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Medical Forum / Diseases and Disorders / Alzheimer's / October 2004

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She's gone

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Dennis P. Harris - 26 Sep 2004 09:42 GMT
Those of you who know me know that I have been trying to keep my
mother safe at home as long as she could stay there, but that
last month we had to move her to an assisted living group home.

She had been refusing to use the oxygen prescribed for her
emphysema and had stopped taking all her meds, including her
bipolar medication and her diuretic.  As a result, her blood
pressure shot way up, she got somewhat manic, and she was no
longer safe at home.

She agreed that she was no longer safe and signed the papers for
admission to the group home and to activate her inactive
application for the Juneau Pioneers Home.  Activating her put her
at the top of the active list for an assisted living bed.

She had not been eating much ever since she had been prescribed
oxygen, and once she got to assisted living, she still tried to
stay off oxygen and wouldn't eat or often even drink.  She became
dehydrated, so her docs had her admitted to our local hospital
for rehydration, and to withdraw meds in a controlled environment
in the hope that she would become more coherent.  

On Monday the 13th, she was very lucid, and insisted that we have
the hydration IV removed, call Hospice, and take her home to die,
which we did.  She made her request at 9 in the morning, and
Hospice had the hospital bed with alternating air pad delivered
in 3 hours, and she was ambulanced home by mid-afternoon.

We hired a private overnight caregiver and Hospice sent
volunteers, as well a physical therapist to advise on how to turn
her to avoid bedsores.  We had prescriptions for morphine and
ativan to be administered by eyedropper, and she would suck on
swabs when her mouth was dry, but wouldn't drink anything.

I had just stopped by the house to check on how she was doing on
the afternoon of Thursday the 16th when she coughed once and her
heart stopped beating and she stopped breathing.  Finally, for
the first time in 10 years, she was no longer struggling for
breath.

She's now at peace.  We had a wonderful service last Wednesday,
and buried her ashes under her cherry tree, just outside the
backyard boundary, which happens to legally be in the adjoining
cemetery.  She had always joked that we should bury her there.

I am so glad that we could take her home and let her die where
she wanted, in the room where she had nursed her aunt through the
same passage.  She simply did not want to die slowly from
emphysema in an assisted living situation and chose an
alternative.  I only hope that I have as much courage if I'm ever
in such a situation.

Thanks to everyone in the group for their support and advice over
the past several years.  Without a place to vent, complain, or
ask for advice, I would have really been going crazy.

R.I.P. Elizabeth Ellen Harris, July 10, 1925 - September 16,
2004.

Obituary online at
http://www.juneauempire.com/stories/091904/obi_harris.shtml
John Inzer - 26 Sep 2004 11:46 GMT
> Those of you who know me know that I have been trying to
> keep my mother safe at home as long as she could stay
[quoted text clipped - 64 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml
=====================================
Dennis,

Your mom lived a very full and productive life and
in the end she was very courageous. I'm sure she
will be sorely missed.

Thank you for posting the information.

Signature

John Inzer
return e-mail disabled

Evelyn Ruut - 26 Sep 2004 12:17 GMT
> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml

Dear Dennis,

My deepest sympathies to you and your family.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Robert E. Lewis - 26 Sep 2004 15:27 GMT
You have my sympathy, Dennis, and my admiration for the effort you made to
keep your mother comfortable, safe and dignified throughout the horrible
ordeal.
Tumbleweed - 26 Sep 2004 15:46 GMT
Wow. Sorry but glad the suffering is over for all of you. Sounds like she
was very much 'together' to make those decisions.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml
Jo Ann Malina - 26 Sep 2004 17:32 GMT
Dennis P. Harris <NO_SPAM_TO_dpharris@gci.net> is alleged to have said:
> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 16 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml

My condolences, Dennis.  Blessings on you for helping her to die with
dignity.  She was very brave, and so are you.

I hope you will still visit this newsgroup, as your postings are very
welcome -- wise and helpful.

