Hello Everyone,
I wondered onto this newsgroup in search of some intelligent
conversation and TRUE help for those of us who take care of a LO with
Alzheimers. It looks like I may have found it.
In reading the most recents posts, I appreciate the book
recommendations. It seems I'm always looking for something more.
My mother, 74 year old, was diagnosed about 3 years ago. She also has
diabetes and high blood pressure. She seems to have stabalized for
the past year in that she remembers her family and is somewhat in
control of herself. Of course there are good days and bad days as you
know.
I would like to ask how the diagnosis was made for your loved one. My
mother had a small stroke and she had an MRI. Atrophy was noted on
the MRI, but Alzheimers was not mentioned. 1 year later my mother
drove herself to town at 11:00am and did not return. At 7:00 pm, with
the help of the local police, we found her outside the pet store,
sitting on a step. She had wet herself and was just sitting there.
She didn't know why she was there or that she was lost. When I took
her in to the Doc, they did another MRI and nothing had changed. I
took her to an occupational therapist who did a memory test thing with
her. She saw a neurologist and his report ended with a diagnosis of
Alzeimers but it didn't really link the "reasons" or the results of
any of her tests to it. So, I've always wondered if it was an
accurate diagnosis or if it is was just made to "give the family
answers".
Has anyone else had an experience like this? Can you share how the
diagnosis was made with family?
Thanks
Sparky - 22 Sep 2004 04:16 GMT
Mom took off late one morning to eat lunch with my aunt. She never made
it. Eleven hours later someone calls on her cell phone to tell me she
is in Virginia (we live in the central part of North Carolina). It was
a four hour drive one way. She had burned up the clutch in the car. If
it had not been for that, Lord knows where she would have ended up. She
had no idea how she got there.
She had a prior instance where I called from work, and she was
confused. Even though it was late afternoon, she thought it was morning
and that she had slept sitting on the couch in her clothes. I called
the docter behind her back to ask him to check her out. Nothing was
ever said about this. After her "trip" the doctor declares "dementia"
without really running any tests. When I asked if this could be the
start of Alzheimers, he stated that we had long passed that mark
(referring to the earlier incident). I should have changed doctors
then, but I was ignorant. We have a different doctor now. The newer one
sent her to a neurologist. At this point there was no doubt she had
dementia. The only reason I agreed was because I was told they could
treat the illness better if they knew the exact type of dementia. The
neurologist had the bed side manner of a rock. Little does he know when
he was checking Mom's reflexes with the hammer, I was preventing Mom
from clocking him. We never went back. That is when I realized that
you, the caregiver, have to become more than the doctor. Just because
they have a degree on the wall doesn't mean they know best.
I, too, am a newbie to this group. I have been lurking for a couple of
months gleaning ideas and getting comfort from the fact that I am not
the only one to be going through this (although I wouldn't wish this on
my worst enemy).
Hope this helps.
--
Sparky
Evelyn Ruut - 22 Sep 2004 11:38 GMT
> Mom took off late one morning to eat lunch with my aunt. She never made
> it. Eleven hours later someone calls on her cell phone to tell me she
[quoted text clipped - 30 lines]
> --
> Sparky
Hi Sparky,
Sorry you have had to join the club nobody wants to be in. Welcome to the
newsgroup though. I cannot tell you how much this group has helped me over
the last few years. Whether you want advice or just a place to vent what
is in your heart, this is a good place to do it.

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")