Hello to all!
After lurking for about three months it is time to introduce myself. My name is Ruth and we live in the Capital District of New York State. That's Albany/Schenectady/Troy - upriver from Evelyn :-) My husband has been diagnosed with AD in the mild to moderate stages and I am his caregiver.
Larry had always gone to his doctor's appointments alone so after noticing increasing memory, judgment, and agitation problems, I wrangled an invitation to go along "as an extra set of ears." The doctor ordered the appropriate tests and prescribed Reminyl and Lexapro. We both like the doctor and that is a comfort to both of us. I particularly like the way he speaks to and concentrates on my husband, turning to me only occasionally for confirmation or more information.
We had recently updated our wills so after a "tune-up" they and the related documents are in place. I recently visited the local Alz Assoc and they were wonderful. Lots of support and good info. Best of all, I found you. What a wonderful connection with the people who truly know what it's like and have a wealth of information to share.
Then I got sick. Nothing earth shaking, mind you, but a nasty cold followed by a sinus infection. And it came as a real eye-opener that this job of caregiving is impossible without several back-up plans at the ready. So that is where we are at the moment. I have done some scouting and found several options for day care, respite agencies, and independent home care companions in the area. The sticky part, as they say on the Food Channel, is all in the presentation. I want to launch this subject in a positive light. If my husband perceives this as "baby-sitting" or being "farmed out with the old folks" he may be very resistant.
I've thought of a couple of scenarios that have an element of truth and appeal to his interests. Perhaps I could find someone to come to the house to "tutor" him and keep his Spanish up-to-speed. Or his doctor might recommend "therapy" that includes exercise- physical and mental. I'm just thinking out loud here. Can you help me? What has worked for you?
Again, thank you for being here.
Ruth
Lee - 18 Nov 2004 03:33 GMT
might also considering telling him that you're getting someone in to help
YOU, not him ... i.e. make that the focus
we started with a woman to do 'heavy' cleaning ... just chose one that was
also a PSW ... was a lot easier to go from that to the home care workers
Hello to all!
After lurking for about three months it is time to introduce myself. My
name is Ruth and we live in the Capital District of New York State. That's
Albany/Schenectady/Troy - upriver from Evelyn :-) My husband has been
diagnosed with AD in the mild to moderate stages and I am his caregiver.
Larry had always gone to his doctor's appointments alone so after noticing
increasing memory, judgment, and agitation problems, I wrangled an
invitation to go along "as an extra set of ears." The doctor ordered the
appropriate tests and prescribed Reminyl and Lexapro. We both like the
doctor and that is a comfort to both of us. I particularly like the way he
speaks to and concentrates on my husband, turning to me only occasionally
for confirmation or more information.
We had recently updated our wills so after a "tune-up" they and the related
documents are in place. I recently visited the local Alz Assoc and they
were wonderful. Lots of support and good info. Best of all, I found you.
What a wonderful connection with the people who truly know what it's like
and have a wealth of information to share.
Then I got sick. Nothing earth shaking, mind you, but a nasty cold followed
by a sinus infection. And it came as a real eye-opener that this job of
caregiving is impossible without several back-up plans at the ready. So
that is where we are at the moment. I have done some scouting and found
several options for day care, respite agencies, and independent home care
companions in the area. The sticky part, as they say on the Food Channel,
is all in the presentation. I want to launch this subject in a positive
light. If my husband perceives this as "baby-sitting" or being "farmed out
with the old folks" he may be very resistant.
I've thought of a couple of scenarios that have an element of truth and
appeal to his interests. Perhaps I could find someone to come to the house
to "tutor" him and keep his Spanish up-to-speed. Or his doctor might
recommend "therapy" that includes exercise- physical and mental. I'm just
thinking out loud here. Can you help me? What has worked for you?
Again, thank you for being here.
Ruth
Ruth - 20 Nov 2004 02:53 GMT
Lee, this is a very good idea. I like the fact that the home care helper
can be on the scene first and then we can add other hours as we need them.
> might also considering telling him that you're getting someone in to help
> YOU, not him ... i.e. make that the focus
[quoted text clipped - 48 lines]
>
> Ruth
Lee - 20 Nov 2004 04:56 GMT
the other thing to keep in mind is that even if he rejects whatever ideas
you propose today, that doesn't mean he never will accept them .... the one
constant with AD is that things never stay the same ... mostly that's a
bad thing... but when my MIL is driving me up a wall with new behaviours, it
can be a real comfort too ... this too shall pass....
At this point, she doesn't remember what she agreed to or rejected the
previous day .... so we just proceed along as if she had agreed and it
really just isn't that big a deal
> Lee, this is a very good idea. I like the fact that the home care helper
> can be on the scene first and then we can add other hours as we need them.
