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Medical Forum / Diseases and Disorders / Alzheimer's / April 2006

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I cant stand the insanity

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Boydette - 10 Oct 2004 10:32 GMT
OMG listening to my parents talk I feel like my brain is oatmeal...the
insanity is just too much....how am I suppose to deal with BOTH of
them...its just too much
HELP
megz - 10 Oct 2004 15:39 GMT
Hi - I read to your post from the 29th and i can't believe what you are
facing. i truly don't know how you are doing it. interesting connnection
with the alcoholism and the bipolar being in the family, isn't it. my
sister was diagnosed as bipolar last year and i am reading more about it
all the time. i have had migraines since i was sixteen and the neurologist
recently mentioned that they are thinking now that it is a different facet
of the same condition.
as per dealing with your parents day to day - i don't know. they say when
your teenager is giving you a hard time it helps to keep an old photo on
the fridge of when they were younger and adorable. have any good photos of
your parents? i considered doing that with my dad, but it's hard because
it seems as though i have been always angry at him (since childhood)
because of the booze. he was sober for six months about ten years ago.
different person. i should have gotten a photo.
hang in there. m
Boydette - 11 Oct 2004 19:16 GMT
Megan
Yeah I have several  pictiures of them in my home.  I am very big on
pictures :) I have one of them when I was a baby of the three of us but
when I look at it I get so sad and a little angry that they ruined so
many lives (expecially their own) with their alcoholism and selfishness.

It is very hard to be compassionate with them when I have all these
issues about how horrible of parents they were.  Being bipolar I have
often wondered but I think my dad was but of course was never diagnosed.
I really get angry when I think of how they treated me when I was going
thru trying to find out what was wrong with me.  I made several suicide
attempts and they never came to see me except once in the ER and all
they did was scream at me and tell me how selfish I was.  Both my
brothers are dead and so they were like "how could you do this to us?"
I told them UH excuse me but my suicide is NOT about you.  Several times
I was hospitalized and not once did they visit or call.  Now I am
supposed to be all supportive and the sad part is they do not even
remember from day to day all the things me and my sis do for
them...sorry for the long rant
Boydette
Barbara Rose - 10 Oct 2004 22:23 GMT
I feel for you, Boydette.  With two alcoholic parents (Dad's dead) and a
bi-polar daughter I appreciate the difficulties you are going through.

We're all here for you.

Barb in UK

> OMG listening to my parents talk I feel like my brain is oatmeal...the
> insanity is just too much....how am I suppose to deal with BOTH of
> them...its just too much
> HELP
Boydette - 11 Oct 2004 19:16 GMT
Thanks Barb :)
Monday - 14 Apr 2006 21:49 GMT
Sorry, I just answered to an old post.
Evelyn Ruut - 14 Apr 2006 22:16 GMT
> Sorry, I just answered to an old post.

I was wondering, since I didn't recall reading the original that you were
replying to :-)   But it was a very good answer anyway, and I enjoyed
reading it.    Anything replied to that is truthful and sincere, is
worthwhile in my book.  :-)
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Evelyn Ruut - 11 Oct 2004 16:09 GMT
> OMG listening to my parents talk I feel like my brain is oatmeal...the
> insanity is just too much....how am I suppose to deal with BOTH of
> them...its just too much
> HELP

Hi Boydette,

I have been offline for a few days with cable problems, and I just saw this
message.   My dad is just beginning to develop vascular dementia.  He has
always been a difficult man, and he isn't getting any better these recent
days.   To be exact, his one carotid artery is completely blocked, and the
other one is about 80 percent blocked, but with a stent keeping it open to
some degree.   This means he is operating with something like about half the
normal blood flow to his brain.

Every time he gets cranky, my sister reminds us...."half a brain....
remember you are dealing with only half a brain" and it reminds us that we
are applying NORMAL standards to someone who simply hasn't got all their
faculties anymore.

I don't know if that little thought will help you, but it surely helps my
siblings and I to remember that he simply can't reason the same way as we do
anymore.

Dealing with two of them at once must be even more difficult.   I can only
offer you the following advice;

Get all the help you can from anywhere you can get it.  There is a lot of
help to be had out there, you just need to look for it, make adjustments in
your life and go for it.

Take good care of yourself and get away whenever you can.  It will help you
stay sane.

Grant yourself the space to vent whenever you need to, but in the right
place (meaning not at them).   This is the place to do it.  The people here
helped me SOOOO much.

Nurture your faith, whatever that faith is.   Sometimes it is the only thing
that will help you cope.

Good Luck, Boydette.   I do sympathize!

