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Medical Forum / Diseases and Disorders / Alzheimer's / September 2004

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correcting our loved ones

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Evelyn Ruut - 26 Aug 2004 13:01 GMT
One of the hardest things I had to learn was to stop trying to correct my
mother in law when she said something obviously wrong.

People here told me, but somehow I just found it hard to do.

First of all they forget whatever you tell them, so the correction becomes
useless.   Secondly you may hurt their feelings or make them feel stupid,
and that can be something they DO remember.   Emotional memory lasts longer
than memory of events and things told to us.

Unless they are trying to go outside in the middle of the night, or do
something harmful to themselves, I learned to just say "Uh huh" a lot.

We can never bring them into OUR reality ever again, and the only place they
will ever live is in their own reality.   Correction is an exercise in
futility.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Dennis White - 26 Aug 2004 17:12 GMT
> One of the hardest things I had to learn was to stop trying to correct my
> mother in law when she said something obviously wrong.
[quoted text clipped - 12 lines]
> will ever live is in their own reality.   Correction is an exercise in
> futility.

I agree so much!  The hardest thing I had to learn-and also the most
valuable-in taking care of another was learning to supress my ego.  It
really doesn't matter who's right and who's wrong on the small stuff.
Listening does.  "Uh huh" is probably the nicest thing many of our loved
ones can ever hear!

Dennis
Mare - 28 Aug 2004 01:14 GMT
> One of the hardest things I had to learn was to stop trying to correct my
> mother in law when she said something obviously wrong.
>
> People here told me, but somehow I just found it hard to do.

;~)

> First of all they forget whatever you tell them, so the correction becomes
> useless.   Secondly you may hurt their feelings or make them feel stupid,
[quoted text clipped - 7 lines]
> will ever live is in their own reality.   Correction is an exercise in
> futility.

Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

Robert E. Lewis - 28 Aug 2004 20:01 GMT
> One of the hardest things I had to learn was to stop trying to correct my
> mother in law when she said something obviously wrong.
[quoted text clipped - 8 lines]
> Unless they are trying to go outside in the middle of the night, or do
> something harmful to themselves, I learned to just say "Uh huh" a lot.

The problem I keep running into is my father wanting to help in ways that
either hinder me or are simply beyond his physical limitations now.  For
example, repeated offers to help when I was replacing his old room air
conditioner; we live in an elevated beach house with stairs on the outside,
and as I'm lugging the old unit out, he announces he will walk down the
stairs ahead of me -- to catch the a/c and me, if I should stumble! I
probably weigh fifty pounds more than my father (not counting the air
conditioner), and it takes him four or five times as long to walk down the
stairs (with the aid of a cane). But even the most polite response of,
'thanks, but I've got it,' will send him stomping off to sulk for the rest
of the day.  As you said, emotional memory lasts longer -- and it sure feels
like a long time when his feelings are hurt that way.

But uh-huh-ing little incorrections goes a long way.  I have to admit I was
getting pretty put out when Dad was waking me every month or so in the
middle of the night to say he'd been wakened by the sound of someone opening
the garage door - it was easier to get up and go look than to tell him it
hadn't happened.

Signature

Robert

Lee - 28 Aug 2004 21:06 GMT
sounds like my mother-in-law ...these days I'm set up at home to do the
computer repairs that come through our store (because SOMEONE has to be here
outside of homecare hours) .... she hasn't ever used a computer, but still
keeps offering to help, and getting upset when I tell her that it's ok.

She also constantly fusses and says those people should fix their own stuff,
why do YOU have to do it LOL Uh... cuz people pay me for it? Cuz that's what
I DO?

Thank God it's corn season ..... cleaning 4 cobs is her JOB and it takes a
good hour.

> > One of the hardest things I had to learn was to stop trying to correct my
> > mother in law when she said something obviously wrong.
[quoted text clipped - 28 lines]
> the garage door - it was easier to get up and go look than to tell him it
> hadn't happened.
Evelyn Ruut - 28 Aug 2004 21:43 GMT
Hi Lee and Robert,

I think it is because all their lives they have been useful, and felt that
they were able to help or manage or do anything they wanted, and looked
after us.   It has to be VERY hard to accept that now we are looking after
them, rather than the other way around.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

> sounds like my mother-in-law ...these days I'm set up at home to do the
> computer repairs that come through our store (because SOMEONE has to be here
[quoted text clipped - 47 lines]
> > the garage door - it was easier to get up and go look than to tell him it
> > hadn't happened.
Lee - 29 Aug 2004 00:28 GMT
I think that that is the reason that she has an easier time a accepting help
from me than from any of her kids, too

> Hi Lee and Robert,
>
[quoted text clipped - 61 lines]
> it
> > > hadn't happened.
Dennis P. Harris - 29 Aug 2004 05:44 GMT
> I think that that is the reason that she has an easier time a accepting help
> from me than from any of her kids, too

My mother lost a lot of weight and spent a lot of misdirected
effort trying to prove that she could fix meals and keep house
when she simply couldn't, physically or mentally.

