Medical Forum / Diseases and Disorders / Alzheimer's / April 2005
Ida- update
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Evelyn Ruut - 13 Apr 2005 12:37 GMT Hi everybody,
Ida still recognizes both her son and me. She is having a bit of a hard time breathing, so they are using a nebulizer to help. Her tummy is a bit distended due to the cancer, but she says she isn't in pain when we ask her. They give her pain killers whenever needed, which is good.
The woman has an absolutely amazing constitution, and she is still a class act, even when dying. We are OK with it all, and have adjusted to the situation, so don't worry. When hubby goes there without me, she never fails to ask for me. It is sweet that even now she can do that.
A little sad and wry chuckle.... she still asks to go home. We reply with the usual answer... in a few days if you are feeling better.
Hubby said yesterday that he thinks it is barbaric that we can put our beloved dogs gently to sleep when they have gotten that sick, but that it is not available to us human beings, and it just is so sad to see them suffer. We hope she passes soon, but it is anyone's guess how long.
 Signature Best Regards, Evelyn
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Karen - 14 Apr 2005 04:18 GMT Amen to that! We recently had to put our dog to sleep after a protracted health problem and afterward, my hubby and I were talking about the same topic. It's considered humane and allowing them to "die with dignity" when it's your pet. After the mess in Florida I told my Mom "Don't you EVER give my husband any hassle over an issue like that." I've had papers in place for awhile to ensure that legal snarl doesn't happen. And everyone in my family knows I want cremation even though my Mom hates the idea.
I'm not afraid of dying, just of dying slowly by inches and not being able to do anything about it. But then I always have been impatient. :-)
Karen
> Hi everybody, ----snip----
> Hubby said yesterday that he thinks it is barbaric that we can put our > beloved dogs gently to sleep when they have gotten that sick, but that it is > not available to us human beings, and it just is so sad to see them suffer. > We hope she passes soon, but it is anyone's guess how long. Evelyn Ruut - 14 Apr 2005 12:51 GMT > Amen to that! We recently had to put our dog to sleep after a protracted > health problem and afterward, my hubby and I were talking about the same [quoted text clipped - 10 lines] > > Karen Oh me too, Karen..... definitely me too.
I have papers signed and ready. You just never know.
A strange note, when I went in to the hospital a few months ago for surgery on my shoulder they asked me if I had a DNR signed. I am 63 but I look younger, and in no way did I look like someone who was ready to die, but they still asked. This may be a trend now. By the way, that was last November, long before the Florida mess was in the headlines.
About cremation... from an ecological standpoint, there is nothing worse than poisoning the land with embalmed bodies laced with chemicals. I heard about a lake that was downhill from a cemetery and there was nothing left alive in that lake. The embalming chemicals had leached down into the ground and poisoned it completely. I see that as bad karma.... and bad for our grandchildren.
I lived in NJ most of my life, and there are massive cemeteries there surrounded by industry and tenements where once it may have been suburban areas years ago. I don't want my remains to be in such a place where there is no way we can know what will happen in the future to an area. I would rather let my remains go back to the earth completely, and cremation would speed that.
According to my tibetan friends, dying is a process, not an event. They wait 3 full days after death to cremate. They believe that it takes 3 days for the complete process to happen, and that all the subtle bodily energies have dissipated by then. I asked the funeral director for that to be done when my mom died and I want it for myself.
 Signature Best Regards, Evelyn
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>> Hi everybody, >> [quoted text clipped - 5 lines] > suffer. >> We hope she passes soon, but it is anyone's guess how long. Karen - 14 Apr 2005 14:29 GMT > > Amen to that! We recently had to put our dog to sleep after a protracted > > health problem and afterward, my hubby and I were talking about the same [quoted text clipped - 40 lines] > have dissipated by then. I asked the funeral director for that to be done > when my mom died and I want it for myself. To me the preference for cremation comes partly from a repugnance of being able to picture the decay process (and the chemicals only make it worse) and partly from a sense the futility of trying to maintain some plot of land for the husk of a person whose essence has moved on to whatever. As well as that impatience again (Just get it over with and move on).
I'm 45 and I've had the papers done for 5 years. About 1 year after we started dealing with my MIL when I realized an auto accident could leave me in the same state.
