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Medical Forum / General / Alternative / June 2006

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When Everyday Chemicals Cause Illness

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Tim Campbell - 29 Jun 2006 01:44 GMT
By FRED A. BERNSTEIN -

THE NEW YORK TIMES

LAST year, Mary Lamielle, of Voorhees, N.J., traveled to Washington for
a
business meeting. Her room, at the Grand Hyatt, "was perfect," she
recalled. But
when she ventured into the conference area, she experienced vertigo and

breathing problems, which she believed were caused by chlorinated water
in the
hotel's decorative pools. Within a day, she was so sick, she said, that
she
couldn't attend the session she had organized on healthy housing for
people with
disabilities.

Ms. Lamielle, the executive director of the National Center for
Environmental
Health Strategies, an advocacy group, suffers from what doctors
variously
label multiple chemical sensitivities or environmental illness, an
elusive malady
that can make exposure to household and industrial chemicals
debilitating.
Sufferers tend to purge their environments of products that cause them
distress.
But it's almost impossible to do that in hotels. For those with the
symptoms,
Ms. Lamielle said, traveling for pleasure is an oxymoron.

But there are resources that can help.

Nancy Westrom of Ocala, Fla., publishes the Safer Travel Directory -
$17, on
the Web at www.safertraveldirectory.com  - a booklet meant to help the
chemically sensitive find lodging in 40 states and a dozen foreign
countries
promising relative safety from pesticides and other chemicals. But the
needs of such
travelers vary widely, and Ms. Westrom warns in the front of the book
that all
lodgings pose "unforeseen risks."

Some of the hotels in the book are run by people with the disease, like
Joyce
Charney, who, with her husband, Alan, owns the Natural Place, in
Deerfield
Beach, Fla., www.thenaturalplace.com . The Natural Place offers
apartment-style
units with organic bedding and filtered water, a block and a half from
the
ocean. The owners depend on the cooperation of guests, who are "asked
to sign a
'quality assurance form' when they check in," said Ms. Charney. On the
form,
guests promise not to use "cologne, perfume or any scented make-up,
soaps,
lotions, sun tan products, shampoo, conditioner, hair spray, deodorant,
etc."

Kim Bowen, who with her husband, John, owns the Crow Wing Crest Lodge,
www.crowwing.com , in Akeley, Minn., said she makes her own organic
cleaning
products and insect repellants from herbs and essential oils. One of
her recent,
chemically sensitive guests, Zane Madsen, of Dennison, Minn., said that
she was
attracted to the hotel's no-pet and no-smoking policies, and its
avoidance of
products with artificial scents.

A number of hotels in the Safer Travel Directory use air- and
water-filtering
devices offered by EverGreen Rooms, www.evergreenrooms.com , based in
Wilmington, N.C. Other hotels buy cleaning products from Green Suites
International,
www.greensuites.com , of Upland, Calif.

One focus of Green Suites is sustainability - energy efficiency and use
of
recycled materials. But some of those materials, Ms. Lamielle said, may
harm
chemically sensitive people. For example, flooring may be made of
recycled rubber
bound with chemical adhesives. "They're doing things that are
environmentally
more sound, but not necessarily more healthy," she said.

Ms. Westrom, who began publishing the Safer Travel guide in 1998, said,
"I'm
surprised by how many new listings come my way all the time." On her
Web site,
environmental illness sufferers leave comments that would never appear
in a
conventional travel guide. "As nontoxic as my own bedroom, " wrote a
traveler
of the Arbor House, a bed-and-breakfast in Madison, Wis.

But there are also complaints. A hotel guest who believed that her
mattress
was making her sick demanded to have it covered in heavy foil. And a
hotelier,
Ms. Westrom said, complained that a guest with multiple chemical
sensitivities
"was so comfortable in the hotel that she refused to leave."

Ms. Lamielle said that sufferers are best off finding a hotel that they
can
tolerate, and sticking with it. In Washington, she said, she generally
chooses
the Capital Hilton, where her linens and towels are washed in baking
soda
before her arrival. She asks for a room away from renovation work
(which often
involves chemical compounds) and on a corner, where there are more
windows: "Not
that the D.C. air is so great, but sometimes it's best to let the
inside air
dissipate," she said.

