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Medical Forum / Diseases and Disorders / Alzheimer's / February 2005

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Rosie leans

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John Inzer - 20 Jan 2005 01:30 GMT
When sitting on the edge of the bed
Rosie leans to the left. She doesn't
support herself with a hand on the
bed...she just leans. It seems to be
comfortable for her. Has anyone
else noticed this type of behavior?

One of the rare times when Rosie
actually communicates, occurred
this morning. My wife asked her...
"Mother, why are you leaning?"

Rosie replied, "Because I want to."

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Gwen Love - 20 Jan 2005 01:55 GMT
John, Grayson used to lean also, either to side or back.  I couldn't dress
him while he was sitting on the bed because of it.  He would fall over if I
didn't stop him.
Gwen

> When sitting on the edge of the bed
> Rosie leans to the left. She doesn't
[quoted text clipped - 9 lines]
>
> Rosie replied, "Because I want to."
turkey in the straw - 20 Jan 2005 03:35 GMT
John,
  My mom also leans to one side and does not use her hand to hold
herself up on the bed.Barb




John Inzer - 20 Jan 2005 05:07 GMT
> John,
>   My mom also leans to one side and does not use her hand
> to hold herself up on the bed.Barb
============================
Thanks Barb, sounds like the same
thing Rosie does. I wonder if it is
related to the inner ear in some way?

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John Inzer - 20 Jan 2005 05:05 GMT
> John, Grayson used to lean also, either to side or back.
> I couldn't dress him while he was sitting on the bed
> because of it.  He would fall over if I didn't stop him.
> Gwen
=============================
Thanks Gwen. Rosie won't fall over but
as it progresses she may lean further.

And...if she sits in a rocking chair, she
will rock as long as she sits in it.

Maybe I'm the sick one but somewhere
in all this darkness of despair I see lots
of humor also.

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Ronny 1 - 20 Jan 2005 07:19 GMT
> Re: Rosie leans  
>  
[quoted text clipped - 16 lines]
> in all this darkness of despair I see
> lots of humor also.
Ronny:
John,you're not sick to see the humor in somethings. In fact,if you
don't see that and laugh at times,you will probably make yourself sick.

Just recently my 84yo Mom found one of her bras that I had recently
washed,so she decided she needed to put it on and she did;but she put it
on over her house dress. Or I should say over the 2 or 3 house dress's
she was wearing at the time! LoL Then awhile back she decided that her
pull up Depends made a great hat! Well,they sort of look like old
fashioned bonnets if you put one on your head the right way! LoL And you
better believe I was very happy that she used only the new,dry and clean
Depends for that! LoL So yeah,you gotta laugh at somethings and it's
good for a person to do that.
Ronny
turkey in the straw - 21 Jan 2005 02:56 GMT
Ronny,
  That is too cute and funny.Cute bonnet though.Barb




devout chocoholic - 02 Feb 2005 01:48 GMT
>> When sitting on the edge of the bed Rosie leans to the left. She doesn't
support herself with a hand on the bed...she just leans. <<

Mom never leaned but her left leg was always slightly bent and up in the air.
She would bring the leg out and back in, out and back in as if she was pushing
something out of the way.  This movement would be all day.  No matter how hard
we tried to put the leg down and straight it would go right back up.

>> One of Grayson's very few times of speaking in the NH was when I said, "You
want me to love you don't you" as I hugged  him.  And he replied "not
necessarily!"  Sounded so like him before AD my daughter said that he knew
exactly what he was saying. <<

There was a gathing over in the smoking area.  A lot of people talking, smoking
and listening to some music.  It seem like they were having a good party and I
asked mom if she wanted to go over and join the party, be a part of the
festivities.  Usually she would just say lub lub lub sis sis sis sis sis sis.
Well this time she said plain and clear as day, "No thank you I'm not
interested right now."  I wanted to knock on her noggen(sp?) and say, "Mother
are you in there."  After that she went back to her usual talk of lub lub sis
sis sis.  The clear as day moments were rare but oh how I loved them when they
happened.

