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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Jef. - 08 Aug 2004 05:31 GMT
A little history, a little weird local news, and a naked request for
information:

My father is 82, recently diagnosed w/ AD and has been in a nursing home for
the last few weeks after being released from the hospital. (His landlady
found him in bed, fully clothed, very dehydrated and rambling...) The
hospital discharged him after a 4 day stay, saying basically "Well, we're
done. Here's your dad. He's not safe alone, so you'll need to make some
arrangements..."

He barely remembers the hospital visit, and has it sort of mixed up with his
present stay in the nursing home. The time has run together for him. He
talks about going back to his apartment, and we've explained how that's not
an option, as he's not safe there. He lived independently and was doing
fairly well, about an hour's drive away from us. Things have really
snowballed in the last several weeks.

It's no longer safe for him to be alone, as he wasn't remembering to eat,
pay his bills, change his clothes, etc., etc.. We have been scouring our
area for care facilities where he may be safe, looked after, fed and
medicated properly, and have been terribly disappointed in what's available.

The nicest-looking and closest assisted living/dementia unit operation in
the area (a Sunrise operation) had moved to the top of our short list
because it seemed so clean and well-kept. We had the grand tour there last
week and were impressed. Yesterday's Washington Post ran an article about
police responding to a 2:00 AM hang-up 911 call hat came from the place,
only to discover no one was answering the night doorbell, the front door,
the telephone or even responding to their patrol car's siren. They
eventually found an unlocked door and let themselves in.

Once inside they swept the place and found a hospice patient on the floor,
calling for help-- she'd fallen from her bed. Another patient had a clogged
catheter and had called 911 in frustration after not getting any answer from
her in-room call button. The cops found all 3 staff members on duty FAST
ASLEEP!

Needless to say we aren't sending Pop there...

We've found a nice group home that has great staff-to-resident ratio (1 to
4), and a good reputation, and are trying to make arrangements to get him in
there. I wonder how some of you have handled the transition of moving a
loved one from the home or apartment they've known for so long, into
somewhere new. He is resistant to the idea, and thinks he can just "...get a
place of my own."

Got any hints, tricks, tips, ruses, strategies that have worked fairly well
for you? I've tried to be straightforward with Pop all through this, and
haven't wanted to trick him, baby-talk him, bullshit him or candy-coat
anything. He's cognitively aware enough to know he's not quite right, but is
cranky and testy when we try and explain things to him or ask him questions.
He's just not capable of processing the information in a manner that really
allows him to deal rationally with the situation, and we're sure he'll feel
angry or conspired against when we try to move him to the group home.

I'm anticipating traumatic response and major hassle. I'm dreading it, and
am looking for any feedback that you folks with more experience may be able
to give me.

Thanks for your attention, and God give us all strength.

Jef.
Tumbleweed - 08 Aug 2004 08:04 GMT
<snip>

> We've found a nice group home that has great staff-to-resident ratio (1 to
> 4), and a good reputation, and are trying to make arrangements to get him in
[quoted text clipped - 11 lines]
> allows him to deal rationally with the situation, and we're sure he'll feel
> angry or conspired against when we try to move him to the group home.

You need to lie, or as its called here use 'loving deception'. Sorry to be
abrupt, but fact is, your father is approaching the reasoning skills of a 2
year old, and you wouldnt discuss with a 2 year old what they should do for
medical treatment, you would work out what was best for them and do it. As
you point out;
"He's just not capable of processing the information in a manner that really
allows him to deal rationally with the situation";  so therefore you cant
rationally talk with him about it, you need a subterfuge to get him in. I
believe the experience here of almost everyone is that however much of an
issue there was getting their LO in a home, once they are in they settle
down pretty well. Even people who were initially very hostile to going into
a home.

> I'm anticipating traumatic response and major hassle. I'm dreading it, and
> am looking for any feedback that you folks with more experience may be able
> to give me.

All that is quite likely. Getting your father in under some pretence is
probably best from what you say, the pretence depends just how bad he is. It
might be a home for the night whilst his house is redecorated, a bed for the
night whilst the doctors check him out, or some other explanation that he
will accept. You are going to have to "trick him, baby-talk him, bullshit
him or candy-coat" the situation.

