Medical Forum / Diseases and Disorders / Alzheimer's / November 2004
Checking in to the nursing home.
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Bob West - 27 Nov 2004 23:37 GMT I will be checking my mother in to a nursing home within the next 6 weeks. If I tell her where we are going when we get in the car she of course wont remember it for 2 minutes. If I tell her as we drive into the parking lot, she might panic. My thought is to not tell her and let her "figure" it out. I thought I would tell her we are going in to visit some people. When they show her to her room I thought I would tell her that she will be staying there "that night". She deals with the idea of where she will be staying "tonight" a lot better than ideas about where she will be staying over a longer period of time. Any thoughts?
Beth - 28 Nov 2004 01:42 GMT Bob, You do what you have to do and use what her reality is to your needs. I agree, I wouldn't "hit her over the head with it".
What I did with my MIL was to state often(for about a week) that I was planning a trip and going to help MY mother out. It happened to be across the country, and I mentioned California, but she never quite integrated she was in Maryland(we had moved her from California and she lived with us a year before being placed in a dementia-specific ALF). She heard it several times, and it made sense to her; BUT she never asked what was going to happen to her.
When we actually took her in we told her we had this nice place for her to stay while I went to help my "sick"mother. Her best rebuttal was that her son/my husband could keep her. But she agreed he needed to go to work and "the Dr. said she could not be left alone all day." The logic was a little fuzzy, but it worked for her and she came up with no other resistance (thank you Zyprexa!). Diverting her attention by the promise of Oreo cookies(the Director took over) and up she got and trotted away willingly. We had her room set-up prior- and we didn't say good-bye.......They took over and it went fairly well. One of the most emotional moments of our lives....very hard to do. Don't expect you'll feel good about it. And you'll worry....but the other part of your brain knows it's what has to be done.
I came back in 2 weeks after a family wedding and she had no idea who I was, although recognized me as someone familiar. She did know her son for quite awhile, but after a few weeks had not much recollection of having lived anywhere else. I would guess that your Mom may well know you for a long time to come....so the next part is to deal with her pleas "to go home" and be able to leave without emotional turmoil. Prepare with answers that are meaningful for her....the place is being painted, new carpeting put in,when the doctor says she's well enough, etc. We still "escape" by telling her we have to go to work(even if it's dark outside)-she can't reason to know the difference. Her current thinking when she's tired is getting home to her mother, do we have a car to take her? I often respond that, no-today I came on "my broom", horse, or whatever and don't have a car. We know she's aphasic, because she doesn't comprehend the difference between them. It also passes fairly quickly.
This is tough, but your facility can help guide you through it. Don't you get upset if there's a scene, in fact expect it. Of course she will know she's in a different place-but involved explanations won't help because she can't see she has a problem. I think as children we so want their approval that this is the right decision we're making. Face it, that is not going to happen-as much as you want it. She is not going to turn to you and say, "Yes, I need to be in a place like this. Thank you for arranging it."
I hope it goes well for you. Even if not particularly smooth-sailing, you will get through it and live to tell us about it too!
Keep in touch Beth
Stephen B - 28 Nov 2004 13:25 GMT > I think as children we so want > their approval that this is the right decision we're making. Face it, [quoted text clipped - 4 lines] >I hope it goes well for you. Even if not particularly smooth-sailing, >you will get through it and live to tell us about it too! Beth: Thank you for this statement and the rest of the post, too. I know I will be thinking of your experiences when I face them, too. I am currently facing similar issues simply in keeping my mom at home and comfortable, yet locked in as "a prisoner" (her words). Dealing with her desire - make that obsession - to go "home" to her house to see her father (dead over 50 years and never lived in the USA). I dread the next steps. -steve
Tumbleweed - 28 Nov 2004 14:22 GMT >> I think as children we so want >> their approval that this is the right decision we're making. Face it, [quoted text clipped - 16 lines] > lived in > the USA). How about 'OK lets go tomorrow/this afternoon/in an hour'?
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Stephen B - 28 Nov 2004 22:53 GMT >> as "a prisoner" (her words). Dealing with her desire - make that >> obsession - to [quoted text clipped - 3 lines] > >How about 'OK lets go tomorrow/this afternoon/in an hour'? Tried that and continue to use that with varied success. It usually works for a while, but then she is right back on it. In fact, it comes on out of the blue. I can usually redirect her, but it gets harder and harder. I am anxiously awaiting her next obsession and hoping that this one will go away soon, but it's been with us for about 6 months, I seem to recall, in varying degrees. -steve
Evelyn Ruut - 28 Nov 2004 23:57 GMT >>> as "a prisoner" (her words). Dealing with her desire - make that >>> obsession - to [quoted text clipped - 14 lines] > with us for about 6 months, I seem to recall, in varying degrees. > -steve steve, some of these crazy making obsessions last for months and some for years. sadly it is part of the disease.
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Tumbleweed - 29 Nov 2004 08:13 GMT >>> as "a prisoner" (her words). Dealing with her desire - make that >>> obsession - to [quoted text clipped - 7 lines] > for a > while, but then she is right back on it. Thats the nature of the beast. Nothing will work longer than memory span or the length of the diversion. Something working for "a while" is the best you can expect.