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Boydette - 11 Oct 2004 19:21 GMT
Evelyn
Thank you for the kind words and the advice.  I know what you are saying
as me and my sis have both discussed how hard it is just to overlook
their hatefulness and delusions.  I told her getting mad at them and
yelling or trying to reason with them is just not gonna work at this
stage of the game.  I must admit tho every once in awhile especially
with my mom when the poison starts spewing from her mouth I just hang up
or if I am at her house I just say Fine do what you want and walk away.
Then 10 minutes later she is calling to apologize so it makes me wonder
if she KNOWS she is being a B****H why cant she stop.  Very difficult
but I am hanging in there.  B
Evelyn Ruut - 11 Oct 2004 20:07 GMT
> Evelyn
> Thank you for the kind words and the advice.  I know what you are saying
[quoted text clipped - 7 lines]
> if she KNOWS she is being a B****H why cant she stop.  Very difficult
> but I am hanging in there.  B

Boydette, my siblings and I have the same sort of issues.  My dad was
violent and abusive all our lives.  He was so mean to my mother I get choked
up even discussing it.  She stayed with him all her life and finally died in
the year 2000, leaving him to curse empty space instead.   We just get out
of the way when he gets nasty and either call or show up days or weeks later
on and he has forgotten how vicious he was.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

megz - 11 Oct 2004 20:26 GMT
Well, all things considered, I think it is very healthy for you to be
seeing their actions for what they are - spiteful behavior from sick
people. It seems as though you are a very strong person with a very strong
will to over come what you got dealt in life. I hope you can see that they
are trying to bring you down with them. what a web.
Frank Zink - 21 Oct 2004 13:33 GMT
I have heard recently, that when a person with AZ is nasty, it means
they were nasty in their younger days. Is this true?
My mom is so bad I just walk out of the room.
Every Monday when I get off work I go tp my folks house, which is 1 1/2
hours from my house. I stay there and make dinner and anything else I
can, so dad can get out and do shopping, doctors appointments, etc.
Really just for him to get out of the house for a few hours. I stay
overnight and go back to work from there.
Anyway, mom can't wait for me to get there and the minute she sees my
car pull up she starts calling for me and then tells me to get out of
the house and never come back, I have a fat a__, I am ugly and many
other "nice" things.
My sister goes thru the same thing on Thurdays.
Lately, mom claws at me, spits and will grab at me if I pass her.She is
paralyzed on her left side so I try not to get to close to her, but when
dad and I are getting her ready for bed, she is awful.
Is anyone else going thr this? And how long does this last?
Sparky - 21 Oct 2004 14:59 GMT
I certainly hope that the thing about being nasty comes from childhood
it not correct. I have never know my Mom to be anything but kind until
the AZ. She gets up in the mornings and kisses my hand. But when she
gets angry, she tells me to get out of her house and then threatens to
call the police on me if I leave. It is hard to understand sometimes
when I am the only one in the family who will take the time to help
her. The doctor has described Mom's as "emotional dementia." I would
have to agree. She gets angry enough to take swings at me when 5
minutes earlier she was telling me how much she loves me.

I can't tell you how long it lasts. I remember reading somewhere that
mood swings can change every 6 to 9 months with AZ. Mom has started
something new this week with getting mad at me before she gets up. She
is demanding I bring her several things before she will get out of bed.
I really hope this is not the start of a new phase.

I discovered with Mom when she begins yelling at me to leave the room.
I am close enough to monitor her, and she will stop shortly. It is
extremely hard to argue when you are the only one in the room. I go
back in the room and if she starts again, I leave again. Eventually she
will run out of gas or forget what she was yelling about. Hope this
helps.
Mary Gordon - 22 Oct 2004 02:34 GMT
You wrote:
> I have heard recently, that when a person with AZ is nasty, it means
> they were nasty in their younger days. Is this true?

Mary responds:
I don't believe it for a second. I have known many lovely, kind,
gentle, polite people who have undergone really unpleasant personality
changes due to progressive dementias. My life experience is that
leopards don't change their spots - unless their brain becomes
damaged. A person who is a sweetie as a young person is a sweetie all
their life. In fact, I think people with intact brains get MORE like
themselves as they age. Its as though those deepest characteristics
get exaggerated with time, so if you are a so and so at 30, you will
be a real old sod everyone hates at 70, and the considerate and loving
at 30 almost shine like saints in old age.

The nastiness is really all about brain damage - which should be no
surprise, since medical literature is full of stories about people
undergoing radical personality changes after brain injuries from
accidents. Whether brain damage comes from a whack with a shovel to
the noggin, or slowly and insidiously from AD, the net result is a
terrible impact on who their brain lets them be.

In AD is that their inhibitions are lowered, their impulsiveness is
increased, they lose their sense of social niceties, they no longer
recognize the impacts of what they do on others, they can't reason
through what is happening around them and come to any kind of logical
conclusions or plan of action and they have zip in terms of emotional
control. They really can't help themselves. The world has also become
a confusing, frightening jumble, they are upset and really can't cope.
They also are trying to figure out what is happening, and their
conclusions can seem paranoid and nutty (i.e. I can't remember where
my money went, so my daughter must have taken it).

