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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Can an AD patient go into remission and temporarily gain lucidity?

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hal@nospam.com - 05 Aug 2004 16:49 GMT
My mother was in a nursing home with moderate dementia for about 6
weeks after recovering from lung cancer and chemo.  She fit the
pattern of AD to the "T", and has a very strong family history (mother
[severe]  and an aunt and uncle).  She recognized family members, but
could not remember conversations from day to day, refused to discuss
anything complicated, would not do her own businsess/finances, did not
open her mail, was severely paranoid and combative.  This went on for
several weeks, and all family members including my sister (only two of
us kids) and my mother's two brothers and their wives were all in
complete agreement that something must be done to help arrange for
likely long term care.  Anyway, with her permission, which she doesn't
remember giving, my uncle and I removed insurance and legal documents
from her house to help make arrangements for her care (my uncles and
sister and I all share power of attorney).  A few weeks later, she
seemed to start getting better, and managed to find a doctor who
thought she could be released from the nursing home, and they sent her
home with home health care.  Now she is furious.   She blames all of
us on plotting to "incarcerate" her (no, not commit her, but
incarcerate [her words]).  She is outraged that we removed papers from
her house.  She is repeatedly verbally abusing my uncle and my sister
and I.  She is threatening to dis-inherit my sister and I, and said
she is removing all our powers of attorney, and will be giving full
control to a friend of hers.  Everyone, I mean everyone, except this
very naive and  apparently clueless about AD and family history
friend, thought she would not be going home in the immediate future.
Now, everyone who thought she was not capable of going home is
"incompetent" and "stupid".   Every time I try to talk to her she is
abusive.  My mind now is to simply cut off all contact with her, and
let her work out her own problems.  Does this sound like typical AD to
everyone?  Can a dementia patient go into remission like this and have
spells of clearer thinking?  It the hatred of people who try to help
her and abuse of family members normal?

thanks,

Hal
doe - 05 Aug 2004 18:56 GMT
>Subject: Can an AD patient go into remission and temporarily gain lucidity?
>From: hal@nospam.com
[quoted text clipped - 36 lines]
>
>Hal

Yes lucidity CAN be recovered ..

Cognition is DIRECTLY related to the viscosity of the blood ..

Lowering of the viscosity of the blood leads to .. lucidity ..

> It the hatred of people who try to help
>her and abuse of family members >normal?

How would you feel if you 'came around' and everyone had their hands in YOUR ..
pockets .. ?

Who loves ya.
Tom
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Buffys97 - 06 Aug 2004 09:00 GMT
Hal - my mother is so mean to my sister sometimes it is pathetic. My
sister takes it, but I wouldn't.  But she puts on a great front for my
sister's children. And for my husband.  Once my sister asked her why
she was so mean and she said, "Because I love you."

She is angry with me now, I think, because I brought her here to stay
with me until my sister returns from her much needed vacation.

> My mother was in a nursing home with moderate dementia for about 6
> weeks after recovering from lung cancer and chemo.  She fit the
[quoted text clipped - 32 lines]
>
> Hal
Evelyn Ruut - 06 Aug 2004 12:54 GMT
> Hal - my mother is so mean to my sister sometimes it is pathetic. My
> sister takes it, but I wouldn't.  But she puts on a great front for my
[quoted text clipped - 3 lines]
> She is angry with me now, I think, because I brought her here to stay
> with me until my sister returns from her much needed vacation.

Buffy, the anger they show is not really at YOU per se.   It is anger
because they know something is wrong and they don't know exactly what it is.
Don't take it personally.   Remember that this is a person with a serious
organic brain disease.   They really aren't themselves and never will be
again.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Rose - 07 Aug 2004 08:29 GMT
>Subject: Re: Can an AD patient go into remission and temporarily gain
>lucidity?
[quoted text clipped - 15 lines]
>organic brain disease.   They really aren't themselves and never will be
>again.

Also, I find that faults AND virtues of temperament can become exaggerated. My
mom has always been very caring, especially toward children, vulnerable people
and animals.  With dementia, she is far too worried about other people's kids
in public, objecting loudly, and taking it on herself to keep watch, when
parents don't hold their young children's hands in parking lots.  

Before she got dementia she tended to take offense a little too easily, and now
that's worse... if someone in public or at a doctor's office is rude or
condescending to her she'll get right in their face, don't you dare talk like
that to me you so and so.  I'm always trying to diffuse these situations, and I
have to do so without embarrassing her or making her feel she is wrong.

I think the caregiver sometimes gets the brunt of hostility during the hostile
phase for the same reason we all tend to yell at our spouses, kids, and dog
while we smile and joke with the neighbors.  It's safe to be yourself and vent
your frustrations with the people you trust the most.  I personally think this
becomes exaggerated with a person with dementia.  Also, the person with
dementia is frightened.  They're losing their memories, judgment and power and
up to a certain point, they KNOW it. They're sometimes looking for someone or
something to blame, and the person right with them can sometimes seem like the
most likely cause.  "I live with you every day, I'm miserable every day,
therefore you are the one making me miserable."

I was told dementia lowers inhibitions (think of how many of us act when we're
drunk... either too happy and silly, or morose, or mean) and can cause people
to think too simplistically.  Either you are a saint from heaven or the devil's
child... there is little room for middle ground.

On the other hand, I think dementia sufferers often have SOME degree of control
and can put on a front so other people won't know they have a problem.  I think
dementia sufferers can be very smart.  They have to be, I believe.  As I read
in some literature about AD sufferers, "these people are impaired but they're
not stupid." Survival is harder for them and they need to find ways to take
care of themselves and get others to take care of them.

