Medical Forum / Diseases and Disorders / Alzheimer's / August 2004
Can an AD patient go into remission and temporarily gain lucidity?
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hal@nospam.com - 05 Aug 2004 16:49 GMT My mother was in a nursing home with moderate dementia for about 6 weeks after recovering from lung cancer and chemo. She fit the pattern of AD to the "T", and has a very strong family history (mother [severe] and an aunt and uncle). She recognized family members, but could not remember conversations from day to day, refused to discuss anything complicated, would not do her own businsess/finances, did not open her mail, was severely paranoid and combative. This went on for several weeks, and all family members including my sister (only two of us kids) and my mother's two brothers and their wives were all in complete agreement that something must be done to help arrange for likely long term care. Anyway, with her permission, which she doesn't remember giving, my uncle and I removed insurance and legal documents from her house to help make arrangements for her care (my uncles and sister and I all share power of attorney). A few weeks later, she seemed to start getting better, and managed to find a doctor who thought she could be released from the nursing home, and they sent her home with home health care. Now she is furious. She blames all of us on plotting to "incarcerate" her (no, not commit her, but incarcerate [her words]). She is outraged that we removed papers from her house. She is repeatedly verbally abusing my uncle and my sister and I. She is threatening to dis-inherit my sister and I, and said she is removing all our powers of attorney, and will be giving full control to a friend of hers. Everyone, I mean everyone, except this very naive and apparently clueless about AD and family history friend, thought she would not be going home in the immediate future. Now, everyone who thought she was not capable of going home is "incompetent" and "stupid". Every time I try to talk to her she is abusive. My mind now is to simply cut off all contact with her, and let her work out her own problems. Does this sound like typical AD to everyone? Can a dementia patient go into remission like this and have spells of clearer thinking? It the hatred of people who try to help her and abuse of family members normal?
thanks,
Hal
doe - 05 Aug 2004 18:56 GMT >Subject: Can an AD patient go into remission and temporarily gain lucidity? >From: hal@nospam.com [quoted text clipped - 36 lines] > >Hal Yes lucidity CAN be recovered ..
Cognition is DIRECTLY related to the viscosity of the blood ..
Lowering of the viscosity of the blood leads to .. lucidity ..
> It the hatred of people who try to help >her and abuse of family members >normal? How would you feel if you 'came around' and everyone had their hands in YOUR .. pockets .. ?
Who loves ya. Tom
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Buffys97 - 06 Aug 2004 09:00 GMT Hal - my mother is so mean to my sister sometimes it is pathetic. My sister takes it, but I wouldn't. But she puts on a great front for my sister's children. And for my husband. Once my sister asked her why she was so mean and she said, "Because I love you."
She is angry with me now, I think, because I brought her here to stay with me until my sister returns from her much needed vacation.
> My mother was in a nursing home with moderate dementia for about 6 > weeks after recovering from lung cancer and chemo. She fit the [quoted text clipped - 32 lines] > > Hal Evelyn Ruut - 06 Aug 2004 12:54 GMT > Hal - my mother is so mean to my sister sometimes it is pathetic. My > sister takes it, but I wouldn't. But she puts on a great front for my [quoted text clipped - 3 lines] > She is angry with me now, I think, because I brought her here to stay > with me until my sister returns from her much needed vacation. Buffy, the anger they show is not really at YOU per se. It is anger because they know something is wrong and they don't know exactly what it is. Don't take it personally. Remember that this is a person with a serious organic brain disease. They really aren't themselves and never will be again.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Rose - 07 Aug 2004 08:29 GMT >Subject: Re: Can an AD patient go into remission and temporarily gain >lucidity? [quoted text clipped - 15 lines] >organic brain disease. They really aren't themselves and never will be >again. Also, I find that faults AND virtues of temperament can become exaggerated. My mom has always been very caring, especially toward children, vulnerable people and animals. With dementia, she is far too worried about other people's kids in public, objecting loudly, and taking it on herself to keep watch, when parents don't hold their young children's hands in parking lots.
Before she got dementia she tended to take offense a little too easily, and now that's worse... if someone in public or at a doctor's office is rude or condescending to her she'll get right in their face, don't you dare talk like that to me you so and so. I'm always trying to diffuse these situations, and I have to do so without embarrassing her or making her feel she is wrong.
I think the caregiver sometimes gets the brunt of hostility during the hostile phase for the same reason we all tend to yell at our spouses, kids, and dog while we smile and joke with the neighbors. It's safe to be yourself and vent your frustrations with the people you trust the most. I personally think this becomes exaggerated with a person with dementia. Also, the person with dementia is frightened. They're losing their memories, judgment and power and up to a certain point, they KNOW it. They're sometimes looking for someone or something to blame, and the person right with them can sometimes seem like the most likely cause. "I live with you every day, I'm miserable every day, therefore you are the one making me miserable."
I was told dementia lowers inhibitions (think of how many of us act when we're drunk... either too happy and silly, or morose, or mean) and can cause people to think too simplistically. Either you are a saint from heaven or the devil's child... there is little room for middle ground.
On the other hand, I think dementia sufferers often have SOME degree of control and can put on a front so other people won't know they have a problem. I think dementia sufferers can be very smart. They have to be, I believe. As I read in some literature about AD sufferers, "these people are impaired but they're not stupid." Survival is harder for them and they need to find ways to take care of themselves and get others to take care of them.