My father was bad enough that whatever explanation you came up with, if he
didnt accept it you could wait a minute (I mean that literally) and try
another one, maybe that would work for you? My father still caused a major
fuss once in but didnt have the ability to reason how to get out. After a
couple of weeks he settled down and when he was switched from special
hospital to  care home didnt even notice he had been moved.

Sounds and maybe is harsh but there was no other alternative, he is much
better cared for now that when he was at home because the family couldnt
provide 24x7 care.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Dennis P. Harris - 08 Aug 2004 09:48 GMT
> Got any hints, tricks, tips, ruses, strategies that have worked fairly well
> for you? I've tried to be straightforward with Pop all through this, and
[quoted text clipped - 4 lines]
> allows him to deal rationally with the situation, and we're sure he'll feel
> angry or conspired against when we try to move him to the group home.

the most common and least traumatic method seems to be moving the
loved one's favorite pictures, chair, books, and other things
that make the place "home" to the new place while you take the
patient for a drive that ends, of course, at the new place.  you
take him to his room and tell him he'll be staying there for a
while "until he gets better".

yeah, he'll be upset, resist, and want to go "home". once you've
moved him, get him distracted and then leave and give him several
days *without a visit* to get acclimated.  it may sound cruel,
but it's crueler to keep visiting and reminding him of his former
life, until he gets used to his new environment.  

he can't reason.  his reasoner is broken.  his brain is damaged.
it does no good to talk about it in advance or attempt to have
his help in deciding things, and it will only upset him.  this is
where you learn to use what we call "loving deception", because
it reduces the trauma involved.

many folks quickly get used to the new place, like not having to
deal with things like preparing meals or housekeeping, or all the
steps required before bathing.  after several weeks they become
accustomed to the new routines and forget that they were living
somewhere else.
Evelyn Ruut - 08 Aug 2004 13:34 GMT
> A little history, a little weird local news, and a naked request for
> information:
[quoted text clipped - 58 lines]
>
> Jef.

Hello Jef,

Welcome to the club nobody wants to join.   Most of us here are caring for a
relative with some form of dementia, either at home or in a facility of some
kind.   It sounds like you are doing a good job and trying your best to help
your dad.

Above you say... "I've tried to be straightforward with Pop all through
this, and haven't wanted to trick him, baby-talk him, bullshit him or
candy-coat anything."    We tried that too, and found that it doesn't work
very well, just as you apparently have.

In the first place, their reasoning is affected with this disease, because
it is an actual organic brain disease that results in real measurable
physical changes in the brain itself.   So if you try to treat your dad like
he is perfectly normal and able to understand, remember, reason, and think
like a normal person, all you will do is frustrate him and yourself too.

Normal rules don't apply anymore.   YOU have to do the thinking for him, and
get used to the idea that he isn't going to be able to absorb things like a
normal person anymore.

You may be able to work with him better and make his life better by the very
deceptions you are trying to avoid.   Now before you get upset and stop
reading, let me say I took care of my mother in law for over three years
here at home, and finally we placed her in a nursing home due to falling
issues.   She has NEVER been able to understand her condition, why she is
where she is, for the entire time.   We have explained it to her patiently
and kindly, over and over and over hundreds of times.   She just can't
retain the memory.

She thinks (from that day to this) that she could just "go home" and is
unaware that she would get exactly into the same condition she was nearly 4
years ago when we literally rescued her,.... half starved, filthy, confused,
having paid bills twice, been victimized by home improvement scammers, and
having forgotten how to prepare food for herself anymore, how to bathe
herself, how to care for herself....even to dress herself at this point.
Only now it is a lot worse than it was at that time, because now she is
incontinent and can't walk 10 feet without falling on the floor.

All of us here wanted to be honest and not bullshit our loved ones.   But
you will soon discover that there really is no other way.   We call it
"loving deception" and it is truly something that comes from love.   It is
just as respectful to that person in their present state of mind, as total
and complete honesty was, when they had an intact mind.    You need to
understand that you are playing a different ball game now.   The rules have
changed.   You need to make the decisions, take care of your dad and GET him
to a place where they will take good care of him as professionals.   The
means of doing this doesn't matter, because he isn't going to suddenly "get
it" and go along.   That time is past.

