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Medical Forum / Diseases and Disorders / Alzheimer's / April 2005

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How to deal with complete resistance?

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Ingrid Voigt - 20 Apr 2005 20:51 GMT
Hi,

I have lurked in this group for a while but not written
anything myself so far, but my mother and I need some
helpful advice. It is about her mother, my grandmother,
now 87 years old. My mother is her sole caregiver, and
I am the one she calls when she needs to talk.

Grandma has always been quite a headstrong person. Taken
care of seven children, a few grandchildren who continued
to live in the house, had a job most of the time, never
accepted and never needed any help. Among her remarkable
traits is a profound dislike for anything involving
medicine. I don't think she has seen a doctor for about
30 years, not even when - after a bicycle accident - she
could hardly walk for weeks. This is becoming a problem
now, though.

Over the last few years her memory has becoming
progressively worse. It became obvious to everybody when
she started to check for hours (at all times of the day)
if she should cook dinner for the people in the house and
if all the doors are properly locked. Nowadays, it is no
longer possible to have a meaningful conversation with
her, she is so confused. She rarely seems to live in the
past, but usually doesn't know the time or the date or who
is at home. She also has become sort of moody, mostly
aggressive. As we couldn't get her to take a medical check
we can't be sure, but our laypersons' diagnosis is that
she is suffering from Alzheimer's.

So far, we could deal with it quite well. She finds her way
around the house, can still eat, watch television, do the
dishes and very light household work, sometimes even
crosswords. No reading anymore, though. She sleeps a lot
of the time in the rocking chair.

But recently, Grandma has begun having problems with her
personal hygiene. She has fallen in the bathtub and been
unable to get out. When the (locked) door was forced open
hours later, she was completely furious and insisted that
she had just been about to come out. No big problem either,
but since then, it has been hardly possible to get her
to wash. No coaxing, asking, repeatedly requesting does
help - she just won't go to the bathroom. Not for bathing,
not even for simply washing. Physically, she still can,
no assistance with washing is needed and will be accepted.
As Grandma also has an incontinence problem (which she
denies, so no chance to get her to use diapers), it is
becoming hard to stay in the living room with her. Even the
simple suggestion that she might get a haircut, because she
obviously can't manage a complicated hairdo anymore, was met
with storms of fury. Two days ago we tried a very direct
approach "You stink, go clean yourself", which didn't work
either. (That one was born of desperation - of cause it was
not a nice thing to say, but we thought it might help.) She
simply seems not to see the necessity of washing.

So... we are running out of options what to do with Grandma.
My mother has a full-time job, there are no family members
(including me) who could move in (though people try to visit
as often as they can). A day help would certainly not be
accepted and probably be thrown out very soon. And besides,
we don't think full care around the clock is needed: One can
leave Grandma alone at home, she won't run away or cause any
damage. A nursing home is not an option - this is the last
thing she wants.

But what else is there to do to help her keep clean - use
violence? That can't be the solution. So I'd be very grateful
for some suggestions about how to deal with this, approaches
we might try, whatever.

Thank you for your time
Ingrid

(PS: English is not my first language, sorry for all mistakes)
Lee - 20 Apr 2005 22:31 GMT
I wouldn't write off the idea of having someone come in  and at least try to
make some headway - they ARE trained to deal with people like your
Grandmother - and if it's presented to her as the choice is you co-operate
or we start looking for a nursing home, she might decide to choose the
lesser of two evils.

And even if  it doesn't work the first time, that doesn't mean it won't work
the next. If she DOES have Alzheimers or any sort of progressive dementia,
the one consistent thing is that it does not stay the same.

I would call and explain the problem to whatever agency you can get home
care from  - it WON'T be the first time they've dealt with it.

In the meantime, there are antibacterial wash solutions you might try - the
sort you use to clean your hands; don't need water?  they'd be better than
nothing.

My MIL was extremely resistant to having help - but we persisted. Started
with a 'cleaning lady' (trained Personal Support Worker) who was coming in
to help ME, not her ... SHE, of course, didn't need any help. Took awhile -
and she fussed about who was paying for THOSE PEOPLE - eventually I took to
telling her that the government was paying for them so that we could manage
with her at home; the government didn't want her to go to a nursing home any
more than she wants to.

We've had home care for more than a year now - these days, as soon as ANYONE
she thinks might be one of THOSE PEOPLE comes in the door, she starts
bugging for her bath. (Gets quite perturbed when it turns out it's not
someone that's here for her LOL)

> Hi,
>
[quoted text clipped - 73 lines]
>
> (PS: English is not my first language, sorry for all mistakes)
Wilma T Ward - 21 Apr 2005 04:03 GMT
We had the same problem.  Her Dr. even set up a visiting nurse.  None
the less adult protective services decided she needs to be committed to
a nursing home  and family can only visit with staff present as well.
Be careful.  