  411 for newbies to E!
http://hometown.aol.com/bandannamo/myhomepage/index.html
Gwen Love - 20 Jan 2005 01:59 GMT
One of Grayson's very few times of speaking in the NH was when I said, "You
want me to love you don't you" as I hugged him.  And he replied "not
necessarily!"  Sounded so like him before AD my daughter said that he knew
exactly what he was saying.
Gwen

> When sitting on the edge of the bed
> Rosie leans to the left. She doesn't
[quoted text clipped - 9 lines]
>
> Rosie replied, "Because I want to."
John Inzer - 20 Jan 2005 05:08 GMT
> One of Grayson's very few times of speaking in the NH was
> when I said, "You want me to love you don't you" as I
> hugged him.  And he replied "not necessarily!"  Sounded
> so like him before AD my daughter said that he knew
> exactly what he was saying.
> Gwen
=====================================
LOL....sounds like he still had his sense of humor.

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Dennis P. Harris - 20 Jan 2005 04:04 GMT
> When sitting on the edge of the bed
> Rosie leans to the left. She doesn't
> support herself with a hand on the
> bed...she just leans. It seems to be
> comfortable for her. Has anyone
> else noticed this type of behavior?

yes, it's a common AD symptom
John Inzer - 20 Jan 2005 05:11 GMT
> yes, it's a common AD symptom
=============================
Thanks Dennis, are you aware of any
websites that address the issue? My
wife would be interested in reading
about it.

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Evelyn Ruut - 20 Jan 2005 11:10 GMT
> When sitting on the edge of the bed
> Rosie leans to the left. She doesn't
[quoted text clipped - 9 lines]
>
> Rosie replied, "Because I want to."

John, Ida leans too.   I wonder if it could have something to do with the
sense of balance being out of kilter?  She has no balance and falls easily
too.

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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Mary_Gordon@tvo.org - 20 Jan 2005 11:45 GMT
Must be very common. This article on falls mentions the same tendency.
http://www.agelessdesign.com/nl0101-Falls1.htm

Mary G.
John Inzer - 20 Jan 2005 18:48 GMT
> Must be very common. This article on falls mentions the
> same tendency.
> http://www.agelessdesign.com/nl0101-Falls1.htm
>
> Mary G.
==========================
Thanks for the link.

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John Inzer - 20 Jan 2005 18:45 GMT
> John, Ida leans too.   I wonder if it could have
> something to do with the sense of balance being out of
> kilter?  She has no balance and falls easily too.
========================================
You had mentioned earlier that Ida is prone to falls but
I was unaware that she was leaning also. You may be
right about the sense of balance...maybe the inner ear
is affected. I wonder if they feel dizzy?

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Evelyn Ruut - 20 Jan 2005 18:49 GMT
>> John, Ida leans too.   I wonder if it could have
>> something to do with the sense of balance being out of
[quoted text clipped - 4 lines]
> right about the sense of balance...maybe the inner ear
> is affected. I wonder if they feel dizzy?

It's possible.  In Ida's case she had scarlet fever as a child which left
her hearing impaired in one ear and the other is deaf.  I assumed that some
of that ear stuff may have affected her balance.  Now that I am hearing of
others who also have leaning/balance issues, I would now think it might have
more to do with the alzheimers.

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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Boydette - 23 Jan 2005 09:11 GMT
John your story kind of tickled me....they can be so silly
sometimes....sounds like my dad....he rolls around in a wheelchair and
is perfectly able to walk....when asked he says "Cause I want to"
too...LOL
Humor is always a good thing to ease the stress

Rosie leans  

Group: alt.support.alzheimers Date: Wed, Jan 19, 2005, 8:30pm (CST+1)
From: oobie@doobie.xyz (John Inzer)
When sitting on the edge of the bed
Rosie leans to the left. She doesn't
support herself with a hand on the
bed...she just leans. It seems to be
comfortable for her. Has anyone
else noticed this type of behavior?
One of the rare times when Rosie
actually communicates, occurred
this morning. My wife asked her...
"Mother, why are you leaning?"
Rosie replied, "Because I want to."
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John Inzer - 25 Jan 2005 03:27 GMT
> John your story kind of tickled me....they can be so silly
> sometimes....sounds like my dad....he rolls around in a
> wheelchair and is perfectly able to walk....when asked he
> says "Cause I want to" too...LOL
> Humor is always a good thing to ease the stress
=========================================
Hi Boydette,

Good to see you again.

