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Medical Forum / Diseases and Disorders / AIDS / April 2008I am the longest survivor of HIV
I am trying to find anybody, who has been infected Longer than me. I am documented Infected on November 12,1981 going on to 27 years this year. If anybody is interested in chatting write back. >I am trying to find anybody, who has been infected Longer than me. > I am documented Infected on November 12,1981 going on to 27 years this > year. > > If anybody is interested in chatting write back. Good on you. I am 20 years positive this year. >>I am trying to find anybody, who has been infected Longer than me. >> I am documented Infected on November 12,1981 going on to 27 years this >> year. >> >> If anybody is interested in chatting write back. >Good on you. I am 20 years positive this year. Perhaps the biggest surprise isn't that you have lived with killer HIV for 20 years, plus; rather it's that the two of you survived the period when AZT was heavily prescribed.  Signature<http://www.hiv-poz.co.uk/> Moible: +447939991519 4,800 days and counting... > >>I am trying to find anybody, who has been infected Longer than me. > >> I am documented Infected on November 12,1981 going on to 27 years this [quoted text clipped - 7 lines] > for 20 years, plus; rather it's that the two of you survived the > period when AZT was heavily prescribed. which is only one reason I doubt their story >>>> I am trying to find anybody, who has been infected Longer than me. >>>> I am documented Infected on November 12,1981 going on to 27 years this [quoted text clipped - 7 lines] > > which is only one reason I doubt their story google my name youll see "Ryan Gralinski" >google my name youll see "Ryan Gralinski" This is about you? <http://www.liveleak.com/view?i=c13_1193291023&c=1>: ----- Begin Quote ----- Sep 16, 1994 [...] Ryan Gralinski's close friends know that he loves riding his bicycle, skating and spending hours playing with his home computer. He also loves watching professional hockey and is an avid fan of the New York Rangers. Yesterday Ryan Gralinski, 12, told his friends something they didn't know about him. He is infected with HIV, the virus that causes AIDS. Ryan made his announcement to his classmates at the Coventry Middle School at the start of the school day. His doctor, a nurse and one of his closest friends were on hand to answer any questions the students might have. "I was shaking at first," Ryan said later. "I just told them, 'I have HIV and I got it through a blood transfusion.' " Ryan is believed to be the first child in a Rhode Island public school to announce that he has HIV. Officials at the state Health Department and the Department of Education said he is probably not the only student with HIV. But it is nearly impossible to track because they are not required to notify anyone and state and federal confidentiality laws prohibit officials from disclosing any such information without a student's consent. A slim boy with blond hair and brown eyes, Ryan talked with newspaper reporters yesterday afternoon at the School Department administration building. He was accompanied by his parents, who said going public was strictly Ryan's decision. "I couldn't keep it a secret," Ryan, who will turn 13 in November, said succinctly. "I just want people to know that I'm not going to die soon. I'm the same person I've always been. And I don't have AIDS." Until three months ago, the Gralinskis thought they were an average family with twin boys. Their reality was shattered in June when the family received a phone call from the hospital where the boys were born and was told there was a chance that a blood transfusion Ryan received shortly after birth was contaminated. ----- End Quote ----- Signature<http://www.hiv-poz.co.uk/> Moible: +447939991519 4,803 days and counting... >> google my name youll see "Ryan Gralinski" > > This is about you? > > <http://www.liveleak.com/view?i=c13_1193291023&c=1>: Yes it is, I have alot of articles that were written about me when i was younger.. Ryan > >>>> I am trying to find anybody, who has been infected Longer than me. > >>>> I am documented Infected on November 12,1981 going on to 27 years this [quoted text clipped - 9 lines] > > google my name youll see "Ryan Gralinski" google my name you'll see "Death", but I'm sure you had a point.... > I am trying to find anybody, who has been infected Longer than me. > I am documented Infected on November 12,1981 going on to 27 years this > year. > > If anybody is interested in chatting write back. Ryan, I'm glad to here these points. Hope I may ask some questions. Did you ever take any HIV drugs? Did you ever repeat the test? Max >> I am trying to find anybody, who has been infected Longer than me. >> I am documented Infected on November 12,1981 going on to 27 years this [quoted text clipped - 8 lines] > > Max Yes i am starting meds again right now, ive been off them for 3 years. I ussual take them for a couple years and then stop for a while. Yeah i keep track of it, my last t-cell count was only like 11 or something stupid, but once i take meds they will go back up. I have been in single digits before then shot up to 400+ I have never been sick from the HIV and have pretty much always done what i wanted without letting it stop me. the sad part is, as long as ive been dealing with it, ive only just recently met a poz person to hang out with around my age. TTYL, Ryan >Yes i am starting meds again right now, ive been off them for 3 years. >I ussual take them for a couple years and then stop for a while. [...] >I have never been sick from the HIV and have pretty much always done >what i wanted without letting it stop me. What motivates you to take HIV medication? Signature<http://www.hiv-poz.co.uk/> Moible: +447939991519 4,800 days and counting... >> Yes i am starting meds again right now, ive been off them for 3 years. >> I ussual take them for a couple years and then stop for a while. [quoted text clipped - 5 lines] > > What