Agitation is also a common feature of the brain damage that comes from
AD. The good news is you CAN help her with this. Talk to the doctor
about medications - not to zonk her into zombiehood, but to reduce her
agitation and hostility. Some of the antipsychotics can really, really
help - both her, to be less upset and therefore feel better, and also
help you and your family find caregiving less stressful and difficult.
Good for everyone.

It does pass off with time, but by the time it does, so much else of
her will be gone that you may long for the days when she was a bit
feisty and miserable - as opposed to being vacant and empty. I know
its so hard, but you just can't take this personally. Its the disease
talking, not the mother you loved.

Mary G.
donnah - 23 Oct 2004 15:21 GMT
Mary, this post really helped me also! I am having problems getting
messages on OE so I just saw this.
My Mum has always been a sharp spoken woman but in a loving sort of
way. What I am seeing in her now is what you have described...and I do
see her confusion when she says something outrageous or mean. Then she
cries in frustration and turns around and gets angry again. How hard
these must be on her to know there is something wrong and not
understand what/why...
donnah

> You wrote:
>> I have heard recently, that when a person with AZ is nasty, it
[quoted text clipped - 59 lines]
>
> Mary G.
Gwen Love - 23 Oct 2004 16:52 GMT
Donnah, one time that was almost the hardest for me with Grayson was when he
was dresing.  I always laid out his clothes and went to the kitchen.  He
would dress himself okay.  This time he had on everything except his pants.
He came in holding them up and said", What do I do with this?"  I could have
just bawled.  He asked me so many times what was wrong with him that he
couldn't do the things he had been able to do easily.  He had already had
two light strokes in addition to the AD (which probably brought the AD on
sooner the Dr. said) and I would remind him that he had had a stroke and it
damaged his brain.  That would satisfy him for the moment.  So I can imagine
how your mum must feel.
Gwen

> Mary, this post really helped me also! I am having problems getting
> messages on OE so I just saw this.
[quoted text clipped - 69 lines]
> >
> > Mary G.
Lee - 23 Oct 2004 20:40 GMT
that is exactly the question I'm getting a hundred times a day (it seems)
right now.... what do I do with this?

*sigh*

> Donnah, one time that was almost the hardest for me with Grayson was when he
> was dresing.  I always laid out his clothes and went to the kitchen.  He
[quoted text clipped - 81 lines]
> > >
> > > Mary G.
Evelyn Ruut - 23 Oct 2004 21:57 GMT
> that is exactly the question I'm getting a hundred times a day (it seems)
> right now.... what do I do with this?
>
> *sigh*

It can be SOOOO maddening, it is true.

But to THEM, they are asking the question (whatever it may be) for the very
FIRST time.   We just answered my MIL again and again and again, no matter
how many times we were asked, and we would try to keep her busy, or out of
our immediate proximity to escape, sometimes when it got to be too much.

One very good reason for daycare.......for the few minutes of relief from
the constant questioning as much as for her own good and the stimulation she
got there.

I think it is just the way of the illness itself.  They simply cannot
remember the fact you just answered them.  They really can't remember and
they really can't help it.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>> Donnah, one time that was almost the hardest for me with Grayson was when
> he
[quoted text clipped - 86 lines]
>> > >
>> > > Mary G.
Lee - 23 Oct 2004 23:26 GMT
She used to ask the same questions over and over.... I thought I'd be glad
when she stopped .... but when that mostly ended, she switched to absolutely
inane comments that are much more difficult to respond to than the questions
ever were.... often there just ISN'T really a response... but she waits for
one none the less....  My personal favourite is when she says things like
"you took a long time in the bathroom"  ....    why, yes... yes I did! LOL
Just have to laugh.

The "what do I do with this?" thing has just started...and she asks  it
about her clothing, her pills when I hand them to her,  her purse, her
food... the other day I gave her a hamburger and fries and she was totally
discombobulated by it.... what do I do with this? (the hamburger)  .... eat
it!  Oh... what do I do with these?  uh.... eat those too?

> > that is exactly the question I'm getting a hundred times a day (it seems)
> > right now.... what do I do with this?
[quoted text clipped - 106 lines]
> >> > >
> >> > > Mary G.
donnah - 23 Oct 2004 23:52 GMT
LOL...Lee, sorry, but that made me laugh as it's happened to me, too.
I didn't know my tinkle time was being clocked!
and my Dad--not Mum--demanding to know why I wanted to fly to WA and
see my sister..."cause I want to?!" when I really wanted to say that I
need a vacation BAD <s>
Mum now has me "trained" in making their sandwiches at lunch...the
butter and mayo have to be spread to the very edge of the bread or she
won't eat it and, yes, she has opened her sandwich and looked...lol...
I am trying hard to get some of my sense of humor back without feeling
guilty 'cause I am not laughing at them, but for relief in this
situation.
donnah