Yes, they can be comical at times and I
guess humor is the best way to try and
deal with this vicious disease.

Rosie fell a few nights ago, (nothing
serious, just a couple of bruises).
The nurse asked her how she fell...Rosie
replied, "Just like everybody else".

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Gwen Love - 25 Jan 2005 17:16 GMT
Good for Rosie!
Gwen

> > John your story kind of tickled me....they can be so silly
> > sometimes....sounds like my dad....he rolls around in a
[quoted text clipped - 14 lines]
> The nurse asked her how she fell...Rosie
> replied, "Just like everybody else".
Jerry's Daughter - 25 Jan 2005 23:37 GMT
When my father leans, it means he is having A VERY BAD DAY.   He
contorts himself to ways I wouldn't think humanly possible.    On those
days, he is _completely_ out of it and also falls.

My father is in a nursing home.   I tried to take care of him here for 2
yrs, but I couldn't do it any longer.    The guilt I feel will never go
away. But I just couldn't do it.

He was in a home that I was very comfortable with, but as he got worse,
they couldn't care for him properly.   Right after Christmas, I moved
him into a new place in an Alzheimers Unit.
I wake up in a panic every morning and I just want some peace, I want a
good nights sleep so bad.

My grandsons live here part time and they always looked forward to the
visits of seeing "PaPa"   We had a routine, the 3 yr old would hold his
hand and lead him to the vending machines and to the bird cages.   The 1
yr old would sit in his lap and laugh.   But since the move, I can't
take them any longer.   I took them once to the new place and they were
terrified.   The Alzheimers Unit is a scary place for children.... and
me,  I pray not for my dad.
My heart breaks, I keep thinking this will get easier as time passes,
but it does not.   This doesn't get any easier.

I will leave on a lighter note, as "Preacher" did for me:
I was walking out the door last night, "Preacher" a patient told me a
joke:  
What's the fastest way of communication?
?
Telephone, Telegraph, and Tell A Woman.

I had to laugh as I was leaving that place.....
Gwen Love - 26 Jan 2005 01:00 GMT
Dear Jerry's daughter, you are not allowed to feel guilt.  It is not
necessary.  Each of us have done the best we could with what we had to work
with and the information we possessed at the time, and that is all anyone
can possibly do.  Not only are you better off with your father in a place
where people work in shifts and have time to rest and recuperate between
shifts, but so is he.  The time comes when it is just impossible to look
after someone 24/7.  A person has to have time to look after themselves and
the others in their family.
It may sound foolish, but back when I started posting on this NG there
really weren't too many of us.  A few of us had already decided that we
would not feel guilty.  There were 7 of us who each took one day of the week
to feel guilty for all the rest, so the others were free of guilt.  Believe
it or not, many said it helped.
Gwen

> When my father leans, it means he is having A VERY BAD DAY.   He
> contorts himself to ways I wouldn't think humanly possible.    On those
[quoted text clipped - 28 lines]
>
> I had to laugh as I was leaving that place.....
Anthony Shipley - 26 Jan 2005 01:26 GMT
>My father is in a nursing home.   I tried to take care of him here for 2
>yrs, but I couldn't do it any longer.    The guilt I feel will never go
>away. But I just couldn't do it.

You're doing yourself an injustice!

A.D. strikes primarily at the caregiver. Were your father in a position to
decide, I'm quite sure that he would prefer to be in a nursing home than knowing
the burdon his sickness is placing on his loved ones.

I am in that position, and I certainly don't want my wife to become a slave to
this disease. There is no need for there to be 2 victims. The personal cost of
my wife caring for me at home is not worth the difference it's going to make to
me.

h.t.h.

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Evelyn Ruut - 26 Jan 2005 03:27 GMT
>>My father is in a nursing home.   I tried to take care of him here for 2
>>yrs, but I couldn't do it any longer.    The guilt I feel will never go
[quoted text clipped - 16 lines]
>
> h.t.h.

Anthony you are a wise and kind man to realize that.  Thanks for posting it.
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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Anthony Shipley - 26 Jan 2005 04:12 GMT
>"Anthony Shipley" <astech@iinet.net.au> wrote in message
>>The personal
[quoted text clipped - 6 lines]
>
>Anthony you are a wise and kind man to realize that.  Thanks for posting it.

