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Medical Forum / Diseases and Disorders / Alzheimer's / August 2004

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Giving care to the caregiver (looong)

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Lane Closure - 20 Jul 2004 16:06 GMT
My hub and I discussed it, and decided that it might be a good idea to go down
and stay with his folks for a month or two to help his dad out.  J (my FIL)
takes care of Dot (the AD patient) 24/7, but prior to this had no experience in
housekeeping or even taking care of himself.  We noticed while we stayed there
recently that he really doesn't know how to cook or do laundry.  While we were
there, he asked me if I could please buy Dot some new underwear, as he didn't
know what type or size, or where to shop, and her current undergarments were
getting rather ragged.  Plus, we figure he could do with some companionship and
socialization.  They live in an extremely rural area, so it's not like they
have next-door neighbors they can rely on in an emergency.

In the meantime, hub has been fretting over his parents' future.  They live on
just over a thousand acres of land, which will be deeded over to the three kids
(hub and his two brothers) after their death.  None of the kids are interested
in living on that land, so it would be sold.  But hub wants to talk to his dad
about selling some or all of it now, so the proceeds can be used for any
long-term care expenses for Dot.  We'd also like to buy or build a house in
their general area (they're in Georgia, we're in Michigan) but closer to
civilization and a hospital, where we could live with and look after them.  So
we'll have to find an appropriate time to discuss this all with J.

One of the main problems of moving the in-laws is J's massive collection of
stuff.  He's been collecting for years and years, and has everything from
antique bottles and jars, to Civil-War era medical kits and devices (left by a
great-grandfather) to Texaco memorabilia (again remnants of a relative) to
Confederate money.  A lot of the stuff is quite valuable, but we need J to
actually go through it all with us, to catalogue and inventory it.  When we
visited there recently, hub set up an inventory sheet and printed off a bunch
of copies, so that J can begin logging his stuff (age, place of origin, value,
etc) and we're slowly entering it into a computer database.  But he's got four
full rooms in his house loaded with stuff, plus a barn, a trailer and an old
school bus on his property crammed full as well.  So that'll be one of our
objectives when we go to stay with them - I can stay in the house with Dot
while J and my hub go out and started inventorying junk.  Er, collectibles, not
junk.  <g>

I found it interesting that, in recent phone conversations with hub's brothers,
neither were too clued in as to Dot's condition.  Both his brothers live in
Georgia, certainly closer to the in-laws that we are, but apparently have not
spent "quality" time with their parents of late.  They weren't aware, as we
were, that Dot cannot exit a car without assistance (can't find the door
handle), that she needs instruction at dinner (when a plate is placed before
her, she'll ask "is this OK?  Am I supposed to eat this?")  All either brother
knew is that she tends to repeat herself and tell old stories.  So they're
either in denial, or they just don't keep in close enough contact.  Granted,
they both have kids, so their visits are limited to a few hours at a time for
lunch or whatever.  Hub and I are kidless, so we stayed at the house with the
in-laws for a week solid and were witness to daily life with Dot and J.  

Anyway, this was a long-winded post with no particular point or question; but
it's been quiet, and I thought I'd update a bit.  Hub and I are fortunate that
we both work for a magazine and therefore are not restricted to any particular
location; as long as we've got a computer and an Internet connection, we can
work.  That, plus the childlessness aspect, makes us the logical candidates to
step up to the plate and help out in this case.  I must admit, it will be
difficult for me....I grew up in suburban Detroit, and the rural lifestyle may
test my patience.  Plus, I'll be leaving my family who still live here and
depend upon me and my brothers somewhat.  But, I figure, hub would do it for
me, if it was one of my parents that had AD.  Plus, his mother, Dot, has
treated me like family since the first time I met her, so I just feel in my
heart that this is the right thing for us to do.  We won't be heading South
until the Fall, as I just can't take the heat and humidity (I have Lupus, and
have had two strokes - my internal thermostat is all messed up).  

Again, apologies for the long, rambling post.  I guess I really don't have
anyone else to discuss this with that would understand.  Thanks for listening.

