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Medical Forum / Diseases and Disorders / Alzheimer's / November 2004

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no need to fight

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Evelyn Ruut - 29 Nov 2004 21:41 GMT
gentlemen,

i am so sorry to see this situation disintegrate into bitterness.

there comes a point where denial and habitually soft-soaping the situation
reaches some sort of moment of truth and it just no longer works.

sometimes the person crashes their car or gets lost, needing assistance to
get home.   sometimes they take too many or not enough of their meds and get
sick.   sometimes they forget the pot on the stove and nearly burn the house
down.   sometimes several of these scenarios take place.   but one day there
will come a time when facing the reality of just how debilitating this
disease really is, is right there in ones face.

nobody wants to admit that their loved one has come to that place until it
becomes absolutely indeniable any longer.    it is a realization that nobody
can convince another person of, they have to see it for themself.   as
tmbleweed said, one day they want to drive to a destination that no longer
exists, or to visit people long dead.

those who try to explain this reality, can appear for all the world to be
overreacting, hysterical without cause.   we went through it with ida, and
we were as loath to take definitive action as those here are showing
themselves to be.

as time went on and her illness took more and more of her abilities away,
there finally came a time when the most reluctant of her friends began to
see the impairments, the weight she lost, the chaos in the house, the
delusions and despair,....... all of a sudden they wanted us to "do
something"

we were suddenly no longer the villains trying to deprive a dear old lady
her independence in her final years, and suddenly they got the picture and
did all they could to help us to help her, whereas before we met with
denial, resistance, disbelief.

so please guys, don't fight.   the inevitable will present itself soon
enough.  we can just pray no innocent person gets harmed in the process.
a person with alzheimers going out for a drive can end up hundreds of miles
fom home when they only went out for a bottle of milk.   that is one of a
thousand scary scenarios.

sometimes denial runs very deep.   but if we want to be able to continue to
help, anger can be counter productive.   trust me i know whereof i speak.

love to you all,
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Beth Cole - 29 Nov 2004 22:18 GMT
 > so please guys, don't fight.   the inevitable will present itself soon
> enough.  we can just pray no innocent person gets harmed in the process.
> a person with alzheimers going out for a drive can end up hundreds of miles
> fom home when they only went out for a bottle of milk.   that is one of a
> thousand scary scenarios.

True story from when my grandfather was in the early stages, not long
after he was diagnosed.  (I disagreed with the "early stage" diagnosis,
because of his behavior prior to the point they gave for onset, though.)

Grandpa, Grandma & their daughter had moved from Western Kansas to
Tempe, AZ, for the winter.  About 2 months into the stay, Grandpa said
that he was going to go to the grocery store.  Since he had been doing
that every day since they had moved, neither of the women thought
anything about it.

About 10 hours later, my aunt received a call from a gas station in
Albequerque, NM.  He had pulled the minivan into the station, because he
knew he wasn't where he was supposed to be.

My aunt called a car rental company that is known for excellent customer
service, and they picked him up at the gas station.  A second person
from the company drove a rental car, following a person who drove the
minivan and my grandfather to Tempe, then drove the van driver back to
Albequerque.  This generated a rather large bill for my aunt &
grandmother, but it was much safer than trying to have him drive back on
his own.

That was the last time my Grandfather drove a vehicle.

Beth

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Doug - 29 Nov 2004 23:57 GMT
>  > so please guys, don't fight.   the inevitable will present itself
> soon
[quoted text clipped - 29 lines]
>
> Beth

I am a grandpa.

Doug
Robert E. Lewis - 29 Nov 2004 22:24 GMT
> gentlemen,
>
> i am so sorry to see this situation disintegrate into bitterness.
>
> there comes a point where denial and habitually soft-soaping the situation
> reaches some sort of moment of truth and it just no longer works.

'There comes a point...'

'sometimes the person...'

'sometimes... sometimes... sometimes...'

'but one day there will come a time...

'as time went on and her illness took more and more of her abilities away,
> there finally came a time...'

> so please guys, don't fight.   the inevitable will present itself soon
> enough....

> sometimes denial runs very deep.   but if we want to be able to continue to
> help, anger can be counter productive.   trust me i know whereof i speak.

I'm sorry, Evelyn, I don't feel very 'loved' by a knee-jerk accusation of
'denial.  I think it is very unfair and one-sided.

Look at your post, at the quotes you made about the *progression* of AD.  My
complaint, and I stand by it and say it is valid, is that for one person
here it is never an issue of 'someday,' it's always that point NOW, and a
disrespectful insistence you seem to be echoing that loved one's
observations that this or that level of disability haven't been reached are
invalid, an insistence that the sufferer is always at the further point.

Tell you what...  *someday*, if the dementia progresses, my father may lose
the ability to cut, or even chew, his food.  But by the logic of the
all-caps shouting you're defending, I should run his food through a blender
*now*, tie a bib on him and spoon-feed him... because my first-hand judgment
that he seems to be eating for himself now isn't worthy, he might choke to
death *now* because it can happen to AD sufferers *at some point.*

Sigh.  I don't think you got the point at all.  I don't think you care to
try.

--
Robert
Evelyn Ruut - 29 Nov 2004 23:50 GMT
>> gentlemen,
>>
[quoted text clipped - 49 lines]
> --
> Robert

dear robert,

i DO care and i am not suggesting you blenderize anyones food before it
becomes necessary.

i am honestly sorry if i wasn't articulate enough to let it be known how i
really feel.   i am on heavy pain meds and not doing so well.

i know how dearly you love your dad and how kind and patient, considerate
and patient you have been, and all of us know that here.

please reread what i wrote again, realizing that my words were only meant to
help and to avoid disasters that can and do happen all the time because the
dangers were underestimated.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

donnah - 29 Nov 2004 23:25 GMT
Thank you, Evelyn, for your words of wisdom! Doing this while you are
in pain is truly kind...
Please! How are *you* doing?
donnah

> gentlemen,
>
[quoted text clipped - 46 lines]
>
> love to you all,
Evelyn Ruut - 29 Nov 2004 23:41 GMT
> Thank you, Evelyn, for your words of wisdom! Doing this while you are in
> pain is truly kind...
> Please! How are *you* doing?
> donnah

thank you for asking.

still typing one handed and i am still in a lot of pain.   every day i get a
little bit more pain free moments, but for the time being it is pretty rough
going.   i'll be seeing the orthopedic surgeon who did the surgery tomorrow
morning, maybe i'll know more by then about how it is going.

i've tried all the pain killers, percocet, vicodin, you name it.   so far
the best one has been ultracet because i can take an advil between doses and
get a more balanced pain control.

this has been the most painful thing i have ever experienced.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>> gentlemen,
>>
[quoted text clipped - 44 lines]
>>
>> love to you all,
donnah - 30 Nov 2004 13:48 GMT
(((Evelyn)))
I am so very sorry you are having to endure this!
Best wishes for your appt, and I hope you can talk with the surgeon
and get better pain relief...
donnah

>> Thank you, Evelyn, for your words of wisdom! Doing this while you
>> are in pain is truly kind...
[quoted text clipped - 65 lines]
>>>
>>> love to you all,
turkey in the straw - 30 Nov 2004 04:20 GMT
Evelyn,
  I agree whole heartedly.




 
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