Signature

Jo Ann Malina, make spamthis best to find my address
What is remembered, lives.   The Spiral Dance

Darryl - 26 Sep 2004 18:31 GMT
I'm sorry to hear of your loss Dennis although I'm glad to hear that
things went as smoothly as can be expected.

Take care,
Darryl.

>Those of you who know me know that I have been trying to keep my
>mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
>Obituary online at
>http://www.juneauempire.com/stories/091904/obi_harris.shtml
Dennis White - 26 Sep 2004 19:29 GMT
snip...

Dennis,
Bless you and bless your mother.  She sounds as if she was so full of life
and courage.  I'm so happy you were able to fulfill her wishes of being
allowed to die at home and with dignity.

Dennis White
Gwen Love - 26 Sep 2004 20:56 GMT
Dennis, your mother must have been a very intelligent lady, and looks as if
she had a most interesting life.  Happy for all of you that she died at home
according to her wishes.  My sympathy to all the family.
Gwen

> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml
has tiger firmly by the tail - 26 Sep 2004 21:26 GMT
Dennis, it seems that no matter how long we have our parents with us it is
never long enough, I still miss my mom and know you will miss yours also. we
can have some peace of mind by knowing that they are at rest and worry free now
after running a good race.
turkey in the straw - 27 Sep 2004 06:02 GMT
Dennis,
  It brings tears to my eyes to read how you brought your mom home.What
a gift you gave to her.Barb
Mary K Farrell - 28 Sep 2004 01:31 GMT
 Dennis:
 I'm so sorry to hear of your mom's death, but so happy she's no longer
suffering. Your mom was an amazing person. You are equally amazing. The love
and care you gave her is evidence of the love and respect you had for your
mom. God bless you both.
 Mary K
 > Those of you who know me know that I have been trying to keep my
 > mother safe at home as long as she could stay there, but that
 > last month we had to move her to an assisted living group home.
 >
 > She had been refusing to use the oxygen prescribed for her
 > emphysema and had stopped taking all her meds, including her
 > bipolar medication and her diuretic.  As a result, her blood
 > pressure shot way up, she got somewhat manic, and she was no
 > longer safe at home.
 >
 > She agreed that she was no longer safe and signed the papers for
 > admission to the group home and to activate her inactive
 > application for the Juneau Pioneers Home.  Activating her put her
 > at the top of the active list for an assisted living bed.
 >
 > She had not been eating much ever since she had been prescribed
 > oxygen, and once she got to assisted living, she still tried to
 > stay off oxygen and wouldn't eat or often even drink.  She became
 > dehydrated, so her docs had her admitted to our local hospital
 > for rehydration, and to withdraw meds in a controlled environment
 > in the hope that she would become more coherent.
 >
 > On Monday the 13th, she was very lucid, and insisted that we have
 > the hydration IV removed, call Hospice, and take her home to die,
 > which we did.  She made her request at 9 in the morning, and
 > Hospice had the hospital bed with alternating air pad delivered
 > in 3 hours, and she was ambulanced home by mid-afternoon.
 >
 > We hired a private overnight caregiver and Hospice sent
 > volunteers, as well a physical therapist to advise on how to turn
 > her to avoid bedsores.  We had prescriptions for morphine and
 > ativan to be administered by eyedropper, and she would suck on
 > swabs when her mouth was dry, but wouldn't drink anything.
 >
 > I had just stopped by the house to check on how she was doing on
 > the afternoon of Thursday the 16th when she coughed once and her
 > heart stopped beating and she stopped breathing.  Finally, for
 > the first time in 10 years, she was no longer struggling for
 > breath.
 >
 > She's now at peace.  We had a wonderful service last Wednesday,
 > and buried her ashes under her cherry tree, just outside the
 > backyard boundary, which happens to legally be in the adjoining
 > cemetery.  She had always joked that we should bury her there.
 >
 > I am so glad that we could take her home and let her die where
 > she wanted, in the room where she had nursed her aunt through the
 > same passage.  She simply did not want to die slowly from
 > emphysema in an assisted living situation and chose an
 > alternative.  I only hope that I have as much courage if I'm ever
 > in such a situation.
 >
 > Thanks to everyone in the group for their support and advice over
 > the past several years.  Without a place to vent, complain, or
 > ask for advice, I would have really been going crazy.
 >
 > R.I.P. Elizabeth Ellen Harris, July 10, 1925 - September 16,
 > 2004.
 >
 > Obituary online at
 > http://www.juneauempire.com/stories/091904/obi_harris.shtml
 >
 >
Adelle D. Stavis, Esq. - 28 Sep 2004 02:47 GMT
>   Dennis:
>   I'm so sorry to hear of your mom's death, but so happy she's no longer
> suffering. Your mom was an amazing person. You are equally amazing. The love
> and care you gave her is evidence of the love and respect you had for your
> mom. God bless you both.
>   Mary K

