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Medical Forum / Diseases and Disorders / Alzheimer's / October 2004

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Feather Forestwalker - 31 Aug 2004 15:29 GMT
Hi, my name is Feather and I am writing from northern California,
(cross-posting this to alt.christnet.prayer)

A few months ago, a really nice lady moved into our building. She's young
(in her fifties) and has early-onset Alzheimer's.

Long story short, her brother told me that she should have been on Aricept a
long time ago (didn't define what long time ago meant), as she would be
doing better than she is now. . .

. . .she visits me several times a day (I do work for our church out of my
home most days) with no clue as to what she is supposed to be doing - often
brings her calendar.

I have helped with appointments, appointment reminders and with her laundry
which she forgot was in the laundry room for three days (!). She cannot pick
up a telephone and dial it; she's forgotten how. She wears the same clothes
every day because she's forgotten how to change and where her clothes are,
even though everything is labeled in her place. I think she may have
forgotten how to read (!).

She often waits on my doorstep or in the immediate vicinity, for me to come
home.

Since I am also taking care of a lot of other things right now, I guess I
want to know if you all think I should call her social worker?

Her brother(s) live out of state and her niece is very far away. She has a
list of numbers of people to call, but I really am thinking she needs to be
in some kind of a day-program at the very least, and there is one available
for Alzheimer's patients on a local level. . .(I know the folks that operate
it).

She is prone to wandering; police and friends have often brought her home,
but she doesn't like living here and wants to "go home," and no one can
exactly figure out where that is, because there's no one here to give us her
history.

Would someone please say a prayer for our neighbor? I won't give her name. .
.but God knows. . .and of course for me, to find wisdom in dealing with this
situation.

And of course, any practical advice would be most welcome,

Feather
Mare - 31 Aug 2004 18:28 GMT
Hi Feather,
Sounds to me like she shouldn't be living alone especially if she
isn't taking her meds. After all she could go the other way and
take to many if she doesn't remember. Call her social worker and
her brother, she needs some help from those that can make
decisions for her.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Hi, my name is Feather and I am writing from northern California,
> (cross-posting this to alt.christnet.prayer)
[quoted text clipped - 41 lines]
>
> Feather
Evelyn Ruut - 31 Aug 2004 18:54 GMT
I was going to reply and say the same thing Mare did, so I am just going to
add my endorsement to her posting below.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

> Hi Feather,
> Sounds to me like she shouldn't be living alone especially if she
[quoted text clipped - 69 lines]
> >
> > Feather
Feather Forestwalker - 04 Sep 2004 02:47 GMT
> Hi Feather,
> Sounds to me like she shouldn't be living alone especially if she
[quoted text clipped - 7 lines]
> http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
> alt.support.alzheimers' FAQs and Stuff Pages

Thanks, Mare!

Turns out that I have been hired to help care for her, so I will be giving
her the meds twice a day. . .

:)

I wasn't sure if the message made it through and then I had some glitches in
the server locally. . .but we're back. :)

Thanks again for your answer,

Feather

> > Hi, my name is Feather and I am writing from northern
> California,
[quoted text clipped - 63 lines]
> >
> > Feather
Mary Gordon - 31 Aug 2004 20:27 GMT
Call her family, and if they don't immediately step in, call her
social worker. Just from what you describe, this woman is not capable
of adequately looking after herself and needs support and supervision
24/7. She is in real danger.

Don't agonize over this. Your gut is talking to you. She needs help,
and should not be living alone. This is no different than a neglected
child - if you saw a child who clearly was lost and alone, dirty and
confused, you wouldn't hesitate. Heaven knows what she is eating.

This may look like an adult, and have the vestiges of an adults
personality and some capabilities, but this is a vunerable frightened
person in need of a sheltered environment because she is being
dismantled by a disease that causes progressive brain damage. If she
is trouble now, things will only be worse next week.

Mary G.
Feather Forestwalker - 04 Sep 2004 02:50 GMT
> Call her family, and if they don't immediately step in, call her
> social worker. Just from what you describe, this woman is not capable
> of adequately looking after herself and needs support and supervision
> 24/7. She is in real danger.

I have called her family and her social worker.

I interviewed with her social worker yesterday and have been hired to work
for her. . .so, all will be well, though I am sure I will be coming in here
regularly looking for help! :)

> Don't agonize over this. Your gut is talking to you. She needs help,
> and should not be living alone. This is no different than a neglected
> child - if you saw a child who clearly was lost and alone, dirty and
> confused, you wouldn't hesitate. Heaven knows what she is eating.

Well, we are working on that. . .