> She used to ask the same questions over and over.... I thought I'd
> be glad
[quoted text clipped - 198 lines]
>> >> > >
>> >> > > Mary G.
Lee - 24 Oct 2004 01:55 GMT
if nothing else there are some funny stories that come out of the whole
thing....  one of my favourites was listening to her trying to handle a
phone call .... do you want to talk to my husband (her son, MY partner) ...
no wait... he's asleep ... here, talk to his girlfriend, she's up ... LOL

bet that got talked about

> LOL...Lee, sorry, but that made me laugh as it's happened to me, too.
> I didn't know my tinkle time was being clocked!
[quoted text clipped - 211 lines]
> >> >> > >
> >> >> > > Mary G.
Gwen Love - 24 Oct 2004 01:57 GMT
Lee, that's a good one.
Gwen

> if nothing else there are some funny stories that come out of the whole
> thing....  one of my favourites was listening to her trying to handle a
[quoted text clipped - 218 lines]
> > >> >> > >
> > >> >> > > Mary G.
Gwen Love - 24 Oct 2004 01:57 GMT
One laugh I had at Grayson (he didn't know it) was when we were expecting
company for the weekend.  He asked me what he could do to help.  I told him
after he took his shower to wipe down the walls.  He stayed so long I went
to check and he had the blue toilet bowl stuff and had sprayed or poured it
all over the walls of the shower.  Guess he thought that would clean them.
Gwen

> LOL...Lee, sorry, but that made me laugh as it's happened to me, too.
> I didn't know my tinkle time was being clocked!
[quoted text clipped - 211 lines]
> >> >> > >
> >> >> > > Mary G.
Evelyn Ruut - 24 Oct 2004 11:35 GMT
> She used to ask the same questions over and over.... I thought I'd be glad
> when she stopped .... but when that mostly ended, she switched to
[quoted text clipped - 13 lines]
> eat
> it!  Oh... what do I do with these?  uh.... eat those too?

Lee, you have to consider that her brain is slowly but surely losing all its
function.   They can't remember what to do with this or that item of
clothing, or this pill or that kind of food.   It is as though they are
faced with every single thing, brand new and strange.   Ultimately even the
people she knows will be brand new and strange.

I know it is an odd reversal to have to tell an old person "those are french
fries and you eat them" when she has probably eaten them a million times
over the years.   But she doesn't remember what they are or what they are
for.   It is probably one of the hardest things to realize for us that our
loved one is slowly but surely losing their memory, and they need
instructions and help with everything like a little kid.

My mother in law first forgot how to cook.   She was always a wonderful cook
and suddenly she wanted to take us all out to the diner to eat.   We thought
it so strange, since she always prided herself in the wonderful homemade
ethnic goodies she would make, (although it was a great diner and one we
always enjoyed going to, it just wasn't like her to have us all go out to
eat).   It was one of the first clues that we realized something was wrong.

Then she forgot how to take a bath.  Suddenly she got a bit funky smelling,
and instead of seeing her naturally curly hair that was always a source of
great pride to her, suddenly she was wearing a knitted cap all the time.
She forgot how to shower and how to shampoo and how to clean and how to walk
the dog.   Then she forgot how to take her pills, and she was taking two or
three a day instead of one, because she couldn't remember that she had
already taken her pill for the day.   We bought her pill boxes with the days
on them, but that didn't help, because she couldn't remember what day it
was.

So it is normal for your mom to say these "silly" things.   To her, it is
how she sees her world.   Every day she wakes up in a world of strange
experiences, all new to her.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

donnah - 24 Oct 2004 14:35 GMT
that sure makes sense to me...there are days when Mum is lucid and
very alert and it's like she has made a grand comeback (for lack of a
better word) yet within minutes she has forgotten something or is
again bewildered by something simple... sometimes I think that is the
hardest part--not knowing what to expect, but I see that I can't
really expect anything so I'd better learn to just go with what
happens and handle it as best as I can.
so easy to say, so hard to remember to do!
donnah

>> She used to ask the same questions over and over.... I thought I'd
>> be glad
[quoted text clipped - 56 lines]
> it is how she sees her world.   Every day she wakes up in a world of
> strange experiences, all new to her.
Evelyn Ruut - 24 Oct 2004 14:45 GMT
> that sure makes sense to me...there are days when Mum is lucid and very
> alert and it's like she has made a grand comeback (for lack of a better
[quoted text clipped - 5 lines]
> so easy to say, so hard to remember to do!
> donnah

Sometimes for some unknown reason, the "wires connect" occasionally, and
they will almost seem normal for a moment, an hour or even a good day, but
that is not to be counted on.   When those good moments happen they are
special.   I will never forget the day when my mother in law somehow
realized that I was taking care of her, dressing her, bathing her, and
seeing to her comfort.   She actually thanked me and hugged me.   I get
tears in my eyes even now when I remember that.

