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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Update: Wayne and JoJo

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Jef. - 18 Aug 2004 03:28 GMT
Hello, friends--

An update for you on the goings-on here:

My father has Alzheimer's, and has dramatically declined in the last couple
of months. He deteriorated rapidly and wound up in the emergency room, and
was later transferred into a nursing home. Eventually we found a very nice
group home in Annandale, Virginia about 12 minutes from our home. He's been
in there just a few days now, and only in the last...oh, I dunno...9
minutes?
have I felt like I could take a deep breath again.

A nurse and former rehabilitation unit director run the home, and there are
3 caregivers there to look after the 8 residents. Good numbers; a great
ratio! It has a solid reputation among the therapists my wife Marsha knows
who have seen patients there. It's bright, attractive, clean, and on a quiet
cul-de-sac in a very pretty, residential neighborhood. He has his own room,
which we've furnished with his own recliner, TV set, table, memorabilia,
awards, photos and plaques on the walls, and an assortment of his own
clothing.

He was very resistant at first, as the idea dawned on him that this was
where he was to stay. He mentioned that he might have to hitchhike home, or
that he could get friends to come pick him up. "Who, Pop? What friends do
you mean?" we asked. "My old OSS buddies at the CIA! I can call them and
they'll come get me pronto!" he said. He can't remember what he had for
breakfast, let alone a phone number, so the notion of some spook team
parachuting in and extracting him at midnight wasn't exactly too daunting.

We tried to calm him down, and got past it by telling him that since
Medicare wouldn't pay for the nursing home any longer (and they wouldn't; 30
days is it.) and the doctor felt he needed more rest to build up his
strength and gain some weight, that this place would be perfect. "It's so
close to us, you have this nice quiet room, etc., etc." and he eventually
bought it-- thanks to the suggestions you folks made here.

I was terrified of making this final transition. The sense of... stashing
him somewhere, forcing a choice on him, was abhorrent. But he can't make
decisions any more. I have to make them, and hope not to make anything
worse.

From the hospital to the nursing home was fairly easy, as he really couldn't
distinguish between them. From the nursing home to this group home was a
real change. This place is obviously a private house, so it's been a bit
more alarming for him. He didn't want to even see his room at first. Then,
once we coaxed him downstairs, he refused to leave the room. He only wanted
to lie in bed and sleep. I spent the first night here, sleeping in a chair
next to his bed because he'd doze off and wake up and not know where he was.
He was panicky--like a kid. I calmed him down and explained where he was and
why, and that everything was all right. A very restless night for us both.

He likes the food. The three caregivers (they're sweet women, Certified
Nursing Aides from Sierra Leone and Trinidad) bring trays to his room, and
dote on him, calling him "Mr. Wayne". They all find him very charming,
despite his refusal to get out of bed or leave the room. He'd been refusing
to change his clothes or bathe, too-preferring to sleep in his clothes. It's
not possible to deal with him rationally any more. Discussing hygiene or
manners didn't work. Appealing to reason or his sense of appropriate dress
didn't work. Coaxing, wheedling, pleading, yelling, arguing-none of that
worked. Finally I suggested that the caregivers appeal to his sense of
gentlemanliness. They finally told him that no one would kiss him if he
didn't brush his teeth.

That worked, all right.

Then they told him they would all be *deported* if he didn't let them bathe
him...

That worked, too-- like a champ.

So, there's this sweet little Siamese cat named JoJo who lives at the house.
The nurse who runs the place said she'd been thinking of taking the cat away
to another facility, since none of the residents  (most of whom are pretty
low-functioning, more's the pity) showed any inclination to interact with
the cat-and the caregivers were just afraid of it. She'd hoped JoJo would
provide company for the residents, but it hasn't worked out very well.
The cat's just starved for affection and attention.

I saw it on the stairway and gave it a scratch under the chin. The poor
little thing just about turned inside out rubbing up against my hand. I went
to Pop's room and spent some time talking to him. Marsha came by to visit,
and she carried JoJo into the room with her.