> This may look like an adult, and have the vestiges of an adults
> personality and some capabilities, but this is a vunerable frightened
[quoted text clipped - 3 lines]
>
> Mary G.

Thank you Mary. I appreciate very much, this input.

Feather
Gwen Love - 31 Aug 2004 20:48 GMT
Call her social worker ASAP is my advice.  She should not be living alone.
Gwen

> Hi, my name is Feather and I am writing from northern California,
> (cross-posting this to alt.christnet.prayer)
[quoted text clipped - 41 lines]
>
> Feather
Feather Forestwalker - 04 Sep 2004 02:53 GMT
> Call her social worker ASAP is my advice.  She should not be living alone.
> Gwen

Thanks Gwen, that's exactly what I did.

Feather

> > Hi, my name is Feather and I am writing from northern California,
> > (cross-posting this to alt.christnet.prayer)
[quoted text clipped - 53 lines]
> >
> > Feather
TRAVAIL@AOL.COM - 30 Oct 2004 16:28 GMT
hi everyone

I cannot thank enough all the participants to this NG you are doing a great
job.
One question regarding  adult protective services.
My father is suffering from some form of dementia
and he seems to fit the stage 5 of AD better in some areas
and worse in others.
There is no way that I can force him to get evaluated,he keeps
his yearly doctor appointments(he just went to one last week)
to check his condition regarding diabetes and hypertension and
although the doctor was told orally and in witting of my observations
regarding dementia he refuses to acknowledge officially my father"s
condition.
The doctor did order him to get a blood and urine test but he is not going
this
could perhaps be an opening to put some pressure on doc ?
Doc told me that there was nothing he could do himself and that I have to
take him myself to the hospital which I emphasize is physically impossible.
My question is could the APS help in this case and how ?
my father cannot balance his checkbook anymore can hardly cook
leaves the gas on calls operator 5 times a day to find out what day it is
so on and so on with the symptoms we all know to well.
in short cannot be self sufficient for a period over 2 days.
TIA for any feedback my wife and I are at our wits end.
By the way tricks to take him ANYWHERE new do not work

    EILEEN
Tumbleweed - 30 Oct 2004 17:25 GMT
> hi everyone
>
[quoted text clipped - 26 lines]
>
>     EILEEN

In a way this is probably the toughest stage to deal with, when the symptoms
are really bad but the sufferer refuses to acknowledge there is a problem or
accept help and is aware enough to be able to refuse it. We had to trick my
father into hospital for an extended (several week) check which lead to him
going into care but we had the backup of doctors ,so that lack of backup is
in a way your issue.

I dont know if you can 'scare' the doctor into taking acrion, perhaps by
writing to him (copied to another medical authority?) pointing out the
danger that your father is to himself, hence perhaps putting more pressure
on him to conduct tests because he might be liable if he doesnt??
But it sounds like your father might need to get worse if he is going to
refuse tests anyway.

What help does he get at the moment?

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

HeLovesYou - 31 Aug 2004 20:55 GMT
> Hi, my name is Feather and I am writing from northern California,
> (cross-posting this to alt.christnet.prayer)
[quoted text clipped - 41 lines]
>
> Feather

Lifted this individual and the situation up in Jesus name.
Feather Forestwalker - 04 Sep 2004 02:53 GMT
> > Hi, my name is Feather and I am writing from northern California,
> > (cross-posting this to alt.christnet.prayer)
[quoted text clipped - 55 lines]
>
> Lifted this individual and the situation up in Jesus name.

Thanks, Faye!

:)
Glenfiddich - 31 Aug 2004 21:07 GMT
>Hi, my name is Feather and I am writing from northern California,
>(cross-posting this to alt.christnet.prayer)

Prayer certainly won't hurt, but your neighbor
needs practical help right NOW.

>A few months ago, a really nice lady moved into our building. She's young
>(in her fifties) and has early-onset Alzheimer's.

What the others already said...

Plus, make a list of her behaviors before calling her family;
they may not know or believe how bad the disease has now gotten.
That's not uncommon...

Do for this poor woman what you would for an abandoned child;
she clearly needs someone to look after her since, as you have
seen, she simply is not able to cope with a normal life alone.
Feather Forestwalker - 27 Oct 2004 19:05 GMT
>>Hi, my name is Feather and I am writing from northern California,
>>(cross-posting this to alt.christnet.prayer)
>
> Prayer certainly won't hurt, but your neighbor
> needs practical help right NOW.

Yes, she did, and currently has two caregivers; myself and one other,
and is very closely monitored by the APS here, whom I report to
regularly when things don't seem to be going right.

