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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Good Things About Caring for an Elderly Parent

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Rose - 09 Aug 2004 09:33 GMT
-- She can be really, really funny and goofy.  She makes me laugh very hard,
much more than before the dementia.

-- She can illuminate people's true colors.  I take note of who shoves by her
even though she walks with a cane and who steps out of the way and lets her
pass, who reacts with sympathy and compassion when she becomes upset and
agitated and says things that don't quite make sense, and who gets hostile, or
sneers and laughs at her.  

-- She is more open with her emotions with people, which can be a healing
experience for those who meet her.

-- I used to think I was too immature to care for someone, but when my mom got
sick it's like I grew another arm and became twice as strong emotionally to
handle it.  

-- I have much more understanding of elderly people now, and I don't take it
personally if I meet an elder who seems hostile or acts forgetful or bizarre.
I'm much more careful not to go rushing past people with canes, and instead I
make sure I'm giving them enough room.

-- My short term memory has improved (except when I'm very anxious about
things) in order to compensate for her worsening memory.  I used to be the
person who'd forget my head if it weren't attached and my mom was the one who
was totally organized and didn't forget or lose things.  

I'm sure there's lots of stuff I'm forgetting, but that's a good summary of the
bright side of being a caregiver.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Evelyn Ruut - 09 Aug 2004 12:27 GMT
> -- She can be really, really funny and goofy.  She makes me laugh very hard,
> much more than before the dementia.
[quoted text clipped - 24 lines]
> I'm sure there's lots of stuff I'm forgetting, but that's a good summary of the
> bright side of being a caregiver.

Yes, I can relate to all of that.

One heartening note I could add to that list, is that my mother in law and I
never really got along that well.   Our relationship was healed when I cared
for her.  We hugged and made up and I still get teary eyed when I think of
it.

She also always remembered to say "thank you" for every meal she ate here.
Even in the depths of her illness, she always thanked me for every meal and
when I helped her bathe.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

turkey in the straw - 09 Aug 2004 13:20 GMT
My mom too thanks me for even helping her get into bed.She's very honest
and blunt now.Lets me know exactly what she does and does not want.She
never did this her whole life.Barb
Evelyn Ruut - 09 Aug 2004 14:23 GMT
> My mom too thanks me for even helping her get into bed.She's very honest
> and blunt now.Lets me know exactly what she does and does not want.She
> never did this her whole life.Barb

No matter how much I say I am relieved that she is now in a nursing home,
that doesn't change the fact that I am GLAD I TOOK CARE OF HER HERE AT HOME!

It was good for her and good for us.
It was hard, but I feel good about it.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Buffys97 - 09 Aug 2004 23:56 GMT
Hey Rose - You're A-OK! Thanks for bringing these things up.

You said, " I take note of who shoves by her
even though she walks with a cane and who steps out of the way and
lets her
pass, who reacts with sympathy and compassion when she becomes upset
and
agitated and says things that don't quite make sense, and who gets
hostile, or
sneers and laughs at her."

About this - before my mother had Alzheimers or Vascular Dementia, she
sold her house.....I think it was 2000. The realtor directed all of
his questions to ME. He acted as if she weren't there. I called his
attention to this. He was a little pipsqueak anyway.

In the store, when I take my mom shopping, I sort of look over my
shoulder and make sure we aren't obstructing traffic. I guess I know
she is slow and some people, even really nice people, are  late for
work, late to appts, etc., and I don't want them to hate her, so I try
to compensate by making sure we aren't in the way.

People are usually appreciative of this and smile or just let us go
ahead....

Thanks, Rose, for reminding me not to rush by people--young or old. I
am one of those who has usually been in a big hurry.  Buffy
Pell Nilly - 10 Aug 2004 03:53 GMT
> Hey Rose - You're A-OK! Thanks for bringing these things up.

<snip>

> before my mother had Alzheimers or Vascular Dementia, she
> sold her house.....I think it was 2000. The realtor directed all of
> his questions to ME. He acted as if she weren't there. I called his
> attention to this. He was a little pipsqueak anyway.

Medical personnel did that to both my parents, both of whom could
understand what was being said. As you said, it was over their heads,
as though they weren't there. Or as if they were children. Heck, I
don't even want my Kindergartners' parents talking about them in their
presence without including the child in the discussion. It's rude! I
ask the parents to send the child out of the room or to talk privately
with me some other time.
Dennis White - 10 Aug 2004 07:01 GMT
> > Hey Rose - You're A-OK! Thanks for bringing these things up.
> >
[quoted text clipped - 8 lines]
> understand what was being said. As you said, it was over their heads,
> as though they weren't there. Or as if they were children.

snip...

