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Medical Forum / Diseases and Disorders / Alzheimer's / October 2004

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Insanity versus reality with my mom

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Boydette - 26 Oct 2004 21:38 GMT
Reality:
I talk to mom on the phone several times a day.  Have not left my house
at all today.
Insanity:
She calls and leaves a message on our voice mail to my husband and says
I moved out of her house and wants to know if he knows where I am living

Reality:
Dad is in a nursing home.
Insanity: Constantly telling me he was there or she met him somewhere or
that he is with this person or that person. Either that or she argues
with me when I tell her NO he is still at the home. She asks me
constantly where he is sometimes in the course of one conversation.
Constantly asking me the name of the home. Constantly asking what the
phone number is. Drives the staff insane with the same question "Is he
there?''  Calls me and says hes getting out and he needs a ride etc etc
etc

Reality:
She has lived in the same apt for over 7 years
Insanity:  I just moved in and I dont know how all my stuff got here.
Or this one: why did your dad move me here then leave me?..or this one "
I know this is my apt cause the key works but that lady keeps telling me
its not mine. Question: What lady mom? Answer:GD it I dont know her name
I just ran into her on the street and she says this is not my apt...but
all my stuff is here and my key works

Reality:
My brother Kirk has been dead for eight years
Insanity:  Kirk was just here and we had a nice visit...have you seen
him lately?
<shiver> on that one

Reality:
Her car has two flat tires and expired plates from two years ago.  In
order to get plates in my state you have to have 2 inspections insurance
and pay personal property tax
Insanity:  Tells me she went in the license office and told them she
needed plates and they just  handed them to her
Tells me that she drives the car here there and everywhere. Tells me if
I wont go get dad she will bla bla bla

Reality:
She has not gone shopping for herself in years
Insanity: Tells me she just got back from the store.  Tells me she
bought stuff for "the baby'...when I ask her if by baby she means my
grandson she says No Boydettes baby
 
When I try to help her come around or tell her no or try to correct her
she just gets mad.   Pisses me off when I just got off the phone with
her for the third or fourth time that day and she will call an hour
later and say I havent called her in awhile

Last night I was talking to a friend about another friend of ours
passing away and when I returned moms voicemail message and told her
that she sarcastically says "YOU have friends?????" <evil cackling
laugh>  "Oh well I guess your FRIENDS are more important than me" CLICK

Ok I just wanted to vent....thanks for listening
Gwen Love - 26 Oct 2004 22:35 GMT
Boydette, one of the best things for you to learn is to never argue with an
AD patient.  Their brain doesn't function correctly and they cannot
understand your reality.  You therefore have to go along with their reality.
You can agree with her, redirect her to another subject, use loving
deception (some call it telling them a lie), or anything you can think of to
keep from arguing.  They will not remember the words said but will remember
the feelings.  She really cannot help what she thinks.  Don't get angry with
her; get angry with the disease.  It definitely is not easy and the longer
you go, the harder it will get.  I don't want to be discouraging, but it is
better that you face the truth, accept it, and work around all the insanity.
Most of us have been there, done that, and lived through it--not easily, but
made it anyway.
Gwen

> Reality:
> I talk to mom on the phone several times a day.  Have not left my house
[quoted text clipped - 55 lines]
>
> Ok I just wanted to vent....thanks for listening
Boydette - 26 Oct 2004 23:07 GMT
Thanks Gwen I hear ya and normally I do try to do that but when she
keeps asking questions and pressing me for answers I dont know what to
do but tell the truth.

I think the hardest part is because we dont actually have a
diagnosis...I called my sister last night and left her a message that we
need to do something and fast. But as usual she doesnt call me back.

Thanks for the practical suggestioins...its easy with my dad...when he
says he was at the bar or asks me when I am visiting if I want a beer I
just play along.  The staff have been giving him orange juice and
telling him its a screwdriver.  LOL.....it appeases him so thats all
that counts....talk about not trying to correct them when he says stuff
like that or that he went to work etc. my mom sits there and argues with
him.  That is why I said in that one thread I cant stand the insanity. I
cant believe this is happening to BOTH of them at the same time.
Sitting there listening to the two of them together is like watching a
bad train wreck.  Oh and the worst thing is when they are both trying to
get me to take a side.....CALGON take me away!!! LOL
Evelyn Ruut - 26 Oct 2004 23:10 GMT
> Thanks Gwen I hear ya and normally I do try to do that but when she
> keeps asking questions and pressing me for answers I dont know what to
[quoted text clipped - 15 lines]
> bad train wreck.  Oh and the worst thing is when they are both trying to
> get me to take a side.....CALGON take me away!!! LOL

One of the best things I did when my mother in law was really driving me
nuts was to go and get a massage.   Omigosh was that ever wonderful.  I felt
like a coiled spring that finally got to relax.  Wish I had a hot tub, that
would have been good too!