I think sometimes we can ask ourselves how we would feel if we sensed we were
losing our minds and knew deep inside it was going to keep getting worse and
one day we would lose our faculties completely.  How would I cope?  Would I
accept it gracefully and peacefully or would "rage against the dying of the
light"?  Would I tell myself "yup I have dementia all right" 24 hours a day or
would I seek refuge in denial much of the time in order to keep myself from
going stark raving mad from the horror of admitting what is happening to me?
Would I be happy and pleasant all the time or would I be filled with depression
and rage that my fine, quick mind, skills honed over a lifetime, and my prized
independence are abandoning me?

I admire my mom for having some awareness of what is happening to her and yet
continuing to get up every day and wanting to live some kind of life.  That
takes guts. She's difficult a lot of the time but hell so am I sometimes, and I
don't have dementia as an excuse. ;)

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Buffys97 - 08 Aug 2004 01:47 GMT
You have a really good attitude about the problems your mother is
encountering. I wish I were more like this.....

You also have a lot of insight about what the AD sufferer is going
through. Thank you.

It is sad to look at where they were and see where they are now and
have an inkling about where they are headed, isn't it?

My mother was a Classics scholar in high school. She won writing
contests.....she could have had a scholarship to college, but turned
it down and never told her mom and dad because she was tired of
school.

Her sisters called her, "the smart one."

Had the womens' movement occurred 50 years earlier, my mother would
have been a CEO somewhere, or a lawyer like her father.....but she
liked her job as a key punch operator.

This last week with her has been an eye opener. I am half afraid to
look at her, you know, because we have never gotten along, and I was
the bad daughter, (I was no Classics Scholar and I went to public high
school not the school she attended) and now it is too late, really, to
talk about our life as a mother and daughter.

I have noticed that I do not make much eye contact with her.

If you had problems in a relationship, yet reconciled with your loved
one who has AD before the AD or other dementia took hold, you are
lucky.

I am constantly on guard, clandestinely going about my household
routine and my other stuff, hoping she won't see what I am doing, then
make a smart "remark" that will push a button. So I sneak around my
own house while she is here. But I make her as comfortable as I can
(except for the smoking...)

I am really working hard at developing an attitude like yours. I
admire your attitude.....you must have had a good relationship with
your Mom.

When my mom is gone, I am sure, though, that I will remember the good
things.

Buffy
Rose - 08 Aug 2004 10:00 GMT
Buffy wrote:

>I am really working hard at developing an attitude like yours. I
>admire your attitude.....you must have had a good relationship with
>your Mom.

Buffy, I read a review of a book (can't recall the title) written by a woman
who along with other family members took care of her father, who had
Alzheimers.  She said that earlier in their lives they didn't get along well,
apparently he was autocratic and demanding.  But after he got sick, he would
spontaneously start singing and dancing, and was much easier to get along with.
She said she couldn't have a rational conversation with her dad and yet their
relationship was so much better.

I guess what I'm saying is your Mom is still your Mom even though she's
changed.  As long as she still knows you, to her you are still her daughter.
You could develop a good relationship with her now and it's not like that
wouldn't "count."   It's never too late!

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Songbird - 08 Aug 2004 13:22 GMT
> I am really working hard at developing an attitude like yours. I
> admire your attitude.....you must have had a good relationship with
> your Mom.
>
> When my mom is gone, I am sure, though, that I will remember the good
> things.

Buffy, my mom apparently has vascular dementia. My dad also has had a
personality change and has reasoning problems probably due to alcohol abuse.
My brother and I find ourselves turning to each other and saying "Who IS
this person?" especially with my dad. I was not estranged from them, but not
particularly close either. Six months could easily go by with no
communication. That ended Christmas 2002 when my mom thought it was
Christmas two days in a row and I knew something was seriously wrong. I
recently moved them near me so I can help and am re-establishing a
relationship.

On one hand, I am already grieving the loss of the parents I knew. On the
other, I am building a new relationship with these two somewhat goofy older
folks who have the same names as my parents and who I love and care about
deeply. It helped me to look at them as new people and let the history go,
all the times they were not there for me compared to the
drop-everything-be-over-there-right-now life I lead now.

Just my two cents. Was easier on my ulcer.

Songbird
Mary Gordon - 07 Aug 2004 18:43 GMT
A distinct possibility is that your mother is indeed in the early
phases of Alzheimer's, and was thrown for a loop by her illness and
treatment for her other health concerns.

This happened to my MIL. Her diagnosis was actually delayed by a
broken hip. She'd been a little vague and although we were certainly
alarmed and the doctor had booked her an appointment with a
specialist, she was coping quite well, living on her own, alert and
oriented etc. Then she broke a hip and had to have surgery. She was
completely ga-ga following the surgery. She was disoriented, confused,
totally out of it - to the point that a social worker was dispatched
to talk to us about placing her - i.e. in the opinion of hospital
staff, she was incapable of living on her own. They thought we were in
denial and wouldn't believe she'd been pretty much fine prior to the
surgery. She did come back most  of the way mentally after she had
recovered but it was slow - it was the better part of 6 weeks before
she regained whatever mental ground she was going to get back.

I've since found that this is not uncommon for people with dementia -
they are totally knocked back mentally by anesthesia and illness. When
my MIL was in mid AD, even a minor illness like a headcold would make
her seem much, much worse than she was. Its as though anything that
would make you and I a bit fuzzy headed really impacts them to the
point where they seem like they've really gone downhill.

The very fact your mother is behaving irrationally (angry, paranoid
etc.) suggests to me that she is not well mentally. I wouldn't be at
all surprised if she does indeed have AD, and you've had a glimpse
into her future from her illness - i.e. she isn't fine all right now,
and she's going to slide slowly down the hill she just came back up in
recovering from her cancer treatment. I'd keep a very close eye on
her, and try to get her seen by a specialist who can give all of you
some solid information about what may be going on.

Mary G.
 
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