Ms. Lamielle said she reserves far in advance whenever possible, and
sends
multiple e-mails confirming that various measures have been taken. The
Capital
Hilton doesn't charge for the services she requests, but Ms. Lamielle
said she
leaves generous tips for the housekeepers.

She added that with a couple of exceptions, hotels have been willing to

answer her questions about their use of chemicals. But those instances
of a lack of
cooperation, she said, illustrate a need to educate the hospitality
industry
to the requirements of chemically sensitive travelers.

It helps, she added, that those needs overlap the preferences of
millions of
Americans who don't have the disease. "There are plenty of other people
who,
when they open the door to a hotel room, don't want to smell perfume,"
she
said.
http://mcstravel.resourcez.com/
Mark Thorson - 29 Jun 2006 01:51 GMT
Ann Allergy 1993 Dec;71(6):538-46
Adult sequelae of childhood abuse presenting as
environmental illness.
Staudenmayer H, Selner ME, Selner JC.
Allergy Respiratory Institute of Colorado, Denver 80222.

Sixty-three patients with polysomatic complaints
attributed to sensitivity to environmental
chemicals had detailed clinical assessments and
diagnostic psychologic evaluations. Objective
medical parameters failed to substantiate their
beliefs that multiple chemicals were the cause of
their problems. A group of 64 patients with chronic
medical conditions and defined psychologic
disorders not attributed to chemical exposure
served as controls. Approximately half the patients
in each group underwent long-term psychotherapy,
and in these patients, the prevalence of
physical and sexual childhood abuse was significantly
higher (P < .05) among the cohort of
women who attributed their symptoms to environmental
or chemically related illness. These data
suggest that somatization may reflect sequelae of
childhood abuse and may play an important role
in the illness experienced by women who believe
they are sensitive to environmental chemicals.
Jan Drew - 29 Jun 2006 04:21 GMT
1993..is that the best you can do?

> Ann Allergy 1993 Dec;71(6):538-46
> Adult sequelae of childhood abuse presenting as
[quoted text clipped - 22 lines]
> in the illness experienced by women who believe
> they are sensitive to environmental chemicals.
Mark Probert - 29 Jun 2006 14:37 GMT
> Ann Allergy 1993 Dec;71(6):538-46

Mark, email me. Does DHB ring a bell?
Mark Thorson - 29 Jun 2006 01:51 GMT
Med Hypotheses. 2003 Oct;61(4):419-30.
Are syndromes in environmental medicine variants
of somatoform disorders?
Wiesmuller GA, Ebel H, Hornberg C, Kwan O, Friel J.
Institute of Hygiene and Environmental Medicine,
University Hospital Aachen, Aachen, Germany.

To date, relatively little is known about the
etiology, pathophysiology, diagnosis, therapy,
prevention and prognosis of environment-related
syndromes like multiple chemical sensitivity
(MCS), idiopathic environmental intolerance (IEI),
sick building syndrome (SBS), chronic fatigue
syndrome (CFS), candida syndrome (CS) and
burnout syndrome (BS). Part of the reason is that
these syndromes have not been clearly defined
and classified in scientific categories distinct from
each other, and that they show clinical similarities
to classified somatoform disorders.
Furthermore, there are at least three possible
explanations for the existence of these syndromes:
(1) The syndromes may result from the interaction
of environmental factors, individual
susceptibility and psychological factors (i.e., how
they are perceived and seen by the patient); (2)
they may reflect socially and culturally accepted
methods of expressing distress; and/or (3) they
may be iatrogenic. Despite all the uncertainties
in evaluation of environmental syndromes,
physicians have the duty to take the affected
person's problems seriously. A comprehensive
systematic classification which better accounts
for these complex clinical manifestations is long
overdue. Until these syndromes are well defined,
the terms used for them should definitely not be
applied to connote a specific disease process.
Mark Thorson - 29 Jun 2006 01:51 GMT
Psychol Med 2002 Nov;32(8):1387-94
Psychiatric and somatic disorders and multiple
chemical sensitivity (MCS) in 264 'environmental
patients'.
Bornschein S, Hausteiner C, Zilker T, Forstl H.
Psychiatric Clinic and Department of Toxicology,
I, Medical Clinic, Technical University of
Munich, Germany.

BACKGROUND: An increasing number of
individuals with diverse health complaints are
currently seeking help in the field of environmental
medicine. Multiple chemical sensitivity (MCS)
or idiopathic environmental intolerances (IEI)
is defined as an acquired disorder with multiple
recurrent symptoms associated with environmental
chemicals in low concentrations that are well
tolerated by the majority of people. Their symptoms
are not explained by any known psychiatric
or somatic disorder.