Of course, as with all AD patients, this woman has good days and bad,
and sometimes a combination of the two, several times in a day. *whew*

>  
>
[quoted text clipped - 6 lines]
> they may not know or believe how bad the disease has now gotten.
> That's not uncommon...

I tend to wonder, as whenever they do visit, she *seems* normal to them.
Of course, it's when they leave that she's knocking on my door several
times a minute, seeking solace. . .the family and friends are working on
getting a live-in for her, to "keep her living free and independant as
long as possible" (their words). (An element of hopeful denial, I suppose).

> Do for this poor woman what you would for an abandoned child;
> she clearly needs someone to look after her since, as you have
> seen, she simply is not able to cope with a normal life alone.

Too true! I have finally gotten her enrolled in the local Alzheimer's
Day Program twice per week. Some days she's fine with it, other days
she's not, and I *have* to be there with her or she'll become combative
and/or leave in agitation.

Thanks for your input; and sorry for taking so long to respond.

Feather
Dennis P. Harris - 01 Sep 2004 05:01 GMT
> And of course, any practical advice would be most welcome,

she needs Adult Protective Services far worse than she needs
prayer, and PLEASE don't cross post to that prayer group again!

Look in your phone book for Adult Protective Services under your
state department of health.  Call them.  If she has no family
nearby, they will take care of her.  Given the symptoms you have
outlined, she should NOT be living alone.
Gwen Love - 01 Sep 2004 19:19 GMT
Dennis, maybe you don't believe in prayer, but many of us do.  You really
have a nerve telling that person not to post to the prayer group again,
IMHO.  I agree with most of your posts, but not that.
Gwen

> > And of course, any practical advice would be most welcome,
> >
[quoted text clipped - 5 lines]
> nearby, they will take care of her.  Given the symptoms you have
> outlined, she should NOT be living alone.
elizabeth emerald - 01 Sep 2004 22:41 GMT
(top posting)
i think dennis meant could she not include other groups when she posted to
alt.support.alzheimers. as in if she wanted to post the same message to
another group, to do it in a separate post rather than a crosspost. i don't
think he was asking her not to post to a particular group at all.

kind regards,
elizabeth (in australia).

> Dennis, maybe you don't believe in prayer, but many of us do.  You really
> have a nerve telling that person not to post to the prayer group again,
[quoted text clipped - 10 lines]
> > nearby, they will take care of her.  Given the symptoms you have
> > outlined, she should NOT be living alone.
Evelyn Ruut - 01 Sep 2004 22:41 GMT
(another top post....)

I think you may be right.  The only time we have problems in this group is
when messages are cross posted.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

> (top posting)
> i think dennis meant could she not include other groups when she posted to
[quoted text clipped - 19 lines]
> > > nearby, they will take care of her.  Given the symptoms you have
> > > outlined, she should NOT be living alone.
Adelle D. Stavis, Esq. - 02 Sep 2004 00:27 GMT
Crossposting is considered poor netiquette. And praying, particularly in a
specific religious belief, is clearly OT and should be labeled so.

And on a personal level, I get really offended when prayer is offered
publically for an individual that one doesn't know personally, and it's done
in Jesus' name. And you know why. It is just plain narrowminded to assume
somebody is Christian. In this case, the poster didn't mention whether the
family said she was Christian.

If you know the person is Christian, fine. But to me, praying to Jesus is
polythesitic, and is against my religion. Other religions believe the same.

So please keep Jesus in the Christian newsgroups and don't crosspost.

Signature

Adelle

> (another top post....)
>
[quoted text clipped - 25 lines]
> > > > nearby, they will take care of her.  Given the symptoms you have
> > > > outlined, she should NOT be living alone.
Dennis P. Harris - 04 Sep 2004 22:48 GMT
> Dennis, maybe you don't believe in prayer, but many of us do.  You really
> have a nerve telling that person not to post to the prayer group again,
> IMHO.  I agree with most of your posts, but not that.

i said CROSSPOST.  it's fine if they want to post to the prayer
group.  but crossposting, so that all the prayer group responses
end up in alt.support.alzheimers, is doing a disservice to both
groups.
Feather Forestwalker - 04 Sep 2004 03:02 GMT
> > And of course, any practical advice would be most welcome,
> >
> she needs Adult Protective Services far worse than she needs
> prayer, and PLEASE don't cross post to that prayer group again!

OOPS sorry, and I did call APS.

> Look in your phone book for Adult Protective Services under your
> state department of health.

Nope, they are in the County section. :)

> Call them.  If she has no family
> nearby, they will take care of her.  Given the symptoms you have
> outlined, she should NOT be living alone.