Whatever you tell him, please feel no guilt.   The goal is to keep him happy
and content, even if it is only just for a minute.   Because the only thing
your dad has right now is this very minute.   Whether you tell him the cold
hard truth, or some fluffy lie, he won't remember either one.   What will
persist is if you upset him, or put his mind to rest somehow.

You absolutely CANNOT bring your dad into your reality, you can only work
within his own reality.   That sometimes means feeling like a total jerk for
telling him some story that will set his mind at ease.   It is a transition
in OUR way of thinking that is done for their own good and peace of mind.
You can handle doing that, more easily with an intact brain, than he can
handle the upsetting truth with an impaired brain.

Oh, and about the facility that was caught with the employees asleep.... we
had that happen in one place around here too, and guess what?  There was a
shakeup, some firings, new direction, new people, and now it is the very
best facility in our area.   I know, because that is where my mother in law
is.   Believe me, I have come there all hours, and she is well cared for.

I had my misgivings and doubts in the beginning from the gossip I had heard
beforehand, but the new staff is wonderful and caring, and the new
management is top notch.   It is primarily a rehabilitation hospital with an
alzheimers wing, so the emphasis is a lot on therapy to help my mother in
law retain as much of her coordination as possible.

Best of luck in this new situation.  There are books you can read... for
instance "The 36 hour day" and there are others.   There is a website
associated with this newsgroup.   Here is the link.
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm   You may find it
helpful.

You will notice that others who have gone down this road before you have
discovered that "loving deception" is ultimately far kinder to your loved
one, and will go a lot further with them than attempts at brutal honesty,
when they just don't understand reality anymore.

You sound like a caring son, and I wish you the best of luck in your
endeavors.  Don't hesitate to come here and ask at any time.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Tumbleweed - 08 Aug 2004 17:25 GMT
> > A little history, a little weird local news, and a naked request for
> > information:
[quoted text clipped - 159 lines]
> one, and will go a lot further with them than attempts at brutal honesty,
> when they just don't understand reality anymore.

I agree, honesty got us nowhere but generated a huge amount of hurt for all
concerned,and the memory of that hurt lingered a lot longer than any actual
statement that was made. Seems there is a phyical reason for this, but
whatever, the point, as evelyn said, is to "tell him a  story he will accept
that will put his mind at rest". That way, he will be at rest/happy, and you
will be as well.

and just to reiterate, because its so strange to a normal way of doing
things, if the first story doesnt work, use Az to your advantage, wait a few
minutes and then try another one, dont refer back to what previously you
said, act as if its the first time.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Beth - 08 Aug 2004 18:02 GMT
Jef, I endorse what the others have said about the breaking reasoner,
fitting your explanation to something that makes sense to them, etc.
Having been through it, I can tell you AD breaks all your instincts
about how to do it right. Fostering independence and autonomy works in
the outside world with an intact brain.  No one has prepared us for the
disintegrating brain.
2 points- 1 You're switching roles here and have to be the parent of the
parent.  It's very hard and very emotional.  I think you're recognizing
that nicely.  But number 2 is deep down you're seeking his approval or
at least acknowledgement that you are doing the right thing.  If you can
realize that it is not going to happen...you can save yourself a lot of
grief.  Hopefully you have some family support for this decision and
transition.  But if you don't, we're here.  You're doing it
right....even if you're not sure.

Wishing you the best.  You'll get through it and learn for others as
well.  Keep us posted.
Beth
Beth - 08 Aug 2004 18:14 GMT
Jef, I endorse what the others have said about the breaking reasoner,
fitting your explanation to something that makes sense to them, etc.
Having been through it, I can tell you AD breaks all your instincts
about how to do it right. Fostering independence and autonomy works in
the outside world with an intact brain.  No one has prepared us for the
disintegrating brain.
2 points- 1 You're switching roles here and have to be the parent of the
parent.  It's very hard and very emotional.  I think you're recognizing
that nicely.  But number 2 is deep down you're seeking his approval or
at least acknowledgement that you are doing the right thing.  If you can
realize that it is not going to happen...you can save yourself a lot of
grief.  Hopefully you have some family support for this decision and
transition.  But if you don't, we're here.  You're doing it
right....even if you're not sure.

