I posted here awhile back about my parents who both were suffering from
alcohol dementia.
Since then alot has happened. In early Aiug my dad collapsed and was
rushed to the hospital and was in ICU for about a week. His blood
pressure was dangerously low he was dehydrated and malnourished. He was
in kidney failure and his heartbeat was irregular. He has since
survived the ordeal and is now in a nursing home. For awhile there he
couldnt walk or speak. Now he is walking some and talking although he
is very confused and makes very little sense. During the course of his
hospital stay it was determined he has leaukemia also and they have
given him 6 months to a year to live. Hospice care has been offered but
I am not sure what that all entails. Could someone tell me?
My sister has gotten power of attorney to take care of their financial
matters. She also has living wills for both of them and has decided
that it was dads wish not to be treated with what they have offered so
no treatment is being administered.
It is another story with my mom. She forgets from day to day everything
we tell her regarding dad. Every day she makes up stories that he was
home or they went here or there together. Senior services in my state
visited her and determined she should not be alone. I brought her to my
home for about a week but she was constantly demanding to go home. She
is a very hateful mean person and it was unbearable for me to have her
here. My sister took her to her house and the same thing happened. She
also is constantly demanding alcohol. My sister made the decision to
let her alone for now but it is getting worse on a daily basis. She has
good days and bad but the forgetfulness is ongoing. Many times she will
argue with me when I try to explain where dad is. Taking her to visit
him doesnt help cause the very next day she forgets again. She is
constantly losing things and hiding things like money keys and bills.
We did manage to get her to the ER at the insistence of the Senior
service worker and they did a cat scan and it was okay. They did call a
psych counselor in and he determined she is in the early stages of AZ
but it has not been determined medically yet as she has refused medical
treatment of any kind even tho they wanted to admit her for further
tests.. I made a doc appt for her and she fought me tooth and nail.
When I finally got her to go we were 10 minutes late and doc had left.
GRRR
Anyway I could use some advice and support as it is very tough dealing
with BOTH of them being sick at the same time. Surprisingly enough my
dad has survived the alcohol withdrawal but he constantly thinks he is
drinking so we just let him think so. What good would it do to argue
with him?
Getting guardianship is not an option at this point as she still has
lucid moments and it is my opinion she would be able to fool a judge
because she is so adamant that she can care for herself. Besides
getting guardianship is not gonna make her behave and would only anger
her further. Senior services has since tried to call back on her and
she refuses to cooperate by leaving the house when she knows they are
coming etc.
She has medical problems as well that need to be addressed. Five years
ago she was diagnosed with cirrohsis (sp?) and nothing has been done
since. She has high blood pressure which is under control with
medication but I am sure she doesnt take it like she should She also
had a kidney infection which I made sure she took her meds when she was
here but refuses to go for a follow up visit. What am I supposed to do?
I cant pick her up bodily and force her. I am at my wits end.
.
Sorry this is so long and I hope yall didnt get bored before you got to
the end of my sad tale...lol....thanks in advance for any help you can
offer.
Boydette
Gwen Love - 29 Sep 2004 21:36 GMT
Yes, I do remember you. Seems things have just gotten worse, and I'm sorry
for that. Do call Hospice and get them to talk to you. I had them with
Grayson when he was in the NH, and they were really good. They will help
the family as well as the patient. You will really appreciate having them
and it doesn't cost you anything if your dad is on Medicare (might not
anyway).
Gwen
> I posted here awhile back about my parents who both were suffering from
> alcohol dementia.
[quoted text clipped - 65 lines]
>
> Boydette
Lee - 29 Sep 2004 21:40 GMT
certainly wouldn't turn down the hospice care... from everything I've read,
hospice workers are a huge help and support to both the individual and
family .... call them! What could it possibly hurt?
As to your mom, it sounds as though it could well be a long and difficult
haul with her... it's a very good thing that you have social services
involved with her, and that's something you'll want to try to maintain even
when she doesn't cooperate..... hopefully as things progress, she'll be come
less combative and easier to get along with ....
> I posted here awhile back about my parents who both were suffering from
> alcohol dementia.
[quoted text clipped - 65 lines]
>
> Boydette
Bill - 29 Sep 2004 22:28 GMT
Tell them to initiate hospice immediately. What you (as in patient and
family) gain is immeasurable.
One of the bigger concerns people have about hospice is that it will
cause someone to die faster, or that you need to be days from death
before they can help. Both of these are absolutely untrue and couldn't
be further from the truthe.
Talk with them to see what they can offer. THere is nothing to lose,
but an absolutely priceless amount of support for the patient and
family to be gained.
Good Luck.
>certainly wouldn't turn down the hospice care... from everything I've read,
>hospice workers are a huge help and support to both the individual and
[quoted text clipped - 75 lines]
>>
>> Boydette
Dennis White - 30 Sep 2004 00:05 GMT
All this talk of worrying and caring about your parents leads me to beg
of you: PLEASE get care for yourself! It sounds as if the situation is too
much for one person to handle...both physically and emotionally. There are
alot of self-help groups and (free) counseling services for people in your
situation. In this case the old axiom is true: You can't take care of
anyone else unless you take care of yourself. You need support. I am
afraid that things are not going to get better until your parents are gone.
I know that sounds harsh, but the double whammy of dementia *and* alcoholism
is a terrible burden for families.
Believe it or not, you may also get great help from Alcoholics Anonymous
(AA) and Adult Children of Alcoholics (ACOA). You should be able to locate
both groups in your area. You'll get the benefit of others who have had to
go through the same struggle.
Dennis White
> I posted here awhile back about my parents who both were suffering from
> alcohol dementia.
[quoted text clipped - 65 lines]
>
> Boydette
Boydette - 03 Oct 2004 20:52 GMT
Thanks to those that responded.
After reading your posts I did a little research about hospice care as I
wasnt really quite sure what it was. It sounds like a very good idea
and I am all for it. My sister is the one in charge of those decisions
tho but I will be sure to tell her what I found out.
Both of them are on medicare and my sis also applied for medicaid but it
hasnt kicked in yet. They have no assets and are on SS so as you
probably know they are on a fixed income and it is very llttle money.
I am afraid that you were right about saying it wont end til they are
gone. Every day brings new challenges and problems to solve.
I also agree with the idea that I need support. I couldnt find and ACOA
in my area and I would love to find one. Maybe in the city. There is
however Al anon meetings and that may help too. As yall may or may not
remember I have bipolar disorder and anxiety/panic disorder. My meds
are helping me stay grounded but the stress is ongoing and sometimes it
is very hard not to just want to stick my head in the sand and hide.
Anyway thanks for the suggestions and support. I really appreciate
it....B