OK, thank you

Feather
Eileen - 01 Sep 2004 11:35 GMT
"> Hi, my name is Feather and I am writing from northern California,
> (cross-posting this to alt.christnet.prayer)
>
[quoted text clipped - 40 lines]
>
> Feather

Feather, I agree with the others, that this lady needs proper care and
attention. Many people who suffer with "Alzheimer's" can remember things
that happened years and years ago and some even think they are still
children, this is the reason why she "Wants to go home" she is probably
referring to her childhood home and may even think her parents are still
alive. They do often wander too, and this is where the danger lays and why
they need to have someone caring for them.

I shall be praying for this lady too and ask the Lord to keep her safe and
to bring her the care she so desperately needs. In Jesus name.

God Bless you Feather

In the Lord
-Eileen-
<<<<<<<<
Songbird - 02 Sep 2004 01:25 GMT
> Would someone please say a prayer for our neighbor? I won't give her name. .
> .but God knows. . .and of course for me, to find wisdom in dealing with this
[quoted text clipped - 3 lines]
>
> Feather

I have found that God usually works through people He puts in our paths --
and in this case, that means YOU! Call her brother, call her social worker,
call Adult Protective Services, call her pastor, call anyone and everyone
until someone steps in. She needs more supervision than she has now and
definitely should not be living alone.

She is fortunate to have a friend like you who has been willing to help her.
Don't stop now. Literally, your phone call could save her life.

Songbird
Feather Forestwalker - 01 Oct 2004 02:47 GMT
> > Would someone please say a prayer for our neighbor? I won't give her name.
> .
[quoted text clipped - 16 lines]
>
> Songbird

Thanks to everyone who has responded so far.

Here we are, almost one month later.

Our friend has been taken on a trip by her family to the bay area of San
Francisco for a little R&R and tomorrow we have a caregiver/family meeting.
On Saturday, they are having a special luncheon for all her friends, so that
we can coordinate efforts at getting her friends, on a rotating basis, to
come and spend time with her - one friend takes one day, another, another
day, and so on. This will help keep her living as independantly as possible,
without putting her in a nursing home. (The nursing home options are rather
limited in our area, especially for AD wanderers like she is).

I have been hired to take her for six hours, twice a week, to the local
daycare program. She has enjoyed it immensely; as long as I am with her. I
will also be in charge of her medications, twice a day, seven days a week -
morning and evening - as the other caregiver involved has had to quit due to
time constraints.

Our friend is an "easy" person to care for. While there have been several
instances of agitation on her part, it's been very easy for me to calm her
down. Something between us as friends just sort of "clicked" and she really
enjoys being around me.

One day we were out walking along a two-mile stretch of old logging road -
when I decided to try some word associations with her, to see what she would
do.

I said, "What do you think of when you hear the word 'cat.'" And she said,
"Cat. MIOW." *LOL*

I said, "What do you think of when you hear the word 'dog.'" And she said,
"Dog."

THEN I said, "What do you think of when you hear to word 'bird,' " and she
responded by grabbing my arm and saying, "Ohhhh, that's all about YOU." (I
am sort of known as "bird lady" around here and how she knew that, I have no
idea, unless she used to read my articles when I worked for a friend of hers
as an editorial and production assistant and regular columnist for a local
paper - and she may have remembered that in some vague place in her memory?)

She and I, it turns out, know a lot of the same people, but we had never
met. One of the ladies that we mutually know, she absolutely *adores* and
loves spending time with her when she has some time.

I am learning a lot about this insidious disease, and am very grateful for
the support of the local Alzheimer's Day Care Program and their lending
library. The internet has a lot of very useful information, but it's easier
to lie back at night in bed and read. . .I've read Lenore Powell's book and
am currently working on one by Shent, called "The Forgetting." It's been a
rather enlightening experience.

Eleanor Cooney, a local resident here, wrote a book called "Death In Slow
Motion," about her mother's descent into Alzheimer's, and one can feel the
absolute sense of helpless anger she went through. Every time I see her in
the store, I want to grab her arm, pull her aside, and say, "Elly, thanks
for writing that book with such honesty. . ." but someone else usually grabs
my attention before I can stop to talk to her. I guess I will have to e-mail
her. . .

At any rate, everyone, God bless you all, and thanks again for your
interest. This is the last cross-post on this subject into the prayer
group - I am sorry if I offended anyone in so posting last month.

Feather
Amazing Grace - 01 Oct 2004 18:39 GMT
>> > Would someone please say a prayer for our neighbor? I won't give her
> name.
[quoted text clipped - 101 lines]
>
> Feather

Please continue to give us updates on your friend. We will continue to pray
for her. God Bless,
Grace
 
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