Wishing you the best.  You'll get through it and learn for others as
well.  Keep us posted.
Beth
Jef. - 08 Aug 2004 22:33 GMT
Thank you, Beth, Tumbleweed, Evelyn and Dennis.

Your responses have helped tremendously.
My father and I have always been able to talk to each other about anything
and everything. I realize (but have a helluva time accepting) that this is
changing, and that I have to pull a few punches, as it were-- and I'm just
not used to it.

Pop always told me when I was a boy that he'd always get over being angry if
I messed up or misbehaved-- because he'd love me no matter what I did-- but
he'd be terribly disappointed if I lied to him. Old lessons; old
conditioning... Hard to shake off.

I know the dynamic has shifted and the old roles and rules don't fit. You're
also correct, Beth, about wanting to be perceived (by him, anyway) as doing
the right thing and being responsible and coming through for him and making
him proud of me, etc., etc... It certainly is a major factor as I plod along
and try to sort this all out.

I'm so stressed out that no amount of sleep brings refreshment or renewal,
and I'm dragging my a.s from one day to the next. If only we can get him
situated, maybe I can take a deep breath for a change.

Again, my sincerest gratitude for your straigh-shooter replies. Nothing like
getting the unvarnished news from those who've lived it.

All the best; I'll be back around.
Your new friend,
Jef.
Tumbleweed - 08 Aug 2004 22:50 GMT
> Thank you, Beth, Tumbleweed, Evelyn and Dennis.
>
[quoted text clipped - 14 lines]
> him proud of me, etc., etc... It certainly is a major factor as I plod along
> and try to sort this all out.

Once you accept that the latter will not happen, things will get slightly
easier. I'm sure your 'old' dad would have wanted you to have made the right
decision, not the one that pleased him *now*. Just the same as you'd do for
a two-year old.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

>
> I'm so stressed out that no amount of sleep brings refreshment or renewal,
[quoted text clipped - 7 lines]
> Your new friend,
> Jef.
Rose - 09 Aug 2004 09:17 GMT
thisaccount wrote:

> I'm sure your 'old' dad would have wanted you to have made the right
>decision, not the one that pleased him *now*. Just the same as you'd do for
>a two-year old.

What tears me up is these people aren't two year olds.  They're adults --
sometimes they act like children and sometimes they are quite lucid and mature
-- and unless we get a court to grant us conservatorship, we can't force them
to do anything.

I know that my mother at age 65, if she could have looked into the future,
would have said "for the love of God, put me in a senior facility and live your
own life."  But she's not my mother of age 65, she's who she is now, and while
impaired, she's still my friend and still someone who can reason to a degree.
So going against what she wants now is so very, very hard. That's why I'm
transitioning slowly, I'll be starting with daycare and home care before she
goes to a facility...that will make it easier for both me and her, I think.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Evelyn Ruut - 09 Aug 2004 12:22 GMT
> thisaccount wrote:
>
[quoted text clipped - 14 lines]
> transitioning slowly, I'll be starting with daycare and home care before she
> goes to a facility...that will make it easier for both me and her, I think.

Rose, I had my mother in law in daycare for almost the entire time she was
with us.  It was a godsend.   I have no idea how I would have managed
without it.   It also made the transition to a nursing home a lot easier,
since she was (again) used to being in group situations and being cared for
by professionals.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Tumbleweed - 09 Aug 2004 18:40 GMT
> thisaccount wrote:
>
[quoted text clipped - 14 lines]
> transitioning slowly, I'll be starting with daycare and home care before she
> goes to a facility...that will make it easier for both me and her, I think.

That depends. If she cuts up a huge fuss every single time she goes to day
care (like some do, inc my father), or refuses to have help in the home
(like some do) it makes things worse due to stress (especially on the carer)
because the event is repeated every day or every week.

Hope it works out for you though, all you can do is try whatever you think
is best.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 09 Aug 2004 20:42 GMT
> > thisaccount wrote:
> >
[quoted text clipped - 30 lines]
> Hope it works out for you though, all you can do is try whatever you think
> is best.

Ida didn't want anyone to come and help her in the home.
Ida didn't want to go to daycare.
Ida wanted to go home and be independent again.

Unfortunately when your brain starts to get sick, someone has to make the
decisons as to what is for your better good.    You only WISH you could let
them go back to a place and time where they were autonomous and able again.