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turkey in the straw - 30 Nov 2004 04:35 GMT Steve, I tried that with my mom also.We will go in the morning.I think it depends on how you word things very much.And sometimes my mom would even reply"You said that yesterday"It's so damn hard.Every night my mom wanted to go home for about a yr.Now she's past that and keeping me up at night.So i personally would rather be answering that question.This too will pass for a while.She kept me up a few times a few months ago but it passed.Good Luck,Barb
Evelyn Ruut - 28 Nov 2004 14:45 GMT >> I think as children we so want >> their approval that this is the right decision we're making. Face it, [quoted text clipped - 17 lines] > the USA). I dread the next steps. > -steve for a time ida had the same kind of "prisoner" feelings, wanting to go home, and likewise these were interspersed with delusions of past times etc.. i told her that nothing would make me happier than to be able to take her back home, but she wasn't well yet. oddly enough she believed me when i said that. when she went into the nursing home i told her it was just till she got better. she accepted that too. i am not sure, but i think she needed to keep a bit of hope
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Stephen B - 28 Nov 2004 22:55 GMT >for a time ida had the same kind of "prisoner" feelings, wanting to go home, >and likewise these were interspersed with delusions of past times etc.. i [quoted text clipped - 3 lines] >got better. she accepted that too. i am not sure, but i think she needed >to keep a bit of hope The only thing that makes her more upset than not being able to "go home" is any reference to her having an illness. She does have a problem with her leg - mild pain, mostly imagined, we think - that we can make reference to. My father was overheard recently telling someone she had ALZ and she went ballistic - and remembers it now a few weeks later, although it is no longer my father who told someone, it was an imaginary person. -steve
Ruth - 28 Nov 2004 20:51 GMT Dear Beth, Thank you for such a thoughtful reply. My husband is not at the nursing home stage yet but your comments apply to so many situations that come along. This one goes in my "keep" file. Ruth
> Bob, You do what you have to do and use what her reality is to your > needs. I agree, I wouldn't "hit her over the head with it". [quoted text clipped - 49 lines] > Keep in touch > Beth Dennis P. Harris - 28 Nov 2004 04:04 GMT > I will be checking my mother in to a nursing home within the next 6 > weeks. If I tell her where we are going when we get in the car she of [quoted text clipped - 6 lines] > ideas about where she will be staying over a longer period of time. > Any thoughts? you're on the right track, but it's not quite so simple. the best thing to do is to divert her by taking her somewhere for the day --- a sightseeing trip of some kind, perhaps with a lunch stop at a place she'll like. then when you go "home", you take her to the new place, tell her you want to meet some folks there, and take her directly to her room (take care of all the paperwork ahead of time).
while she's out sightseeing, you and a crew move her favorite chair, her favorite bed linens, the family pictures and other stuff that will make her new room "home", as well as the clothes she will need. it's best if you keep her jewelry and other valuables "safe for her", since it's about 99% certain that she will either lose them, give them away without thinking, or another resident may "borrow" them.
tell her she'll be staying there "a few days" while you take a trip, and plan ahead with the staff to divert her with a treat while you sneak out. then do stay away for 3-5 days so that she can get used to the place.
other folks' advice about wanting to "go home" is right on target. most of the time, when AD patients want to "go home" they really want to go back in time to when things were normal and they felt in control.
Tumbleweed - 28 Nov 2004 08:41 GMT >I will be checking my mother in to a nursing home within the next 6 > weeks. If I tell her where we are going when we get in the car she of [quoted text clipped - 6 lines] > ideas about where she will be staying over a longer period of time. > Any thoughts? Sounds like a good idea. If it helps you might use a 'call to authority' and say she needs to be checked out by a doctor the next day as a reason why she needs to stay.
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Mary Gordon - 28 Nov 2004 18:54 GMT I'm with Dennis. Make sure she isn't around during the packing and unpacking. When my MIL first went to assisted living, she was relatively aware, and we found that trying to involve her in planning the move or selecting items to take with her was too upsetting for her - she got really overwhelmed. Finally, we packed her off to her sister's for a nice overnight visit, and we descended on the move en masse (my husband and I had already made a run a day or two previously to put up a nice border print, and then the pile of helpers moved the personal bits of furniture, the pictures, her clothing etc. and had everything completely set up and unpacked before we went and got her. When she had to move again to the AD ward, we did something similar - we stashed her with relatives for the day so she got a nice visit, and didn't witness any of the packing, cleaning, moving, unpacking, picture hanging etc.
We also stayed with her for dinner for the first meal, so she didn't feel abandoned on her first evening.
Tell her whatever you have to tell her - whether a story about having to stay there until the doctor sees her, or that its a hotel, or her apartment is being cleaned - whatever you think she will "buy" for the 5 minutes she might retain the story.
Do not take anything of value with her, or anything you are not prepared to have her lose. Even if its just assisted living and not an AD ward, a significant number of residents will have cognitive impairments, and people go in and out of each other's rooms - and knick knacks, jewellry, ornaments, anything portable will vanish. My MIL was the culprit for some of her things that went west - she had a couple of nice teacups with her, and the cups vanished - we think that she put them in the garbage instead of washing them because she was confused. She also had a couple of small ornaments that she almost lost since she wadded them up in tissue and jammed them into various hiding spots where we only found them by accident.
We found that whether she had 2 dollars in her purse or $40, the cash would vanish at the same rate (and she didn't really need any, since they had a tuck shop where she could just sign for items). She could never explain where the money went, so we would leave her with just a few small bills (it made her feel better to have a couple of dollars).
Clothing must be washable and tough too - and expect it to vanish as well...and then reappear unpredictably - probably from the closets of other residents. Like I said...they wander in and out of each other's rooms, taking items at random and leaving others. We found the commercial laundry took the mickey out of nicer items, so we kept any special items at our place to be brought over for nicer occasions and not left there, or trusted to their rough laundering!
Mary G.
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