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Dennis P. Harris - 27 Oct 2004 03:24 GMT
> Thanks Gwen I hear ya and normally I do try to do that but when she
> keeps asking questions and pressing me for answers I dont know what to
> do but tell the truth.

figure out what answers will work, and then use those.  "truth"
has nothing to do with what she wants.  remember that she won't
remember the answer anyway.
donnah - 27 Oct 2004 14:02 GMT
(((Boydette)))
I so understand what you are saying! No dx yet on my Mum, and no real
help from my sister or sil...in all fairness, they do the evening
meals five nights a week, but they are resentful of doing so.
And my parents will get into an argument over something that happened
before I was born, yet they will ask me who is right! Dad is the first
one to realize that and will cover his embarrassment with a joke about
my being psychic...lol
donnah

> Thanks Gwen I hear ya and normally I do try to do that but when she
> keeps asking questions and pressing me for answers I dont know what
[quoted text clipped - 24 lines]
> trying to
> get me to take a side.....CALGON take me away!!! LOL
Stephen B - 26 Oct 2004 23:54 GMT
>Boydette, one of the best things for you to learn is to never argue with an
>AD patient.  Their brain doesn't function correctly and they cannot
[quoted text clipped - 9 lines]
>made it anyway.
>Gwen

Everything she said...

My mom, 77, lives at home with my dad, 84, the primary caregiver for her. She
managed to mask the early stages of AD, but it is clearly mid stage now as her
sense of reality is very skewed. She's minimally functioning, too. She used to
be a master gardener, she now plants plastic flowers and constantly digs up
plants and doesn't put them back in the ground. She used to be an avid reader,
but I don't think she can read more than a few words at a clip now and they
really don't make sense to her. The people on the TV are talking directly to her
and the TV is 2-way. Her father, dead for over 50 years is still alive, but has
abandoned her and she doesn't know why. Her mother, dead only a few years, is
dead in her reality, but the house she lives in was her parents' house in her
reality and most of the contents are theirs. I reality, the house was purchased
by her and my dad about 50 years ago and was their first and only house for all
these years. In her reality, the outdoor spaces and indoor spaces merge or blur.
In her reality, there are people living in the basement, in imaginary spaces in
the closets, and always people wandering through the house. In her reality, the
neighbor hates her, wants them to leave the house so that she can have it, and
is always in the house stealing things, messing things up, etc. My father has a
very difficult time accepting her reality and doing what Gwen says above.
Unfortunately, this makes things worse for him because it upsets her and she
then wants to leave and "go home" or whatever. The county has a program whereby
the Sheriff puts a transmitter bracelet on her and maintains it. She thinks it
is a medical alert bracelet that contains her medical information. Besides her
mind, she is wonderfully healthy. She's had a the bracelet about a month and we
had to have it activated this past Saturday as my father, once again, tried to
set her straight and she got upset because he "doesn't believe her," "is mean to
her," and "makes fun of her." None of those are true, but she thinks they are.
When my dad allows her to exist in her reality, she is generally fine and happy.
I am regularly finding myself reminding him that he needs to keep that up as she
will only get worse and I remind him that she has no problems with me as I
"believe" her and, in effect, lie to her regularly. She is comforted, he doesn't
have to stress as much and life goes on. We're moving to the Adult day care
stage soon and I suspect a home is not too far behind that, unfortunately. I
grieve for the loss of the mother I knew, but I do my best to enjoy what memory
she does have left in my regular contact with her. I know that my father has it
much harder than I in that he lives with her and I only speak to them every day
or so and see them a few times weekly at most, but I know that what Gwen says is
the truth. Don't correct her and don't try to dissuade her from her reality -
for your peace and hers.
-steve
Baird Stafford - 27 Oct 2004 18:32 GMT
<snip>

> You can agree with her, redirect her to another subject, use loving
> deception (some call it telling them a lie), or anything you can think of to
> keep from arguing.  

From experience with the Dowager, I can testify that a half-truth works
as well as an outright lie - and leaves me, personally, feeling
"cleaner."  Also, repetition appears to be the key.  The Dowager wants
dearly to return to her condominium, whence I removed her to hospital
when I walked in one morning to find her flat on her back on the floor
of her study with no idea how she got there.  She went thence to a rehap
facility, which was "a stop on the way home;" and now she's at an ALF
which is "a hotel sort of place, where there's always someone around if
you need help."

I've even persuaded her, by reminding her over over and over again
whenever the subject comes up, that the two leaky heart valves ("that
little problem with your heart") they found when they tested to try to
discover why she fell (they could, indeed, have contributed to the fall,
especially since no other potential cause was discovered by the battery
of tests to which she was subjected) are the reason that my sister and I
want her to stay for a while - of unspecified duration - at "the hotel."

