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Medical Forum / Diseases and Disorders / AIDS / June 2005Symptoms?
Hi there, My doctors think I have Lupus however it's not confirmed yet. I did some research and found that Lupus and aids used to be often confused with eachother. I haven't been tested for HIV and I'm wondering if infact I do have any of the symptoms. Just in case. I'm always tired!! I've always had Low WBC, ANA Antibodies, C3 and C4 are low. When I get sick I can never get better, I'll have a cold for months! I have chronic hives from exercise. I'm always weak, very fragile, small bones and thin. Very irregular menstrual cycles, if any. Night sweats, maybe that means fever. I faint easily, usually because of low blood pressure and exhaustion, as I'm always exhausted. Should I be worried or is this completely off?? Thank u, Jacquie > Hi there, My doctors think I have Lupus however it's not confirmed yet. > I did some research and found that Lupus and aids used to be often > confused with eachother. I haven't been tested for HIV sometimes just verbalizing/expressing an issue will suggest the solution. if you have concerns, and reasons to have concerns, then get tested. if you're in one of the risk categories, then you should be getting tested regularly anyway. b/ Hi, Thanks Brian, I'm not at risk really and I dont expect anyone to diagnose me online (as per the email Larry sent me). However I'm just curious as to the symptoms. I like to do my own research before discussing anything with any doctor so I can make suggestions. Doctors don't know everything and sometimes aren't open to listen. I was the one that suggest it could be Lupus and the doctor agrees with me however it's been 4 months and still not confirmed, they didn't even think to test me for it until I brought up the research! So I only wondered if it is at all possible according to my symptoms. Thank u, Jacquie This is a much different situation than your original post suggested. Lots of folks post in misc.health.aids who clearly want someone to diagnose all sorts of ailments based on whatever descriptions they give, and it is pretty clear that most of them aren't going to even talk about the issues with their health care providers. (I guess the anonymity of the the Net allows them to confess things they would not ever discuss with their health care providers because they don't want the providers to judge them because of their activities, etc.) > Hi, Thanks Brian, I'm not at risk really and I dont expect anyone to > diagnose me online (as per the email Larry sent me). However I'm just [quoted text clipped - 6 lines] > So I only wondered if it is at all possible according to my symptoms. > Thank u, Jacquie  SignatureLarry D. Farrell, Ph.D. Professor of Microbiology Idaho State University oke, i see you do some research on your own! mostly i do that too! have you ever looked at alternative treatments! most of those 'alternative' clinics have a whole body check up! from there you can deside what to do! > Hi, Thanks Brian, I'm not at risk really so you're at risk unreally/ hmmmm.... and I dont expect anyone to > diagnose me online (as per the email Larry sent me). However I'm just > curious as to the symptoms. I like to do my own research before > discussing anything with any doctor so I can make suggestions. that's a bit different than your first message, but yeah, in general that's a good idea. doctors like educated patients. well... a disgnosis is actually a shortened term for the more accurate 'differential diagnosis.' just saying 'night sweats, fever, low wbc,' ... could be any one of a number of things, some more major than others. any -good- doctor will listen, they have to in order to come up with an accurate differential diagnosis--they have to rule out this that and the other, consider possibilities, etc. you do say a 'low cd4' so that to me would indicate testing for hiv would be advisable. if nothing else, to rule it out. b/ Thanks Brian, I made an appointment I will discuss everything I found on here with her. I found a good doctor but she's new to Canada, doesn't have good english and always goes to her big medical book for answers and suggestions so I found doing my own research will help her. Small sacrafice, 10 other doctors I saw didn't have time to research. Sometimes I wished we had privatized doctors here like the United States. I gotta get to the bottom of this. Thanks, Jacquie > Thanks Brian, I made an appointment I will discuss everything I found > on here with her. I found a good doctor but she's new to Canada, > doesn't have good english and always goes to her big medical book for > answers and suggestions so I found doing my own research will help her. well... not so much 'helping her' but helping her to help you. it's a team work. canada, huh... are you near forested/woody-bushy/overgrown areas/ you may wish to research 'lyme disease' as well. see what i mean about 'differential diagnosis'--it's not so cut-and-dried, that 'this, this and this' means x; it's that it narrows it down to x, y, z. > Small sacrafice, 10 other doctors I saw didn't have time to research. > Sometimes I wished we had privatized doctors here like the United > States. well, we wish we had single-payer like you. > I gotta get to the bottom of this. good luck. b/ > canada, huh... are you near forested/woody-bushy/overgrown areas/ you > may wish to research 'lyme disease' as well. > > see what i mean about 'differential diagnosis'--it's not so > cut-and-dried, that 'this, this and this' means x; it's that it narrows > it down to x, y, z. > good luck. > > b/ Thanks Brian, I had considered Lyme disease but the research seemed to rule that one out. I'm going for HIV Testing next Thursday. Thank u very much for your input. Jacquie wow! dont worrie about lupus, worrie about the rest! whats the reason , that you are so often sick! any explanation by docters. whats your 'medical' background! do yu use meds,did you have sugery...etc. Yes I just want to get down to the problem, I don't take any meds at all, And I don't want to until I find out the problem behind everything or else I could make it worse. No surgery, no problems previously, no family health problems. Just me. The doctors had no explaination of my being sick for so long - they always said it was because my WBC was so low likely. So I started taking Echanacia however I'm still always sick! I've been fighting this fatigue for a few years and finally I suggested to test for Lupus becaues I know the symptoms, however doing research I found Lupus is mistaken for HIV sometimes so I just thought I'd explore possibilities. Thanks, Jacquie |
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