As long as she doesn't find out too soon :-p

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Evelyn Ruut - 26 Jan 2005 11:39 GMT
>>"Anthony Shipley" <astech@iinet.net.au> wrote in message
>>>The personal
[quoted text clipped - 9 lines]
>
> As long as she doesn't find out too soon :-p

The important thing is that you have discussed it, and left it as an option
for her.  So many people don't do that or instill awful guilt trips on their
loved ones making them promise never to put them in a facility, never
realizing what it means.  The fact you have not done that shows great
wisdom.

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Regards,
Evelyn

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Jerry's Daughter - 26 Jan 2005 16:19 GMT
Yes, I know I need to go to therapy re my father.   I have been putting
it off because discussing him makes me very upset, even right now.   And
yes, I know how stupid that sounds.

There is only one family member besides myself that will go see Dad.
Everyone else says "its too hard"    I used to beg them to go see him, I
gave that up a long time ago.   I no longer bring him up in
conversations and it's rare they ask about him.   It's as though he is
dead already in their minds.

I haven't ever been in nursing homes before.  I find myself looking
around and asking, "is this it?"   Im terrified I will end up there.   I
would rather die at an early age - I know that is a horrible thing to
say and I can't believe I feel that way.
My dad's life was in my hands.   The thought of my son taking care of me
if I get old, scares the living daylights out of me.     I have been
looking into long-term care insurance but so far, not able to afford it.

I appreciate the advice you all have given me.    Thank you.
Evelyn Ruut - 26 Jan 2005 17:09 GMT
> Yes, I know I need to go to therapy re my father.   I have been putting
> it off because discussing him makes me very upset, even right now.   And
[quoted text clipped - 15 lines]
>
> I appreciate the advice you all have given me.    Thank you.

Please keep coming here, I highly recommend it.   Although everything that
lives will eventually die (including us), it can be very beautiful in the
meantime if you only choose to let it be so.

It is very upsetting to visit a loved one in the alzheimer ward, I will
grant you that truth.   But it is still worth staying in touch, if only to
make sure they are being taken good care of.

My mother in law is always feeling cold.   Every time we came to see her,
even though the place was warm and comfortable, she felt cold.   So we made
them put a sweater on her EVERY day when she gets dressed.   So that is just
one little thing they do that would not have happened had we not been
frequent visitors to make sure of her comfort.
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Regards,
Evelyn

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Tumbleweed - 26 Jan 2005 17:34 GMT
> Yes, I know I need to go to therapy re my father.   I have been putting
> it off because discussing him makes me very upset, even right now.   And
[quoted text clipped - 4 lines]
> conversations and it's rare they ask about him.   It's as though he is
> dead already in their minds.

Yes I have many relatives like that.Not worth worrying about, you wont
change their attitude, you do whats importnat to you.

> I haven't ever been in nursing homes before.  I find myself looking
> around and asking, "is this it?"   Im terrified I will end up there.   I
> would rather die at an early age - I know that is a horrible thing to
> say and I can't believe I feel that way.

Not at all, I think many feel that way. However, you also have to look at
the people themselves. Are they happy/contented? many/most in my fathers
home seem to be. however, I have told my brother to push me off a cliff if I
go gaga before him :-)

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Evelyn Ruut - 26 Jan 2005 20:20 GMT
>> Yes, I know I need to go to therapy re my father.   I have been putting
>> it off because discussing him makes me very upset, even right now.   And
[quoted text clipped - 17 lines]
> home seem to be. however, I have told my brother to push me off a cliff if
> I go gaga before him :-)

Yes, we all value our minds and see our collection of memories as what and
who we really are.   When my mother in law realized she was losing
something, she threatened suicide all the time.  Knowing that she believed
in god I told her that there was a purpose for her life and that she should
stick around a while longer.   I cannot speak for her, but I think that the
three years she lived with us had to be pretty good for her.  Other than the
issues of her illness, she had no bills, no worries, she was fed, clothed
and cared for and in the presence of the one person she loved best.   So it
doesn't necessarily have to be viewed as such a terrible thing, although to
a person whose mind is intact, it would appear terrible.   I am not so sure
that she experiences it as terrible at this time, and she is in pretty much
later stage.    As Tumbleweed says, "are they happy and contented?"  I must
honestly say that at this stage of the game, she seems to be.