Two hours later and she was asking the same silly questions over and over
and as confused as ever.  Remembering the good moments helped me cope.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Trish Knight - 24 Oct 2004 19:53 GMT
>> that sure makes sense to me...there are days when Mum is lucid and
>> very alert and it's like she has made a grand comeback (for lack of a
[quoted text clipped - 13 lines]
> bathing her, and seeing to her comfort.   She actually thanked me and
> hugged me.   I get tears in my eyes even now when I remember that.

Evelyn, I remember the day you posted about this....and reading about it
now, and remembering, makes me teary, too!!

Love,
Trish

> Two hours later and she was asking the same silly questions over and
> over and as confused as ever.  Remembering the good moments helped me
> cope.
Evelyn Ruut - 24 Oct 2004 21:39 GMT
>>> that sure makes sense to me...there are days when Mum is lucid and very
>>> alert and it's like she has made a grand comeback (for lack of a better
[quoted text clipped - 19 lines]
> Love,
> Trish

Trish, it is nice to see you posting again.   Hope all is well with you and
yours :-)

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Anthony Shipley - 18 Nov 2004 07:59 GMT
>Two hours later and she was asking the same silly questions over and over
>and as confused as ever.

Seems to be a good place to introduce myself.

I have recently been diagnosed with AD (after four years of forgetfulness
diagnosed as depression and pretty much unable to work). Now, 52 years old,
Evelyn's description above is pretty much me now. Add, maybe, instantaneous
forgetfulness as soon as I am distracted or the person speaking to me says
something else.

In many respects, I am lucky - the liklihood of effective treatments is better
than ever. On the other hand, the affliction might be longer than ever.

Then again, I have been fortunate and have probably been more fortunate than the
average person. Had my first Aricept tablet today (Should'a taken it yesterday
but got confused about when to take it :-).

My real reason for posting here was to thank all you people supporting somebody
with Al. In many respects you are the real victims of the disease. Thank you all
for whatever you are able to do for you loved ones.

-
Mod as a hooter!
Tumbleweed - 18 Nov 2004 08:13 GMT
>>Two hours later and she was asking the same silly questions over and over
>>and as confused as ever.
[quoted text clipped - 24 lines]
> you all
> for whatever you are able to do for you loved ones.

Thats a bummer. Anthony, are you putting legal arrangements in place now so
that your wishes can be followed at a later time when you may not be able to
express or even understand them?

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Lee - 24 Oct 2004 22:30 GMT
I'll just go sit on my hands now (the equivilant of biting my tongue)

:(

> > She used to ask the same questions over and over.... I thought I'd be glad
> > when she stopped .... but when that mostly ended, she switched to
[quoted text clipped - 47 lines]
> how she sees her world.   Every day she wakes up in a world of strange
> experiences, all new to her.
Evelyn Ruut - 24 Oct 2004 23:22 GMT
> I'll just go sit on my hands now (the equivilant of biting my tongue)
>
> :(

Lee, remember what Gwen said..... NO GUILT!   There is just no way to
describe the pressure we are under as caregivers.   Only a saint would never
lose patience even once in a while.    Saints are pretty thin on the ground
around here,...... don't know about where you live :-)

(((((((  Lee  ))))))

big hugs to you..

When I lost it (and I did plenty of times) I would count to ten, take a
break and come back with a resolve to do better.   Sometimes it worked and
sometimes it didn't.    Caregiving is the most intense most difficult thing
I have ever done.  Please don't think there are any perfect people around
here, most especially me.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>> > She used to ask the same questions over and over.... I thought I'd be
> glad
[quoted text clipped - 63 lines]
>> how she sees her world.   Every day she wakes up in a world of strange
>> experiences, all new to her.
Gwen Love - 25 Oct 2004 01:34 GMT
Lee, Evelyn is absolutely right.  Grayson was really easy to look after and
I had a very easy time of it; however, there were still times when I would
lose patience with him and snap at him.  I had told my children how he would
ask a question over and over. After we came to Alabama, all of us went on a
trip together.  My son drove the car Grayson was in while my DIIL drove the
rest of us.  When we got back, Billy said, "I know now about the same
question being asked over and over", and proceeded to tell me the question
his daddy had kept asking him while on the trip.  People really have to see
it to believe it, but all of us here know exactly how it is.  And we know
that when you get tired your temper gets short, and occasionally you blow a
fuse.  So what!  People do that even when not being a caregiver to an AD
patient.  Again as Evelyn also said .........NO GUILT.
Gwen

