Bill, my husband's neurologist had him on 1,000 Vit E. after he was
diagnosed with AD. He had been on 400.
Gwen
> Howdy Folks,
>
[quoted text clipped - 29 lines]
> Regards,
> Bill
snip...
My Mom couldn't swallow the gel
> caps so she wasn't taking them. I poked a hole in a couple and gave her
> some just a few minutes ago.
You should be able to easily find "deoderized" Fish Oil in liquid form at
any supplement store. Aside from being without smell it is pretty innocuous
tasting...especially when compared to cod liver oil!
Dennis White
>I'm just getting ready to order some supplements that I thought would do no
>harm and might be helpful for Alzheimer's (actually almost certainly Lewis
>Body Dementia).
If DLB is suspected, be wary of the use of anti-psychotics (so-called
neuroleptics), especially the typical ones such as Haloperidol. In my
Dad's case, Haldol was the straw that broke the camel's back.
>Fish oil was on my list, and after reading Darryl's post I thought I should
>get up to speed on what other supplements you guys have found beneficial.
My Dad suffered from DLB (as confirmed at autopsy) but for what it's
worth, he was on Vitamin C (500 mg bid--twice daily), Vitamin E (400
IU bid), ibuprofen (200 mg bid), a fish oil supplement (morning) and
Ginkgo (morning).
The jury has been in and out with regards to NSAIDS (e.g., ibuprofen
and aspirin) and Ginkgo. In my opinion, I would recommend
supplementation *if* they are tolerated.
>Other than fish oil, are there any other promising supplements? I was
The combination of Vitamin C (500 mg) and E (400 IU) has been shown to
be useful in the treatment of AD.
For more go to groups.google.com and enter the string:
"vitamin C" alt.support.alzheimers
>considering coenzyme Q10, increasing vitamin E beyond 400mg, ginkgo biloba,
>ibuprofen, increase Vit C beyond the normal multivitamin, and possibly 1mg
>or less melatonin. I recently read Acetyl-L-carnitine has not shown to be
>effective.
I take acetyl-l-carntine. It provides acteyl groups which will
eventually be used to make acetylcholine. ALCAR has been shown to be
useful for a bunch of other things including dementia at times, but as
you mention, at other times, not.
CoQ10 acts as an antioxidant, especially within the mitochondria, but
I'm not sure that it's been shown to be useful in the treatment of AD
(although iIt has been shown to increase maximum lifespan in rats :-)
Shorter chain analogs such as idebenone may be harmful so if you're
going to supplement, go with Q10.
>Since fish oil seems like a high priority, is there a best way to get the
>DHA?
See Dennis' post...I use a 1000 mg salmon oil gelcap and burp fish for
about an hour after I take it :-o
Darryl.
Evelyn Ruut - 21 Sep 2004 10:24 GMT
> >I'm just getting ready to order some supplements that I thought would do
> >no
[quoted text clipped - 52 lines]
>
> Darryl.
Darryl, I had the same problem till I switched to the descented variety. No
more problems.

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")
Bill Hermsmeier - 21 Sep 2004 22:24 GMT
"Darryl" <umpolung@REMOVEhotmail.com> wrote in message > If DLB is
suspected, be wary of the use of anti-psychotics (so-called
> neuroleptics), especially the typical ones such as Haloperidol. In my
> Dad's case, Haldol was the straw that broke the camel's back.
Right ... My Mom was given Risperdal after reports of seeing extra people in
the house. It made her real loopy. She would turn the wrong way, get the
walker backwards, etc. We got rid of that doctor later for other reasons,
but it seems DLB is not considered soon enough in patients thought to have
Alz'. This was after a bad reaction to Celexa earlier, then Zoloft.
Thanks for the ideas, another I'm getting is curcumin, based mostly on
folklore :) Most of this stuff I plan to take myself. At 49, I figure an
ounce of prevention ...
Bill
Darryl - 22 Sep 2004 03:26 GMT
>Thanks for the ideas, another I'm getting is curcumin, based mostly on
>folklore :)
It was folklore until about 2002 when _in vitro_ studies revealed that
curcumin protects a certain cell line from amyloid beta (the plaque in
AD) damage.
There's one problem: curcumin is metabolised rapidly in humans
*unless* it's taken in combination with piperine (from black pepper).
So, add a little black pepper to the table or look for a curcumin/
piperine supplement!
> Most of this stuff I plan to take myself. At 49, I figure an ounce of prevention ...
Same here (at 32)
turkey in the straw - 22 Sep 2004 04:56 GMT
Are you talking about cumin you use in chili?