    In caring for my friend Evan, I have run into this problem alot. Much
of the time Evan is very "present", has a very quick wit and exhibits a much
higher intelligence than most around him.   When salespeople, medical
providers, etc. etc. start talking to *me* as if it were my place to make
all of his  decisions, I simply turn to Evan and ask "What do you think?"
If the person continues to address me as if Evan weren't there  I will point
out directly that he should direct his questions to Evan, not me.
    There are other times I want to speak to care providers without causing
Evan worry, or upsetting him.  Those are times I am adamant about
discretion, and I make no bones about my wish to speak to them privately.

Dennis
Mary Gordon - 10 Aug 2004 12:35 GMT
I don't think there is a good answer for this one, since we found that
many doctors and other staff insisted on trying to question her at a
point in the disease where it was a lost cause - i.e. to the point
where she just couldn't provide information in any way that was
helpful or made sense.

Some of them were quite brusque with her - i.e. when she just stared
at them, they'd repeat the question impatiently, or louder. It was
surprising that very few knew how to talk to someone with cognitive or
memory issues - i.e. they would often ask long convoluted questions or
use complex language - and the only way to get any sense out of her
would have been to ask very short, simple questions. By the time they
got a long question out, she'd have forgotten the first part. She'd
also confabulate - try to answer, but end up telling long looping
shaggy dog stories that didn't answer the question. She'd also give
some strange answer and then look at me to see if the answer was
right.

My husband typed out a detailed medical history for her and kept it
updated, and we used to hand staff a copy when we saw some new doctor
or she had to go to emerg, to try and cut down on the upsetting and
pointless interrogation about when she'd had what surgery, or what
date XYZ had started hurting.

Even in early AD, docs would also try to explain things to her not
realizing her language and memory problems - so you can't win. It
would be better if they  gave handouts to take home about various
illnesses. When she was first having AD symptoms, we didn't always go
to appointments with her, but she'd come home and we couldn't figure
out if she'd actually told the doctor about whatever was bothering her
(often she'd forget the main point of the visit), much less get out of
her what the doctor had said.

Mary G.
Songbird - 10 Aug 2004 13:01 GMT
> I don't think there is a good answer for this one, since we found that
> many doctors and other staff insisted on trying to question her at a
> point in the disease where it was a lost cause - i.e. to the point
> where she just couldn't provide information in any way that was
> helpful or made sense.

My mom is still fairly cogent. We had to call an ambulance for her due to a
cardiac question and as the EMTs questioned her, my dad started answering
every question for her. I quickly got him out of the room and explained that
he needed to give her a chance to answer first, that part of what they were
assessing was her orientation, alertness, etc.

I have been lucky to find her a PCP and a cardiologist who ask her the
questions. Sometimes she has a clear answer, sometimes she hesitates and
turns to me. If her answer is incorrect (four days after the ER trip she
couldn't remember why we went), then I just calmly offer an explanation
without correcting or contradicting her. Both docs have caught onto this and
when they get an answer they don't quite "buy," they will look to me for
confirmation. I think it is important for her dignity to let her be the
primary responder. On the last cardiologist trip, she turned to me and said,
"I'm so glad you're here, I don't remember any of this!" "This" included the
brain scan that says she is not getting enough blood to the brain --
something the cardiologist would like to know!!

Songbird
Rose - 11 Aug 2004 09:38 GMT
>Subject: Re: Good Things About Caring for an Elderly Parent
>From: Mary_Gordon@tvo.org  (Mary Gordon)
[quoted text clipped - 6 lines]
>where she just couldn't provide information in any way that was
>helpful or made sense.

I am past being surprised at the ignorance shown by some in the medical field
regarding how to recognize symptoms of dementia, and how to behave toward
dementia patients.  I've driven home crying from more than one of my mom's
appointments because of the behavior of the doctor or staff.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Dennis White - 14 Aug 2004 07:54 GMT
> >Subject: Re: Good Things About Caring for an Elderly Parent
> >From: Mary_Gordon@tvo.org  (Mary Gordon)
[quoted text clipped - 14 lines]
> ___
> "Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango

During Evan's latest hospital stay I spent most of each day with him.  I did
it because he was scared, and I care.  I guess most of the hospital staff
thought I was there because he was too stupid to understand the simplest
explanations of what was going on.  BTW, why can't others understand that
not all older people are deaf?  There is no need to shout at them.  And
talking loudly doesn't make thinks easier to understand.

Dennis White
 
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