Medical Forum / Diseases and Disorders / Alzheimer's / September 2004
correcting our loved ones
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Evelyn Ruut - 26 Aug 2004 13:01 GMT One of the hardest things I had to learn was to stop trying to correct my mother in law when she said something obviously wrong.
People here told me, but somehow I just found it hard to do.
First of all they forget whatever you tell them, so the correction becomes useless. Secondly you may hurt their feelings or make them feel stupid, and that can be something they DO remember. Emotional memory lasts longer than memory of events and things told to us.
Unless they are trying to go outside in the middle of the night, or do something harmful to themselves, I learned to just say "Uh huh" a lot.
We can never bring them into OUR reality ever again, and the only place they will ever live is in their own reality. Correction is an exercise in futility.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Dennis White - 26 Aug 2004 17:12 GMT > One of the hardest things I had to learn was to stop trying to correct my > mother in law when she said something obviously wrong. [quoted text clipped - 12 lines] > will ever live is in their own reality. Correction is an exercise in > futility. I agree so much! The hardest thing I had to learn-and also the most valuable-in taking care of another was learning to supress my ego. It really doesn't matter who's right and who's wrong on the small stuff. Listening does. "Uh huh" is probably the nicest thing many of our loved ones can ever hear!
Dennis
Mare - 28 Aug 2004 01:14 GMT > One of the hardest things I had to learn was to stop trying to correct my > mother in law when she said something obviously wrong. > > People here told me, but somehow I just found it hard to do. ;~)
> First of all they forget whatever you tell them, so the correction becomes > useless. Secondly you may hurt their feelings or make them feel stupid, [quoted text clipped - 7 lines] > will ever live is in their own reality. Correction is an exercise in > futility.
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
Robert E. Lewis - 28 Aug 2004 20:01 GMT > One of the hardest things I had to learn was to stop trying to correct my > mother in law when she said something obviously wrong. [quoted text clipped - 8 lines] > Unless they are trying to go outside in the middle of the night, or do > something harmful to themselves, I learned to just say "Uh huh" a lot. The problem I keep running into is my father wanting to help in ways that either hinder me or are simply beyond his physical limitations now. For example, repeated offers to help when I was replacing his old room air conditioner; we live in an elevated beach house with stairs on the outside, and as I'm lugging the old unit out, he announces he will walk down the stairs ahead of me -- to catch the a/c and me, if I should stumble! I probably weigh fifty pounds more than my father (not counting the air conditioner), and it takes him four or five times as long to walk down the stairs (with the aid of a cane). But even the most polite response of, 'thanks, but I've got it,' will send him stomping off to sulk for the rest of the day. As you said, emotional memory lasts longer -- and it sure feels like a long time when his feelings are hurt that way.
But uh-huh-ing little incorrections goes a long way. I have to admit I was getting pretty put out when Dad was waking me every month or so in the middle of the night to say he'd been wakened by the sound of someone opening the garage door - it was easier to get up and go look than to tell him it hadn't happened.
 Signature Robert
Lee - 28 Aug 2004 21:06 GMT sounds like my mother-in-law ...these days I'm set up at home to do the computer repairs that come through our store (because SOMEONE has to be here outside of homecare hours) .... she hasn't ever used a computer, but still keeps offering to help, and getting upset when I tell her that it's ok.
She also constantly fusses and says those people should fix their own stuff, why do YOU have to do it LOL Uh... cuz people pay me for it? Cuz that's what I DO?
Thank God it's corn season ..... cleaning 4 cobs is her JOB and it takes a good hour.
> > One of the hardest things I had to learn was to stop trying to correct my > > mother in law when she said something obviously wrong. [quoted text clipped - 28 lines] > the garage door - it was easier to get up and go look than to tell him it > hadn't happened. Evelyn Ruut - 28 Aug 2004 21:43 GMT Hi Lee and Robert,
I think it is because all their lives they have been useful, and felt that they were able to help or manage or do anything they wanted, and looked after us. It has to be VERY hard to accept that now we are looking after them, rather than the other way around.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
> sounds like my mother-in-law ...these days I'm set up at home to do the > computer repairs that come through our store (because SOMEONE has to be here [quoted text clipped - 47 lines] > > the garage door - it was easier to get up and go look than to tell him it > > hadn't happened. Lee - 29 Aug 2004 00:28 GMT I think that that is the reason that she has an easier time a accepting help from me than from any of her kids, too
> Hi Lee and Robert, > [quoted text clipped - 61 lines] > it > > > hadn't happened. Dennis P. Harris - 29 Aug 2004 05:44 GMT > I think that that is the reason that she has an easier time a accepting help > from me than from any of her kids, too My mother lost a lot of weight and spent a lot of misdirected effort trying to prove that she could fix meals and keep house when she simply couldn't, physically or mentally.
