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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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too much.... (long, sorry)

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Lee - 20 Aug 2004 06:07 GMT
stress, that is....

shouldn't have talked to my sister tonight I guess... have to work early
tomorrow a.m. and now I can't sleep

my youngest daughter lives with her... birthday is this weekend and they've
decided that we're going to celebrate Saturday - all day Saturday .... at an
amusement park there (1.5 hour drive each way) ..... just a ~little~ late
for me to make arrangements for ma....   and can't take her with me, of
course, even in a w/c... that's what I would have done before her
heart/lungs started failing - now it'd just be too much for her

kid will have to understand that I just can't be there...actually, kid will
probably be fine with it... it's my mother who will be extremely
perturbed... in her (chronically depressed) way of thinking, I'll be
choosing my partner's mother over my my own family (her) - and my sister
will feed into it, of course *sigh*

Then, as if that wasn't enough for one day, sister called right back to tell
me "oops, I forgot to tell you that B had a heart attack and has been moved
to a hospital in Hamilton"     SHE'S CLUELESS .... my sister I mean ....

B is my father's wife.... and his only caregiver.... my father has dementia
.... I haven't worried too much about him because B was taking care of him
and has made it very clear for years (even before he started having
problems) that she wants him to have nothing to do with us.... and dad
always chose to let her have it her way, i.e. wouldn't go one INCH out of
his way to see us even when I was right there in town (4 hours from where I
live)  because she'd "get mad". But now she's not there, and God only knows
what's up with him.... I only have the odd phone call (usually very odd!)
and second hand info to go on, but my guess is that he should NOT be there
alone. No home care or anything set up....

my first inclination would be to get in the car and go for a visit.... but
then I'm right back to the what do I do with ma? I'm the primary caregiver
HERE...I can't just pack up and run to Niagara Falls to sort things out
THERE.....

My alarm is going to go off in 5 hours and I'm too damn stressed to sleep
:(   Not much I can do tonight though.... will call him tomorrow (for all
the good that will do) and go from there, I guess.....  maybe try to get my
sister concerned enough to go see to him...she just doesn't ~get~ any of it
...doesn't get why I can't just leave ma here alone for "a few hours" , or
why we should be concerned about dad being there alone for "a few days",
or....     must be nice to be so oblivious...wish I could be ...at least
for a few hours!
Mare - 21 Aug 2004 02:31 GMT
Hi Lee,
Dang family politics! You sure are between a rock and a hard
place. Didn't yop have some people coming in to help your MIL
awhile ago? Can you hire them for a few days so you can get away?
Just a thought.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> stress, that is....
>
[quoted text clipped - 42 lines]
> or....     must be nice to be so oblivious...wish I could be ...at least
> for a few hours!
Lee - 21 Aug 2004 04:31 GMT
have 3 hours /day covered... not really enough....  at this point, got my
(CLUELESS) sister going there on Sunday ... just off the phone with her and
she confirmed that B is in fact in hospital in Hamilton NOT in Niagara Falls
as my dad told me today when I talked to him on the phone when he got back
from driving himself down to see her
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!   He doesn't HAVE a license ...was
taken away because of seizures, narcolepsy and dementia....

SHE... my (CLUELESS) sister...doesn't think we really can "do anything
because he might get mad at us" ....SHE says no to home care, no to
disabling the car, and no to bringing him up here against his will ....
(what's one more? I have to be here anyway!)  God FORBID he should get mad
at us...

As I told her, I don't give a damn if he gets mad at me, he is NOT ALLOWED
TO KILL HIMSELF OR SOMEONE ELSE ....  anyway ...she's going Sunday ...will
try to get in to see B as well ....somehow I don't believe HIM about
anything right now .... he told me B will be going home on Tuesday "at the
latest"

My kid is back from her dad's on tuesday ....I've talked to her about maybe,
rather than going home right away, having her come back here for a couple
more days so that I can go get dad sorted out - or pick him up and bring him
back, if need be....
would rather not... we're under enough stress here as it is, but I can't run
between 2 people that both need full time care if they're 4+  hours apart!
My hubby isn't real enthusiastic about it, but he'd support it anyway ...
he's majorally perturbed that I'm missing my kid's bday party tomorrow
because none of his family are able/willing to cover it.... we tried to find
a paid caregiver....starting from the ones we have anyway ... but that
didn't work either...  not enough notice.  his sister is covering Tuesday
for me though...so at least I can go pick kid up at the airport.

