Medical Forum / Diseases and Disorders / Alzheimer's / October 2004
New to Alzheimer's Patients
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Feather Forestwalker - 31 Aug 2004 15:29 GMT Hi, my name is Feather and I am writing from northern California, (cross-posting this to alt.christnet.prayer)
A few months ago, a really nice lady moved into our building. She's young (in her fifties) and has early-onset Alzheimer's.
Long story short, her brother told me that she should have been on Aricept a long time ago (didn't define what long time ago meant), as she would be doing better than she is now. . .
. . .she visits me several times a day (I do work for our church out of my home most days) with no clue as to what she is supposed to be doing - often brings her calendar.
I have helped with appointments, appointment reminders and with her laundry which she forgot was in the laundry room for three days (!). She cannot pick up a telephone and dial it; she's forgotten how. She wears the same clothes every day because she's forgotten how to change and where her clothes are, even though everything is labeled in her place. I think she may have forgotten how to read (!).
She often waits on my doorstep or in the immediate vicinity, for me to come home.
Since I am also taking care of a lot of other things right now, I guess I want to know if you all think I should call her social worker?
Her brother(s) live out of state and her niece is very far away. She has a list of numbers of people to call, but I really am thinking she needs to be in some kind of a day-program at the very least, and there is one available for Alzheimer's patients on a local level. . .(I know the folks that operate it).
She is prone to wandering; police and friends have often brought her home, but she doesn't like living here and wants to "go home," and no one can exactly figure out where that is, because there's no one here to give us her history.
Would someone please say a prayer for our neighbor? I won't give her name. . .but God knows. . .and of course for me, to find wisdom in dealing with this situation.
And of course, any practical advice would be most welcome,
Feather
Mare - 31 Aug 2004 18:28 GMT Hi Feather, Sounds to me like she shouldn't be living alone especially if she isn't taking her meds. After all she could go the other way and take to many if she doesn't remember. Call her social worker and her brother, she needs some help from those that can make decisions for her.
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> Hi, my name is Feather and I am writing from northern California, > (cross-posting this to alt.christnet.prayer) [quoted text clipped - 41 lines] > > Feather Evelyn Ruut - 31 Aug 2004 18:54 GMT I was going to reply and say the same thing Mare did, so I am just going to add my endorsement to her posting below.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
> Hi Feather, > Sounds to me like she shouldn't be living alone especially if she [quoted text clipped - 69 lines] > > > > Feather Feather Forestwalker - 04 Sep 2004 02:47 GMT > Hi Feather, > Sounds to me like she shouldn't be living alone especially if she [quoted text clipped - 7 lines] > http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm > alt.support.alzheimers' FAQs and Stuff Pages Thanks, Mare!
Turns out that I have been hired to help care for her, so I will be giving her the meds twice a day. . .
:) I wasn't sure if the message made it through and then I had some glitches in the server locally. . .but we're back. :)
Thanks again for your answer,
Feather
> > Hi, my name is Feather and I am writing from northern > California, [quoted text clipped - 63 lines] > > > > Feather Mary Gordon - 31 Aug 2004 20:27 GMT Call her family, and if they don't immediately step in, call her social worker. Just from what you describe, this woman is not capable of adequately looking after herself and needs support and supervision 24/7. She is in real danger.
Don't agonize over this. Your gut is talking to you. She needs help, and should not be living alone. This is no different than a neglected child - if you saw a child who clearly was lost and alone, dirty and confused, you wouldn't hesitate. Heaven knows what she is eating.
This may look like an adult, and have the vestiges of an adults personality and some capabilities, but this is a vunerable frightened person in need of a sheltered environment because she is being dismantled by a disease that causes progressive brain damage. If she is trouble now, things will only be worse next week.
Mary G.
Feather Forestwalker - 04 Sep 2004 02:50 GMT > Call her family, and if they don't immediately step in, call her > social worker. Just from what you describe, this woman is not capable > of adequately looking after herself and needs support and supervision > 24/7. She is in real danger. I have called her family and her social worker.
I interviewed with her social worker yesterday and have been hired to work for her. . .so, all will be well, though I am sure I will be coming in here regularly looking for help! :)
> Don't agonize over this. Your gut is talking to you. She needs help, > and should not be living alone. This is no different than a neglected > child - if you saw a child who clearly was lost and alone, dirty and > confused, you wouldn't hesitate. Heaven knows what she is eating. Well, we are working on that. . .