> > I'll just go sit on my hands now (the equivilant of biting my tongue)
> >
[quoted text clipped - 82 lines]
> >> how she sees her world.   Every day she wakes up in a world of strange
> >> experiences, all new to her.
donnah - 25 Oct 2004 02:00 GMT
Gwen, guilt is one of the things that I struggle with the most...
I can't fix it, I get tired, I want some time to myself--and when I
look at those things, I feel like I am doing something wrong or if I
did something differently, things would be better.
I had today "off" and enjoyed most of it. I had forgotten how peaceful
and warm my own home is...yet, I kept thinking of Mum and Dad and
praying that they were all right. It's like my body was off but my
mind wasn't, if that makes sense!
An old friend of mine worked with children of alcoholics and taught
this slogan to her "kids"...
I didn't cause it, I can't cure it, but I can cope with it.
It's making me stop and think, for sure!
donnah

> Lee, Evelyn is absolutely right.  Grayson was really easy to look
> after and
[quoted text clipped - 167 lines]
>> >> strange
>> >> experiences, all new to her.
Gwen Love - 25 Oct 2004 20:01 GMT
Donnah, that slogan would make a terrific signature line in this NG.  It's
perfect for you to remember.

Gwen

> Gwen, guilt is one of the things that I struggle with the most...
> I can't fix it, I get tired, I want some time to myself--and when I
[quoted text clipped - 181 lines]
> >> >> strange
> >> >> experiences, all new to her.
donnah - 25 Oct 2004 20:54 GMT
Thanks Gwen...
I just added it <g>
Now I'm going to tape it to my forehead so I'll remember the wisdom it
those words!
donnah

> Donnah, that slogan would make a terrific signature line in this NG.
> It's
[quoted text clipped - 218 lines]
>> >> >> strange
>> >> >> experiences, all new to her.
Evelyn Ruut - 25 Oct 2004 22:14 GMT
> Donnah, that slogan would make a terrific signature line in this NG.  It's
> perfect for you to remember.

Yes, it would.....

" I didn't cause it, I can't cure it, but I can cope with it."

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

donnah - 26 Oct 2004 00:26 GMT
thanks, Evelyn...
now if I can just remember how to add that in OE as my sig line (and I
think Mum's memory is bad?!). I tried once but it's not showing...
donnah

>> Donnah, that slogan would make a terrific signature line in this
>> NG.  It's
[quoted text clipped - 3 lines]
>
> " I didn't cause it, I can't cure it, but I can cope with it."
Evelyn Ruut - 26 Oct 2004 00:24 GMT
> thanks, Evelyn...
> now if I can just remember how to add that in OE as my sig line (and I
> think Mum's memory is bad?!). I tried once but it's not showing...
> donnah

I think you go to tools, then options, then signatures.  Write the signature
line in the box and check the space whether you want it to go to just news
or to emails too.   Not totally sure, but I think that is how...

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>>> Donnah, that slogan would make a terrific signature line in this NG.
>>> It's
[quoted text clipped - 3 lines]
>>
>> " I didn't cause it, I can't cure it, but I can cope with it."
Gwen Love - 26 Oct 2004 00:32 GMT
donnah, under tools go to options and under options go to signatures
Gwen
> thanks, Evelyn...
> now if I can just remember how to add that in OE as my sig line (and I
[quoted text clipped - 8 lines]
> >
> > " I didn't cause it, I can't cure it, but I can cope with it."
Lee - 27 Oct 2004 05:09 GMT
sitting on my    hands has nothing to do with guilt... everything to do with
the fact that apparently somewhere along the way, I managed to convince
people in this group that I'm a moron ...  not intentional, I assure you ...

Anyway ...think I shall just move along...    more frustration I don't need.

> > I'll just go sit on my hands now (the equivilant of biting my tongue)
> >
[quoted text clipped - 82 lines]
> >> how she sees her world.   Every day she wakes up in a world of strange
> >> experiences, all new to her.
Evelyn Ruut - 27 Oct 2004 12:33 GMT
> sitting on my    hands has nothing to do with guilt... everything to do
> with
[quoted text clipped - 4 lines]
> Anyway ...think I shall just move along...    more frustration I don't
> need.

Sorry you took offense.  None was intended.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>> > I'll just go sit on my hands now (the equivilant of biting my tongue)
>> >
[quoted text clipped - 108 lines]
>> >> how she sees her world.   Every day she wakes up in a world of strange
>> >> experiences, all new to her.
Gwen Love - 27 Oct 2004 20:16 GMT
Lee, no one thinks you are a moron, and we certainly hope you will stay here
with us.  Hopefully, you will get some help here.
Gwen

> sitting on my    hands has nothing to do with guilt... everything to do with
> the fact that apparently somewhere along the way, I managed to convince
[quoted text clipped - 106 lines]
> > >> how she sees her world.   Every day she wakes up in a world of strange
> > >> experiences, all new to her.
donnah - 24 Oct 2004 14:25 GMT
Evelyn, I need to remember that Mum, and sometimes Dad, don't recall
that the same question has been answered ten or fifteen times. I can
see it in their eyes that they really don't remember...
donnah