The "hotel" story seems to be working, at least for the nonce.  And she
will agree when I remind her how much better it is to be able to get on
her walker and move around, wherever and whenever she wants, than to be
confined to bed in a hospital.  And, naturally, that she's staying at
the hotel only until she's well enough to return to her condo.

All of these have the advantage of being perfectly true:  they just
aren't the whole truth.  And I feel better about them than I would about
outright lies.

<snip>

Blessed be,
Baird
Evelyn Ruut - 26 Oct 2004 22:56 GMT
Dear Boydette,

You sound like me when I first was exposed to alzheimers disease in my poor
mother in law.   I regarded it as some sort of duty to always tell her the
truth.   It was an exercise in futility and finally I learned that she had
her own truth and she was never going to accept any other, even if the whole
world told her it was wrong.

Gwen has given you some excellent advice.

I am going to share a story with you of a dear friend whose husband was very
sick with parkinsons disease and he was hallucinating a lot.   He was lying
in their family room in their house which their backyard faced a forest.

He called his wife frantically yelling that there were bulldozers and men
all over their property laying railroad tracks through the yard.   She went
over to the window and yelled outside (to nothing but the trees and the
deer, since there was nobody there)... "HEY YOU GUYS.... GET outta' this
yard you hear?   You can't lay any railroad tracks around here, so go on,
GET!"...... She then looked inside again and said "they are leaving"......

Her husband chuckled and said.... "Good, I knew you could get those guys out
of here."

It is the best example I know of how to deal with this kind of thing.

If your mother says something crazy, just agree with her, no matter how
crazy it sounds.   She is seeing the world through a sick brain that is
slowly dying neuron by neuron.   They go back in time and the recent
memories go first.

When my mother in law first came to live here she began to recount all sorts
of stories about her youth and my husband was fascinated since most of that
he had never heard before.   Then later she started imagining things.   They
call them delusions.   She imagined there was a cow shed in the yard and she
had to go and feed the cows.  She imagined there was a baby and it was hers
and it was hungry and needed to be fed and someone was keeping it from her.
She imagined her new great grandbaby was really her granddaughter (from her
memories of her when she was a baby) and she thought her granddaughter was
her former daughter in law (before me).   There were many others and it was
pretty hard to deal with at times.  Not only was it hard because of the
repetitions, but also because there were no answers anyone could give her.

But I do know that if there is anything she says that you CAN agree with,
without starting WW3, go for it.  It is a cheap way of gaining two minutes
of peace.   Never mind if it is actually true or not, because she is going
to forget it the moment you say it anyway.   Taking any of it personally
will just drive YOU crazy.  If she hangs up on you I promise you can call
her back in ten minutes and she won't even remember the previous call.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

> Reality:
> I talk to mom on the phone several times a day.  Have not left my house
[quoted text clipped - 55 lines]
>
> Ok I just wanted to vent....thanks for listening
Glenfiddich - 27 Oct 2004 04:49 GMT
>Dear Boydette,
>
[quoted text clipped - 42 lines]
>without starting WW3, go for it.  It is a cheap way of gaining two minutes
>of peace.  

You just made a very important point, but it may not be clear enough.

That "two minutes of peace" is not just for you but for also for THEM!
"Correcting" someone with AD doesn't just upset you but also THEM.

We can't do anything to undo the damage to their brains, but we
CAN go along with it (as far as we can) and try to help them to be
as happy as possible inside that strange and scary world inside
their heads where they are forced to live.
We can NOT make their world coincide with ours, but we can try to live
with their imaginary world to the extent needed to help them - as with
chasing those railroad builders away!

As parents, we sometimes pretended to believe in our kid's imaginary
friends - though we both knew it was just a game.
But those imaginary people seem REAL to people with AD - if we ignore
them or deny they exist, it can *add* to their pain and confusion...
"Loving deception" is the response of the truly caring in these cases.
Evelyn Ruut - 27 Oct 2004 12:39 GMT
>>Dear Boydette,
>>
[quoted text clipped - 75 lines]
> them or deny they exist, it can *add* to their pain and confusion...
> "Loving deception" is the response of the truly caring in these cases.

Thanks for making that clearer for me.  It is absolutely right-on!
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

donnah - 27 Oct 2004 13:54 GMT
and for me, also, Evelyn!
the more I read here, and in the 36 Hour Day book, the more
understanding I'm getting about what is happening with Mum.
and I think once her RO of a doctor zones in on a diagnosis for her,
it will be even more helpful...knowing what we are actually dealing
with will hopefully make things easier.
donnah

>>>Dear Boydette,
>>>
[quoted text clipped - 102 lines]
>
> Thanks for making that clearer for me.  It is absolutely right-on!
 
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