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Medical Forum / Diseases and Disorders / Alzheimer's / September 2004

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Pep talk, please!

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Songbird - 27 Sep 2004 23:07 GMT
We've gotten Mom fairly well sorted out physically. Her blood sugar is
coming under control, and her pacemaker is preventing those "spells" she
used to have. She scored a 29 on the MMSE, and her CT scan (no MRI because
of the pacemaker) did not show Alzheimer's type changes but showed a pattern
of not enough blood reaching the brain. (No more can be done medically to
improve that part of the equation.) So her diagnosis at this point is
vascular dementia, not Alz, though we have not used that exact phrase in
front of her. I have called it "your vascular memory loss," because
"dementia" brings up memories of a family member who had to be hospitalized
for mental problems that thoroughly frightened her as a child.

The doctor has offered to prescribe Alz drugs (I'm not sure which one),
saying that recent studies show that they sometimes help even if cause of
memory loss is other. Her theory (and mine) is may as well as try it and see
if it helps. Mom refuses, saying she is on enough meds already, and that as
long as she has me and Dad she is OK. We rarely leave her alone, and then
only for an hour or so. Dad does all the cooking, cleaning and driving, and
I take her to all her doctor's appointments. (She cannot answer questions
about her own medical history correctly, much less remember what the doctor
told her or what questions she was supposed to ask.)

Dad is slowly coming to accept that she has a real disease, that she is not
just ignoring him when she doesn't remember something he has told her. He is
very reluctant to talk to her about her illness -- he gets very emotional.
(What can I say? He's madly in love with her still after 46 years! He just
is not familiar with the caregiver role and is having trouble adapting.) I
have broached the idea of sitting down with the local director of the Alz
Association to talk about what we can expect and what resources we can plug
into. I have already discussed this with her, and she is more than willing
to come to their home and let them set the pace for how "deep" we go in the
discussion. Dad seemed receptive tonight, but wasn't sure how Mom would take
it. Mom will go along with anything he suggests, and will meet anyone (after
all, to refuse would be rude and nice girls from Charleston are never
*rude*).

So I'm giving the idea a day to soak in with Dad and then I'll suggest it
again (if he hasn't brought it up as *his* idea by then.)

For some reason, though, I'm getting nervous about the actual meeting. Any
suggestions on how to bring it up to Mom, how to introduce the lady, what to
talk about for a first visit?

Songbird
Barbara Rose - 27 Sep 2004 23:19 GMT
Hi Songbird

I was exactly the same as you when the Social Worker was coming.

I said that the doctor was sending this person round to try and help her
with her memory as he knew it was bothering her.

These people are used to it all much more than we are.  She chatted to Mum
about the war and the old days and gained her confidence quite quickly.

You will be surprised at how well your Mum responds particularly to an
outsider and she may even get persuade her to take the Alz drugs.

Good Luck, but don't worry, it wasn't nearly as bad as I'd expected.

Barb in UK
> We've gotten Mom fairly well sorted out physically. Her blood sugar is
> coming under control, and her pacemaker is preventing those "spells" she
[quoted text clipped - 39 lines]
>
> Songbird
Gwen Love - 28 Sep 2004 02:35 GMT
Songbird, hope "your dad's" idea works out well and you will be able to get
her on the AD medicine to see if it will help.  Are you by any chance from
Charleston, SC?  My brother-in-law and SIL live near Ravanel and he used to
have 3 gas stations in Charleston.  He now has dementia and is on Aricept
and Namenda.  He was 7 years younger than Grayson, and their older brother,
2 years older than Grayson has now been diagnosed with dementia.  So it
seems to have run in that family.
Gwen

> We've gotten Mom fairly well sorted out physically. Her blood sugar is
> coming under control, and her pacemaker is preventing those "spells" she
[quoted text clipped - 39 lines]
>
> Songbird
Dennis P. Harris - 28 Sep 2004 05:48 GMT
> Any
> suggestions on how to bring it up to Mom, how to introduce the lady, what to
> talk about for a first visit?

She's probably an expert at handling this kind of awkward
situation, so I would ask her how she wants to be introduced.  No
sense on "bringing it up" with your mother because she wouldn't
remember, and why get her upset in advance of the meeting?  

You no longer have to get her permission to do what's good for
her, since she can't do it for herself.
Evelyn Ruut - 28 Sep 2004 13:12 GMT
> For some reason, though, I'm getting nervous about the actual meeting. Any
> suggestions on how to bring it up to Mom, how to introduce the lady, what
> to
> talk about for a first visit?
>
> Songbird

Songbird, if she is anything like our local alzheimer association lady, I
think you'll see there is no reason for concern.  These people are dedicated
and extremely skilled at the way they approach people.   Even my mother in
law was completely accepting and open with our representative.   Let her
take it from the top.....just introduce her and let her go from there.
you'll see how skilled these folks are at approaches to elderly folks with
memory issues.   It is what they do best.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

 
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