Oriole

||.:.||  ||.:.||

Props to my peeps
And please keep your receipts
I'm a suburban homeboy.
Songbird - 20 Jul 2004 18:23 GMT
> I found it interesting that, in recent phone conversations with hub's brothers,
> neither were too clued in as to Dot's condition.  Both his brothers live in
[quoted text clipped - 8 lines]
> lunch or whatever.  Hub and I are kidless, so we stayed at the house with the
> in-laws for a week solid and were witness to daily life with Dot and J.

 I must admit, it will be
> difficult for me....I grew up in suburban Detroit, and the rural lifestyle may
> test my patience.  Plus, I'll be leaving my family who still live here and
[quoted text clipped - 4 lines]
> until the Fall, as I just can't take the heat and humidity (I have Lupus, and
> have had two strokes - my internal thermostat is all messed up).

Is there any reason they could not move closer to you? This situation will
not be resolved by next summer, most likely -- and if the heat doesn't agree
with you ... (However, if next summer is much cooler here in the south -- I
am in SC -- I won't mind a bit!)

Yes, the moving expense of the <ahem> collectibles might be more, but they
could be placed in a storage facility nearby where your dad could go sort
for a few hours each day.

If the concern is being close to other kids, sounds like they aren't
visiting much anyway. And I have found in the past that I was more likely to
visit family at a distance for a longer periond -- if they're close I keep
thinking "next weekend," "next month," etc. Moving them closer to you may
also mean other members of your family can help from time to time as well,
even if it is doing things for you so you can do things for them. (In my
case, my in-laws have been much more supportive than my own brother.)

Just a thought -- I just moved my parents closer to me for that reason. I am
self-employed, so I have some flexibility of time, but business is based
here.

Off to take Dad to eye doctor to check his cataracts...

Songbird
Mary Gordon - 21 Jul 2004 01:04 GMT
Dear Oriole, I would guess from your description that your mother in
law is probably in Stage 5 or 6. I know you realize this - but it gets
much, much harder on every front from this stage forward - the "not so
bad" stage is actually behind Dot, and whats in front is infinitely
more challenging.

Your father in law has a very, VERY limited time left for staying
where he is - probably less than a year. It just won't work - he has
to be closer to family, closer to help. It won't be safe.

If none of his children would ultimatley want the land itself, I
completely agree with your husband about selling it now, and freeing
up the funds to support whatever alternative is most practical for
everyone involved. Think big picture, and long term before you move
somewhere that is not good for your health in terms of climate. For
you to cope with whats coming, pick a location that is right for you
and your husband, where YOU can be happy and productive and supported
- and a location that is convenient for caregiving, close to services.
In short order, it won't matter to Dot where she is, and if you get
sick from the climate, you won't be a help to anyone, and you'll be
miserable.

Sorting out huge collections of "stuff" can be really overwhelming for
older folks. My suggestion is to hire someone to help with the sorting
and cataloguing - there are people who assist with organizing the
contents of a home for sale.  Ever notice how on those TV shows where
professional organizers wade in to help people deal with their stuff,
they can get a huge amount done in a short time? Its because the pros
aren't emotionally tied to the "stuff", and they can keep the sorting
moving in a ruthlessly rational and efficient way - they don't get
sidelined by memories.

I would also suggest you consider taking your mother in law to stay
for a few weeks with each of her other kids. Two reasons - one is to
give your father in law a break, and free up his attention for
whatever has to happen to prepare for a move, and the second, and more
valuable - to bring the real situation home to the other adult
children (literally as well as figuratively).

Mary G.
Buffys97 - 12 Aug 2004 15:14 GMT
Dear Oriole:

The most intelligent comment I can make on this post is that I grew up
in the City and moved to the country and I can't wait to get OUT OF
HERE. I absolutely detest this good old boys town. They don't like
newcomers. They don't want change. They don't even want a drive-up
mailbox at the post office. The only coffee house (an innovation here)
in town just closed up for lack of patronage. Well, there's always the
local Pamida....I just lost out on a job at the local library because,
as the guy said when I asked for criticism, "You're too urban..."

Well, yee-haw!