She seems relieved now that she's in a group home and doesn't have to worry about meals and always has help available. She would never let me help her out of a chair, but the assistants at the home just hold out a hand and she grabs it.
Mare - 29 Aug 2004 02:53 GMT Robert, How bout saying "I've got this, but how bout you start sweeping the floor for me and I'll be right there" or some variation to let you finish your thing but make him feel useful. We just let Mom do what she wanted most of the time and reserved "the line" for times we had to get something done with out her.
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> > One of the hardest things I had to learn was to stop trying to correct my > > mother in law when she said something obviously wrong. [quoted text clipped - 28 lines] > the garage door - it was easier to get up and go look than to tell him it > hadn't happened. Robert E. Lewis - 30 Aug 2004 18:26 GMT > Robert, > How bout saying "I've got this, but how bout you start sweeping > the floor for me and I'll be right there" or some variation to > let you finish your thing but make him feel useful. We just let > Mom do what she wanted most of the time and reserved "the line" > for times we had to get something done with out her. Thanks Mare. I do that sometimes -- like, with the air conditioner, I responded to his offer to walk down the stairs ahead of me by suggesting he get the front cover of the a/c instead.
We have a big challenge coming up, though: Dad's computer crashed and he had to get a new one. Now, my father was a computer systems analyst and programmer for many years, even wrote a lot of his own programs, but switching to yet another operating system (Windows XP, from Windows 98) is, I'm afraid, beyond him now. I don't want him to give up on computers, because it's one thing that keeps him happily occupied, scanning in photos of birds from nature magazines, even making a video slideshow presentation at Christmas to give out to friends and neighbors (the last couple of years, some slides and his voiceover gets repeated, and it rambles, but it makes him happy).
But he wants me to explain some of the things work, and I'm seeing a bit of the techno-phobia I've seen in other people, especially older people, who aren't familiar with computers -- a panicky 'O my God, it's different, I don't know how to do this what if I make a mistake?!!!' attitude. And with that fear, he even gets fuddled about things like opening a file when they're exactly the same as the old Windows he's familiar with...
'Ok, now go to File, Open....' <he scans the screen, looking for it, moves the mouse around several places> 'On the Menu Bar, there at the top... 'The bar above that.... File, farthest to the left.... 'Right, File, no click on that, and click Open...'
... this might take a full minute, to get that one step. I try correcting him positively - 'yes, the one there, that's right' -- but it's a situation where, if I don't stop him and he makes a mistake, the mistake is as likely to register in his mind as 'the way to do it' and he's apt to get lost and frustrated, while if I correct him over and over, no matter how gently I put it, he gets the idea and gets angry at me. My solution so far has been to limit any teaching I give him to maybe five minutes at a time - for both our sakes.
If he doesn't get the hang of it to some degree, I may eventually suggest we trade computers, since I still have Windows 98 on mine and he could use it. But to have him give up on using computers, when it's been a major focus of his life for about forty-two years, would be a huge blow to him.
 Signature Robert
Tumbleweed - 30 Aug 2004 19:33 GMT <snip>
> If he doesn't get the hang of it to some degree, I may eventually suggest we > trade computers, since I still have Windows 98 on mine and he could use it. > But to have him give up on using computers, when it's been a major focus of > his life for about forty-two years, would be a huge blow to him. Its going to happen. My dad played snooker twice a week for about 25 years. A few weeks after he stopped, because he no longer knew which ball to hit or why, there was a game on the TV. He looked at it and said 'whats that'?
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Evelyn Ruut - 30 Aug 2004 20:39 GMT > <snip> > > [quoted text clipped - 9 lines] > A few weeks after he stopped, because he no longer knew which ball to hit or > why, there was a game on the TV. He looked at it and said 'whats that'? Ida was a wonderful cook. It was amazing to us to realize that she actually had forgotten how. She was simply silent on the issue.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Lee - 30 Aug 2004 20:11 GMT ouch... bad timing, eh?
there are some things you can do to make WinXP work a lot more like Win 98 .... for starters, go to the properties for the start menu and change to Classic view....
the grouping feature that XP uses for multiple windows is also confusing and awkward for those of us used to 98 ... that can be taken off in the status bar properties...