METHOD: Within a 2-year period we
examined 264 of 267 consecutive
patients prospectively presenting to a university
based out-patient department for environmental
medicine. Patients underwent routine medical
examination, toxicological analysis and the
structured clinical interview for DSM-IV
psychiatric disorders (SCID).

RESULTS: Seventy-five per cent of the patients
met DSM-IV criteria for at least one psychiatric
disorder and 35% of all patients suffered from
somatoform disorders. Other frequent diagnoses
were affective and anxiety disorders, and
dependence or substance abuse. In 39%
a psychiatric disorder, in 23% a somatic
condition and in 19% a combination of the two
were considered to provide sufficient
explanation of the symptoms. Toxic chemicals
were regarded as the most probable cause in only
five cases. The suspected diagnosis of MCS/IEI
could not be sustained in the vast majority of cases.

CONCLUSION: This investigation confirms
previous findings that psychiatric morbidity is
high in patients presenting to specialized centres
for environmental medicine. Somatoform
disorders are the leading diagnostic category,
and there is reason to believe that certain
'environmental' or MCS patients form a special
subgroup of somatoform disorders. In most
cases, symptoms can be explained by well-defined
psychiatric and medical conditions other than
MCS, which need specific treatment. Further
studies should focus on provocation testing in order
to find positive criteria for MCS and on therapeutic
approaches that consider psychiatric aspects.
Mark Thorson - 29 Jun 2006 01:51 GMT
Psychol Med 1999 Mar;29(2):399-406
The association of sexual and physical abuse with somatization:
characteristics of patients presenting with irritable bowel syndrome
and non-epileptic attack disorder.
Reilly J, Baker GA, Rhodes J, Salmon P.
Department of Clinical Psychology, University of Liverpool.

BACKGROUND: Physical symptoms are
commonly presented for treatment in the absence of
physical pathology. This study tests predictions
arising from the theory that childhood sexual
abuse leads to emotional distress, illness orientation
and social dysfunction as adults and that one
or more of these effects, in turn, leads to presentation
of functional (i.e. unexplained) symptoms.

METHODS: Two groups of patients with physical
symptoms in the absence of organic disease
(non-epileptic attack disorder or irritable bowel
syndrome) were contrasted with organically
diseased groups with comparable symptoms
(epilepsy and Crohn's disease, respectively).

RESULTS: Despite their contrasting clinical presentation,
irritable bowel and non-epileptic attack
groups were similar in recalling more sexual and
physical abuse, as both children and adults, than
their comparison groups. They were also similar
in being more emotionally and socially disturbed
and illness-orientated, but these putative mediating
variables could not account for the relationship
of abuse with presentation of functional symptoms.

CONCLUSIONS: Adults presenting
functional neurological and abdominal symptoms
are characterized by history of abuse. The
current focus on childhood sexual abuse should
be broadened to include sexual, and particularly
physical, abuse in adulthood as well as childhood.
The intervening processes that link abuse to
somatization remain to be identified but are
unlikely to include adult emotional and social
disturbance or general illness-orientation.
Mark Thorson - 29 Jun 2006 01:51 GMT
In this study, the severity of the abuse correlated with
the severity of the psychosomatic symptoms.

Arch Fam Med 1999 Jan-Feb;8(1):35-43
Health-related quality of life and symptom profiles of female
survivors of sexual abuse.
Dickinson LM, deGruy FV 3rd, Dickinson WP, Candib LM.
Department of Family Practice and Community Medicine,
College of Medicine, University of South Alabama, Mobile, USA.

OBJECTIVES: To determine the association
between severity of sexual abuse and psychiatric or
medical problems in a sample of female patients
from primary care medical settings and to assess
the relationship between sexual abuse severity
and health-related quality of life before and after
controlling for the effects of a current psychiatric
or medical diagnosis.

DESIGN: Structured interview and self-report
questionnaire.

SETTING: Three family practice outpatient clinics.

SUBJECTS: A total of 252 women selected
by somatization status using a screen for
unexplained physical symptoms.