[quoted text clipped - 51 lines]
> >
> > Ruth
donnah - 20 Nov 2004 13:36 GMT
(((Ruth)))
no advice, just a warm welcome
donnah
Hello to all!
After lurking for about three months it is time to introduce myself.
My name is Ruth and we live in the Capital District of New York State.
That's Albany/Schenectady/Troy - upriver from Evelyn :-) My husband
has been diagnosed with AD in the mild to moderate stages and I am his
caregiver.
Larry had always gone to his doctor's appointments alone so after
noticing increasing memory, judgment, and agitation problems, I
wrangled an invitation to go along "as an extra set of ears." The
doctor ordered the appropriate tests and prescribed Reminyl and
Lexapro. We both like the doctor and that is a comfort to both of us.
I particularly like the way he speaks to and concentrates on my
husband, turning to me only occasionally for confirmation or more
information.
We had recently updated our wills so after a "tune-up" they and the
related documents are in place. I recently visited the local Alz
Assoc and they were wonderful. Lots of support and good info. Best
of all, I found you. What a wonderful connection with the people who
truly know what it's like and have a wealth of information to share.
Then I got sick. Nothing earth shaking, mind you, but a nasty cold
followed by a sinus infection. And it came as a real eye-opener that
this job of caregiving is impossible without several back-up plans at
the ready. So that is where we are at the moment. I have done some
scouting and found several options for day care, respite agencies, and
independent home care companions in the area. The sticky part, as
they say on the Food Channel, is all in the presentation. I want to
launch this subject in a positive light. If my husband perceives this
as "baby-sitting" or being "farmed out with the old folks" he may be
very resistant.
I've thought of a couple of scenarios that have an element of truth
and appeal to his interests. Perhaps I could find someone to come to
the house to "tutor" him and keep his Spanish up-to-speed. Or his
doctor might recommend "therapy" that includes exercise- physical and
mental. I'm just thinking out loud here. Can you help me? What has
worked for you?
Again, thank you for being here.
Ruth
Ruth - 20 Nov 2004 20:52 GMT
Thanks to all for a warm welcome and good sound advice. I think the idea of
using "help for Ruth" and presenting a new situation as a "done deal" is
the best route. Too many explanations lead to agitation and dug-in heels .
I have stopped giving Larry a run-down of what's on the agenda for the
following day because he frets, worries about getting up in time to be
ready, often waking at 3 or 4 in the morning thinking it's time to get up.
I am humbled and saddened to see how his world and his ability to cope is
shrinking.
Ruth
> (((Ruth)))
> no advice, just a warm welcome
[quoted text clipped - 6 lines]
> Albany/Schenectady/Troy - upriver from Evelyn :-) My husband has been
> diagnosed with AD in the mild to moderate stages and I am his caregiver.
(SNIP)
. I'm just thinking out loud here. Can you help me? What has
> worked for you?
>
> Again, thank you for being here.
>
> Ruth
Evelyn Ruut - 20 Nov 2004 21:25 GMT
> Thanks to all for a warm welcome and good sound advice. I think the idea
> of using "help for Ruth" and presenting a new situation as a "done deal"
[quoted text clipped - 5 lines]
> shrinking.
> Ruth
hi ruth,
we found that out too. we began to realize that anything she could obsess
over, she would. so we stopped telling her in advance and only told her
the actual day of anything, when we were there to get her ready and to take
charge of the situation. it is so sad. they are trying so hard to
remember they get up at 3 am to dress to be ready. it is heartbreaking.
also at that time she would rummage through her purse over and over,
obsessively searching for keys, wallet, bankbooks, over and over...... until
out of desperation we took the things away and told her we had them for
safekeeping and she could have them back when she went home 'next week'.
that did work, and finally she just started to relax a little and stopped
the incessant searching. she had been up at all hours of the day and night
rummaging before that.
i think that caring for a person with this illness can be summarized in
saying that anything you can do to save them worry or stress of any kind is
best. even little concerns become obsessive repetitive worries to them.
simple tasks are insurmountable hassles. save them that kind of worry in
any way we can. it isn't any longer like preserving their autonomy and
sense of choice is paramount, BUT making them think you are doing that is
important. you are often better off just not telling about decisions made
until the situation is a done deal already so there really is no cause for
them to worry.
i remember the time my mother in law had a moment of clarity. she realized
that something was wrong. she recognized that we had put several of her
favorite things in her room, art work and such that were from her house.
she actually looked relieved when I told her that it was all over with (the
sale of the house and moving all her stuff) she seemed grateful and
happier. by then she had been living here for over two years. it was an
amazing moment because she had no short term memory left then.
i am so glad we were able to give her three and a half peaceful and good
years living with us and with good care. it is now about 5 years since we
first realized there was something wrong. she has been surrounded with
loving people for four of those years. it was the right thing to do.

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")