motivates you to take HIV medication? well i just always did it, and didnt think about it and it was fine. Kinda like mind over matter. Right now im having a hard time getting back on meds, because they started making me violently sick and i just couldnt deal. Im on a few meds right now that still make me throw up every single morning of my life. I get sick in the morning from the meds at night, and i gotta wake up and take more.. it blows. I just think about the good stuff and try to make the best of the good things i have, and have done, and will do in the future. my AIm name is chevypower420, or yahoo is rispeed Ryan >> What motivates you to take HIV medication? >well i just always did it, and didnt think about it and it was fine. >Kinda like mind over matter. Right now im having a hard time getting [quoted text clipped - 4 lines] >I just think about the good stuff and try to make the best of the good >things i have, and have done, and will do in the future. Hello Ryan. Compared to you I'm an HIV teenager: I was diagnosed HIV+ just over thirteen years ago. Like you, I've never had any HIV related symptoms or illnesses. Unlike you, I've never taken any HIV medication. If you've read the messages I post here you will realise that I'm, shall we say, skeptical about HIV. To be blunt about it, I don't believe HIV causes AIDS or that HIV even exists. I was wondering why you took HIV medication when it has such a negative affect on your health. Perhaps, in some ways, I can understand your position. I haven't had a CD4 count done for almost a year; my last results were around the hundred mark. Previous to that I hadn't had my CD4 counted for several years. Of course following my results last year I was pressurised and offered bribes to take HIV drugs, but I refused them. I must admit I feel a bit left out of the whole HIV thing. A bit like being part of a football team, but not playing and watching games from the subs bench. Signature<http://www.hiv-poz.co.uk/> Moible: +447939991519 4,801 days and counting... Hi Ryan. You might like to contact Edward Lieb, he has a group called HIV_does_not_cause_Aids@yahoogroups.com I think hes been poz maybe longer than you. The real cure of course is to not get tested again, Get out of the Aids zone. Their mountain of evidence is built on nothing more than fraud and greed. In fact theres been a $50.000 reward sitting over at the aliveandwell.org site for along time now, just waiting for proof that hiv exists, I think it has to be isolated, not just a pot pouri mix of debri and chemicals LOL. -- Message posted using http://www.talkabouthealthnetwork.com/group/misc.health.aids/ More information at http://www.talkabouthealthnetwork.com/faq.html > Hi Ryan. You might like to contact Edward Lieb, he has a group called > HIV_does_not_cause_Aids@yahoogroups.com [quoted text clipped - 11 lines] > Message posted using http://www.talkabouthealthnetwork.com/group/misc.health.aids/ > More information at http://www.talkabouthealthnetwork.com/faq.html Thanks for the info. I havent been on meds in 3 years, im not sure what to do lifes just so damm hard. >> Hi Ryan. You might like to contact Edward Lieb, he has a group called >> HIV_does_not_cause_Aids@yahoogroups.com >> I think hes been poz maybe longer than you. >Thanks for the info. I havent been on meds in 3 years, im not sure what >to do lifes just so damm hard. Why's life so hard for you? Signature<http://www.hiv-poz.co.uk/> Moible: +447939991519 4,803 days and counting... >>> Hi Ryan. You might like to contact Edward Lieb, he has a group called >>> HIV_does_not_cause_Aids@yahoogroups.com [quoted text clipped - 4 lines] > > Why's life so hard for you? Just so full of hard decisions......Take medicine, dont take medicine.... I realize the medication has hurt me far more then then virus... Other crap too... but mostly that. Ryan >>>> Hi Ryan. You might like to contact Edward Lieb, he has a group called >>>> HIV_does_not_cause_Aids@yahoogroups.com [quoted text clipped - 10 lines] > > Ryan And yet you have survived, Ryan, and for so long. There is never anything that someone like me can say to an HIV+ person that can help them feel better. However, your and Martin's very survival, your courage under such trying and hard conditions, speaks volumes to many who are coping with the overhanging cloud, some of whom might be right on the edge of giving up. If you're not already doing so, you both ought to consider reaching as many people as you can, maybe writing a paper or a book. Coping can be made to appear very easy, but it never really is an easy task. Some would say, "You must be doing *some- thing* right!" and others might just think you are both very "lucky". And I say, "Who cares!" Your long survival, whether seeming trivial or magnificent, is enough to present others with hope. And I for one hope you both live long and high-quality-filled lives! SignatureSincerely yours, Scotty P.S. http://scotty.secretsgolden.com > I am trying to find anybody, who has been infected Longer than me. > I am documented Infected on November 12,1981 going on to 27 years this > year. > > If anybody is interested in chatting write back. Hi! I think you are alive for the reason that hiv is not the cause of aids. what do you think about that? How long someone has ver lived with HIV withouth any medicine and illnes? do you know? I am wondering... >> I am trying to find anybody, who has been infected Longer than me. >> I am documented Infected on November 12,1981 going on to 27 years this [quoted text clipped - 4 lines] > Hi! I think you are alive for the reason that hiv is not the cause of > aids. That is a bold statement so I feel at liberty to ask, what does cause AIDS? > what do you think about that? Not much really. > How long someone has ver lived with HIV withouth any medicine and > illnes? do you know? > I am wondering... So you do believe in the HIVirus ? Why would you not believe HIV+ an OI is AIDS? |
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