>> that is exactly the question I'm getting a hundred times a day (it
>> seems)
[quoted text clipped - 149 lines]
>>> > >
>>> > > Mary G.
Evelyn Ruut - 24 Oct 2004 14:42 GMT
> Evelyn, I need to remember that Mum, and sometimes Dad, don't recall that
> the same question has been answered ten or fifteen times. I can see it in
> their eyes that they really don't remember...
> donnah

Exactly.   It is hard for us to understand that, even though our brains are
supposedly in good working order.   There were times I even yelled at my
poor mother in law, until I finally got it through my head that she really
and truly couldn't remember.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

>>> that is exactly the question I'm getting a hundred times a day (it
>>> seems)
[quoted text clipped - 119 lines]
>>>> > >
>>>> > > Mary G.
Anthony Shipley - 18 Nov 2004 08:11 GMT
>Exactly.   It is hard for us to understand that, even though our brains are
>supposedly in good working order.   There were times I even yelled at my
>poor mother in law, until I finally got it through my head that she really
>and truly couldn't remember.

Makes me think of my poor wife who seems to be forever telling me that I've
repeated myself over and over again - and my surprise at being totally unaware
of doing so. :-(

-
Mod as a hooter!
Gwen Love - 18 Nov 2004 17:23 GMT
Anthony, I hope caring for you by your wife will be as easy as it was for me
caring for my husband.  I did have to answer the same questions over and
over, but I knew that he didn't know that so I didn't let it bother me.
Otherwise he was mostly very sweet.  He couldn't wander because of strokes
so I didn't have that worry.  Stay with us please.  Your input will be
appreciated.
Gwen

> >Exactly.   It is hard for us to understand that, even though our brains are
> >supposedly in good working order.   There were times I even yelled at my
[quoted text clipped - 7 lines]
> -
> Mod as a hooter!
Evelyn Ruut - 22 Oct 2004 11:53 GMT
>I have heard recently, that when a person with AZ is nasty, it means
> they were nasty in their younger days. Is this true?

Hi Frank,

Not in my mother in law's case.   She got lots nicer as her dementia
progressed.   I have no idea why it was, but it is true.   Even now in the
nursing home all the staff loves her because she is very gentle and sweet.
In her earlier years she was not always that way, but she is now.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Jo Ann Malina - 22 Oct 2004 13:41 GMT
Frank Zink <FNZ@webtv.net> is alleged to have said:
> Lately, mom claws at me, spits and will grab at me if I pass her.She is
> paralyzed on her left side so I try not to get to close to her, but when
> dad and I are getting her ready for bed, she is awful.
> Is anyone else going thr this? And how long does this last?

One of the patients in the recent documentary about Alzheimer's, "The
Forgetting," was doing this to her relatives.  It was a large family
that had each other for support, and she was in a facility, so they
didn't have to put up with it day in and day out.  They were able to
say "It's not mom, it's the disease" when she would slap one of them
for no apparent reason.

If you haven't seen this film I recommend it.  It's shown on PBS from
time to time, or you can buy the video and book online:
http://www.shoppbs.org/sm-pbs-the-forgetting-portrait-of-alzheimer-dvd-
softcover-book-save-5--pi-1790298.html

It's harder when you're alone.  My mother will go from sweet as sugar
to damning me to hell in a few seconds, if I respond to her in any way
that displeases her (including silence).  I have learned I can't win;
there is no "correct" response.  I have also learned that if I can get
her to stop ranting, she will calm down.

But it hurts in the meantime.  It's pretty hard not to take it
personally when it's your mother.  As someone once said, your parents
can always push your buttons, they're the ones who installed them.

She was always a pleasant person, and still puts it on for strangers
and company.  I do think the rages are caused by a combination of the
disease and her reaction to it.  Sometimes I look at her and think,
I would be pissed too if it were my brain betraying me.

Signature

Jo Ann Malina, make spamthis best to find my address
Pain engraves a deeper memory.  --Anne Sexton

donnah - 23 Oct 2004 15:13 GMT
Frank, I am new here but wanted to let you know that you are in my
thoughts as you go through this...
donnah

>I have heard recently, that when a person with AZ is nasty, it means
> they were nasty in their younger days. Is this true?
[quoted text clipped - 19 lines]
> dad and I are getting her ready for bed, she is awful.
> Is anyone else going thr this? And how long does this last?
Dennis P. Harris - 24 Oct 2004 04:20 GMT
> Is anyone else going thr this? And how long does this last?

If it was a big personality change, it was probably due to damage
from the stroke.
Gwen Love - 11 Oct 2004 20:44 GMT
Boydette, I can't imagine what you are going through.  It is easy for people
to tell you how to feel and what to do, but most of us have not been in your
shoes, so we really don't know how we would react.  All I can say is that I
really feel for you and will keep you in my prayers.  Hang in there.
Gwen

> Evelyn
> Thank you for the kind words and the advice.  I know what you are saying
[quoted text clipped - 7 lines]
> if she KNOWS she is being a B****H why cant she stop.  Very difficult
> but I am hanging in there.  B
Monday - 14 Apr 2006 21:43 GMT
I don't know if this will help any.  I know you have a lot of pain from the
past and now have to be around the people that gave you pain on a regular
basis.  You are a COA (Children of Alcoholics).  It's not too late to see if
there are any groups for COA's in your area....if not then go to Al-Anon. I
do some mentoring in the local jail and this comes from one of the papers I
share with them.  This article is long so I hope it won't disturb anyone.