I think it was the pearls that did it! The interviewer was wearing a
plaid, folksy spread-collar-with-metal-snap-buttons shirt and we
didn't look like we belonged together......definitely NOT a match. I
still wanted the job, tho. I had a good attitude when we moved here
and a good attutide during the interview, but after that and a few
other little things.....I decided the heck with it. I like being an
urban woman. I don't want to be a country girl...My husband said we
have to stay here for two years and it is like I am in prison.

I need a city fix once a week. It is a three hour round trip. I am a
nervous driver, too! What on earth was I thinking when I relocated?
Must've had rocks in my head....

As soon as I get to the City, I am happy again. For a moment, because
I know I have to go back... My rhythms are definitely in sync with
rush hour traffic and running across the street (as a pedestrian) as
the light switches to red.

I am haphazardly writing a memoir and thought I would become totally
reliant on the Internet but I long for the smell of the books in the
big city library, the whirr of microfilm in the reader/printer, the
people I used to gab with at the LDS library where I used to go for
genealogy. I long for people like ME with whom I might hold a
conversation. People are different in the country - not better, not
worse, but decidedly different. In the City, no one even thinks about
being urban or being pure country.

But.....You gotta do what you gotta do.

Last year, I wouldn't have listened to a post like this. It was an
expensive mistake.

Buffy
Evelyn Ruut - 12 Aug 2004 16:25 GMT
> Dear Oriole:
>
[quoted text clipped - 42 lines]
>
> Buffy

Buffy I moved to "the country" four years ago.   I absolutely love it here.
I wouldn't go back if you paid me to do it and gave me a free house.

I love the silence, the forest, the wildlife, the crickets and the peace.

But the 'good old boys' here are mixed with urban city folks who have moved
north, and some very intelligent locals too, since there was a huge IBM
plant here for many years.   This is an "arts" community, and there is so
much going on all the time that I am busier than I was in the more urban
locale.   I never have a minute to relax there is always something going on.

It isn't the lack of urban setting that is at fault, it is maybe the kind of
country you ended up in.   I moved upstate NY to a very cool place and it is
still country here, but not redneck country, though we do have a few like
that.

Maybe it is because I am in the Rotary Club and involved in so many
organizations and activities that I find like minded people here.

Sorry you didn't get the job... keep on looking, there is a right place for
you and you will find it.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Buffys97 - 12 Aug 2004 17:44 GMT
Hi Evelyn -- Lucky you!

This is indeed redneck country!! Man oh man....

I'll get out. I'm a survivor.

Buffy
Evelyn Ruut - 12 Aug 2004 18:09 GMT
Buffy, if you look around and go to the places where like minded individuals
can be found, you may establish yourself in a whole new set of friends.
Join a church, a political group, a civic organization, whatever.   Go to
art openings, musical events, whatever is interesting to YOU.   There are
like minded people who are stuck in the middle of the same nowhere place,
and suddenly when you meet them it isn't "nowhere" anymore.   It took me
three and a half years to really connect, but then remember I spent almost
all that time caregiving.   Now I am so busy I am out and about and doing
something cool almost every day.  I am never bored.   You just have to get
out and about and give it a fair shake.

About making new friends, that is always hard to do.   I had a great local
friend who suddenly decided she knew me enough to start minding my business
for me.   I balked at that, she got mad, and now we are not close anymore.
It was really rather presumptuous of her, but that friend doesn't see it.
When I think over the space of my life there have only been a handful of
truly good, non judgemental, dear close friends.   The acquaintances always
abound who are better kept at arms length.   So I have lots and lots of
acquaintances.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

> Hi Evelyn -- Lucky you!
>
[quoted text clipped - 3 lines]
>
> Buffy
Buffys97 - 13 Aug 2004 12:42 GMT
Thank you again. I wish YOU lived here.

I am volunteering for some grassroots political stuff as soon as I get
back from the retreat this weekend. Grassroots political work is
always appreciated by the candidates.

I thought becoming a reading tutor (Laubach) would be my niche, but
after taking the one-day training, thought, "I don't have this kind of
patience." It is a big committment.

Thank you. Buffy!
 
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