She seems relieved now that she's in a group home and doesn't
have to worry about meals and always has help available.  She
would never let me help her out of a chair, but the assistants at
the home just hold out a hand and she grabs it.
Mare - 29 Aug 2004 02:53 GMT
Robert,
How bout saying "I've got this, but how bout you start sweeping
the floor for me and I'll be right there" or some variation to
let you finish your thing but make him feel useful. We just let
Mom do what she wanted most of the time and reserved "the line"
for times we had to get something done with out her.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> > One of the hardest things I had to learn was to stop trying to correct my
> > mother in law when she said something obviously wrong.
[quoted text clipped - 28 lines]
> the garage door - it was easier to get up and go look than to tell him it
> hadn't happened.
Robert E. Lewis - 30 Aug 2004 18:26 GMT
> Robert,
> How bout saying "I've got this, but how bout you start sweeping
> the floor for me and I'll be right there" or some variation to
> let you finish your thing but make him feel useful. We just let
> Mom do what she wanted most of the time and reserved "the line"
> for times we had to get something done with out her.

Thanks Mare.  I do that sometimes -- like, with the air conditioner, I
responded to his offer to walk down the stairs ahead of me by suggesting he
get the front cover of the a/c instead.

We have a big challenge coming up, though: Dad's computer crashed and he had
to get a new one.  Now, my father was a computer systems analyst and
programmer for many years, even wrote a lot of his own programs, but
switching to yet another operating system (Windows XP, from Windows 98) is,
I'm afraid, beyond him now.  I don't want him to give up on computers,
because it's one thing that keeps him happily occupied, scanning in photos
of birds from nature magazines, even making a video slideshow presentation
at Christmas to give out to friends and neighbors (the last couple of years,
some slides and his voiceover gets repeated, and it rambles, but it makes
him happy).

But he wants me to explain some of the things work, and I'm seeing a bit of
the techno-phobia I've seen in other people, especially older people, who
aren't familiar with computers -- a panicky 'O my God, it's different, I
don't know how to do this what if I make a mistake?!!!' attitude.  And with
that fear, he even gets fuddled about things like opening a file when
they're exactly the same as the old Windows he's familiar with...

'Ok, now go to File, Open....'
<he scans the screen, looking for it, moves the mouse around several places>
'On the Menu Bar, there at the top...
'The bar above that.... File, farthest to the left....
'Right, File, no click on that, and click Open...'

... this might take a full minute, to get that one step.  I try correcting
him positively - 'yes, the one there, that's right' -- but it's a situation
where, if I don't stop him and he makes a mistake, the mistake is as likely
to register in his mind as 'the way to do it' and he's apt to get lost and
frustrated, while if I correct him over and over, no matter how gently I put
it, he gets the idea and gets angry at me.  My solution so far has been to
limit any teaching I give him to maybe five minutes at a time - for both our
sakes.

If he doesn't get the hang of it to some degree, I may eventually suggest we
trade computers, since I still have Windows 98 on mine and he could use it.
But to have him give up on using computers, when it's been a major focus of
his life for about forty-two years, would be a huge blow to him.

Signature

Robert

Tumbleweed - 30 Aug 2004 19:33 GMT
<snip>

> If he doesn't get the hang of it to some degree, I may eventually suggest we
> trade computers, since I still have Windows 98 on mine and he could use it.
> But to have him give up on using computers, when it's been a major focus of
> his life for about forty-two years, would be a huge blow to him.

Its going to happen. My dad played snooker twice a week for about 25 years.
A few weeks after he stopped, because he no longer knew which ball to hit or
why, there was a game on the TV. He looked at it and said 'whats that'?

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 30 Aug 2004 20:39 GMT
> <snip>
> >
[quoted text clipped - 9 lines]
> A few weeks after he stopped, because he no longer knew which ball to hit or
> why, there was a game on the TV. He looked at it and said 'whats that'?

Ida was a wonderful cook.   It was amazing to us to realize that she
actually had forgotten how.   She was simply silent on the issue.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Lee - 30 Aug 2004 20:11 GMT
ouch... bad timing, eh?

there are some things you can do to make  WinXP work a lot more like Win 98
.... for starters, go to the properties for the start menu and change to
Classic view....

the grouping feature that XP uses for multiple windows is also confusing and
awkward for those of us used to 98 ... that can be taken off in the status
bar  properties...