"Wayne, do you like cats?", she asked.
"No. I'm more of a dog person." he said.
He hasn't had a pet in probably 40 years or more.
"Would you like to meet this cat?",  Marsha asked. "It's very friendly."
"No." he said.

She left the room, and returned 2 minutes later.
It doesn't take long for a thought to clear Pop's memory these days.
She placed JoJo on the bedside table, where he stared at Pop.
Pop stared back at him.
JoJo sort of marched in place, as if anticipating an invitation.

"Well, don't just stand there; c'mon over", said Pop.

JoJo hopped on the bed, walked back and forth along Pop's leg, and rubbed
his head against his hip. He lay down next to him and started purring.
Pop laughed and began to pet it very awkwardly, but gently.

"He's purring. I think he likes it here" he said.
In a minute, he dozed right off.
When we tiptoed out of the room, both he and the cat were asleep, and he had
his hand resting on JoJo's head.

When I phoned this afternoon to check on him, one of the ladies said,  "Your
father is *very* clean now-- *and* he came upstairs to eat, *and* he
finished all his breakfast! Later, he ate nearly all of his lunch! We are
*very* happy about that. Then he asked us for the newspaper. Then he asked
me to bring him the cat!"

God bless you, JoJo.

And strength to us all...

Jef.
Gwen Love - 18 Aug 2004 05:02 GMT
Jef., you done good!  I think the cat just sealed things for you.  And I
hope you can get many more breaths of relief.
Gwen

> Hello, friends--
>
[quoted text clipped - 113 lines]
>
> Jef.
Evelyn Ruut - 18 Aug 2004 13:06 GMT
> Hello, friends--
>
> An update for you on the goings-on here:

(snip)

> When I phoned this afternoon to check on him, one of the ladies said,  "Your
> father is *very* clean now-- *and* he came upstairs to eat, *and* he
[quoted text clipped - 7 lines]
>
> Jef.

Dear Jef,

I guess you have discovered that which we all have had to, that stark truth
is actually at times a bit cruel, and that instead, what works and keeps
your loved one happy is the best course of action.   My mother in law has
been in the nursing home for about three months now, and she still thinks
she is just there to get better and that when she gets stronger she will
come home.  She is relaxing into the routine of the home quite well, and
they like her there.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Mare - 18 Aug 2004 15:13 GMT
Wow Jef,
Sounds wonderful. You are very lucky to have found such great
people to care for your Dad!
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Hello, friends--
>
[quoted text clipped - 113 lines]
>
> Jef.
Mary Gordon - 18 Aug 2004 15:53 GMT
Jef, hang in, having been there/done that, the worst part of the
transition is over - the first days are the hardest for everyone. You
might just be amazed. He'll settle in, the staff will get to know him
and how to charm and cajole him into whatever needs doing....and
slowly, he may even begin to blossom. He may make some friends (aside
from JoJo), he'll start to participate in whatever is going on and
maybe have a little fun, he'll get to feel comfortable and secure -he
might even really like it! I'm willing to bet you give it a few weeks,
and it will be like he's been there for years.

And for your part, I know you are still in agonies over this move, but
once you see that he is well cared for, safe, and enjoying the best
quality of life possible, the weight of the world will be off you. Our
experience with my MIL was that we knew we were stressed about her,
but we really didn't realize how taxing the load was until it was
lifted off and we could relax about her care. Before you have a good
care arrangement achieved, so much of your relationship with the
person ends up being negative encounters. Its not their fault, but you
certainly don't get to do much that's enjoyable with them, since there
can be so much conflict and angst and work to get the basics done -
and that is not helped by the guilt of having to make them do things
you know they don't want to do, or that are in conflict with your
previous relationship with them. Once you can relax and feel he's in a
good situation, you can go back to your real job, which is loving the
guy and doing what you can to enrich his life and make his days happy.

Hang in - this part does get better.

Mary G.
 
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