MAIN OUTCOME MEASURES: Patient assessment
after administering the Medical Outcomes Study
36-item Short-Form Health Survey and self-report
medical problems questionnaire; the quality-of-life
scale developed by Andrews and Withey;
Diagnostic and Statistical Manual of Mental
Disorders, Third Edition, Revised, diagnoses and
symptom counts from the Diagnostic Interview
Schedule; the Dissociative Experiences Scale; and
the modified Dissociative Disorders Interview
Schedule.

RESULTS: A history of sexual abuse is
associated with substantial impairment in
health-related quality of life and a greater number of
somatized symptoms (P < .001), medical problems
(P < .01), and psychiatric symptoms and
diagnoses (P < .001). In regression analyses,
sexual abuse severity was a significant predictor of
high scores on 6 of the 8 subscales of the Medical
Outcomes Study Short-Form Health Survey
(P < .05) and all of the quality-of-life subscales
developed by Andrews and Withey (P < .01),
with average decrements of up to 0.41 SDs for
moderately abused women and 0.56 SDs for
severely abused women. Furthermore, sexual abuse
severity remained a significant predictor of
high scores on the subscales mental health (P < .05),
social functioning (P < .05), and quality of
life (P < .05), even after adjusting for the presence
of several common psychiatric diagnoses.

CONCLUSIONS: Female primary care patients
with a history of sexual abuse have more
physical and psychiatric symptoms and lower
health-related quality of life than those without
previous abuse. In addition, a linear relationship
exists between the severity of sexual abuse and
impairment in health-related quality of life, both
before and after controlling for the effects of a
current psychiatric diagnosis.
Mark Thorson - 29 Jun 2006 01:51 GMT
Regul Toxicol Pharmacol 1996 Aug;24(1 Pt 2):S96-110
Clinical consequences of the EI/MCS "diagnosis": two paths.
Staudenmayer H.
Allergy Respiratory Institute of Colorado, Denver, USA.

There are two distinct paths down which patients
"diagnosed" with environmental illness/multiple
chemical sensitivities (EI/MCS) can travel. Along
the first path, beliefs about low-level, multiple
chemical sensitivities as the cause of physical
and psychological symptoms are instilled and
reinforced by a host of factors including toxicogenic
speculation, iatrogenic influence mediated by
unsubstantiated diagnostic and treatment practices,
patient support/advocacy networks, and
social contagion. Intrapsychic factors also reinforce
this path through the motivational mechanism
of factitious malingering, or unconscious
primary and secondary gain, mediated through
psychological defenses, particularly projection
of cause of illness onto the physical environment.
The second path involves restructuring distorted
beliefs about chemical sensitivities. Explanations
of the placebo effect, the physiology of the stress
response, and the symptoms of anxiety and
panic facilitate the direction of EI/MCS patients
onto this path. A decision model is presented to
discriminate among toxicogenic and psychogenic
explanations of the EI/MCS phenomenon,
based on appraisal of reaction and physiologic
and cognitive responses during provocation
chamber challenges under double-blind, placebo-
controlled conditions. These studies have been
helpful therapeutically for some patients in selecting
the path that leads to wellness. This paper
suggests how various therapeutic techniques
can be employed with difficult patients. Often,
supportive psychotherapy establishes a therapeutic
alliance which facilitates cognitive therapy to
restructure distorted beliefs. In the process of
finding alternative explanations to chemical
sensitivities, the etiology of symptoms is related
to stressful life events, including childhood
experiences which may have disrupted normal
personality development and coping capacity.
Furthermore, biological and physiological sequelae
stemming from early, chronic trauma have
been identified which could explain many of
the multisystem complaints. The incidence of
childhood abuse reported by EI/MCS patients
is strikingly high, and it is recollection of trauma
that many EI/MCS patients avoid by displacing
the psychologic and physiologic adults sequelae
onto the physical environment. The reenactment
of these experiences may be necessary in the
therapy of some affected individuals. Despite
the significant therapeutic effort expanded, some
patients who are imprisoned by a closed belief
system about the harmful effects of chemical
sensitivities are resigned to travel down the path
which ultimately leads to despair and depression,
social isolation, and even death.
Jan Drew - 29 Jun 2006 04:30 GMT
<snip>

Thanks..again to Mavin who posted this.

Psycholobabble...