Thank You,

Wilma Ward
Evelyn Ruut - 20 Apr 2005 23:40 GMT
> But what else is there to do to help her keep clean - use
> violence? That can't be the solution. So I'd be very grateful
[quoted text clipped - 3 lines]
> Thank you for your time
> Ingrid

Hi Ingrid,

My mother in law wouldn't bathe either.  She got so bad....well, let me tell
you she couldn't have stayed another day in my home without a bath!   I will
never forget that first bath!

So her son, my husband, TOLD her in no uncertain terms that she was GOING to
take a bath, like it or not.   She argued and he really yelled.   He wasn't
backing down, no matter what.

He made her take her clothing off, (with her grumbling and complaining all
the way) and trotted her down the hall to our stall shower which was already
with a nice shower chair in it.   The shower head is on a hose, and he
supervised that first shower.   It was the shortest shower on record!

But somehow after she was clean and dressed again, smelling more like a
normal person, it was a lot easier to deal with her.

After that, he supervised that she would get undressed, delivered her to me,
and I showered her, and it got to be a regular ritual that she no longer
resisted.   She liked getting her hair dried and feeling clean again... we
all do!  Somehow when I helped her (being another woman) it was not a
problem anymore, but I always needed my husband to get her started because
she would argue she just had a bath.

So why do they resist so much?   Here is the problem;  People with
alzheimers have an awful time remembering SEQUENCES of actions.   Think
about it.  It takes a lot of organization and memory to take a shower.   You
have to get undressed, arrange for clean clothes, think about getting
shampoo and soap and what to wash first and to rinse well.... then get dried
off, and etc. etc. etc.  It REALLY is a very daunting task for someone whose
memory is impaired, and it is just too much for them.

My suggestion is that you may have to be firm about it the first time.  Be
firm but tell her you are helping her.  Get the clean clothes laid out ahead
of time, better yet, do it at bedtime when she has to get undressed anyway,
or else first thing in the morning before she has gotten dressed.    It just
makes it easier.    That was our best "bath trick"... just before bedtime
when she was already undressed, or just after awakening before she got
dressed.   It was just a more natural progression.

What I did was have my mother in law choose the water temperature which I
adjusted till it was just right, and the first thing I did was slap a
handful of shampoo on her head.    After that, she just went along for the
ride and stopped resisting it.   I also used those nice shower puffs, since
they get really soapy, and I gave her one to use and I used the other to get
the places she would miss.

I think that part of the resistance is being embarrassed at needing help and
not wanting to admit it.  That and the fact that it is just too complicated
a set of maneuvers for them.   You have to give them ONE small step at a
time through the whole process.

All through the bath she would grouse about "Okay, finished" when she was
not finished.  But while she was in there, I would say "not yet" and made
sure she was well washed and she always felt much better afterwards.    We
are all more comfortable when we are clean!

Signature

Best Regards,
Evelyn

(to reply personally, remove 'sox')

Dennis P. Harris - 21 Apr 2005 08:25 GMT
> So... we are running out of options what to do with Grandma.
> My mother has a full-time job, there are no family members
[quoted text clipped - 5 lines]
> damage. A nursing home is not an option - this is the last
> thing she wants.

Apparently the noise and water of bathing can be irritable or
cause a sensory overload for some folks with dementias.

You could get her into a day care program ( have them offer her a
chore to do as a "job" ) that could help her bathe.  You need to
do something soon before she starts getting things like yeast
infections, urinary tract infections, or sores that could become
infected.

Someone will simply have to bite the bullet and tell her she's
not in charge any more.  Her reasoner is broken, and she is not
likely to accept it easily, someone other than her must take
charge.  Go buy a copy of "The 36 Hour Day" by Mace and Rabin for
all info you needed to know yesterday.

The best thing to do would be to make an appointment for a
geriatric neuro-psychiatric assessment, and then take her there
on some pretext like visiting a friend, or taking her with you on
*your* appointment.  You might be able to get her on medication
that would improve her cognitive abilities once she was
diagnosed.  It wouldn't stop the decline but could slow it down.

And as far as leaving her home alone, how do you know she "won't
cause any damage"?  If she can't deal with the simple steps to
take a bath, you can't trust her to not set the house on fire or
flood it.  Try a little game.  Ask her to draw a clock face
showing the time at 2 p.m.  The result may shock you.
 
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