> This may look like an adult, and have the vestiges of an adults > personality and some capabilities, but this is a vunerable frightened [quoted text clipped - 3 lines] > > Mary G. Thank you Mary. I appreciate very much, this input.
Feather
Gwen Love - 31 Aug 2004 20:48 GMT Call her social worker ASAP is my advice. She should not be living alone. Gwen
> Hi, my name is Feather and I am writing from northern California, > (cross-posting this to alt.christnet.prayer) [quoted text clipped - 41 lines] > > Feather Feather Forestwalker - 04 Sep 2004 02:53 GMT > Call her social worker ASAP is my advice. She should not be living alone. > Gwen Thanks Gwen, that's exactly what I did.
Feather
> > Hi, my name is Feather and I am writing from northern California, > > (cross-posting this to alt.christnet.prayer) [quoted text clipped - 53 lines] > > > > Feather TRAVAIL@AOL.COM - 30 Oct 2004 16:28 GMT hi everyone
I cannot thank enough all the participants to this NG you are doing a great job. One question regarding adult protective services. My father is suffering from some form of dementia and he seems to fit the stage 5 of AD better in some areas and worse in others. There is no way that I can force him to get evaluated,he keeps his yearly doctor appointments(he just went to one last week) to check his condition regarding diabetes and hypertension and although the doctor was told orally and in witting of my observations regarding dementia he refuses to acknowledge officially my father"s condition. The doctor did order him to get a blood and urine test but he is not going this could perhaps be an opening to put some pressure on doc ? Doc told me that there was nothing he could do himself and that I have to take him myself to the hospital which I emphasize is physically impossible. My question is could the APS help in this case and how ? my father cannot balance his checkbook anymore can hardly cook leaves the gas on calls operator 5 times a day to find out what day it is so on and so on with the symptoms we all know to well. in short cannot be self sufficient for a period over 2 days. TIA for any feedback my wife and I are at our wits end. By the way tricks to take him ANYWHERE new do not work
EILEEN
Tumbleweed - 30 Oct 2004 17:25 GMT > hi everyone > [quoted text clipped - 26 lines] > > EILEEN In a way this is probably the toughest stage to deal with, when the symptoms are really bad but the sufferer refuses to acknowledge there is a problem or accept help and is aware enough to be able to refuse it. We had to trick my father into hospital for an extended (several week) check which lead to him going into care but we had the backup of doctors ,so that lack of backup is in a way your issue.
I dont know if you can 'scare' the doctor into taking acrion, perhaps by writing to him (copied to another medical authority?) pointing out the danger that your father is to himself, hence perhaps putting more pressure on him to conduct tests because he might be liable if he doesnt?? But it sounds like your father might need to get worse if he is going to refuse tests anyway.
What help does he get at the moment?
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
HeLovesYou - 31 Aug 2004 20:55 GMT > Hi, my name is Feather and I am writing from northern California, > (cross-posting this to alt.christnet.prayer) [quoted text clipped - 41 lines] > > Feather Lifted this individual and the situation up in Jesus name.
Feather Forestwalker - 04 Sep 2004 02:53 GMT > > Hi, my name is Feather and I am writing from northern California, > > (cross-posting this to alt.christnet.prayer) [quoted text clipped - 55 lines] > > Lifted this individual and the situation up in Jesus name. Thanks, Faye!
:) Glenfiddich - 31 Aug 2004 21:07 GMT >Hi, my name is Feather and I am writing from northern California, >(cross-posting this to alt.christnet.prayer) Prayer certainly won't hurt, but your neighbor needs practical help right NOW.
>A few months ago, a really nice lady moved into our building. She's young >(in her fifties) and has early-onset Alzheimer's. What the others already said...
Plus, make a list of her behaviors before calling her family; they may not know or believe how bad the disease has now gotten. That's not uncommon...
Do for this poor woman what you would for an abandoned child; she clearly needs someone to look after her since, as you have seen, she simply is not able to cope with a normal life alone.
Feather Forestwalker - 27 Oct 2004 19:05 GMT >>Hi, my name is Feather and I am writing from northern California, >>(cross-posting this to alt.christnet.prayer) > > Prayer certainly won't hurt, but your neighbor > needs practical help right NOW. Yes, she did, and currently has two caregivers; myself and one other, and is very closely monitored by the APS here, whom I report to regularly when things don't seem to be going right.