The entity *somatization disorder* is psychobabble and is obtained from the
DSM-IV manual and is used by psychologists and psychiatrists.MD's have
borrowed
the entity for their own uses.  It is a spurious diagnosis with no
laboratory
indicators.

that somatization disorder is a kind of junk category into which physicians
dump patients presenting with mind/behaviorialsymptoms and/or a history of
such
which the physician does not fancy or understand, especially if the patient
does not present with symptoms or symptoms which are not separate diagnoses
(also anon-scientific way of separating symptoms and causality) .  I
mentiont
his because mercury and lead are both known to cause primarily "psychiatric"
symptoms, with a history of emotional instability, etc.in patients.

So a "scientist" is someone who makes "a priori" judgements about what
neurological symptoms a heavy metal poisoned patient can and cannot have. A
"scientist" demands laboratory indicators whenever his fraternity does so.
When the fraternity does not do so, the esteemed scientist Rx's Prozac like
*mad*.  But if the patient's complaints  appear in some kind of package
which
don't meet the prejudices of the male clinician/voodoo doctor, then it's
necessary to pull out theDSM-IV manual and wax on about scientific
discipline
and create from thin air a "somatization disorder".

It's just another way of saying that one can create a loose definition of a
nebulous condition and then stretch it to label anything which appears
bizarre,
so that rather than actually diagnose and solve problems you can dump the
ones
you don't like into the recycle bin andlet the DSM-IV manual thumpers profit
from the stash.  That way everybody is happy.  The male voodoo doctor gets
to
see himself as a scientist and the psych therapist gets another client.

I believe that SD is used by doctors who do not like the idea that
conditiions
which affect the brain cause certain mental states and behaviors which are
not
in keeping with their own requirements for how disease is supposed to
manifest
in the human body.  I believe the medical profession has an alliance with
the
psych profession because they share a common belief system.

No, the starting point is to go back to college and unlearn the psychobabble
taught to physicians in med school.  But that cannot be done--with all the
psychological investments involved in the career and selfhood and one's
supremecy of being--so instead one wages war on the Chronic Fatigue,
Fibromyalgia, and Multiple Chemical Sensitivitysyndromes, since these
syndromes
are diseases of both body and brain,in which affective disorders are
documented
in all three.  But since the Freudian-psychobabble-educated physician
suffers
cognitivedissonance when presented with these, the syndromes must be
attacked.
Continuing education is not an option.  Instead, reality must be shaped to
fit
the psychological needs of the profession, and the patients need to be
hazed.

So rather than counsel with a psychotherapist over issues of selfhood and
megalomania and deep insecurity which interfere with the process of
continuing
education--which is also the scientific process itself--it is necessary to
reformulate these disease syndromes so that they fit into the 20th-century
mind-body conceptual dualism taught to physicians, in which brain diseases
are
separate from diseases of thebody and mind states are separate from both.
This
needs to be done despite the fact that poisons such as lead and mercury have
been known for 100 years to poison the brain, body, and mind all at the same
time.  So Science needs to be bent and manipulated to serve a profession
which
maintains a conceputal framework which is not rooted in Science, and those
teachings must be maintained for those sychologically inclined to
conservatism
and intellectual dominance,all properly wrapped in the impressive rhetoric
of
scientific and clinical objectivity.

A lot of your responses are flak garbage which you use to exhaust
pariticpants.
I made my position perfectly clear.  Decades of psychobiological research,
including century-long scientfically acquired knowledge on the effect of
poisons such as heavy metals on the brain, show that mood and mental states
can
and do derive fromorganic origins.  Meanwhile state-credentialed MD's are
writing books and articles about how biological psychiatry is
"pseudoscience",
a"myth", and a "fraud".  On *this* subject the present generation is
corrupt,
and is not going to give up its intellectual commitment to the psychobabble
it
received in med school.

On the issue of MCS, ascribing "affective disorders" to "psychologicalf
actors"
is an opinion which is rammed through as Science.  It is accompanied by
dismissive descriptions of mind states and behavior of the patients, with
all
kinds of unscientific judgements andassumptions as to 1) whether those mind
states and behavior arelegitimate (e.g. fear of chemicals, stress of chronic
illness), and 2)whether the mind states and behavior have an organic or
non-organic origin.

MCS *will* receive a fair hearing only when the medical profession gives up
its
intellecutal commitment to the teachings of psychology as the only
explanation
for how mind states and behavior alter with disease.

