now it still does.) I got him to admit he doesn't know how to use the cell phone, which is why he doesn't carry it. I've shown him several times -- guess maybe I need to start watching him for memory loss as well.
I think there may be some other physical problems with her as well. When they first moved I took her to all her doctor's appointments, and Dad started taking that over once he started feeling better. But he admitted today that he was not going back to the exam room with her, even though I had asked if he were comfortable with that. OK, dementia patient alone with doctor. What communication do you think does NOT take place? We agreed I will take that job back.
Actually, what he got most upset about was when I told him that the most important thing to me was that he and I be able to work together as father and daughter to take care of her and that I feared being priest and parishioner would set up conflicts that would interfere with the familial one. Therefore, I will not be attending church while he is there. I am already getting dragged into conflicts between him and some of my best friends. The best option would be for him to not be in that post, but since he is set on taking it, I have no option than to remove myself. I hit him where the ego is on that one, I guess.
It was a very polite conversation, but Dad tends to be a little passive-aggressive, so we'll see what happens next. I dropped something by the house lately and he was definitely cool to me, but not so Mom would notice. Sometimes he takes what I say and suddenly three days later it will be *his* idea. "I've been thinking we should..." and out comes whatever I proposed. So I am hoping this will work here. If not, there will be more courageous conversations. I'm ready to start saying, "Dad, take Mom's arm up those stairs," and if he glares at me, he glares. Fortunately, he does not have death-ray vision. <G>
Songbird
> Hi Songbird, > > How did the 'pow-wow' with your dad go? Jo Ann Malina - 12 May 2005 12:01 GMT Wolf's Ladyhawke <Our_Dragonfly@yahoo.com> is alleged to have said:
> Hi all, > [quoted text clipped - 5 lines] > again? Usually within seconds of asking or saying something? Can they > really forget that soon what they were just talking about? 'Fraid so. They don't just forget the answer you gave to the question, they forget having asked the question. So they ask it again. As you are evidently finding out.
> Is there anyway to divert someone off of a subject and onto something > else? > I really appreciate any help you all can give. Yes, divert and distract. It may not always work, but try, especially something that won't result in more repetitive questions. Ask her to help pair socks or fold laundry. I'll ask my mother if I should bring her some cash when I go to the bank; that sets her to counting her money and otherwise examining the contents of her purse.
> More questions to come. Others will dive in here shortly. In the meantime, read "The 36 Hour Day" by Nancy L. Mace. It will help orient you. It also includes a page and a half of things that can cause memory and other cognitive problems besides Alzheimers -- sounds like you may have gotten an uncertain diagnosis.
You can get used or new copies from: http://www.powells.com
 Signature Jo Ann Malina, make spamthis best to find my address It is not every question that deserves an answer. -- Publius Syrus, _Maxims_
Ronny TX - 12 May 2005 17:30 GMT Newbie question Group: alt.support.alzheimers Date: Wed, May 11, 2005, 9:30pm (CDT-2) From: Our_Dragonfly@yahoo.com (Wolf's Ladyhawke) Hi all,
Ronny: Hey. :-)
WL: I'm a newbie here and pretty new to all this. I just have a couple of questions. My mother was diagnosed with dementia ( leading into Alzheimers). What I need to know is do people with this condition have a tendacy to repeat the same phrase, ask the same questions over and over and over again? Usually within seconds of asking or saying something? Can they really forget that soon what they were just talking about?
Ronny: Yes,they can.
WL: Is there anyway to divert someone off of a subject and onto something else?
Ronny: You've already been given some good ideas on this;but just lately I figured out another variation for me and my Mom. I usually have the TV on for her,so when she keeps asking me to take her home- she's home already of course-when she does that though I will sometimes just point at the TV and say,look at that or did you see that? And a lot of times that will get her mind and worry off of needing to go "home". But such may have to be done 2 or 3 of more times in a short period of time for it to work.
WL: I really appreciate any help you all can give. More questions to come. Thanks, Ladyhawke
Ronny: You're welcome and feel free to ask anything you need to! :-) Or to fuss & gripe & vent too. That can come in real handy at times too! LoL
Wolf's Ladyhawke - 13 May 2005 15:29 GMT Thanks, To all who answered my post. Its so hard to accept. One minute she the same ole mom, then she gone again. This is very heart breaking. ladyhawke
Evelyn Ruut - 13 May 2005 15:33 GMT > Thanks, > To all who answered my post. Its so hard to accept. One minute she the > same ole mom, then she gone again. This is very heart breaking. > ladyhawke It is a painful process, it is true. She will need your continued patience and understanding through this journey, and you need to stay strong for her and for yourself.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Nati - 15 May 2005 01:57 GMT Ladyhawke wrote "One minute she the same ole mom, then she gone again. This is very heart breaking."
It is heartbreaking Ladyhawke, i am so sorry. Let me wipe your tears. That is what awaits me maybe too. Who knows. Nati
Ronny TX - 17 May 2005 15:27 GMT Re: Newbie question Group: alt.support.alzheimers Date: Fri, May 13, 2005, 7:29am (CDT-2) From: Our_Dragonfly@yahoo.com (Wolf's Ladyhawke) Thanks, To all who answered my post. Its so hard to accept. One minute she the same ole mom, then she gone again. This is very heart breaking. ladyhawke
Ronny: That is the hard part. That is the really hard part. But by and by you began to accept that there are just somethings you can't change or do anything about. This takes time. And that there is just no getting around,so you go through it. Or better put,you enter into it and somethings do get easier over time.
pitirish - 27 Jun 2005 04:22 GMT > Hi all, > [quoted text clipped - 5 lines] > again? Usually within seconds of asking or saying something? Can they > really forget that soon what they were just talking about? Folks who suffer from AD do not "forget" what was just told to them. AD causes them to lose the ability to assimilate incoming information, both spoken and seen. They are more likely to consider their questions to have been unasked, than to consider them to have been asked and unanswered. Look for similar behavior regarding the "loss" of familiar objects which are in plain sight. Unfortunately, the people who post here have dealt with these problems and they offer excellent counsel to those of us in need.
pitirish
genileuqcaj@aol.com - 04 Jul 2005 02:47 GMT > > Hi all, > > [quoted text clipped - 15 lines] > > pitirish What has been a godsend for me and my father in dealing with my mother is music. Is there a "big band" station on the radio in your area? Try that, or check out what's avaiable in stores. We have the entire Time-Life "Fabulous Fifties" series, among others. Also helpful is the TMC channel (Turner Classic Movies), if you get cable.
I'm 35 and stopped working last year to look after Mom full-time. The way I see it, I can always get another job in the future. I only have one mother....
Tumbleweed - 04 Jul 2005 09:16 GMT >> > Hi all, >> > [quoted text clipped - 5 lines] >> > again? Usually within seconds of asking or saying something? Can they >> > really forget that soon what they were just talking about? Last weekend I told my dad about 20 times in 10 minutes how old he was when he asked because he was looking at his birthday card. He forgot he had asked the question, (and what the the answer was), within I'd say, 5 seconds, several times. At best he'd go 10 seconds. Its as if the connection between short term memory and long term memory simply isnt there. Its beyond forgetting because that implies there was a memory there. The memory obviously wasnt even created in the first place, (or certainly not the long term memory.)
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
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