Karen
Evelyn Ruut - 14 Apr 2005 15:31 GMT > To me the preference for cremation comes partly from a repugnance of being > able to picture the decay process (and the chemicals only make it worse) [quoted text clipped - 10 lines] > > Karen Good for you, Karen. I think that everybody who is of age, or even of the age to be able to drive ought to have some sort of preference stated, at least in some minimal form. These highly publicized cases help and a lot of people get moving to sign something then, but there are still too many people who have no paperwork in place for such an eventuality.
 Signature Best Regards, Evelyn
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Karen - 15 Apr 2005 04:54 GMT One thing came out of the recent case in the news... my brother (who never wants to deal with "that stuff") has agreed to a document signing party at our BD party (our birthdays are 10 days apart so we combine). I have the docs on my computer for POA, Medical POA, Directive and Designation of Guardian in case of need. I'm doing them up for the rest of the family, we're inviting 2 witnesses and a notary over and get everyone done!
That'll be a load off my mind.
Karen
> Good for you, Karen. I think that everybody who is of age, or even of the > age to be able to drive ought to have some sort of preference stated, at > least in some minimal form. These highly publicized cases help and a lot > of people get moving to sign something then, but there are still too many > people who have no paperwork in place for such an eventuality. Evelyn Ruut - 15 Apr 2005 13:47 GMT > One thing came out of the recent case in the news... my brother (who never > wants to deal with "that stuff") has agreed to a document signing party at [quoted text clipped - 6 lines] > > Karen That is a wonderful idea! Hope more people do that.
 Signature Best Regards, Evelyn
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Gwen Love - 15 Apr 2005 17:50 GMT Karen, what a very good idea! Gwen
> One thing came out of the recent case in the news... my brother (who never > wants to deal with "that stuff") has agreed to a document signing party at [quoted text clipped - 13 lines] > > of people get moving to sign something then, but there are still too many > > people who have no paperwork in place for such an eventuality. turkey in the straw - 16 Apr 2005 04:32 GMT One more thing i would like to say.I totally disagree with the advice to stay away until something bad does happen.How could anyone do that to there aged parents? It IS our responsibility to care for them just as they did us when we were children.How cruel it would have been had they sent us outside to play at 2 yrs.of age and left us there until something bad happened.Do whatever you can but do Not wait until something awful happens.Your opportunity just might pass you by.JMO,Barb
Dennis P. Harris - 16 Apr 2005 07:56 GMT > One more thing i would like to say.I totally disagree with the advice to > stay away until something bad does happen.How could anyone do that to > there aged parents? It IS our responsibility to care for them just as > they did us when we were children. Which most folks would do if the AD person would allow it.
If the AD person will *not* voluntarily relinquish control of finances they obviously can't handle, or properly handle medications but refuses to let anyone help, you sometimes just have to go away and let them get into trouble.
it's not cruelty at all if there *is* no other way to get them to accept help. and if the parent is abusive to caregivers, the parent will have to suffer the consequences, just as we did when we were their children and misbehaved.
it's not anyone's responsibility to take cruelty, abuse, and exploitation. not all family relationships are wonderful, you know.
Evelyn Ruut - 16 Apr 2005 12:51 GMT > One more thing i would like to say.I totally disagree with the advice to > stay away until something bad does happen.How could anyone do that to [quoted text clipped - 3 lines] > something bad happened.Do whatever you can but do Not wait until > something awful happens.Your opportunity just might pass you by.JMO,Barb Hi Barb,
You are absolutely right, but remember we live in a country where the civil rights of an individual are valued highly.... so much so that it has to be really obvious that they aren't capable any more to almost everyone.
Then you have the tendency of people around the other person trying to hide the situation, thinking that they are being taken advantage of. We went through that with Ida early on.
And as Dennis mentioned, not all families are in agreement.
I don't remember if you were posting here at that time, but there was absolutely nothing we could do! She had a couple of friends and a couple of neighbors, all of whom were doing their best to keep her "protected" from facing the truth, even though she had been diagnosed and the doctor told us that she should not live alone anymore!
We were two hours away, both of us full time employed and we had to take day after day off of work to bring her to various medical and dental appointments. It was very taxing! When finally a diagnosis was in place, she did not want to leave her home and we had no place to put her.... not to mention that we were reluctant to take on the job at first (for very good reasons).