You asked me for evidence of "mind-body conceptual dualism" and I just gave
an
example from a psychobabbling physician in this thread.  Your technique is
to
bait and throw out idiotic flak, so that now we can have a separate
existential
debate as to whether there really is adualistic mind-body conception in
modern
medicine.

Yes, physicians do recognize a connection between the two--they call it
somatization disorder.  That is, your boyfriend broke up with you and you
are
self-pitiful due to your past child raising and have along history of
maladaptive behaviors and you have sunken into depression and can't
concentrate
and now your immunity has sunk and now you have an infection etc etc.  They
may
*also* talk about a"psychological component" as being the result of chronic
stress from the illness.

But the medical profession is selective about when the connection operates
in
one direction vs. the other.

The fact is, there isn't an economy for the problem of chronic mercury and
lead
exposure causing maladaptive dysfunctional unhealthy minds and behaviors.
Not
because the science doesn't exist to support it. But because the economy
doesn't exist to produce the professional intellect to study, talk about,
and
treat it.  The psychotherapists and psychologists would be in less demand.
There would be no drugs to patent.  Hence the facts are dropped from
consciousness.  That mercury and lead f**k up people's emotions and minds
(in
addition to a hundred other symptoms) is so dropped out of consciousness
that
MD's can write books that argue that Biological Psychiatry is a fraud.

As a result, one must conclude that MCS is not caused by poisons--which just
about everyone who has the illness and has clinical experience treating it
argues--but rather is a somatization disorder.

This is how economy and professional cultures distort reality and allow
ingrained assumptions and bias to manipulate and distort the process of
scientific inquiry.

No, many physicians recognize that they are often dealing with illnesses
that
involve both the mind & the body.  It would seem as if you are attributing
their admission of this fact to some sort of denial instead. Incorrect.  But
commonly the same conclusion that some patients erroneously arrive at if the
doc declines to attribute the illness to physical factors alone.

This thread is in the context of MCS.  Within the context of this subject
physicians *do not* generally conceive or discuss depression*or* anxiety in
any
terms other than the psychologist's, regardless  *how* the psychologist
constructs the relationship, it is the*psychologist's* constructiona and the
psychologist's ideology.  The very own terminology employed by the author of
the medical textbook cited, who is at the pro-MCS end of the debate *within*
the mainstream, is that it is an illness with "psychological factors".

Since you mention arthritis in the context of this thread on MCS (which is a
disease its propopents argue is the result of*poisoning*), I will say that
poisons such as lead and mercury commonly causes brain symptoms *first*,
because these poisons are  emically attracted to brain tissue.  The first
stage
of these poisonings is commonly brain symptoms only.  Patients may suffer
depression or anxiety for *years* before the symptoms originating in organs
*below neck* emerge in sufficient degree to cause the patient to seek care.
So
the depression in these cases does *not* follow arthritis and the depression
is
not something "psychological" *asdistinct* from the physical.  The
depression
is not of the"psychological" domain.  It is a physical symptom no less than
arthritis.  It is not a "component" and it is not a "factor".  It is
a*symptom*.

The problem is conceptualizing depression and anxiety as being in adifferent
category than "physical" symptoms.  This division in thought is reflected by
your own use of language and the very manner in which you discuss depression
in
relation to other symptoms.  Depression commonly bears no relation to the
other
symptoms except they both share a similar cause in some *poison* which has
attacked the brain together with other organs in the body.This
conceptualizing
is largely responsible for the opposition to these diseases by the medical
profession.>

Depression is not a *component* by "a priori" assumption.  If doctors want
to
assume the nature of the pathology in a conceptual framework and language
*originated by psychologists*, then they should seek psychology as a career
and
*not* human physiology.  If doctors want to educate us about how depression
affects human health--but *not* how mercury and lead affect affect brain and
emotional and mental health--then they should be psychologists and lecture
on
Ophrah Winfrey, but *not* manipulate the research and interpretation of MCS
research by projecting their own indoctrination onto reality.>

Depression needn't be a *component* and it needn't be a *factor *simply
because
psychologists (and physicians loyal to their ideology) insist that it be so.

