Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

Tip: Looking for answers? Try searching our database.

Suggestions about Adult Family Care

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Dennis White - 19 Aug 2004 03:52 GMT
    Evan came home from the hospital on Thursday.  All weekend he suffered
from coughing, choking, aspirating like I've never seen before.  On Monday
AM we had a regular visit to his Geriatric Doctor, who thought it would be a
good idea to go into a nursing home for a week or so.  I agreed.  The
nursing home is a shocker for Evan.  He is used to getting alot of personal
attention at home and though the staff are very good and on top of things,
it's just not the same.  Also a bit of problem sleeping since there's alot
more activity than he's used to.  If it weren't for the assurance that he
won't be left alone to get hurt, I'd prefer to have him home.
    Just lately the insurance company informed me that they won't renew his
homeowner's policy without an electrical update and a new roof.  It will
cost a total of about $25,000. to make the improvements.  He can afford it,
but my feeling is that he will never see a return on it.  He is not likely
to live long enough to recoup the profit from a sale.  I'd rather see him
spend the $25,000. on his care, something more tangible than improving his
house so he can leave it to his heirs (in the interest of full disclosure I
am one of them).
    His stay at the nursing home, which is indeed meant to be a temporary
respite has opened up the possibility of attempting to convince him to sell
his house, put it to use making him a bit more money and moving into an
Adult Family Home.
    I've looked into Assisted Living for him, but I'm sure he is too frail
to remain independent enough.  I will start looking for  an Adult Home in
our neighborhood starting tomorrow.  It is important to me that is is nearby
so I can spend a good deal of time with him.  I still intend to take care of
alot of his needs and comforts.  In fact, I don't mind him staying at home
and taking care of him as much as I have and more.  It is simply too hard to
navigate around his house.  He must walk up and down a flight of stairs to
get in and out of the house.  Although I plumbed in a toilet and sink in a
main floor bedroom for him, the shower is upstairs.  I'm also afraid he will
get up at night and fall, or worse.
    Does anyone have experiences with an Adult Family Home.  If they are
not licensed in your state, they are congregate care under the direction of
a professional in a family home in a regular family neighborhood.
Washington State allows no more than 6 residents, and full-time assistance
must be available.  Rooms are private or semi-private and most are equipped
to deal with dementia and dementia-related problems.  I understand the
monthly fees are a bit less than a nursing home, but more than assist
living.  Certainly the atmosphere is superior to a nursing home.
    One disheartening thing I'd also like to report.  I visited Evan this
morning and he told me he couldn't sleep well last night because his
roommate's TV was on all night.  He didn't want the roommate to forego what
is probably the only stimulation he could get, so he asked if he could be
moved to a quieter room.  I expressed that concern to the day nurse and the
Doctor who made rounds in the AM.  Later the nurse contacted me and  said
the doctor had recommended Trazedone to help Evan sleep.  Evan had asked her
to call me to see what I thought.  I really found that solution to be
unacceptable.  Evan has relied on naturapathy all his adult life, and I
didn't think a psychiatric medicine needed to be imposed upon him at this
late stage.  Also it did not get to the heart of the matter....noise.  I had
explained I would even be willing to pay for a private room if it meant him
getting more quiet.  When I visited this afternoon Evan nervously asked me
if he would have to take the Trazedone.  I told him it was entirely his
decision, even though I had told the nurse I didn't think it was the proper
course of action.  He responded: "Good.  If I ever OK that drug call the
Paddy Wagon!"  Of course I understand there is a time and place for
psychiatric meds, and meds to help one sleep, but used simply to make life
easier for staff is not valid as far as I can see.  I say simply turn off
the TV.
    I am not new to nursing homes.  My mother was in one for 10 years, and
my sister for 5 years.  I know that often times medication is used to manage
patients...often times it is overused.  In this case I thought it was a poor
solution to a fairly simple problem.

Dennis
Evelyn Ruut - 19 Aug 2004 13:48 GMT
>      Evan came home from the hospital on Thursday.  All weekend he suffered
> from coughing, choking, aspirating like I've never seen before.  On Monday
[quoted text clipped - 61 lines]
>
> Dennis

Dennis, I should imagine that a nursing home ought to have rules about when
TV's in shared rooms MUST go off for the night.   I would speak to the
director of the nursing home about that.   If they don't have a specific
time set for such things to be turned off, it just isn't fair to the other
patient sharing the room.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Dennis White - 19 Aug 2004 16:33 GMT
snip....

> Dennis, I should imagine that a nursing home ought to have rules about when
> TV's in shared rooms MUST go off for the night.   I would speak to the
> director of the nursing home about that.   If they don't have a specific
> time set for such things to be turned off, it just isn't fair to the other
> patient sharing the room.

    I have indeed spoken to the director about the problem and she assures
me they will be more careful in making sure the TV is off.  What bothered me
was the initial (misguided in my opinion) solution of giving
sleeping/psychiatric medication before simply trying to arrange for quiet!
I strongly opbject to the medical management for the sake of ease on staff
of the ill and the elderly.

Dennis

Dennis
Evelyn Ruut - 19 Aug 2004 16:53 GMT
> snip....
>
[quoted text clipped - 13 lines]
>
> Dennis

Dennis,

I agree with you on that.   Maybe they thought he was having trouble
sleeping or they thought he was anxious or something, and wanted to assure
themselves he wasn't going to be up and about and restless at night.   In
any case, sleeping meds in the case you described does sound like a bit over
much.

The real honest truth of the matter is that even though nursing homes are
run by professionals, they often don't have the time to give them the kind
of one on one care that they get at home.

Here, my mother in law was watched personally by TWO of us, and if she got
up at night, we were there with her.   Now she is in a nursing home and it
isn't ever going to be the same.   If she wants a tissue, or a sweater, or
needs to go to the bathroom she is going to be at the mercy of the staff and
whether or not they have the time to help her.  We go often to visit her,
but it isn't the same as home care.   Nonetheless, 24/7 care at home nearly
killed us both.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Mare - 20 Aug 2004 02:47 GMT
Hi Dennis,
Major red flags went off when you said they FIRST wanted to put
Evan on meds to help him sleep. IMHO I'd get him out of there as
soon as you can find other accommodations. Have you thought of
earplugs if he still has problems or a white noise unit next to
his bed? If those don't work the is a supplement, melatonin that
worked for my Mom. I found one called Melatonex at the drug store
that is actually time released and worked well. Start off with a
1/4 of a 3mg pill and see if that works. Try not to go over 1/2
pill since some research has shown that actually reverses the
intended effect. This is not a long term solution just one to get
him back into a sleeping pattern.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

>      Evan came home from the hospital on Thursday.  All weekend he suffered
> from coughing, choking, aspirating like I've never seen before.  On Monday
[quoted text clipped - 61 lines]
>
> Dennis
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2009 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.