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Regards,
Evelyn

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Anthony Shipley - 26 Jan 2005 23:43 GMT
>Not at all, I think many feel that way. However, you also have to look at
>the people themselves. Are they happy/contented? many/most in my fathers
>home seem to be. however, I have told my brother to push me off a cliff if I
>go gaga before him :-)

Have cliff, will travel :-)

Might be a useful career for me - providing terminal care - or should that be
CliffCare?

Being already close to gaga - how does one choose the cliff and the time?

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Tumbleweed - 27 Jan 2005 00:23 GMT
>>Not at all, I think many feel that way. However, you also have to look at
>>the people themselves. Are they happy/contented? many/most in my fathers
[quoted text clipped - 9 lines]
>
> Being already close to gaga - how does one choose the cliff and the time?

I suspect that by the time you are ready to choose, you cant. Catch 22.

Did you ever watch 'The End' with Burt Reynolds? If not check it out.

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Anthony Shipley - 27 Jan 2005 00:38 GMT
>I suspect that by the time you are ready to choose, you cant. Catch 22.
You might be right - but it's really a judgement call. You're either going to be
too early or too late; ultimately it's just a choice between the two.

>Did you ever watch 'The End' with Burt Reynolds? If not check it out.
No, I'll check it out (as you say :-).

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Anthony Shipley - 27 Jan 2005 00:41 GMT
>Did you ever watch 'The End' with Burt Reynolds? If not check it out.
Sounds awful. Not dying, the movie!

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Tumbleweed - 27 Jan 2005 08:31 GMT
>>Did you ever watch 'The End' with Burt Reynolds? If not check it out.
> Sounds awful. Not dying, the movie!

Its very funny :-)

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Anthony Shipley - 02 Feb 2005 10:59 GMT
>>>Did you ever watch 'The End' with Burt Reynolds? If not check it out.
>> Sounds awful. Not dying, the movie!

Tried today to get it from the local video/dvd store but they didn't have it :-(

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Tumbleweed - 02 Feb 2005 14:41 GMT
>>>>Did you ever watch 'The End' with Burt Reynolds? If not check it out.
>>> Sounds awful. Not dying, the movie!
[quoted text clipped - 4 lines]
> -
> Mod as a hooter!

Does your DVD player play home made DVDs? If so, PM me.

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Evelyn Ruut - 26 Jan 2005 03:26 GMT
> When my father leans, it means he is having A VERY BAD DAY.   He
> contorts himself to ways I wouldn't think humanly possible.    On those
[quoted text clipped - 28 lines]
>
> I had to laugh as I was leaving that place.....

We took care of my mother in law here at our home for a little over three
years.  Ultimately it got to be too much and she really needed professional
care and we really needed our lives back.   I do understand that you felt
guilty, but guilt is probably the most useless emotion we can indulge in.

I felt guilty a bit too, but I also realized that NOW I could go see her in
a good mood, happy to see her, able to hug her and chat with her like a
visitor instead of grumpily cleaning up accidents that happened in the
middle of the night.  That alone was enough to smooth over some of the
guilt, in knowing I could visit with her and smile together again.

The nursing home my mother in law is in has a huge room that is where they
gather for entertainments, parties and such, which is also a big dining
room.   You can take your loved one OUT of the alzheimer wing, escort them
into that nice big dining room area, sit down and visit nicely without
interruption like what goes on in the alzheimer wing.

You can also (in good weather) take them for a nice walk outside in the
attractive grounds, sit in the cool gazebo, or on the benches out there to
visit uninterrupted.

I would advise you to ask the staff where you can bring your dad so that the
kids can visit him in a little more friendly area.   I am sure they have
other families that encounter the same situation.   It is true that the
alzheimer wing can be a scary place for a child, but seeing their grandpa
might make it worth trying to work around.

Please don't punish yourself with guilt.  You did the best you could, and if
your dad were in his full capacity, I am sure he wouldn't hold you guilty
for placing him in a safe place where he would get 24/7 care.  Remember the
bright side..... now you can visit him and it is special.   No worries about
bathing or escaping or falling down or forgetting to turn off the
stove......

