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Here, I clipped it so we all can read it without going to the site
ELUCIDATING CARE GIVER'S GREATEST STRESS
Distilled from recent Internet discussion.
An Alzheimer caregiver's (CG) worst anguish is lonely bereavement,
more relentless than that of death of a loved one. It is even
conceivable that one could experience both.
The Alzheimer's casualty (AC) is a living character void. A vibrant
personality can be transformed into the comportment of a lovable pet
animal with virtually no cognitive awareness.. This unrelenting
365/24/7 grief is often mitigated only by creating, and engaging, in
solitary, simultaneous distracting activity as often as possible.
The neurological complexity of Alzheimer's disease (AD) causes
inscrutable consequence to all social relationships with the AC and
even more so to the CG. The experience is so inconsistent with ordinary
normal relationships so as to be adroitly evaded by others, or in the
case of non care giving loved ones, devising artificial states of
relatedness. Generally, few are well-informed enough to know how to
constructively behave.
Involvement in ordinary casual dialogue that includes the AC can appear
perfectly normal because residual life experience knowledge is well
preserved and articulated even though the AC has no awareness of the
current interaction. Referral to something just said by AC does not
register and accordingly, causes off-putting vibes both ways.
There are many other degrees and stages of AD but this is a common one
in the mid stages of the affliction. Ironically it is arguably the
"best" one because the AC can be, in fact usually is, happy and
contented if the CG is reasonably well-informed. At this stage, the CG
is the greater traumatic casualty.
The tragedy of the communicative loss of a human personality while
still alive is impossible to comprehend without first-hand exposure. A
typical tragedy such as the death of a loved one causes "normal"
bereavement. The person is gone. Time heals some of the grief. A loved
one's profound loss of former character but continuing alive and well
is an incomprehensible bereavement unknown in ordinary experience.
The most difficult experience a caregiver can encounter is the false
impression a third party gets of the AC's awareness. This false
impression creates a conflict of understanding among the people
involved, most seriously that of the AC. Often, even usually; the AC is
destructively embarrassed away from similar future emotional exposure
and the worse it gets the worse it gets.
Dennis P. Harris - 28 Dec 2004 03:44 GMT
> An Alzheimer caregiver's (CG) worst anguish is lonely bereavement,
> more relentless than that of death of a loved one. It is even
> conceivable that one could experience both.
sounds like some academic's idea of how to deal with caregivers,
rather than something based on real experiences.
the whole thesis is quite overblown IMHO.
Tumbleweed - 28 Dec 2004 07:13 GMT
> Here, I clipped it so we all can read it without going to the site
>
[quoted text clipped - 4 lines]
> more relentless than that of death of a loved one. It is even
> conceivable that one could experience both.
<etc>
<snip>
Reads like an exercise in how to use complicated words to make something
difficult to understand.

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Stephen B - 28 Dec 2004 09:27 GMT
>Reads like an exercise in how to use complicated words to make something
>difficult to understand.
It is certainly difficult to understand, but I think that the basic message is
simply that the ability of an Alzheimer's victim to communicate is impaired as
the disease progresses and that the caregiver has a double burden to bear - the
loss of the individual and the loss of the ability to communicate with the
vicitim. I think we can all understand that. I'd recommend that the author
simplify their language to make the point.
-steve
Tumbleweed - 28 Dec 2004 11:02 GMT
>>Reads like an exercise in how to use complicated words to make something
>>difficult to understand.
[quoted text clipped - 9 lines]
> simplify their language to make the point.
> -steve
If only the original author had written as concisely as you :-)
He is obviously under the illusion that the longer an article is, and the
more complex the words used, the better it is.
Must be at university.

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