I think sometimes we can ask ourselves how we would feel if we sensed we were losing our minds and knew deep inside it was going to keep getting worse and one day we would lose our faculties completely. How would I cope? Would I accept it gracefully and peacefully or would "rage against the dying of the light"? Would I tell myself "yup I have dementia all right" 24 hours a day or would I seek refuge in denial much of the time in order to keep myself from going stark raving mad from the horror of admitting what is happening to me? Would I be happy and pleasant all the time or would I be filled with depression and rage that my fine, quick mind, skills honed over a lifetime, and my prized independence are abandoning me?
I admire my mom for having some awareness of what is happening to her and yet continuing to get up every day and wanting to live some kind of life. That takes guts. She's difficult a lot of the time but hell so am I sometimes, and I don't have dementia as an excuse. ;)
___ "Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Buffys97 - 08 Aug 2004 01:47 GMT You have a really good attitude about the problems your mother is encountering. I wish I were more like this.....
You also have a lot of insight about what the AD sufferer is going through. Thank you.
It is sad to look at where they were and see where they are now and have an inkling about where they are headed, isn't it?
My mother was a Classics scholar in high school. She won writing contests.....she could have had a scholarship to college, but turned it down and never told her mom and dad because she was tired of school.
Her sisters called her, "the smart one."
Had the womens' movement occurred 50 years earlier, my mother would have been a CEO somewhere, or a lawyer like her father.....but she liked her job as a key punch operator.
This last week with her has been an eye opener. I am half afraid to look at her, you know, because we have never gotten along, and I was the bad daughter, (I was no Classics Scholar and I went to public high school not the school she attended) and now it is too late, really, to talk about our life as a mother and daughter.
I have noticed that I do not make much eye contact with her.
If you had problems in a relationship, yet reconciled with your loved one who has AD before the AD or other dementia took hold, you are lucky.
I am constantly on guard, clandestinely going about my household routine and my other stuff, hoping she won't see what I am doing, then make a smart "remark" that will push a button. So I sneak around my own house while she is here. But I make her as comfortable as I can (except for the smoking...)
I am really working hard at developing an attitude like yours. I admire your attitude.....you must have had a good relationship with your Mom.
When my mom is gone, I am sure, though, that I will remember the good things.
Buffy
Rose - 08 Aug 2004 10:00 GMT Buffy wrote:
>I am really working hard at developing an attitude like yours. I >admire your attitude.....you must have had a good relationship with >your Mom. Buffy, I read a review of a book (can't recall the title) written by a woman who along with other family members took care of her father, who had Alzheimers. She said that earlier in their lives they didn't get along well, apparently he was autocratic and demanding. But after he got sick, he would spontaneously start singing and dancing, and was much easier to get along with. She said she couldn't have a rational conversation with her dad and yet their relationship was so much better.
I guess what I'm saying is your Mom is still your Mom even though she's changed. As long as she still knows you, to her you are still her daughter. You could develop a good relationship with her now and it's not like that wouldn't "count." It's never too late!
___ "Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Songbird - 08 Aug 2004 13:22 GMT > I am really working hard at developing an attitude like yours. I > admire your attitude.....you must have had a good relationship with > your Mom. > > When my mom is gone, I am sure, though, that I will remember the good > things. Buffy, my mom apparently has vascular dementia. My dad also has had a personality change and has reasoning problems probably due to alcohol abuse. My brother and I find ourselves turning to each other and saying "Who IS this person?" especially with my dad. I was not estranged from them, but not particularly close either. Six months could easily go by with no communication. That ended Christmas 2002 when my mom thought it was Christmas two days in a row and I knew something was seriously wrong. I recently moved them near me so I can help and am re-establishing a relationship.
On one hand, I am already grieving the loss of the parents I knew. On the other, I am building a new relationship with these two somewhat goofy older folks who have the same names as my parents and who I love and care about deeply. It helped me to look at them as new people and let the history go, all the times they were not there for me compared to the drop-everything-be-over-there-right-now life I lead now.
Just my two cents. Was easier on my ulcer.
Songbird
Mary Gordon - 07 Aug 2004 18:43 GMT A distinct possibility is that your mother is indeed in the early phases of Alzheimer's, and was thrown for a loop by her illness and treatment for her other health concerns.
This happened to my MIL. Her diagnosis was actually delayed by a broken hip. She'd been a little vague and although we were certainly alarmed and the doctor had booked her an appointment with a specialist, she was coping quite well, living on her own, alert and oriented etc. Then she broke a hip and had to have surgery. She was completely ga-ga following the surgery. She was disoriented, confused, totally out of it - to the point that a social worker was dispatched to talk to us about placing her - i.e. in the opinion of hospital staff, she was incapable of living on her own. They thought we were in denial and wouldn't believe she'd been pretty much fine prior to the surgery. She did come back most of the way mentally after she had recovered but it was slow - it was the better part of 6 weeks before she regained whatever mental ground she was going to get back.
I've since found that this is not uncommon for people with dementia - they are totally knocked back mentally by anesthesia and illness. When my MIL was in mid AD, even a minor illness like a headcold would make her seem much, much worse than she was. Its as though anything that would make you and I a bit fuzzy headed really impacts them to the point where they seem like they've really gone downhill.
The very fact your mother is behaving irrationally (angry, paranoid etc.) suggests to me that she is not well mentally. I wouldn't be at all surprised if she does indeed have AD, and you've had a glimpse into her future from her illness - i.e. she isn't fine all right now, and she's going to slide slowly down the hill she just came back up in recovering from her cancer treatment. I'd keep a very close eye on her, and try to get her seen by a specialist who can give all of you some solid information about what may be going on.
Mary G.
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