Anyway .... Dad is RIGHT off kilter.... aside from the driving --repetitive,
making little/no sense, and making up stories to try to cover .... sis won't
be the best reporter ...but at least he'll have someone there for ONE day
*sigh*    Best I can do right at the moment.....  she's to try to get phone
numbers re: people I can call to arrange for a ride to the hospital for him
on Monday and Tuesday, and if need be, I'll be there Wednesday to try to get
things sorted out better ...... and to disable the car ....which will likely
cause him even more stress, but stressed is better than dead, I figure

> Hi Lee,
> Dang family politics! You sure are between a rock and a hard
[quoted text clipped - 85 lines]
> ...at least
> > for a few hours!
Dennis P. Harris - 21 Aug 2004 08:56 GMT
> I'll be there Wednesday to try to get
> things sorted out better ...... and to disable the car ....which will likely
> cause him even more stress, but stressed is better than dead, I figure

call Adult Protective Services when you do.  they can help you
set him up in a temporary care situation if necessary.
Mare - 22 Aug 2004 23:47 GMT
Lee,
Call whatever "authority" will be able to help keep him safe. Let
them be the bad guys and leave the sorting out for later.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> have 3 hours /day covered... not really enough....  at this point, got my
> (CLUELESS) sister going there on Sunday ... just off the phone with her and
[quoted text clipped - 37 lines]
> things sorted out better ...... and to disable the car ....which will likely
> cause him even more stress, but stressed is better than dead, I figure
Lee - 25 Aug 2004 09:12 GMT
just a quick update....  Dad is having an assessment re: home care this week
... his Doctor made the referral when he heard that B was in hospital, and
Dad was home alone. B has  been moved to a local hospital, and arrangements
made for transportation .... car has been parked at a friend's house "for
safekeeping til B is home"  (Whatever works!)  Got people coming in to make
sure he's doing ok with meds and meals for now ...  still need to sort out a
couple of days so that I can go and visit, but at least for now he's being
taken care of.

> have 3 hours /day covered... not really enough....  at this point, got my
> (CLUELESS) sister going there on Sunday ... just off the phone with her and
[quoted text clipped - 127 lines]
> > ...at least
> > > for a few hours!
Songbird - 25 Aug 2004 13:32 GMT
> just a quick update....  Dad is having an assessment re: home care this week
> ... his Doctor made the referral when he heard that B was in hospital, and
[quoted text clipped - 4 lines]
> couple of days so that I can go and visit, but at least for now he's being
> taken care of.

That's good news, Lee. So far in this journey I have discovered that
whenever I thought "I can't believe I have to handle this all by myself -- I
can't do this," someone else shows up to help bear the burden, whether good
doctor, friend or relative. I think it's God, others would say karma or just
luck. (And I'm sure I will have times when I'm saying "OK, God, you're
supposed to ne kicking in here -- where are you?" but just not yet.)

Let others help as much as you can because there will be times when it is
all on you. Glad to know Dad is being taken care of-- how is B?

Songbird
WCPI46 - 22 Aug 2004 00:11 GMT
>stress, that is....

Hope you got some rest. I'm having a hard time dealing with stress lately. My
blood pressure has been all over the place. I have to get a grip though cause I
don't want to get sick. Stress is awful.

Becky
Evelyn Ruut - 22 Aug 2004 00:38 GMT
> >stress, that is....
>
[quoted text clipped - 3 lines]
>
> Becky

Becky it sure will kill you faster than anything else.

An old buddhist proverb goes;

If it is something you can change, why worry?
If it is something you cannot change, why worry?
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

 
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