We made the decisions, and she managed to adjust.
Fortunately for us all, she adjusted well.

But she still wants to go home.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Rose - 11 Aug 2004 09:46 GMT
>That depends. If she cuts up a huge fuss every single time she goes to day
>care (like some do, inc my father), or refuses to have help in the home
>(like some do) it makes things worse due to stress (especially on the carer)
>because the event is repeated every day or every week.

Well, my mom is similarlty stubborn, that's the challenge.  I don't know if I
can legally force her to go into assisted living if she doesn't want to without
getting a conservatorship and since she's never swallowed anything she
shouldn't, wandered, had hallucinations or started a fire, I might not be able
to get a conservatorship yet.  I don't want to wait for a disaster to happen
before she gets help. My hope is to gradually get her used to this stuff, and
I'm consulting with doctors and social workers on how to do this.  It's the
single biggest conundrum of my life right now.  

>Hope it works out for you though, all you can do is try whatever you think
>is best.

I figure assisted living is best, but since that's a) horrifically expensive
and b) something my mom doesn't want and I don't see how I can make her do it
as of yet, I'm trying like damn to get intermediate steps to work.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Dennis White - 14 Aug 2004 08:08 GMT
> >That depends. If she cuts up a huge fuss every single time she goes to day
> >care (like some do, inc my father), or refuses to have help in the home
[quoted text clipped - 19 lines]
> ___
> "Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango

    I'm facing a slightly different situation.  I would really like to see
Evan go into assisted living, but I have also promised him I would advocate
that he remain in his home as long as he can.  In fact I have agreed to that
in his living will, though there is no one that would ever challenge it.  In
an "intermediate"situation he *could* afford to have nursing care at home
for awhile, but it would certainly eat up his savings far quicker than going
into assisted living.
   Does anyone have the experience of a parent or loved one who has spent
their life savings on home care and had to then rely on Medicaid to cover
what they couldn't afford?  Is there a difference in the availability or
quality of care?  I wouldn't mind it if Evan were to spend every last penny
on himself and his comfort now if he could be assured being taken care of
later.

Dennis
Evelyn Ruut - 14 Aug 2004 14:18 GMT
> > >That depends. If she cuts up a huge fuss every single time she goes to
> day
[quoted text clipped - 46 lines]
>
> Dennis

It depends.  There are facilities where they don't accept Medicaid, but I
have a thought about that.   I wouldn't want my loved one in a facility
where they would live only till their money is gone, then they would have to
move again.   Things like moving get harder for them as they go along,
because the condition of their brain tends to worsen.  New things get
harder.

I placed my mother in law in a facility where people CAN pay for their care
til their money is gone, then they still keep them there on Medicaid.   So,
there are facilities where they will take the person as long as they have
some money for private pay in the beginning, then when their money is gone
they remain on Medicaid.   I was fortunate in that there was a very good one
near me.

Some places are graduated - they start with an assisted living wing or even
a separate building, then as the patients needs change they go into the next
level with more care.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Mare - 17 Aug 2004 01:08 GMT
Hi Dennis,

snip
>     Does anyone have the experience of a parent or loved one who has spent
> their life savings on home care and had to then rely on Medicaid to cover
[quoted text clipped - 4 lines]
>
> Dennis

Along with what Evelyn said. Most NH's that accept Medicaid want
a year or two of private pay. Well the ones you might consider
for Evan. The others I wouldn't go near at all! Medicaid won't
pay for assisted living at all and I think neither will Medicare.
Talk to an eldercare attorney in your area so you can see what
happens in your state.

Evan is very lucky to have you.

Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

Evelyn Ruut - 09 Aug 2004 04:34 GMT
> Thank you, Beth, Tumbleweed, Evelyn and Dennis.
>
[quoted text clipped - 25 lines]
> Your new friend,
> Jef.

Dear Jef,

Please be sure and take care of yourself.   This disease will march on at
its own speed whether you get yourself sick with worry over it, or whether
you take it in stride.   So better take it in stride, since it is a lot less
stressful for you.

Remember, if YOU get sick you can't be much good to him or anyone else,
either.   People told me that too, and I still ended up depressed and
frazzled out of my mind after a couple of years of caregiving.