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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Dennis P. Harris - 26 Jan 2005 03:47 GMT
> My father is in a nursing home.   I tried to take care of him here for 2
> yrs, but I couldn't do it any longer.    The guilt I feel will never go
> away. But I just couldn't do it.

DO NOT FEEL GUILTY.  His disease is NOT your fault, and neither
is your inability to deal with its effect on him.

PLEASE go see a therapist and get over this guilt NOW, before he
dies.  It can only get worse after, and could lead to depression,
if it hasn't already.  You local AD association can refer you to
a therapist or support group that can help you deal with these
feelings.

You need to take care of yourself, so that you can be at your
best when you see him.
Anthony Shipley - 26 Jan 2005 04:17 GMT
>DO NOT FEEL GUILTY.  His disease is NOT your fault, and neither
>is your inability to deal with its effect on him.

All these caps, sigh!

"Do not feel guilty!" should be emphasm enough. Do we really need all this
shouting, here, of all places?

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Jerry's Daughter - 26 Jan 2005 05:23 GMT
Thank you all and God bless you for your responses.   Anthony, thank
you.

I live with the guilt because my father fought for my life when I was on
drugs for many, many, MANY years.   Everyone gave up on me, but he never
quit.   He was always there to harass me and make my life miserable.  In
doing so, he saved my life.   I owe my life to him.
Now, I leave him in this God forsaken place.
I believe that I drove him mad.

 

   

   
Anthony Shipley - 26 Jan 2005 06:38 GMT
>I believe that I drove him mad.

Lesa, if he has A.D., there's no way that you could have "drove him mad"!

A.D. is very much about the physical stuff happening in the brain tissue. You
could no more drive a person mad than love them to death.

I think, sometimes, we find it easier to blame ourselves because there's no
other seemingly reasonable explanation. In our grief, we dredge up memories we'd
rather forget and associate them with unrelated causes and outcomes.

Maybe you did drive him mad (but, as I said, that's pretty unlikely).

On the other hand, if you have the recipe, please pass it on to me. I have quite
a few people who need it.

:-p

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Dennis P. Harris - 26 Jan 2005 07:29 GMT
> I live with the guilt because my father fought for my life when I was on
> drugs for many, many, MANY years.   Everyone gave up on me, but he never
> quit.   He was always there to harass me and make my life miserable.  In
> doing so, he saved my life.   I owe my life to him.
> Now, I leave him in this God forsaken place.
> I believe that I drove him mad.

No, he has an organic brain disease.  It has nothing to do with
what you may or may not have done, and really, you do need to
seek therapy or counseling to deal with your feelings.  Please do
this so that you can be at your best for him.
Evelyn Ruut - 26 Jan 2005 12:02 GMT
> Thank you all and God bless you for your responses.   Anthony, thank
> you.
[quoted text clipped - 5 lines]
> Now, I leave him in this God forsaken place.
> I believe that I drove him mad.

Back then you may indeed have caused him a great deal of grief but it has
absolutely NOTHING to do with his condition today.  Alzheimers is a real
organic brain disease which crosses all boundaries.  People who have had
comfortable lives get it just the same as those who have not.

I assure you that your guilt is for your own reasons from the past, not from
his illness, that is just transference.   If you could get some counseling
that might help you to realize this.   From what you have said, the very
last thing your loving dad would want is for you to torture yourself with
guilt.

Placing a person in a nursing home is nothing any of us want to do, but only
do it because there is no other way.   My mother in law could have lived
here with us till the day she died, but when she kept on falling and
sometimes getting seriously hurt, and we were up all night for years on end
because she couldn't manage even getting herself to the toilet at night, it
finally reached a point where we realized she needed professional care 24/7.

Your past actions did NOT give your dad alzheimers, and putting him in a
nursing home was NOT a punishment to feel  guilt about.    There is no
particular reason why some people get it and some don't (though scientists
are working on that) and there is no reason to feel guilty for putting a
beloved dad in a place where he is going to get full time professional
nursing care when he needs it.   In fact you should be proud that you
realized it was time for professionals to step in.