Resentment is defined as feeling bitter, hurt or indignation.  It comes from
a sense of being injured or offended.  If blame allows you to shift the
responsibility from yourself to someone else, then resentment makes sure
that it stays there.  Sometimes for life!  The way you hold a blame against
someone is through a resentment.  Otherwise you might forget it.  You need
resentment to remind you why you blamed in the first place.  Blaming and
resentment are opposite sides of the same coin.

Irene was in prison doing time for criminal conversion.  She had stolen some
money and was charged with check deception.  She was depressed and
constantly complaining about how she resented everyone.  She resented the
prison,  She resented the staff.  She resented the other inmates.  She
resented men.  But most of all she resented her stepfather and stepbrothers.

She was the only girl in the family.  Her stepfather had repeatedly sexually
abused her as a child.  As she grew older, her stepbrothers and their
cousins demanded that she submit to sexual acts with them as well.  She
resented them.  Then she got married.  But the abuse  continued when she
went to visit her parents' home.

When she became pregnant, one of her stepbrothers and her stepfather both
claimed thay they were the baby's father.  She had been hurt by what her
family had done to her life.  Her husband was intimidated by them and left
her.  She resented her family for the break up of her marriage.

She started doing drugs and getting drunk during the day.  Her stepbrother
took the baby away, claiming that she was an unfit mother.  She began to
feel resentment for what he had done.  Her resentment began to consume her.
She didn't want her child.  She resented her husband.  She resented her
mother.  She resented men.  She resented life.  Most of all she resented
herself.

The first time I saw Irene in the hospital, she was reported by the nursing
staff to be suffering from severe seizures.  She also had skull-splitting
headaches.  Her medical history indicated that she had bouts with ulcers,
menstrual irregularities, low back pains and fainting spells.  She seemed to
have a different physical complaint each day.  And in spite of extensive
medical workups and laboratory studies, we could not find anything to
explain her symptoms.

She was obviously in a lot of pain.  But the medical staff didn't feel that
it all was due to physiological disorder.  We suspected that a lot of this
had to do with the pain that she carried around inside of her from her past.
The pain that she really felt physically was a result of the pain she had
experienced psychologically.

She literally carried around so much resentment that she was experiencing
physical pain all the time.  She had initially been unwilling to look at the
situation.  She was unwilling to talk about it with anyone.  She didn't want
to be seen as "crazy."  But gradually she was able to talk to me about what
had happened to her.  The experiences had filled her with pain.  Her
resentment was red hot!  And it was making her sick.

Later, as we worked together, she was able to see the connection between her
mind and emotions on the one hand, and her body on the other.  We talked
about Psychosomatic Medicine.  She thought that it meant that the sickness
was all in her head.  I explained to her that psychosomatic is actually two
words----psycho and somatic.

Psyche is the Greek word for soul or spirit.  Soma is the Latin word for
body.  Together they mean a connection between the soul and the body.  It
means that your mind and body are connected.  If something affects you
mentally or emotionally, then it can result in a physical symptom that is
real.

Irene began to look at the effects that her resentments had on her body.
She recognized that her emotions were connected with her body and that each
time she thought about her family, she got sick with another symptom.  Her
resentments against her stephather and stepbrother were literally making her
sick.  She began to see that if she redirected some of her thoughts away
from the resentment and channeled it elsewhere, then she could feel better.

The more she started to look away from her feelings of resentment, the more
she was free to do other things with her time and with her life.  She
couldn't change the past, but she could have more happiness now if she chose
to take charge of her resentment rather than living with her resentment
TAKING CHARGE of her.

This was a dramatic discovery.  It freed her from hours and hours of pain.
Her daily visits to the infirmary decreased in frequency.  She wanted to
start a group for women who had been similarly abused to talk about
becoming healthy again.  When she gave up her resentments, she also gave up
the pain.

Irene didn't need resentment any more.  She found that she needed happiness,
acceptance and real understanding.  But she couldn't even know this until
she was ready to give up resentment.  It was consuming her life.

When she felt better about herself, she could also help others to feel
better about themselves.  She had given up resentments and was TAKING
CHARGE.

When you give up resentment, you give up pain.

> Evelyn
> Thank you for the kind words and the advice.  I know what you are saying
[quoted text clipped - 7 lines]
> if she KNOWS she is being a B****H why cant she stop.  Very difficult
> but I am hanging in there.  B
 
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