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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Baffling symptoms.....

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Buffys97 - 12 Aug 2004 14:52 GMT
Yesterday, my mother went home from her one week stay with me. She
begged to go home. Couldn't wait to get home. Had her bag packed and
was waiting for my husband hours before he was ready to leave.

While she was here, I observed that she checked and double checked
having taken her pills.....but I think she has always been a tad OCD
anyway and so for her this is a normal, albeit an exacerbated behavior
mechanism --probably because of her age and/or disease. She never
forgot a pill -- just checked and rechecked to see if she took it. She
remembered her meds better than I did.

While here, she read the paper, worked puzzles a bit, ate, smoked,
slept a lot, and offered to help me a bit.

I do not confide in my mother as she uses the confidences against me
or pokes fun. (I told you that she does have this mean streak.) So
although I am going to a Rachel's Vineyard retreat (for post-abortion
healing) over this weekend and would not be by to see her, I told her
I would not be by because I am going to attend a party with a group of
ladies in a nearby town.

I was an adult when I had the abortion. I accept responsibility. My
mother did encourage this, though and was ashamed at having an unwed
pregnant daughter. It was 1972. After the abortion, my plane was late
arriving home. It was on or near my birthday. I purposely forgot a lot
about the day. She thought she had lost her darling 27-year old
daughter. She was relieved when I showed up alive. I thought, "Well
Mother, I just killed my unborn child. How do you think I feel?"

Over the last 30 years, I have tried to express my heartache to her.
She changed the subject every time. She thought the entire family was
there at Christmas, at Thanksgiving, but no...for me someone very
important was missing...I was grieving for my unborn child. I didn't
really want to be at the family gatherings, so acute was my loss. But
I allowed myself to be manipulated into coming. And usually managed to
get into it with her. Merry Christmas!!!

She remembered that I had weekend plans   throughout yesterday and on
into today. The name of the town, everything! She did reiterate
repeatedly, "So you won't be by over the weekend.  You're going to a
party? I didn't know you had friends in Whatsittown."

She was just fine when she was with me. As soon as I called her to
make sure she was OK at home (there was a lag between when my husband
dropped her off until when my sister would be there) she came to the
phone breathless, speaking in halting phrases -- not at all the
together way she was when she was with me.

My husband, who is better with her than I ever could be, once again
feels that she is being manipulative and (please don't take this
wrong) wants someone to cook for her, run her errands, make repairs
for her on her own turf!

I remain baffled by this mysterious disease. She remembers, she checks
to make sure she did in fact remember.....I don't know.

So I guess for now I am turning yet another page in this chapter of
continuing our stormy relationship.

Thanks to all who helped me through the week.

Buffy
Evelyn Ruut - 12 Aug 2004 16:20 GMT
> Yesterday, my mother went home from her one week stay with me. She
> begged to go home. Couldn't wait to get home. Had her bag packed and
[quoted text clipped - 58 lines]
>
> Buffy

Buffy,

There are a lot of issues in your post above that I would love to discuss
with you, but for the moment, we will deal only with the pill taking and
checking part.

My mother in law took her pills religiously too.   But she forgot that she
took them and took them again.   She became so overly diligent about the
pill taking that she ended up being very sick at times.   We had no idea why
at the time, thought it was just a bug or something.   When the druggist
called us up because she was trying to renew a prescription again when she
should have had two more weeks worth of meds left, we checked and found out
that she was taking the pills over and over, since she kept checking and
thinking she hadn't taken them.

One of the VERY first things to go is short term memory that has to do with
whether or not they took their meds today.   The person can seem very fine
and quite "together" but in real life they can't remember taking them, so
they keep on checking and checking and checking.   The problem of doubling
up on meds is not at all an odd instance, they all tend to do that and
rather early in the illness too.   SOMEONE else should be minding her meds.
She really cannot remember anymore.   Oh, and forget about those nice little
boxes with the days on them.   She also forgot what day it was, over and
over and over again as well.

Sorry to sound so bleak about it, but I am just telling you the truth about
short term memory problems and alzheimers.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Buffys97 - 12 Aug 2004 17:35 GMT
You're right!!!  We thought that her Medicets (one green for the first
week my sister was gone and the second week white) would help her
remember, but that color change really baffled her. When do I start
the  white one? Why am I changing colors?

My sister will check on her meds this afternoon. She only takes one
set of pills a day (for an 85 year old smoker, not bad).