Here is a quote from a wonderful tibetan Lama, a certain Lama Yeshe, which I
think is so appropriate I actually cut it out and pasted it on the wall next
to my computer.  I see it every day.   It helped me through that three years
of caregiving.   You might want to do the same....

"Be wise.  Treat yourself, your mind, sympathetically, with loving kindness.
If you are gentle with yourself, you will become gentle with others."
(Lama Thubten Yeshe)

Think about that please; a happy smiling, not-guilty feeling daughter would
be a great blessing to your father at this time.   When we feel guilty we
look down and depressed and unhappy.   Your dad may have alzheimers disease
and he may not remember a lot, but he will certainly remember how you
appeared to him.  Give him the gift of giving up your guilt and present him
with a happy non-guilty heart.

Whatever religious pursuasion you follow, almost all have some way to give
up guilt and start anew.  Some go to confession and receive absolution, some
simply ask that you say a certain prayer and begin anew.   In the buddhist
tradition we have certain rituals and prayer to deal with it.

The trick is that you really do need to give it up, and to realize that is
NOT a denial of the past, nor is it betraying your dad NOT to feel guilty
anymore.   It would be a truly great gift both to yourself and to him.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Ruth - 26 Jan 2005 19:02 GMT
I think all of us here have been burdened with guilt of various degrees.
Some of the things we must necessarily do for our loved ones have a good
chunk of built-in guilt.  I got help a few years ago when my husband was
diagnosed with cancer and I felt ashamed of the anger I was feeling.  (It
seems grief comes in many different forms.)  I know I can get help again
when I need it with this additional diagnosis of dementia.  This group is a
tremendous help and can even help you know when it's time for more in-depth
help.

Please, please remember that your father wanted you to be well and healthy
when he helped you.  I'm sure he's wants you to take good care of yourself
and be healthy - without the guilt.

Ruth

>> Thank you all and God bless you for your responses.   Anthony, thank
>> you.
[quoted text clipped - 57 lines]
> NOT a denial of the past, nor is it betraying your dad NOT to feel guilty
> anymore.   It would be a truly great gift both to yourself and to him.
Glenfiddich - 26 Jan 2005 06:25 GMT
>When my father leans, it means he is having A VERY BAD DAY.   He
>contorts himself to ways I wouldn't think humanly possible.    On those
[quoted text clipped - 3 lines]
>yrs, but I couldn't do it any longer.    The guilt I feel will never go
>away. But I just couldn't do it.

OF COURSE you couldn't!
No one person can be on duty 24/7 - which is what your father needed.
Even the nursing home couldn't cope - and they had more than one
person looking after him.

Don't feel guilty - you've done what's RIGHT FOR HIM.
You didn't do it to make your own life easier (even if that was
part of the result).

Do NOT feel guilty.
You did your best, no one can expected to do more.


Tumbleweed - 26 Jan 2005 07:48 GMT
> When my father leans, it means he is having A VERY BAD DAY.   He
> contorts himself to ways I wouldn't think humanly possible.    On those
[quoted text clipped - 3 lines]
> yrs, but I couldn't do it any longer.    The guilt I feel will never go
> away. But I just couldn't do it.

Guilt for what? Unless you are able to stay up 24 hours a day, and also go
out to do chores whilst at the same time staying in to care for someone who
can't be left alone, it isnt necessary to be guilty.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Boydette - 02 Feb 2005 05:49 GMT
OH my another good comeback...LOL

Re: Rosie leans  

Group: alt.support.alzheimers Date: Mon, Jan 24, 2005, 10:27pm (CST+1)
From: oobie@doobie.xyz (John Inzer)
Boydette wrote:
John your story kind of tickled me....they can be so silly
sometimes....sounds like my dad....he rolls around in a wheelchair and
is perfectly able to walk....when asked he says "Cause I want to"
too...LOL
Humor is always a good thing to ease the stress
=========================================
Hi Boydette,
Good to see you again.
Yes, they can be comical at times and I
guess humor is the best way to try and
deal with this vicious disease.
Rosie fell a few nights ago, (nothing
serious, just a couple of bruises).
The nurse asked her how she fell...Rosie replied, "Just like everybody
else".
Signature

John Inzer
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