Please be as kind to yourself as possible.  Worry won't help, and it can
hurt you a lot.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Rose - 09 Aug 2004 09:21 GMT
>Subject: Re: Pointers, suggestions, tips...?
>From: "Evelyn Ruut" mama-lionsox@hvc.rr.com
[quoted text clipped - 5 lines]
>either.   People told me that too, and I still ended up depressed and
>frazzled out of my mind after a couple of years of caregiving.

I don't think we can control our emotions without some help.  We can try not to
worry and to take things in stride but that I think that requires support from
a counselor or support group, and requires learning new ways to cope with new
situations that keep coming up.  

Taking care of ourselves is vital...it includes getting support, taking breaks,
having interests in life apart from the family member, and finding time for
one's own doctor appointments, which ain't easy as elders need so many doctor
appointments for so many things.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
turkey in the straw - 09 Aug 2004 13:52 GMT
Rose,
   Taking care of ourselves is vital...it includes getting support,
taking breaks, having interests in life apart from the family member,
and finding time for one's own doctor appointments, which ain't easy as
elders need so many doctor appointments for so many things.

Oh how your words ring so close to home.I have neglected myself into the
worst depression i have ever felt.I was physically sick for 2 weeks.My
moms health has almost become a obsession with me.It keeps you so busy
you can't take care of yourself.BUT,i am determined to do the things i
need to do to stay healthy or who will take care of my mom ?Barb
Rose - 11 Aug 2004 09:52 GMT
>Subject: Re: Pointers, suggestions, tips...?
>From: barbfrombethel@webtv.net  (turkey in the straw)
[quoted text clipped - 12 lines]
>you can't take care of yourself.BUT,i am determined to do the things i
>need to do to stay healthy or who will take care of my mom ?Barb

My counselor says that airplane instructions tell you that in an emergency when
the oxygen masks fall, you put your OWN ON FIRST and then put your child's mask
on.  Why?  Because if you pass out you can't help your child and you both end
up in a bad way.

Taking care of yourself is like putting on that oxygen mask.  First, let me
emphasize that your life is worth something apart from your mom, you don't have
to take care of yourself just for her, you count too and are entitled to some
fun. But second, it doesn't do your mom any good if you drive yourself so hard
you get sick.  Taking care of yourself is one of the most important ways you
can take care of your mother.

Please get some support so you can take time for your own doctor's appointments
and to go to the beach or see a movie or shop for un-sensible shoes.  You're a
great person and you deserve it, and it's the right thing to do for your mom as
well.

___
"Don't worry Alba. I'd never let anyone else kill you." -- Naked Tango
Robert E. Lewis - 09 Aug 2004 16:59 GMT
...

> > I'm so stressed out that no amount of sleep brings refreshment or renewal,
> > and I'm dragging my a.s from one day to the next. If only we can get him
> > situated, maybe I can take a deep breath for a change.
...

> Dear Jef,
>
[quoted text clipped - 9 lines]
> Please be as kind to yourself as possible.  Worry won't help, and it can
> hurt you a lot.

I didn't realize how really stressed-out I was until I finally had a break
recently.  I suffer from TMJ (temporomandibular joint disorder) that comes
and goes, but is definitely worsened by stress... and I had been taking
migraine-strength OTC pain relievers for it almost daily for a couple of
months.

Then my sister came and looked after Dad for a week while I just took off
with a visiting friend, drove down to some remote beaches, spent a day at a
wildlife refuge looking at deer and alligators, etc.  It was the first time
in I don't know how many years I've taken a real,
go-somewhere-entirely-for-pleasure vacation, and certainly the first time in
about five years that I haven't felt I was on-call, needing to check on my
father if I was out, sticking close enough to get home within a couple of
hours if something came up.  I was able to spend a lot of time with the
friend in the following three weeks, too - nearer, but away from Dad and
thinking about other things.

And my TMJ faded almost immediately -- I've had one very mild flare-up (on
the last day of the holiday), and nothing since, even with a return to the
usual routine.

Signature

Robert

turkey in the straw - 09 Aug 2004 13:43 GMT
Jeff,
  Believe me i get most of my emotional needs met in this group.Because
all of them understand this mess and are always straight forward.
  Try to keep your stress level down as your dad will be aware of it
too.I know from experience.Good luck to you,Barb
 
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