I've found a bunch of them .... cuz I detest XP but half to use it at least some of the time cuz i sell and teach it... if I can help at all, feel free to email
> > Robert, > > How bout saying "I've got this, but how bout you start sweeping [quoted text clipped - 44 lines] > But to have him give up on using computers, when it's been a major focus of > his life for about forty-two years, would be a huge blow to him. Mare - 31 Aug 2004 02:40 GMT I'm just chiming in with a me too. Hard to watch our LO's loose long term abilities.
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> > Robert, > > How bout saying "I've got this, but how bout you start sweeping [quoted text clipped - 44 lines] > But to have him give up on using computers, when it's been a major focus of > his life for about forty-two years, would be a huge blow to him. turkey in the straw - 31 Aug 2004 04:59 GMT Hi, My mom slept most of the day and is now(11pm) sound aleep.NO talking in her sleep.I think she had become so overtired it was impossible for her to get to sleep at night.Which of course made her more confused.It is just like a child.3 nights in a row she was talking in her sleep all night.During the day she was talkng mumbo jumbo.Nothing even made sense.Today she was better during the day.Yesterday we could hardly get her to stand up and walk with help.If ya let go she would fall over liking a leaning tower.That was even better today.Lack of sleep really messes her up.What i don't understand is why the first 2 days she did not sleep during the day.She stayed awake all day too.Until today she slept all day.Barb
Dennis P. Harris - 31 Aug 2004 06:28 GMT > Hi, > My mom slept most of the day and is now(11pm) sound aleep.NO talking [quoted text clipped - 8 lines] > not sleep during the day.She stayed awake all day too.Until today she > slept all day.Barb if she's never been bipolar, perhaps brain damage created a state similar to a bipolar mania. manic people can go for days with no sleep, until their bodies finally just take over because of exhaustion. the effect is as if they had been taking amphetamines for days.
seriously, as i suggested before, and others have, you should talk to her doc about an antipsychotic like risperdol to slow her down and stop the delusions.
Mare - 31 Aug 2004 16:22 GMT Hi Barb, Has her schedule been interrupted recently? Could she possibly have a UTI? If the wonky sleeping pattern continues maybe you should have her tested for a UTI. They are pretty common with sudden change in behaviors. I've found that we, as caregivers, really need to be detectives and observe our LO's to figure things out.
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> Hi, > My mom slept most of the day and is now(11pm) sound aleep.NO talking [quoted text clipped - 8 lines] > not sleep during the day.She stayed awake all day too.Until today she > slept all day.Barb turkey in the straw - 01 Sep 2004 04:58 GMT Mare, She was just tested for a UTI.We couldn't get enough urine so they did a culture.Her doc put her on an anti-biotic just so things did not get worse should she have an infection.It takes 3 days to get the culture back .She has an appt.Thursday.Could a UTI cause her lack of sleep and confusion?And i will be discussing it with her doc.Barb
Mare - 02 Sep 2004 20:10 GMT Hi Barb, My Mom has pretty atypical/non-symptoms for UTI's. Sometimes she sleeps lots or is just off her regular behaviors. I only see her a few times a week so it sometimes takes me that long to ask for a culture since it might be a decline but over the years I've learned that checking for a UTI in someone that can't vocalize how they feel is pretty much the first thing to do whenever there is a behavior change. I hope that's all it is or it might be her being in the hospital a few weeks ago and it's just catching up with her now. It could also be a change in the disease, you just have to keep trying different things while also giving each step time to see if it kicks in. Nothings easy with AD:(
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> Mare, > She was just tested for a UTI.We couldn't get enough urine so they > did a culture.Her doc put her on an anti-biotic just so things did not > get worse should she have an infection.It takes 3 days to get the > culture back .She has an appt.Thursday.Could a UTI cause her lack of > sleep and confusion?And i will be discussing it with her doc.Barb turkey in the straw - 03 Sep 2004 05:25 GMT Mare, It was a UTI and she's getting back to normal again.Her normal of course.Had her in today and everything was good.
Mare - 04 Sep 2004 00:59 GMT Hi Barb, I'm glad you got to the bottom of it. I hope she continues in her normal way. Good luck
 Signature Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
> Mare, > It was a UTI and she's getting back to normal again.Her normal of > course.Had her in today and everything was good. turkey in the straw - 01 Sep 2004 05:00 GMT By the way my aunt died a few months back because of a UTI that went undetected and got so out of controll they could not stop it.So we need to really watch for UTI's.
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