Well said. Dennis, please accept my condolences. My loving and happy
memories be of comfort when the time is right.

Adelle
Barbara Rose - 28 Sep 2004 20:47 GMT
Dennis, I don't know what to say, except that we all understand.

Thinking of you.

Barb in UK

>   Dennis:
>   I'm so sorry to hear of your mom's death, but so happy she's no longer
[quoted text clipped - 65 lines]
>   >
>   >
Dennis P. Harris - 29 Sep 2004 07:32 GMT
On Sun, 26 Sep 2004 00:42:38 -0800 in alt.support.alzheimers, I
wrote:

> She's now at peace.

And there were many responses.

Thanks to everyone for the kindness and condolences.  I've
experienced the same here in town, where a lot of folks knew my
mother very well.

I'm not going to disappear from here, at least for a while.
Those of us that have been all the way through this journey need
to offer our knowledge and support to those coming behind us.

I also intend to stay involved with care and caregiver issues
locally and statewide.  In her better days, my mother was active
in senior issues and I'm sure I'll do the same, since I'm not
getting any younger!

Once again, thanks to everyone.
Pam Pomo - 01 Oct 2004 06:02 GMT
Dennis,

You are one of the "old timer's" that I met when I first came to the ng 4
years ago.  I have watched you travel your journey with Mom with great
passion, courage and committment, never waivering on decisions made in her
best interest.

May you find comfort in knowing that you were able to guide her to a
peaceful passing, and may your heart, once again, be filled with beautiful
colors.....

I am so very sorry for your loss.

Pam

> On Sun, 26 Sep 2004 00:42:38 -0800 in alt.support.alzheimers, I
> wrote:
[quoted text clipped - 17 lines]
>
> Once again, thanks to everyone.
lynn - 03 Oct 2004 12:53 GMT
> Dennis,
>
[quoted text clipped - 10 lines]
>
> Pam

Dennis, like Pam, you were one of the first I met through the
newsgroup when I arrived here. And like all the other old-timers, I
have watched you be a terrific advocate for your mom's saftety and
well-being. You might remember my mom also was bi-polar, an extra
challenge when it comes to managing the moods of AD. You were a loving
son,and your committment to your mom was admirable. What a brave lady,
at last she no longer strugggles for her breaths. My condolences to
you. Lynn
Trish Knight - 03 Oct 2004 16:41 GMT
Dennis,
I am so sorry about your mom.
((((( Dennis )))))

Hugs,
Trish

> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml
Boydette - 03 Oct 2004 21:07 GMT
Dennis

I am so sorry to hear about your mom.  It was nice of you to take the
time to write to me while going thru all this.  I did try to respond but
it came back to me.  I just wanted to thank you for the helpful
suggestions

Boydette
Howard Goldstein - 04 Oct 2004 15:27 GMT
You're in my thoughts, Dennis.
Charlene Donahue - 07 Oct 2004 01:46 GMT
Dear Dennis,

I am so sorry for your loss but remember she is at peace.  You helped
her through everything---remember the good times & put the rest out of
your mind.

Always,

Char

> Those of you who know me know that I have been trying to keep my
> mother safe at home as long as she could stay there, but that
[quoted text clipped - 57 lines]
> Obituary online at
> http://www.juneauempire.com/stories/091904/obi_harris.shtml
 
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