Of course, as with all AD patients, this woman has good days and bad, and sometimes a combination of the two, several times in a day. *whew*
> > [quoted text clipped - 6 lines] > they may not know or believe how bad the disease has now gotten. > That's not uncommon... I tend to wonder, as whenever they do visit, she *seems* normal to them. Of course, it's when they leave that she's knocking on my door several times a minute, seeking solace. . .the family and friends are working on getting a live-in for her, to "keep her living free and independant as long as possible" (their words). (An element of hopeful denial, I suppose).
> Do for this poor woman what you would for an abandoned child; > she clearly needs someone to look after her since, as you have > seen, she simply is not able to cope with a normal life alone. Too true! I have finally gotten her enrolled in the local Alzheimer's Day Program twice per week. Some days she's fine with it, other days she's not, and I *have* to be there with her or she'll become combative and/or leave in agitation.
Thanks for your input; and sorry for taking so long to respond.
Feather
Dennis P. Harris - 01 Sep 2004 05:01 GMT > And of course, any practical advice would be most welcome, she needs Adult Protective Services far worse than she needs prayer, and PLEASE don't cross post to that prayer group again!
Look in your phone book for Adult Protective Services under your state department of health. Call them. If she has no family nearby, they will take care of her. Given the symptoms you have outlined, she should NOT be living alone.
Gwen Love - 01 Sep 2004 19:19 GMT Dennis, maybe you don't believe in prayer, but many of us do. You really have a nerve telling that person not to post to the prayer group again, IMHO. I agree with most of your posts, but not that. Gwen
> > And of course, any practical advice would be most welcome, > > [quoted text clipped - 5 lines] > nearby, they will take care of her. Given the symptoms you have > outlined, she should NOT be living alone. elizabeth emerald - 01 Sep 2004 22:41 GMT (top posting) i think dennis meant could she not include other groups when she posted to alt.support.alzheimers. as in if she wanted to post the same message to another group, to do it in a separate post rather than a crosspost. i don't think he was asking her not to post to a particular group at all.
kind regards, elizabeth (in australia).
> Dennis, maybe you don't believe in prayer, but many of us do. You really > have a nerve telling that person not to post to the prayer group again, [quoted text clipped - 10 lines] > > nearby, they will take care of her. Given the symptoms you have > > outlined, she should NOT be living alone. Evelyn Ruut - 01 Sep 2004 22:41 GMT (another top post....)
I think you may be right. The only time we have problems in this group is when messages are cross posted.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
> (top posting) > i think dennis meant could she not include other groups when she posted to [quoted text clipped - 19 lines] > > > nearby, they will take care of her. Given the symptoms you have > > > outlined, she should NOT be living alone. Adelle D. Stavis, Esq. - 02 Sep 2004 00:27 GMT Crossposting is considered poor netiquette. And praying, particularly in a specific religious belief, is clearly OT and should be labeled so.
And on a personal level, I get really offended when prayer is offered publically for an individual that one doesn't know personally, and it's done in Jesus' name. And you know why. It is just plain narrowminded to assume somebody is Christian. In this case, the poster didn't mention whether the family said she was Christian.
If you know the person is Christian, fine. But to me, praying to Jesus is polythesitic, and is against my religion. Other religions believe the same.
So please keep Jesus in the Christian newsgroups and don't crosspost.
 Signature Adelle
> (another top post....) > [quoted text clipped - 25 lines] > > > > nearby, they will take care of her. Given the symptoms you have > > > > outlined, she should NOT be living alone. Dennis P. Harris - 04 Sep 2004 22:48 GMT > Dennis, maybe you don't believe in prayer, but many of us do. You really > have a nerve telling that person not to post to the prayer group again, > IMHO. I agree with most of your posts, but not that. i said CROSSPOST. it's fine if they want to post to the prayer group. but crossposting, so that all the prayer group responses end up in alt.support.alzheimers, is doing a disservice to both groups.
Feather Forestwalker - 04 Sep 2004 03:02 GMT > > And of course, any practical advice would be most welcome, > > > she needs Adult Protective Services far worse than she needs > prayer, and PLEASE don't cross post to that prayer group again! OOPS sorry, and I did call APS.