I do not agree that I am arguing with myself and I do not agree we are
simply
talking about terminology.  I have a good first-hand understanding of the
disease, I have a good understanding of non-mainstream discussions of the
disease, and I have good understanding of mainstream discussions of the
disease.  Within the mainstream the depression/anxiety is presently
discussed
as being a"factor" or "component"--*not* a symptom.  Ten years ago the
depression/anxiety was discussed as being *causative*.  There has beena
gradual
shift in language as the disorder has been *grudgingly*accepted as being
somatic, but the acceptance has been gradual, in which the
depression/anxiety
has altered from being "primary" to being a "factor" or a "component".  No
this
is not simply terminology but reflects changing conceptions of the disease
as
the medical society isslowly accepting that chemical intolerance exists, but
cannot shake lose its belief system for how depression and anxiety play a
role
in these diseases.

You say that much is not understood about the disease.  Then I expect that
the
medical society which you defend *suspend* its assumptiosn about
depression/anxeity being primary *or* a "component" or "factor"in any
causative
way regarding chemical intolerance, and to cease using language which
communicates that very conception.

A neurologist who has decribed what actually happens in MCS is that the
brain
is abnormally stimulated by the chemical and an electrochemical reaction
occurs
in the brain in which the neurotoxicant glutamate is released and brain
cells
swell and the patients suffers debiliitating symptoms.  He further states
that
this process is a process of ongoing injury to brain cells, a disease of
pre-existing brain cell injury with continuing brain cell injury
uponchemical
exposures.   He reached these conclusions after studying changes in EEG
measurements in which patients were exposed tochemicals such as paint,
gasoline, perfume, lacquer, etc.  He found wildly altering EEG measurements
upon chemical exposure and found evidence of dementia in the patient in
various
areas of the brain, with brain function deteriorating upon exposure.  This
neurologist'sattempt 10 years ago to gather a scientific audience for his
findingsresearch was frustrated and obstructed while at the same time
descriptions by mainstream medical scientists and professionals of
"affective
disorders" being primary or  a causitive "factor" or"component" are accepted
without question.  I think that if one examines the *neurological*
observations
made and explanations advanced for what is happening in the brain upon
chemical
exposures, one would find the descriptions of "affective disorders" and
"somatization disorders" as being causitive "components"/"factors" to be
asinine in their utter vacuity with regard to the subject.

So I do not even agree with the primacy which is given to anxiety/depression
in
these diseases because examinations of the disease which actually have some
neurobiological depth find that anxeity/depression have little to do with
the
disease process.  It is a sideshow produced by persons who know nothing of
the
disease and are prefectly content to send both the patients and neurological
investigations into their disease into the garbage chute.  What has been
occuring has been a type of medical and sociological final solution to a
disease and its sufferers which appear to be bizarre to many uninformed.

But because the numbers of affected is so high, the culture and the  society
is
forced to make some kind of adjustments in its willingness to admit the
reality
of the disease, but because it resists explanations outside of the
intellectual
box it has been taught, it still cannot accept chemical intolerance because
it
cannot fit the emical intolerance together with the affective disorders,
because it is not willing to alter its dogma regarding how affective
disorders
present themselves with other brain symptoms in body-brain diseases.

No I'm sorry but this is not simply about terminology.

Don't kid yourselves.  If you think the debate is resolved by physicians who
like to throw around big terms like "somatization" as if they are experts on
the topic, don't kid yourselves.  Go get your Shrink's license and do the
kind
psycho babbling and psycho labelling instead of passing yourselves off as
honest scientists.  In that role, rather than as the frustrated shrinks you
presently are, you can get all the hard-ons you want writing profiles for
Abnormal Psychology journals.

By the way, I just recently spoke to a mother of an autistic child who said
her
child has "raging" chemical sensitivities.  This I think will demand some
more
inventive, delusional, and self-elevating psychobabble from frustrated
psychologists in the physicians lounge. Autistic children make good meat for
physicians contemptuous of new diseases which stretch their education.

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity
syndromes are beyond the medical education and intellect of the present
generation.  The medical textbooks which properly deal with these diseases
medically and scientifically will be written by the next generation.  The
present generation  of sci/med professionals generally will protect its
intellectual turf until it retires, and hese patients will be scoffed at,
ridiculed, marginalized etc. until fresh yound minds, which will not find
these
diseases to be strange, will give these diseases the study and respect they
deserve
Jan Drew - 29 Jun 2006 04:23 GMT
Thanks, Tim. Excellent.

> By FRED A. BERNSTEIN -
>
[quoted text clipped - 142 lines]
> said.
> http://mcstravel.resourcez.com/
 
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