I've found a bunch of them ....  cuz I detest XP but half to use it at least
some of the time cuz i sell and teach it... if I can help at all, feel free
to email

> > Robert,
> > How bout saying "I've got this, but how bout you start sweeping
[quoted text clipped - 44 lines]
> But to have him give up on using computers, when it's been a major focus of
> his life for about forty-two years, would be a huge blow to him.
Mare - 31 Aug 2004 02:40 GMT
I'm just chiming in with a me too. Hard to watch our LO's loose
long term abilities.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> > Robert,
> > How bout saying "I've got this, but how bout you start sweeping
[quoted text clipped - 44 lines]
> But to have him give up on using computers, when it's been a major focus of
> his life for about forty-two years, would be a huge blow to him.
turkey in the straw - 31 Aug 2004 04:59 GMT
Hi,
  My mom slept most of the day and is now(11pm) sound aleep.NO talking
in her sleep.I think she had become so overtired it was impossible for
her to get to sleep at night.Which of course made her more confused.It
is just like a child.3 nights in a row she was talking in her sleep all
night.During the day she was talkng mumbo jumbo.Nothing even made
sense.Today she was better during the day.Yesterday we could hardly get
her to stand up and walk with help.If ya let go she would fall over
liking a leaning tower.That was even better today.Lack of sleep really
messes her up.What i don't understand is why the first 2 days she did
not sleep during the day.She stayed awake all day too.Until today she
slept all day.Barb
Dennis P. Harris - 31 Aug 2004 06:28 GMT
> Hi,
>    My mom slept most of the day and is now(11pm) sound aleep.NO talking
[quoted text clipped - 8 lines]
> not sleep during the day.She stayed awake all day too.Until today she
> slept all day.Barb

if she's never been bipolar, perhaps brain damage created a state
similar to a bipolar mania.  manic people can go for days with no
sleep, until their bodies finally just take over because of
exhaustion.  the effect is as if they had been taking
amphetamines for days.

seriously, as i suggested before, and others have, you should
talk to her doc about an antipsychotic like risperdol to slow her
down and stop the delusions.
Mare - 31 Aug 2004 16:22 GMT
Hi Barb,
Has her schedule been interrupted recently? Could she possibly
have a UTI? If the wonky sleeping pattern continues maybe you
should have her tested for a UTI. They are pretty common with
sudden change in behaviors. I've found that we, as caregivers,
really need to be detectives and observe our LO's to figure
things out.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Hi,
>    My mom slept most of the day and is now(11pm) sound aleep.NO talking
[quoted text clipped - 8 lines]
> not sleep during the day.She stayed awake all day too.Until today she
> slept all day.Barb
turkey in the straw - 01 Sep 2004 04:58 GMT
Mare,
  She was just tested for a UTI.We couldn't get enough urine so they
did a culture.Her doc put her on an anti-biotic just so things did not
get worse should she have an infection.It takes 3 days to get the
culture back .She has an appt.Thursday.Could a UTI cause her lack of
sleep and confusion?And i will be discussing it with her doc.Barb
Mare - 02 Sep 2004 20:10 GMT
Hi Barb,
My Mom has pretty atypical/non-symptoms for UTI's. Sometimes she
sleeps lots or is just off her regular behaviors. I only see her
a few times a week so it sometimes takes me that long to ask for
a culture since it might be a decline but over the years I've
learned that checking for a UTI in someone that can't vocalize
how they feel is pretty much the first thing to do whenever there
is a behavior change. I hope that's all it is or it might be her
being in the hospital a few weeks ago and it's just catching up
with her now. It could also be a change in the disease, you just
have to keep trying different things while also giving each step
time to see if it kicks in. Nothings easy with AD:(
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Mare,
>    She was just tested for a UTI.We couldn't get enough urine so they
> did a culture.Her doc put her on an anti-biotic just so things did not
> get worse should she have an infection.It takes 3 days to get the
> culture back .She has an appt.Thursday.Could a UTI cause her lack of
> sleep and confusion?And i will be discussing it with her doc.Barb
turkey in the straw - 03 Sep 2004 05:25 GMT
Mare,
  It was a UTI and she's getting back to normal again.Her normal of
course.Had her in today and everything was good.
Mare - 04 Sep 2004 00:59 GMT
Hi Barb,
I'm glad you got to the bottom of it. I hope she continues in her
normal way.
Good luck
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Mare,
>    It was a UTI and she's getting back to normal again.Her normal of
> course.Had her in today and everything was good.
turkey in the straw - 01 Sep 2004 05:00 GMT
By the way my aunt died a few months back because of a UTI that went
undetected and got so out of controll they could not stop it.So we need
to really watch for UTI's.
 
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