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Medical Forum / Diseases and Disorders / Alzheimer's / May 2005

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Stutter & Aphasia(Karen/all)

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Ronny TX - 06 May 2005 06:58 GMT
Karen,I just read in another post where you mentioned your MIL's
stuttering and aphasia to Faith. Karen to Faith:"I don't think she's
going to be able to communicate verbally that much longer. She developed
a stutter and aphasia about a year ago and it's getting worse."

I've noticed that my Mom has just started stuttering some over maybe the
last 6 months. And at times she tries to get the words out,tries to tell
me something and things just don't work right for awhile or maybe never
on what she was trying to say to me/ask me? I'm just guessing on this
right now;but I would guess this happens once a week or so. It's just
not that often so far; but of course it started bothering me as soon as
I noticed it. I just hate the idea of my Mom not being able to
communicate. And I'm wondering if there is anything at all that might
help with this? And if there isn't,then is there any average time at all
between the time these symptoms first show up to the time a person with
Alzheimers can communicate very little or not at all by talking?
Karen - 06 May 2005 13:36 GMT
Ronny, I was told it hits everyone differently.  There was one gentleman at
my MIL's place that was physically in very good shape (former coach) but the
caregivers told me his ability to talk was one of the first things he lost.
My MIL will sometimes use the wrong word which can be rather cryptic.
Example: one day we had brought her the usual weekly chocolate shake (to
check her dental work) and she kept calling it a cheeseburger.  I've been
told one of the valuable things about Aricept and other drugs like that is
to delays the average length of time for this symptom to show up.

My MIL had been showing small signs and then went through a month of
pronounced decline on speech.  She's come back a bit but is worse than she
was before.  And you're right -- it is hard to watch them struggle to get
out a word or two.

Karen

> Karen,I just read in another post where you mentioned your MIL's
> stuttering and aphasia to Faith. Karen to Faith:"I don't think she's
[quoted text clipped - 12 lines]
> between the time these symptoms first show up to the time a person with
> Alzheimers can communicate very little or not at all by talking?
Evelyn Ruut - 06 May 2005 14:30 GMT
> Ronny, I was told it hits everyone differently.  There was one gentleman
> at
[quoted text clipped - 14 lines]
>
> Karen

Hi Karen and Ronny,

The strangest thing about the speech issue with Ida was this;  You may
remember that I always feared she would lose her ability to speak in English
and only remember her Estonian (mother tongue) and it never happened.

I was so afraid she wouldn't be understood enough if she wanted to use the
bathroom or ask for something simple like water.   It was why we waited so
long to place her, because I thought it was going to happen that way, and it
never did.

She kept her ability to speak in English right through to the end.   Only
weeks before she died, Peter went to visit her one time without me, and she
asked for me!  (in fact I think I posted that here at the time).  I was
happily astonished that she was able to remember both of us by name, and to
ask for me when I wasn't there.

I think this illness affects different people in different ways.  The brain
is a complicated organ, and the issue can be further complicated by
mini-strokes etc.   We already know that there are variations according to
the different areas that tend to deteriorate first, as in FLD, Picks, etc.

Signature

Best Regards,
Evelyn

http://www.buddhistchannel.tv/index.php?index
(to reply to me personally, remove 'sox')

Anthony Shipley - 29 May 2005 13:18 GMT
>My MIL had been showing small signs and then went through a month of
>pronounced decline on speech.  She's come back a bit but is worse than she
>was before.  And you're right -- it is hard to watch them struggle to get
>out a word or two.

For what it's worth, I find that my speech is pretty normal except when I
transact some business and it fails me with the result that I don't get use the
right words and, invariably, have to resay or rephrase it.

-
Mind control is being able to make all the voices in your head take turns.

Mod as a hooter!
Mary_Gordon@tvo.org - 07 May 2005 02:00 GMT
I've told the story before - about  two years before she died, my MIL's
ability to speak just WENT over a period of about a couple of weeks.
She was about 4 years into the AD, and to that point had developed
fairly typical mid-later AD problems - word finding difficulties,
circumlocution (long shaggy dog stories that never got to a point or
answered a question), repeating herself, lots of problems understanding
what was said to her - even simple questions or directions would often
not get an appropriate response - it was like we were speaking a
foreign language.....probably not helped by her hearing problems, and
her deteriorating ability to read lips and interpolate, which had
always been her backup to her hearing aids.  All that was frustrating,
but you could usually get a no or a yes out of her to a direct
question. However, she underwent a period of fairly rapid deterioration
on the verbal front, and after that point, it was repetitive nonsense
syllables, with the odd intelligible word thrown in (ga,ga, ng,ng, ng,
ba, ba).  Every now and then, she would randomly come out with an
entire sentence that made some sense, but that was rare. Essentially,
after that point, verbal communication was next to impossible.

I don't there is a darned thing you can do to prevent it. If your
mother survives to the end stage of AD (as opposed to being carried off
by something else like Ida was), she will lose the ability to talk.

Level 7 (from Dr. Reisberg's stage definitions - this is the end
stage).
Very severe cognitive decline (Late Dementia or Severe AD). All verbal
abilities are lost. Frequently there is no speech at all - only
grunting. Incontinent of urine, requires assistance toileting and
feeding. Lose basic psychomotor skills, e.g., ability to walk, sitting
and head control. The brain appears to no longer be able to tell the
body what to do. Generalized and cortical neurologic signs and symptoms
are frequently present.

7a - Speech ability limited to about a half-dozen intelligible words
7b - Intelligible vocabulary limited to a single word
7c - Ambulatory ability lost
7d - Ability to sit up lost
7e - Ability to smile lost
7f - Ability to hold up head lost  

Mary G.
 
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