It took us a few months till we sold our house, bought another house that was bigger, and for my husband to pursuade her to "come stay with us for a few days". By that time the situation was really dire and the protecting neighbor finally called us and told us that she had to go somewhere and soon, because nobody (of the neighbors) wanted to take care of her anymore. We got her that very day!
But before that, can you imagine how scared we were that something dire would happen? She was threatening to kill herself by jumping off the roof of her house to everyone, and it was too much of a challenge to her to even take a bath, much less to contemplate what it would take to put her life in order.
It took a long time to get her to come out of the house, even on the ruse that it was a visit. When we finally did that, her life took a great turn for the better, and she was a great deal happier. She was eating regular meals and we supervised her meds, and we got her into a daycare center. That was in 2001. She stayed here with us, happy, clean, fed, and loved and cared for at home, till last April or May when we were forced to put her into a local nursing home because her illness had gotten that much worse.
But I will NEVER forget those awful early days, when we knew she was not capable of caring for herself, but she wouldn't leave her house. You can't drag someone kicking and screaming out of their home.
Not every person who is sick with alzheimers disease enough to need care LOOKS that way to strangers. They can often pull themselves together for a moment or two, or even a day, or even a doctors visit, and only their closest loved ones know what is REALLY going on. Ida was that way, and so was Dennis' mother, and others here have also noticed that.
Not every person who is sick enough to need care is inclined to recognize that fact themselves either.
The waiting is the hardest part of all, but in this country where civil rights are valued, that is often the only course available.
 Signature Best Regards, Evelyn
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Dennis P. Harris - 15 Apr 2005 05:25 GMT > A strange note, when I went in to the hospital a few months ago for surgery > on my shoulder they asked me if I had a DNR signed. I am 63 but I look > younger, and in no way did I look like someone who was ready to die, but > they still asked. This may be a trend now. By the way, that was last > November, long before the Florida mess was in the headlines. they were doing that when i had my knee scoped 9 years ago.
Evelyn Ruut - 15 Apr 2005 13:46 GMT >> A strange note, when I went in to the hospital a few months ago for >> surgery [quoted text clipped - 4 lines] >> > they were doing that when i had my knee scoped 9 years ago. It's a real good idea, anyway. Everyone who has reached the age of majority should have one. They ought to make it a necessary part of getting a drivers license or something..... Keeping people alive for years who have no hope of recovery, are brain dead, and can't function in any way, is breaking the system for those who need it, and besides which it is immoral, in my opinion.
 Signature Best Regards, Evelyn
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Songbird - 15 Apr 2005 17:08 GMT >> A strange note, when I went in to the hospital a few months ago for >> surgery > on my shoulder they asked me if I had a DNR signed. I am 63 but I look > younger, and in no way did I look like someone who was ready to die, but > they still asked. This may be a trend now. By the way, that was last > November, long before the Florida mess was in the headlines. My hubby had gallbladder surgery 7 years ago at age 40 and they asked him same thing. (Caught HIM off-guard!!!) Our hospital -- and I suspect others -- ask that routinely of anyone who could be admitted overnight. He didn't have to stay but might have, had there been complications.
Songbird
Anthony Shipley - 25 Apr 2005 11:49 GMT >I'm not afraid of dying, just of dying slowly by inches and not being able >to do anything about it. But then I always have been impatient. :-) In some ways, Alzheimer's gives it's victims the opportunity to do something about it. The worst--it seems to me--is getting the timing right.
As somebody who has the disease, there's some comfort that you can intervene for yourself and remove the burdon of care, but guessing when the time is right, must be very hard. More so, I guess, for somebody who believes in a god.
- Mind control is being able to make all the voices in your head take turns.
Mod as a hooter!
Ronny TX - 15 Apr 2005 16:26 GMT Evelyn,it is always nice to read your posts about Ida. :-) And I'm always glad to hear she is not in pain and that she has pain meds if needed!
Not saying much right now. Stayed up way too late last night and still trying to wake up late this morning! LoL Ronny
Evelyn Ruut - 15 Apr 2005 17:14 GMT > Evelyn,it is always nice to read your posts about Ida. :-) And I'm > always glad to hear she is not in pain and that she has pain meds if [quoted text clipped - 3 lines] > trying to wake up late this morning! LoL > Ronny Me too. Something about "spring fever" ..... :-)
 Signature Best Regards, Evelyn
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