Don't apologize for being bleak -- you are just being real, which is
good.

I never thought about the consequences of ODing on one's meds......and
you're right again-- even with the medicet, somehow Saturday looked
just like Tuesday and invariably, my mom might ask, "Did I take my
meds. Let me check. Let's say -- what day is it? Tuesday? There's no
pill in Tuesday. Let's be SURE." And I can see why someone would put
another pill down the hatch!  Processing the taking of the daily
regimen of pills has many levels which do not meet the eye! When you
deal with someone with dementia, you have to break the thought down
into increments and you see that a simple thing like popping the old
memory and BP pills are complex beyond your dreams!

Thank you.

Buffy
Mary Gordon - 13 Aug 2004 06:43 GMT
Early in the game for many people with AD, they lose an understanding
of sequences, so that might be adding to the memory problem. In other
words, they stop understanding that Channel 4 is ahead of Channel 7 on
the dial, that 2 pm comes after 1 pm and before 3 pm, that Monday is
before Tuesday and after Sunday, that if its August, next month is
September etc.

It leads to all kind of practical problems in every day living. It
took me a while to clue into the fact that this had happened to my
MIL. When the lightbulb went on  over my head, I pulled out a calendar
and discovered she couldn't understand it at all - she couldn't follow
the matrix format and understand the sequence of days of the week and
dates and how they correlate. If you showed her today's date, and
asked her to show you one week from today, or three days ago she
couldn't do it. Same thing with medication charts where the time was
down one side and the days of the week across the top (i.e. where you
can check off when you've taken your meds). Just incomprehensible to
her - and this at a stage in the illness where she seemed quite
together on other fronts.

Around the same time, clocks became quite a mystery to her - she could
look at a clock and tell you the time, but really didn't get what it
meant - for example, even if she KNEW it was 2 pm, and her appointment
was at 3 pm, she couldn't figure out that that meant she was supposed
to be somewhere in an hour, much less reason out what time to leave
her house to get there on schedule. Concurrent with this was a loss of
"feel" for the passage of time - which is probably from the short term
memory loss. You could leave the room for 5 minutes or 5 hours, and
she wouldn't really know how long you'd been gone - so if she was told
something would happen in 15 minutes, she had no clue what that really
felt like.

Finding shows on TV became impossible - she couldn't understand how
the TV guide worked at all - after all, you needed to understand the
sequence of days and times AND how channels worked to find what you
wanted. She got into this sort of  permanent NOW mindset (very Zen) -
she thought if she could see it in the guide, it should be on, and no
amount of explaining would help her understand that a show that is
listed on Tuesday at 1 pm can't be watched on Friday at midnight. She
also couldn't get to the channel she wanted as she had no idea that if
she was on Channel 12 and wanted Channel 13, she just had to flip one
number on the dial - just no understanding of sequences at all. I
remember having a conversation with her about up and down a number
sequence (on her remote, there were channel changing buttons with
arrows for up (increasing numbers) and down (decreasing numbers), and
I might have well been speaking Swahili. She couldn't comprehend that
if she pushed the up button the channels would cycle  7, 8, 9, 10 and
if she pushed the down it would go 7, 6, 5, 4

If you start to really think about the loss of understanding of
ordered sequences, you can see how it impacts things beyond time and
handling money. How about dressing or bathing or cooking, where you
have a list of things you have to do in a certain order?

We take a lot for granted about the way our brain operates when its
intact, and its very hard to fathom what someone else is going through
when basic functions are on the fritz. Its easy to get frustrated and
assume the person is just being obtuse or difficult.

Mary G.
Mare - 17 Aug 2004 01:08 GMT
Hi Buffy,

snip

> My husband, who is better with her than I ever could be, once again
> feels that she is being manipulative and (please don't take this
> wrong) wants someone to cook for her, run her errands, make repairs
> for her on her own turf!

She is being manipulative BUT NOT as you believe she is. She
feels secure in her home because it is familiar but she is having
problems knowing HOW to cook, run her errands and make repairs.
She can't do them herself consistently so she is afraid and
reaching out for help. Have you gotten the book "The 36 hour day"
yet? It will open your eyes. She is doing none of the bothersome
things on purpose if she has AD.

> I remain baffled by this mysterious disease. She remembers, she checks
> to make sure she did in fact remember.....I don't know.
[quoted text clipped - 5 lines]
>
> Buffy

Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
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