> Look in your phone book for Adult Protective Services under your > state department of health. Nope, they are in the County section. :)
> Call them. If she has no family > nearby, they will take care of her. Given the symptoms you have > outlined, she should NOT be living alone. OK, thank you
Feather
Eileen - 01 Sep 2004 11:35 GMT "> Hi, my name is Feather and I am writing from northern California,
> (cross-posting this to alt.christnet.prayer) > [quoted text clipped - 40 lines] > > Feather Feather, I agree with the others, that this lady needs proper care and attention. Many people who suffer with "Alzheimer's" can remember things that happened years and years ago and some even think they are still children, this is the reason why she "Wants to go home" she is probably referring to her childhood home and may even think her parents are still alive. They do often wander too, and this is where the danger lays and why they need to have someone caring for them.
I shall be praying for this lady too and ask the Lord to keep her safe and to bring her the care she so desperately needs. In Jesus name.
God Bless you Feather
In the Lord -Eileen- <<<<<<<<
Songbird - 02 Sep 2004 01:25 GMT > Would someone please say a prayer for our neighbor? I won't give her name. . > .but God knows. . .and of course for me, to find wisdom in dealing with this [quoted text clipped - 3 lines] > > Feather I have found that God usually works through people He puts in our paths -- and in this case, that means YOU! Call her brother, call her social worker, call Adult Protective Services, call her pastor, call anyone and everyone until someone steps in. She needs more supervision than she has now and definitely should not be living alone.
She is fortunate to have a friend like you who has been willing to help her. Don't stop now. Literally, your phone call could save her life.
Songbird
Feather Forestwalker - 01 Oct 2004 02:47 GMT > > Would someone please say a prayer for our neighbor? I won't give her name. > . [quoted text clipped - 16 lines] > > Songbird Thanks to everyone who has responded so far.
Here we are, almost one month later.
Our friend has been taken on a trip by her family to the bay area of San Francisco for a little R&R and tomorrow we have a caregiver/family meeting. On Saturday, they are having a special luncheon for all her friends, so that we can coordinate efforts at getting her friends, on a rotating basis, to come and spend time with her - one friend takes one day, another, another day, and so on. This will help keep her living as independantly as possible, without putting her in a nursing home. (The nursing home options are rather limited in our area, especially for AD wanderers like she is).
I have been hired to take her for six hours, twice a week, to the local daycare program. She has enjoyed it immensely; as long as I am with her. I will also be in charge of her medications, twice a day, seven days a week - morning and evening - as the other caregiver involved has had to quit due to time constraints.
Our friend is an "easy" person to care for. While there have been several instances of agitation on her part, it's been very easy for me to calm her down. Something between us as friends just sort of "clicked" and she really enjoys being around me.
One day we were out walking along a two-mile stretch of old logging road - when I decided to try some word associations with her, to see what she would do.
I said, "What do you think of when you hear the word 'cat.'" And she said, "Cat. MIOW." *LOL*
I said, "What do you think of when you hear the word 'dog.'" And she said, "Dog."
THEN I said, "What do you think of when you hear to word 'bird,' " and she responded by grabbing my arm and saying, "Ohhhh, that's all about YOU." (I am sort of known as "bird lady" around here and how she knew that, I have no idea, unless she used to read my articles when I worked for a friend of hers as an editorial and production assistant and regular columnist for a local paper - and she may have remembered that in some vague place in her memory?)
She and I, it turns out, know a lot of the same people, but we had never met. One of the ladies that we mutually know, she absolutely *adores* and loves spending time with her when she has some time.
I am learning a lot about this insidious disease, and am very grateful for the support of the local Alzheimer's Day Care Program and their lending library. The internet has a lot of very useful information, but it's easier to lie back at night in bed and read. . .I've read Lenore Powell's book and am currently working on one by Shent, called "The Forgetting." It's been a rather enlightening experience.
Eleanor Cooney, a local resident here, wrote a book called "Death In Slow Motion," about her mother's descent into Alzheimer's, and one can feel the absolute sense of helpless anger she went through. Every time I see her in the store, I want to grab her arm, pull her aside, and say, "Elly, thanks for writing that book with such honesty. . ." but someone else usually grabs my attention before I can stop to talk to her. I guess I will have to e-mail her. . .
At any rate, everyone, God bless you all, and thanks again for your interest. This is the last cross-post on this subject into the prayer group - I am sorry if I offended anyone in so posting last month.
Feather
Amazing Grace - 01 Oct 2004 18:39 GMT >> > Would someone please say a prayer for our neighbor? I won't give her > name. [quoted text clipped - 101 lines] > > Feather Please continue to give us updates on your friend. We will continue to pray for her. God Bless, Grace
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